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Old 02-29-2008, 12:38 PM   #1
HavahJ
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Question about chemo side effect

I'm on navelbine, xeloda/ herceptin. My stomach is getting bigger, but I'm not gaining weight! I took a diuretic, but it's still big. Anyone have familiar effect or know what it is? It can't be cancer yet; I just had scans! Thank you HavahJ
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Old 02-29-2008, 02:49 PM   #2
kcherub
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Havah,

Do you have to take steriods with this combo?

Take care,
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Diagnosed 3/29/2007 @ age 34
Stage 1, Node Neg. (SNB), Grade 2, 1.4 cm. IDC
ER/PR 90%+ HER2 +
6 TCH started 5/25/2007, ended after #5 due to steroid "reactions" and neuropathy in feet and hands
BUT--#6 CH w/o Taxotere
Begin Herceptin alone 9/28/2007
30 rads completed 12/19/2007
Finish Herceptin 5/9/2008
Stopped Tamoxifen early--HATED it.
Married 17 years
13-year old son
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Old 02-29-2008, 03:22 PM   #3
StephN
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Hi Jan -
I had the same thing happen. It was due to swelling of my liver within its capsule. My med onc measured the lobes of my liver (from the outside as he could feel them) and told me that often happens.

My waistband got tighter and I had to use rubber bands through the button holes and around the button to give myself some slack. My wieght also did not change very much.

I did have to take a small amount of steroid with my treatment (only on the day of treatment), but since there was a worldwide shortage of Decadron at that time, my doc agreed to halve the usual dose for me, since I did not have bad side effects.

Keep asking your questions and we will try to help you through this episode.
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"When I hear music, I fear no danger. I am invulnerable. I see no foe. I am related to the earliest times, and to the latest." H.D. Thoreau
Live in the moment.

MY STORY SO FAR ~~~~
Found suspicious lump 9/2000
Lumpectomy, then node dissection and port placement
Stage IIB, 8 pos nodes of 18, Grade 3, ER & PR -
Adriamycin 12 weekly, taxotere 4 rounds
36 rads - very little burning
3 mos after rads liver full of tumors, Stage IV Jan 2002, one spot on sternum
Weekly Taxol, Navelbine, Herceptin for 27 rounds to NED!
2003 & 2004 no active disease - 3 weekly Herceptin + Zometa
Jan 2005 two mets to brain - Gamma Knife on Jan 18
All clear until treated cerebellum spot showing activity on Jan 2006 brain MRI & brain PET
Brain surgery on Feb 9, 2006 - no cancer, 100% radiation necrosis - tumor was still dying
Continue as NED while on Herceptin & quarterly Zometa
Fall-2006 - off Zometa - watching one small brain spot (scar?)
2007 - spot/scar in brain stable - finished anticoagulation therapy for clot along my port-a-catheter - 3 angioplasties to unblock vena cava
2008 - Brain and body still NED! Port removed and scans in Dec.
Dec 2008 - stop Herceptin - Vaccine Trial at U of W begun in Oct. of 2011
STILL NED everywhere in Feb 2014 - on wing & prayer
7/14 - Started twice yearly Zometa for my bones
Jan. 2015 checkup still shows NED
2015 Neuropathy in feet - otherwise all OK - still NED.
Same news for 2016 and all of 2017.
Nov of 2017 - had small skin cancer removed from my face. Will have Zometa end of Jan. 2018.
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Old 02-29-2008, 09:43 PM   #4
Bev
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I was thinking liver too, check for Hep C etc. Bev
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