Herceptin as monotherapy - no chemo

[Nana2three]

Thanks kklee. I've had 2 herceptin infusions. No chemo and haven't started the arimidex yet. So far no problems other than aggravated MS symptoms since they stopped all MS meds since they do not know if they can be taken with herceptin. No data available on interactions. Blessings to you.

[Lani]

Interestingly, herceptin has been found to help remyelinization in leprosy (yes, leprosy!)

I would be curious to know if your MS improved if you took herceptin monotherapy (ie, without cytotoxic chemotherapy, many of which are neurotoxic)

Can anyone else chime in?

[Lani]

curious also to discover how your MS does on the arimidex

Estrogen (as well as progesterone) are reportedly very important in the central nervous system. MS reported improves during pregnancy (more hormones) so am curious if depriving your CNS of estrogen will affect your MS.

Sorry to sound so scientific and unfeeling (scaring you that this may be the effect), but hoped you could be alert and report back so we could hopefully assure others who might take the same treatment whether it agreed with you.