HonCode

Go Back   HER2 Support Group Forums > Caregivers Corner
Register Gallery FAQ Members List Calendar Search Today's Posts Mark Forums Read

Caregivers Corner Dedicated to those who support their loved ones.

Reply
 
Thread Tools Display Modes
Old 01-05-2015, 05:57 PM   #1
cjjhero
Member
 
Join Date: Feb 2014
Posts: 15
Negative doctor

My sister has stage 2 HER2+estrogen/progesterone negative breast cancer. The tumor was about the size of a walnut when first diagnosed and discovered. There is no lymph node involvement.

Her treatment plan by her main oncologist was TCH 6 rounds, herceptin for 1 year every 3 weeks and a double mastectomy and 1 lymph node removed. No further treatment. Her mri/CT scan was negative.

Her presurgery breast doctor appointment revealed that the tumor was completely gone. Her oncologist then did a clinical breast exam revealed no presence of a tumor. She had a very bad fungal infection on her one breast and surgery had to be delayed until it was cleared completely. The rash didn't heal up until late December. The oncologist gave the go ahead for surgery but wants an heart echo and one last herceptin treatment prior to surgery which delays it until February sometime.

I called the nurse scheduler for the breast surgeon and she was very negative. Every time I speak to the nurse she says that we should have done this and that belittles me. (My sister is mentally handicapped and I schedule her appointments for her). I have medical training and was a nurse aide for over 15 years. I am going by the oncologist's recommendations. He didn't allow her to have the surgery until her rash was healed. He's a very positive and says my sister's prognosis is excellent. How do you deal with a negative medical personnel and doctor?
cjjhero is offline   Reply With Quote
Old 01-05-2015, 06:20 PM   #2
Lucy
Senior Member
 
Join Date: Oct 2014
Posts: 243
Re: Negative doctor

If I like the doctor I will continue to go there, even if I don't like their staff because the staff is not the one actually treating me. I went to the same doctor for 15+ years when I didn't care for the staff. I would just ignore the scheduler beyond the date and time of the appointment she's scheduling for you.

If there's a problem with the doctor, I would look for a new doctor because they are the one treating you.

Good luck.
Lucy is offline   Reply With Quote
Old 01-06-2015, 08:32 AM   #3
snolan
Senior Member
 
Join Date: May 2011
Location: El Paso ,Tx
Posts: 436
Re: Negative doctor

I would mention it to either the Dr or the office manager. How well you're treated could make the difference in you referring someone else there. This may be an ongoing problem that other people have complained about and get that person fired or at least start them looking at it.
__________________
dx: DCIS 6/8/10, HER 2+ 7/26/10; Stage I Age 41
Double mast w reconstruction
6 TCH w 1yr herceptin
Tamox.
25 radiation tx
Removal of expander on L due to infection. Tried to save it had 3 bouts of antibiotics and went to see plastic surgeon 2-3x wk to get drained. Saving it was my idea not his. But lost it anyway.
Reconstruction set for December 21st,2011
Finished chemo 12/2010
Finished Herceptin 8/26/11
Reconstruction 12/21/11
Expanders exchanged for silicon 3/19/12
Nipple reconstruction 5/18/12
Nipple tatooing- 7/9/12- All done yay!
11/22/12-Went back to get scar tissue stretched to even the outside of breast, didn't work due to it being radiated skin.
snolan is offline   Reply With Quote
Old 01-08-2015, 11:25 AM   #4
Jackie07
Senior Member
 
Jackie07's Avatar
 
Join Date: Jan 2008
Location: "Love never fails."
Posts: 5,801
Re: Negative doctor

Have you contacted the surgeon's office? Are we talking about the nurse of the (medical) oncologist (= chemotherapy doctor) or the (surgical) oncologist (= surgeon)

In a general hospital there's usually a special team comprised of the oncologist, the surgeon, the nurse practitioner, the social worker, ... etc. There's usually a person who coordinates the whole scheduling stuff. Please find out if there's such team available in your sister's hospital. Otherwise, stay in close contact with the oncology nurse. They are usually very busy and under a lot of stress (don't we all?), but they will get things done right.
__________________
Jackie07
http://www.kevinmd.com/blog/2011/06/doctors-letter-patient-newly-diagnosed-cancer.html
http://www.asco.org/ASCOv2/MultiMedi...=114&trackID=2

NICU 4.4 LB
Erythema Nodosum 85
Life-long Central Neurocytoma 4x5x6.5 cm 23 hrs 62090 semi-coma 10 d PT OT ST 30 d
3 Infertility tmts 99 > 3 u. fibroids > Pills
CN 3 GKRS 52301
IDC 1.2 cm Her2 +++ ER 5% R. Lmptmy SLNB+1 71703 6 FEC 33 R Tamoxifen
Recc IIB 2.5 cm Bi-L Mast 61407 2/9 nds PET
6 TCH Cellulitis - Lymphedema - compression sleeve & glove
H w x 4 MUGA 51 D, J 49 M
Diastasis recti
Tamoxifen B. scan
Irrtbl bowel 1'09
Colonoscopy 313
BRCA1 V1247I
hptc hemangioma
Vertigo
GI - > yogurt
hysterectomy/oophorectomy 011410
Exemestane 25 mg tab 102912 ~ 101016 stopped due to r. hip/l.thigh pain after long walk
DEXA 1/13
1-2016 lesions in liver largest 9mm & 1.3 cm onco. says not cancer.
3-11 Appendectomy - visually O.K., a lot of puss. Final path result - not cancer.
Start Vitamin D3 and Calcium supplement (600mg x2)
10-10 Stopped Exemestane due to r. hip/l.thigh pain OKed by Onco 11-08-2016

"I WANT TO BE AN OUTRAGEOUS OLD WOMAN WHO NEVER GETS CALLED AN OLD LADY. I WANT TO GET SHARP EDGED & EARTH COLORED, TILL I FADE AWAY FROM PURE JOY." Irene from Tampa

Advocacy is a passion .. not a pastime - Joe

Last edited by Jackie07; 01-08-2015 at 12:16 PM..
Jackie07 is offline   Reply With Quote
Old 01-08-2015, 01:11 PM   #5
IrvineFriend
Senior Member
 
IrvineFriend's Avatar
 
Join Date: Jan 2013
Location: Irvine, CA (Southern CA)
Posts: 414
Re: Negative doctor

In my cancer journey, I have come to really understand that the staff are a good indicator /representation of the physician. My first onc was horrible, staff did their makeup while I stood there waiting to check out. So glad I went with a different doctor.
__________________
Julie
Live in Orange County, CA

Diagnosed with DCIS Oct. 2012

Bilateral Dec. 19, 2012
IDC, ER/PR-, Her2+++, Grade 3
Stage IIIa
15.6 cm
4/14 nodes + macrometastases
First thing each morning, I try on my bathing suit. Then, nothing worse can happen the rest of the day.
IrvineFriend is offline   Reply With Quote
Old 01-16-2015, 10:26 AM   #6
lkc Gumby
Senior Member
 
lkc Gumby's Avatar
 
Join Date: Feb 2006
Posts: 429
Re: Negative doctor

Hi there . I am sorry that you have had to deal with this. I understand you were following the Onc recommendations.
I am a nurse and have worked for both Medical Oncologists and Surgeons.
The simple fact is Medical Oncs follow Medical Tx and Surgeons do surgery. There is often time a dispute even between Drs.
However it is never acceptable for a surgical nurse to give her opinion over a Med Onc. recommendations. Worse to belittle the caregiver and make her question the decisions she has made. Terrible. I've seen this behaviour.
The bottom line is you sister has received excellent care and it sounds like she had a full pathological response from the Chemo, which is fabulous. Focus on that and rest assured when she is medically cleared, that is when she should have her surgery.
Best wishes dear!
__________________
Linda

Dxed Stage IIIC May 05, 12 pos nodes
er/pr -neg,Her -pos
LVI
Right partial mast & partial axillary dissection-June14,2005
Right modified mast-no clear margins- June 30, 2005
DD AC x4
Taxotere X4 with Herceptin
Rads x 35( 5 fields )
Left prophylactive mast( atypia & hyperplasia found ),
put on Tamoxifen x 1 yr; D/ced due to endometrial thickening
bilateral recon (saline implants)May 06
Nipple recon July 06
metformin 2010
removal of implants due to severe encapsulation, insertion of gummies 2013
Reclast Q yr
NED!!!
lkc Gumby is offline   Reply With Quote
Reply

Thread Tools
Display Modes

Posting Rules
You may not post new threads
You may not post replies
You may not post attachments
You may not edit your posts

BB code is On
Smilies are On
[IMG] code is On
HTML code is Off

Forum Jump


All times are GMT -7. The time now is 09:45 AM.


Powered by vBulletin® Version 3.8.7
Copyright ©2000 - 2018, vBulletin Solutions, Inc.
Copyright HER2 Support Group 2007
free webpage hit counter