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Old 08-30-2007, 08:06 PM   #1
tousled1
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Question Low Platlet Count

In addition to my Hemoglobin dropping (9.6 today) my platlet count has started to drop the last few weeks. Today my platlet count was 96 (last week it was 112) so now that it's lower than 100 they will watch very closely -- no need for alarm yet I was told. I was wondering if anybody here on the board has had trouble with their platlet count dropping and what you did for it. Thanks.
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Kate
Stage IIIC Diagnosed Oct 25, 2005 (age 58)
ER/PR-, HER2+++, grade 3, Ploidy/DNA index: Aneuploid/1.61, S-phase: 24.2%
Neoadjunct chemo: 4 A/C; 4 Taxatore
Bilateral mastectomy June 8, 2006
14 of 26 nodes positive
Herceptin June 22, 2006 - April 20, 2007
Radiation (X35) July 24-September 11, 2006
BRCA1/BRCA2 negative
Stage IV lung mets July 13, 2007 - TCH
Single brain met - August 6, 2007 -CyberKnife
Oct 2007 - clear brain MRI and lung mets shrinking.
March 2008 lung met progression, brain still clear - begin Tykerb/Xeloda/Ixempra
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Old 08-30-2007, 08:50 PM   #2
Melinda
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Hi Kate
While I was on TCH my plateset ( I call them the fellas) dropped for round 5 and 6. The first time, 93 they had me hold treatment for a2 days and they rebounded to 103. The second time however they bottoomed to 31. THe only thing they advised is to hold off treatment for 5 days. Again after 5 days the fellas rebounded. Of course avoid running with scizzors and bruising. My Onc nurse told me to watch for little purple rash type spots on my arm and legs.... this would not be a good sign and I should call them. Fortunately they did not appear. I choose to eat better during this time and if I could attribute the rebound to anything but natural body chemistry it swould be the diet I was on, high in protein.
Melinda
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DX BC 12/06
tumor .9
Lumpectomy 1/8
Mammosite radiation completed 2/10
Stage1/Grade 1
clear Margins /Nodes Neg
ER+
IHC +2 Fish +
ONCO 23
Started TCH on 3/2 for 6 rounds of TC once every three weels and a year of Herceptin every 3 weeks -
Finished everything and now on Aromasin
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Old 08-31-2007, 12:23 AM   #3
Chelee
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Hi Kate, My platelets dropped around cycle 5 I believe. Took a major dive. I bottomed out at 30 which they did NOT like. I was suppose to have a transfusion but instead they gave me some crap called Neumega. When I got online and read about it I didn't like what I read and refused to take anymore of these shots. Plus I asked on this board about Neumega and no one knew about it...that really concerned me especially since I don't trust my onc.

So I was told to be VERY careful and don't bump into things and tell them if I have headaches, or any brusing ect. I was told to eat really well. High in protein. I was NOT hungry on TCH. Food = YUCK. LOL But I did my best to eat nothing but protein and it didn't take long and my platelets *slowly* started going up. I was trying to avoid the transfusion and I did. So hang in there. They might make you postpone one week to see if your platelets go up before they give you your next cycle of TCH. Keeping you in my thoughts and prayers...hang in there.

Chelee
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DX: 12-20-05 - Stage IIIA, Her2/Neu, 3+++,Er & Pr weakly positive, 5 of 16 pos nodes.
Rt. MRM on 1-3-06 -- No Rads due to compromised lungs.
Chemo started 2-7-06 -- TCH - - Finished 6-12-06
Finished yr of wkly herceptin 3-19-07
3-15-07 Lt side prophylactic simple mastectomy. -- Ooph 4-05-07
9-21-09 PET/CT "Recurrence" to Rt. axllia, Rt. femur, ilium. Possible Sacrum & liver? Now stage IV.
9-28-09 Loading dose of Herceptin & started Zometa
9-29-09 Power Port Placement
10-24-09 Mass 6.4 x 4.7 cm on Rt. femur head.
11-19-09 RT. Femur surgery - Rod placed
12-7-09 Navelbine added to Herceptin/Zometa.
3-23-10 Ten days of rads to RT femur. Completed.
4-05-10 Quit Navelbine--Herceptin/Zometa alone.
5-4-10 Appt. with Dr. Slamon to see what is next? Waiting on FISH results from femur biopsy.
Results to FISH was unsuccessful--this happens less then 2% of the time.
7-7-10 Recurrence to RT axilla again. Back to UCLA for options.
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Old 08-31-2007, 07:06 AM   #4
Becky
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Dear Kate

Magnesium helps rebound the platelets. Take a 250mg supplement (but not at the same time as calcium) or eat your greens (spinach, kale romaine, chard etc).

Eat protein too.

Love,
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Kind regards

Becky

Found lump via BSE
Diagnosed 8/04 at age 45
1.9cm tumor, ER+PR-, Her2 3+(rt side)
2 micromets to sentinel node
Stage 2A
left 3mm DCIS - low grade ER+PR+Her2 neg
lumpectomies 9/7/04
4DD AC followed by 4 DD taxol
Used Leukine instead of Neulasta
35 rads on right side only
4/05 started Tamoxifen
Started Herceptin 4 months after last Taxol due to
trial results and 2005 ASCO meeting & recommendations
Oophorectomy 8/05
Started Arimidex 9/05
Finished Herceptin (16 months) 9/06
Arimidex Only
Prolia every 6 months for osteopenia

NED 18 years!

Said Christopher Robin to Pooh: "You must remember this: You're braver than you believe and stronger than you seem and smarter than you think"
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