HonCode

Go Back   HER2 Support Group Forums > her2group
Register Gallery FAQ Members List Calendar Today's Posts

Reply
 
Thread Tools Display Modes
Old 11-21-2007, 08:03 AM   #1
Mary Jo
Senior Member
 
Mary Jo's Avatar
 
Join Date: Aug 2006
Location: Sheboygan, WI
Posts: 2,582
So long for now................................

I will be taking a bit of a reprieve from her2support. The site has become wayyyyyyy more than I can tolerate and before I say things that I will regret I have decided to take a break from here. I know I will check in to read about my "sisters" (can't help it....as I love you) but I can no longer be an active member of site that isn't so much about support anymore but about self healing through positive attitude. ABSOLUTE HOGWASH!!!!!!!!!!!!!!!!!!!!!!!!!!!!!

For all my sisters out their who believe they are somewhat at fault for the "situation" they are in as far as illness or progression of their illness goes TAKE HEART. It has nothing at all to do with you. ABSOLUTELY NOTHING!

You all know where I stand. I know I don't have to go into any explanations. Life is good...........life can be unfair................our attitudes help us along our journey...................but ultimately God is in control and when it's our time to return to Him we will return to Him.

I'll never forget my dear mom, who died of pancreas cancer at age 47. She suffered incredibly........................she fought the fight..............prayed her heart out................................stayed focused and positive......................................BUT she is now at Home with her Lord. You see!!!!!!!!!!!!!!! She was healed. Our ultimate Healing. We will all be healed. Eventually. Whether earthly or Heavenly. It will come.

So all this hogwash on "it's all about you" - don't beat yourselves up those of you who are bothered by this thinking. You're all fighting couragesly and I salute you. Keep up the fight - stay strong - find the blessings in your journey.

Love to all............................................and Peace!!!!!!!!!!!!!!

Mary Jo
__________________
"Be still and know that I am God." Psalm 46:10

Dx. 6/24/05 age 45 Right Breast IDC
ER/PR. Neg., - Her2+++
RB Mast. - 7/28/05 - 4 cm. tumor
Margins clear - 1 microscopic cell 1 sent. node
No Vasucular Invasion
4 DD A/C - 4 DD Taxol & Herceptin
1 full year of Herceptin received every 3 weeks
28 rads
prophylactic Mast. 3/2/06

17 Years NED

<>< Romans 8:28
Mary Jo is offline   Reply With Quote
Old 11-21-2007, 08:20 AM   #2
Brenda_D
Senior Member
 
Join Date: Jan 2007
Posts: 368
Marejo, I learned long ago that all forums have some type of disputes and I've really been both flabbergasted to see BC survivors fighting amongst themselves, and pulling together because we all fighting a common enemy.
I've been real impressed with this group because of the lack of in-fighting and the amount of support.
I've quit posting in a some groups because they were squabbling and while trying not to die, I have changed my way of thinking and decided I don't want to be around negative stuff, if I can help it.
I don't agree with every idea that's here, or elsewhere, but I also think that if something works for one person, then I'm fine with that.
I haven't posted in that thread, and I'm not taking sides at all. I only know that you are needed on this forum and I hope you don't leave for long.
Brenda_D is offline   Reply With Quote
Old 11-21-2007, 08:27 AM   #3
PinkGirl
Senior Member
 
PinkGirl's Avatar
 
Join Date: Jul 2007
Location: Canada
Posts: 2,193
Talking sorry

I am sorry marejo, that I am going to use your thread to further comment on how I feel about Andi's treatment. I have no choice - I said I wouldn't post again on the other thread, and I'm a girl of my word

I don't see it the way you do. I have a HUGE problem with the way Andi was viciously attacked for stating HER beliefs. I don't agree with everything Andi says, but I respect her right to say it. I also respect the rights of those opposed to her views.

Andi was attacked, hurtfully. No one was ever asked to apologize for their views and beliefs. With or without scientific studies to back her up, Andi's Truth is her Truth. Andi's attackers went for her jugular - downright meanness and hostility. There were more attacks on Andi's character than on her message. Although some came to her defense (not of her beliefs, but to the way she was being viciously attacked), most remained silent. This is a Board full of intelligent, polite discourse, a lot of humour and some confrontation. Andi's attackers went too far and not enough of us stood up for ourselves and for what we want this Board to be for us.

BAD THINGS HAPPEN WHEN GOOD PEOPLE DO NOTHING.

HE WHO ALLOWS OPPRESSION SHARES THE CRIME

IF YOU'RE NOT PART OF THE SOLUTION, YOU ARE PART OF THE PROBLEM.


I am NOT referring to Andi's views and beliefs. I am referring to the horrible way she was treated.

This AM, Believe posted her thanks for this unbreakable, unconditional bond of friendship. Marejo has posted about the HOGWASH of self healing through positive attitude and is taking a vacation from the Board. What's happening to us????? Chrisy.......have you figured out a way to wiggle through the www and put us in "time-out". This is crazy.......
__________________
PinkGirl

Dx Aug/05 at age 51
2cm. Stage 2A, Grade 3
ER+/PR-
Her2 +++

Sept 7/05 Mastectomy
4 FAC, 4 Taxol, no radiation
1 year of Herceptin
Tamoxifen for approx. 4 months,
Arimidex for 5 years
Prophylactic mastectomy June 22/09



" I yam what I yam." - Popeye

My Photo Album
PinkGirl is offline   Reply With Quote
Old 11-21-2007, 08:31 AM   #4
Believe51
Senior Member
 
Believe51's Avatar
 
Join Date: Jun 2007
Location: RHODE ISLAND (Ed getting me a latte on 2nd Cancerversary Cruise 2008) 'BELIEVE': To accept as true or real, To have faith in, To presume ALWAYS BELIEVE
Posts: 2,999
My Dear Please Do Not Go For Long...

This post has to be the saddest one I have read in a while, my heart breaks and tears actually flowed. I totally understand how you must be feeling but I feel like I lost my cat!! I ask you to please to keep in touch from time to time so we do not have withdrawals. I have grown to love you so much and will continue to pray and send love your way. If you get a chance Sweetie please private e-mail me with your address so I may keep in touch: if you feel comfortable giving that to me. I want to thank you for helping us on our way and again I plead: Please do not leave us for long. Sending Love and Prayers today and always. Thank you for this glorious friendship, I appreciate your love>>Wiping tears again>>Believe51
__________________
9/7/06Husband 50yrs=StageIV IBC/HER2+,BoneMets10/06TaxotereX10,'H'1X wk,Zometa,Tamoxifen4/12/07Last Tax5/18/07Pet=Rapid Cell Activity,No Organ Mets,Lytic Lesions,Degeneration,Some Bone Repair5/07ChemoFail6/01/07Pleural Thoracentisis=Effusions,NoMalignantCells6/19/07+7/2/07DFCI
6/25/07BrainMRI=BrainMets,Many<9mm7/10/07WBR/PelvisRad37.5Gx15&Nutritionist8/19/07T/X9/20/07BrainMRI=2<2mm10/6/07Pet=BoneProgression
10/24/07ChemoFail11/9/07A/Cx10,EndTam12/7/07Faslodex12/10/07Muga7512/13/07BlasticLesions1/7/08BrainMRI=Clear4/1/08Pet=BoneImprovement,
NoProgression,Stable4/7/08BrainPerfect5/16/08Last A/C8/26/08BrainMets=10(<9mm)9/10/08Gamma10/30/08Met=5mm12/19/08Gamma5mets5
12/22/08SpinalMets1/14/09SpinalRads2/17/09BrainMRI=NoNewMets4/20/09BoneScan5/14/09Ixempra6/1/09BrainMRI=NumerousMets6/24/09DFCIw/DrBurstein6/26/09Continue
Ixempra/Faslodex/Zometa~TM now lower7/17/09Stop Ixempra By Choice9/21/09HOSPICE10/16/09Earned His Deserved Wings And Halo=37 Month Fight w/Stage 4 IBC, Her2+++,My Hero!!
Believe51 is offline   Reply With Quote
Old 11-21-2007, 08:58 AM   #5
Gerri
Senior Member
 
Gerri's Avatar
 
Join Date: Oct 2006
Location: Southern California
Posts: 900
Mary Jo,

I will miss your postive posts. I can completely relate to your feelings and views. I hope that the someday soon the true intent of this board will find its way back.

From the Home page:

Philosophy
Through a team effort this unique support group seeks to promote education by maximizing the utilization of available resources. We promise to assist members by supporting their concerns and providing links to news and current research. ---Christinie H Druther MSPH, founder

Thank you for all you have contributed. I wish you well.

Fondly,
__________________
Gerri
Dx: 11/23/05, Lumpectomy 12/12/05
Tumor 2.2 cm, Stage II, Grade 3, Sentinel Node biopsy negative
ER+ (30%) /PR+ (50%), HER2+++
AC X 4 dose dense, Taxol X 4 dose dense
Herceptin started with 2nd Taxol, given weekly until chemo done
then given every 3 weeks for one year ending on March 16, 2007
Radiation 30 treatments
Tamoxifen - 2 yrs (pre-menopausal)
May 2008 - Feb 2012 Femara
Aug 2008 - Feb 2012 Zometa every 6 months
March 2012 - Stop Femara, now Evista for bone strengthening
**********
Enjoy the little things, for one day you may look
back and realize they were the big things.
- Robert Brault
Gerri is offline   Reply With Quote
Old 11-21-2007, 08:59 AM   #6
Vi Schorpp
Senior Member
 
Join Date: Sep 2005
Location: OH
Posts: 385
PinkGirl

I am reminded of:

This is MY way, what is YOUR way, THE way does not exist! I wish I could remember the philosopher who espoused this and give him credit. Of course I've rephrased it.
Vi Schorpp is offline   Reply With Quote
Old 11-21-2007, 09:43 AM   #7
PinkGirl
Senior Member
 
PinkGirl's Avatar
 
Join Date: Jul 2007
Location: Canada
Posts: 2,193
Wink the quote

Hi Vi

You have your way. I have my way. As for the right way, the correct way, and the only way, it does not exist.

Friedrich Nietzsche
__________________
PinkGirl

Dx Aug/05 at age 51
2cm. Stage 2A, Grade 3
ER+/PR-
Her2 +++

Sept 7/05 Mastectomy
4 FAC, 4 Taxol, no radiation
1 year of Herceptin
Tamoxifen for approx. 4 months,
Arimidex for 5 years
Prophylactic mastectomy June 22/09



" I yam what I yam." - Popeye

My Photo Album
PinkGirl is offline   Reply With Quote
Old 11-21-2007, 09:56 AM   #8
Vi Schorpp
Senior Member
 
Join Date: Sep 2005
Location: OH
Posts: 385
Thanks Pinkgirl...

That's the one!
Vi Schorpp is offline   Reply With Quote
Old 11-21-2007, 11:48 AM   #9
Leslie's sister
Senior Member
 
Join Date: Aug 2006
Location: So California
Posts: 223
Sad Day

Hey guys. It is a sad, sad, day when we lose a member with the amount of genuine love and caring that Mary Jo has in her heart. She reached out to my sister and I over a year ago with such strong, loving words. Words that carried my sister and I through those first nightmare months. My sister still can’t bring herself to read this board (because of the intense sadness she feels when reading about those that have progression). But she can and does routinely email Mary Jo who has been her rock through this whole thing. This is a support board, not a board to promote our philosophical viewpoints. It is a board that “promotes education by maximizing the utilization of available resources”. The philosophical viewpoint that “how you think determines how you will feel and how you will fare” can easily be dismissed as nonsense without a second thought sitting in my position (someone without cancer) but for someone that has been diagnosed…….. Geez, if they don’t advocate that position, it would be overwhelmingly upsetting. As if they were somehow the cause of what was happening…. if they thought hard enough they could somehow change things. I don’t think I could sit quietly on that one either. I wish I hadn’t sat quietly if sitting quietly means losing the Mary Jo’s on this board. We can’t afford a loss like this. We have already lost such inspirations as ((((hugs))))) Sandy, Love and Light Lisa and the Living Legend Lyn to this ugly disease. Let’s not lose our dearest Mary Jo because some feel the need to push their personal philosophies on the rest of us. Maybe a separate board for philosophical discussions??????
__________________
Leslie's Sister (Lisa)
Diagnosed 5/17/06
Left breast Stage II
5 cm. Her2Neu+++, ER-, PR-
1 positive node out of six,
double mastectomy 6/9/06;
TCH started 7/12/06
last chemo 10/25/06
herceptin ended 6-11-07
Leslie's sister is offline   Reply With Quote
Old 11-21-2007, 01:16 PM   #10
nitewind
Senior Member
 
nitewind's Avatar
 
Join Date: Aug 2006
Location: Poland Ohio just a little south of Youngstown.
Posts: 473
I've been away most of the day, don't know what happened but I hate to see any negativity among us. I love you all dearly.
Hugs
__________________
Susan
Age: 61
dx: 5/25/06
2 cm/ 0 nodes
Lumpectomy rt breast on 7/26/06
ER/PR- / Her2+++
A/C x 4
finished taxotere 2/07
finished 33 rads
Herceptin finished 12/07/07 Yippee!
nitewind is offline   Reply With Quote
Old 11-21-2007, 02:20 PM   #11
jones7676
Senior Member
 
Join Date: Oct 2006
Location: I live in Christmas, MI - located on the shores of Lake Superior.
Posts: 606
Mary Jo,

I hope that you will find the time off a time of renewal and be back soon.
__________________
Barb

10/03 Radical Mastectomy 3 cm tumor - 1/17 Nodes Stage II B, Her 2 +++ ER-/PR- 11/03 4 AC 4 Taxol 12/05 Stage IV - Lung met , Bone mets - Carbo, Taxotere, Herceptin 9/06 - 2 cm brain tumor 10/06 - Tumor removal surgery - Herceptin Halted 12/06 gamma knife tumor base.1/07 Navelbine/Herceptin 4/07 Rads to R femur 5/07 Stereotactic - new 2 cm brain tumor 4/07 Start Xeloda 5/07 Tykerb added 7/07 Brain MRI clean 10/07 .055 cm brain met found. 12/07 Stereotactic -1 cm brain tumor Start Tykerb 11/07 Abraxane/Herceptin 5/08 Cisplatin, Gemcitabine/Herceptin 6/08 Stereotactic to 1cm 9/08 Stereotactic repeat (growth). 11/08 Pet Scan Good but new tiny met on L lung/dead Brain surgery (no cancer cells found/scar tissue) 1/09 Chemo restarted 2/09 Pet Scan Bad - R larger very active/active L active lymph nodes both sides of chest MRI- mets slight increase 2/09 Start Doxil/Tykerb Treatment
jones7676 is offline   Reply With Quote
Old 11-21-2007, 06:08 PM   #12
tousled1
Senior Member
 
tousled1's Avatar
 
Join Date: Feb 2006
Location: Acworth, GA
Posts: 2,104
I haven't been reading all the posts lately as I've been under the weather with pneumonia. I have no idea what has transpired but must say that I hate to lose any member from the board. Everyone is entitled to their own thinking and we must respect that. Whatever one does to help get them through the treatments, anxiety, etc of having this dreadful disease is ok with me.
__________________
Kate
Stage IIIC Diagnosed Oct 25, 2005 (age 58)
ER/PR-, HER2+++, grade 3, Ploidy/DNA index: Aneuploid/1.61, S-phase: 24.2%
Neoadjunct chemo: 4 A/C; 4 Taxatore
Bilateral mastectomy June 8, 2006
14 of 26 nodes positive
Herceptin June 22, 2006 - April 20, 2007
Radiation (X35) July 24-September 11, 2006
BRCA1/BRCA2 negative
Stage IV lung mets July 13, 2007 - TCH
Single brain met - August 6, 2007 -CyberKnife
Oct 2007 - clear brain MRI and lung mets shrinking.
March 2008 lung met progression, brain still clear - begin Tykerb/Xeloda/Ixempra
tousled1 is offline   Reply With Quote
Old 11-21-2007, 07:33 PM   #13
Sheila
Senior Member
 
Sheila's Avatar
 
Join Date: Aug 2003
Location: Morris, IL
Posts: 3,507
Marejo
Your post saddened me....I lost one Mary Jo this year, don't know that I can bare the loss of another....we all have different beliefs, thats what makes us so individual. I feel the need to voice my opinions sometimes, but they are that, opinions, the way I feel...I hope I never offend others with the way I feel, if I do, it is certainly not my intent...I believe in the power of posiitive thinking, and in the power of prayer...I do not think I would have survived the last 5 1/2 years without both. Did it alter my disease???, probably not, I'm back on chemo again, but it has made this whole ordeal easier to deal with, so I continue to what works for me. Now my prayers will shift, and be that you will miss us, and come back to the board...you are such an inspiration with positive thoughts and prayers...don't know what I'll do without!
Like I said, I lost one Mary Jo this year (my best friend), I don't want to lose another.
__________________
"Be kinder than necessary, for everyone you meet
is fighting some kind of battle."



Hugs & Blessings
Sheila
Diagnosed at age 49.99999 2/21/2002 via Mammography (Calcifications)
Core Biopsy 2/22/02
L. Mastectomy 2/25/2002
Stage 1, 0.7cm IDC, Node Neg from 19 nodes Her2+++ ER PR Neg
6/2003 Reconstruction W/ Tissue Expander, Silicone Implant
9/2003 Stage IV with Mets to Supraclavicular nodes
9/2003 Began Herceptin every 3 weeks
3/2006 Xeloda 2500mg/Herceptin for recurrence to neck nodes
3/2007 Added back the Xeloda with Herceptin for continued mets to nodes
5/2007 Taken Off Xeloda, no longer working
6/14/07 Taxol/Herceptin/Avastin
3/26 - 5/28/08 Taxol Holiday Whopeeeeeeeee
5/29 2008 Back on Taxol w Herceptin q 2 weeks
4/2009 Progression on Taxol & Paralyzed L Vocal Cord from Nodes Pressing on Nerve
5/2009 Begin Rx with Navelbine/Herceptin
11/09 Progression on Navelbine
Fought for and started Tykerb/Herceptin...nodes are melting!!!!!
2/2010 Back to Avastin/Herceptin
5/2010 Switched to Metronomic Chemo with Herceptin...Cytoxan and Methotrexate
Pericardial Window Surgery to Drain Pericardial Effusion
7/2010 Back to walking a mile a day...YEAH!!!!
9/2010 Nodes are back with a vengence in neck
Qualified for TDM-1 EAP
10/6/10 Begin my miracle drug, TDM-1
Mixed response, shrinking internal nodes, progression skin mets after 3 treatments
12/6/10 Started Halaven (Eribulen) /Herceptin excellent results in 2 treatments
2/2011 I CELEBRATE my 9 YEAR MARK!!!!!!!!!!!!!
7/5/11 begin Gemzar /Herceptin for node progression
2/8/2012 Gemzar stopped, Continue Herceptin
2/20/2012 Begin Tomo Radiation to Neck Nodes
2/21/2012 I CELEBRATE 10 YEARS
5/12/2012 BeganTaxotere/ Herceptin is my next miracle for new node progression
6/28/12 Stopped Taxotere due to pregression, Started Perjeta/Herceptin
Sheila is offline   Reply With Quote
Old 11-22-2007, 01:06 AM   #14
G. Ann
Senior Member
 
Join Date: Mar 2006
Posts: 78
It's a loss for all when someone publically leaves or "takes a break." For balance, reading all sides makes this website valuable for me. Then I can figure out what fits best for me.

This is probably way too simplistic--sometimes I think varying opinions are in the "both/and" rather than "either/or." That's what I took away from the posting. We are different in many ways but come together sharing a Her2neu diagnosis. I liked the quote "your way, my way, and right/correct/only way does not exist."
__________________
G. Ann
DX 2/04, mastectomy, 2.5 cm tumor, grade 3
Her 2 positive, 60%, 3+/strong, ER/PR-
Stage 2, 0/18 nodes
TX 4 AC (no taxanes, no radiation)
Hysterectomy 10/04
Began Herceptin 1/06, finished 1/07
G. Ann is offline   Reply With Quote
Old 11-22-2007, 02:07 AM   #15
Roz
Senior Member
 
Join Date: Oct 2005
Location: Sydney Australia
Posts: 105
So sorry

We who have suffered sooo much--surely it is we who should be the most humble?? No one can speak for anyone else, they can ONLY talk about their own experiences. sorry it has come to this, marejo, hope to see you back
__________________
diagnosed June 03. Rt sided Inflammatory BC in rt lower quadrant. 7cm tumour. Also 3 DCIS. 3 rounds of EC, mastectomy with axillary clearance (12 nodes+ of 19). 1 more EC. 5 weeks of rads, with weekly booster to attack skin lymph involvement. 4 cycles of Taxol. Tamoxifen.Recurrence December 04, Herceptin started early Jan05,+ Arimidex.
NED 26 mths. Recurrence early Mar07. Taxol added to Herceptin. NED. Will have total of 6 cycles, then Aromisan and Herceptin. Early Oct 07, recurrence to the pesky right upper lobe, with some pleural thickening upper rt hemithorax. T/X now the treatment. May 2008, Taxatere and Herceptin for lung recurrence
Roz is offline   Reply With Quote
Old 11-22-2007, 05:15 PM   #16
juanita
Senior Member
 
juanita's Avatar
 
Join Date: Dec 2005
Location: indianapolis, indiana
Posts: 1,544
Hope you don't stay gone long. I'll miss your advice, especially on family matters. My 18 yr. old's baby is due May 3, and I'll need lots of help since I'm still not thrilled with it's impending arrival.
__________________
dxd 9-04, lumpectomy,
st 1, gr 3, er,pr-, her2 +,
2 tac,33 rads,6 cmf
1 yr herceptin,
juanita is offline   Reply With Quote
Old 11-22-2007, 09:41 PM   #17
Faith in Him
Senior Member
 
Faith in Him's Avatar
 
Join Date: Jul 2007
Location: Northern California
Posts: 764
Oh Mary Jo,

I am so sad by this. You were the very first one to respond to my first post here. I will never forget your kindness. You and I share a lot of the same beliefs and I hope that you are not gone for long. We need you. I need you.

God Bless,
Faith (Tonya)
__________________
DX 02/01/07
2.5 cm, Er/Pr-, Her2+++
18/20 Nodes
03/07 CT & Bone scan - Clear
AC x 4, Taxol x 4, Added Herceptin
Radiation until 09/07
Herceptin every 3 weeks until 06/08
01/10/08 local recurrence -IBC
01/28/08 CT & Brain MRI - clear
02/08 - Navelbine & Herceptin
05/08 -MRM
05/08 - Gemzar & Herceptin - didn't work
09/08 - Hyperthermia rads
03/09 - Tykerb/Xeloda
05/10 - Tram flap to fix wound
Faith in Him is offline   Reply With Quote
Old 11-23-2007, 12:07 PM   #18
hutchibk
Senior Member
 
hutchibk's Avatar
 
Join Date: Oct 2005
Posts: 3,519
I didn't ever click on the post in question, so I can't speak to it directly, but I have to say that if you feel you need a break, by all means that is understandable. We all can feel that we need to take a deep breath, re-assess, and re-energize from something that zaps us.

"...of a site that isn't so much about support anymore but about self healing through positive attitude." Personally and respectfully, I have to agree to disagree with you there. I don't feel that one thread can possibly set the tone of the whole board. My experience of this board does not correlate with your sweeping assessment. Respectfully, I believe that one apparently contentious thread does not speak for the overall essence of the board.

Marejo, I am always touched by your love, optimism and kindness. I love what works for you in this journey, as I also love my spiritual connection to God. He is my partner in this, as is my doctor and the healthfulness of my inner dialogue. I feel I am truly blessed by God in this life. I also choose to take a pro-active approach in the proper care and feeding of my neuropeptides these days.

Please keep well and keep up with us. We hope to see you back soon!
__________________
Brenda

NOV 2012 - 9 yr anniversary
JULY 2012 - 7 yr anniversary stage IV (of 50...)

Nov'03~ dX stage 2B
Dec'03~
Rt side mastectomy, Her2+, ER/PR+, 10 nodes out, one node positive
Jan'04~
Taxotere/Adria/Cytoxan x 6, NED, no Rads, Tamox. 1 year, Arimadex 3 mo., NED 14 mo.
Sept'05~
micro mets lungs/chest nodes/underarm node, Switched to Aromasin, T/C/H x 7, NED 6 months - Herceptin only
Aug'06~
micro mets chest nodes, & bone spot @ C3 neck, Added Taxol to Herceptin
Feb'07~ Genetic testing, BRCA 1&2 neg

Apr'07~
MRI - two 9mm brain mets & 5 punctates, new left chest met, & small increase of bone spot C3 neck, Stopped Aromasin
May'07~
Started Tykerb/Xeloda, no WBR for now
June'07~
MRI - stable brain mets, no new mets, 9mm spots less enhanced, CA15.3 down 45.5 to 9.3 in 10 wks, Ty/Xel working magic!
Aug'07~
MRI - brain mets shrunk half, NO NEW BRAIN METS!!, TMs stable @ 9.2
Oct'07~
PET/CT & MRI show NED
Apr'08~
scans still show NED in the head, small bone spot on right iliac crest (rear pelvic bone)
Sept'08~
MRI shows activity in brain mets, completed 5 fractions/5 consecutive days of IMRT to zap the pesky buggers
Oct'08~
dropped Xeloda, switched to tri-weekly Herceptin in combo with Tykerb, extend to tri-monthly Zometa infusion
Dec'08~
Brain MRI- 4 spots reduced to punctate size, large spot shrunk by 3mm, CT of torso clear/pelvis spot stable
June'09~
new 3-4mm left cerrebellar spot zapped with IMRT targeted rads
Sept'09~
new 6mm & 1 cm spots in pituitary/optic chiasm area. Rx= 25 days of 3D conformal fractionated targeted IMRT to the tumors.
Oct'09~
25 days of low dose 3D conformal fractionated targeted IMRT to the bone mets spot on rt. iliac crest that have been watching for 2 years. Added daily Aromasin back into treatment regimen.
Apr'10~ Brain MRI clear! But, see new small spot on adrenal gland. Change from Aromasin back to Tamoxifen.
June'10~ Tumor markers (CA15.3) dropped from 37 to 23 after one month on Tamoxifen. Continue to monitor adrenal gland spot. Remain on Tykerb/Herceptin/Tamoxifen.
Nov'10~ Radiate positive mediastinal node that was pressing on recurrent laryngeal nerve, causing paralyzed larynx and a funny voice.
Jan'11~ MRI shows possible activity or perhaps just scar tissue/necrotic increase on 3 previously treated brain spots and a pituitary spot. 5 days of IMRT on 4 spots.
Feb'11~ Enrolled in T-DM1 EAP in Denver, first treatment March 25, 2011.
Mar'11~ Finally started T-DM1 EAP in Denver at Rocky Mountain Cancer Center/Rose on Mar. 25... hallelujah.

"I would rather be anecdotally alive than statistically dead."

Last edited by hutchibk; 11-23-2007 at 06:11 PM.. Reason: correct spelling
hutchibk is offline   Reply With Quote
Old 11-23-2007, 07:10 PM   #19
vickie h
Senior Member
 
vickie h's Avatar
 
Join Date: Jun 2006
Location: san luis obispo, ca
Posts: 1,150
MaryJo, You have always been so positive and have carried me across the dark, rushing waters when I was frightened. I will always hold you in my heart and hope you know we love you. I hope you stay and become part of the change , we need you and care about you. My sister and friend, I will be here waiting for you when you come back. Love and hugs, Vickie
__________________
Love and Hugs, Vickie

Life's not about waiting for the storm to pass,
It's about learning to dance in the rain.


Feb 04 IBC IIIC/IV er-/pr- her2+++
3/04 TCH X4
7/ 04 MRM 9/04 Taxol/herceptin wkly 1 yr 33X rads
11/04 skin mets 33x rads,10/05 Avast/Herc. 11 mos.
8/ 06 PET mets lymphs, neck
9/ 06 Navelbine/herceptin
11/ 06 PET NED
2/ 07 skin mets, 4/07 Xeloda, 5/07 add Tykerb
2/ 08 Tykerb failed. Doxil /Herceptin 6 months
8/08 PET skin mets, 8/08 Abraxane/Avastin
11/ 08 PET prog., skin mets
1/09 PET/CT progress, 1/09 Ixempra, 2/09 add Xeloda and low dose Naltrexone
2/09 off Ixempra/Xeloda
3/09 navelbine/herc/cytoxin 4/09 PET shows regress.7/09 start Topotecan. Failed.
8/09 extensive mets rgt brst, back and torso. starting Pazopanib clinical trial.
vickie h is offline   Reply With Quote
Old 11-23-2007, 08:49 PM   #20
mke
Senior Member
 
Join Date: Aug 2006
Location: Toronto
Posts: 64
I haven't a clue as to what is going on, but Mary Jo has the best pictures!!! How can you leave??

Ah well, you must do what you must do Mary Jo and if being here is a distress to you then you should leave to seek comfort and peace in your life.
mke is offline   Reply With Quote
Reply


Posting Rules
You may not post new threads
You may not post replies
You may not post attachments
You may not edit your posts

BB code is On
Smilies are On
[IMG] code is On
HTML code is Off

Forum Jump


All times are GMT -7. The time now is 10:31 AM.


Powered by vBulletin® Version 3.8.7
Copyright ©2000 - 2024, vBulletin Solutions, Inc.
Copyright HER2 Support Group 2007 - 2021
free webpage hit counter