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Old 01-06-2010, 02:34 PM   #1
IRENE FROM TAMPA
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Join Date: Oct 2005
Location: TAMPA, FL
Posts: 568
Irene From Tampa

Friends -
It's taken me a bit, but I wanted to let you know that Irene is not doing well. Perhaps some of you are already aware of her circumstance (I'm unsure when she posted last) but multiple mets and her resulting physical decline caused her to be admitted to the hospital.

These are very difficult times - as many of you are (unfortunately) far too aware of.

As I've been with Irene for over 20 years and I'm well aware of this forum. Its been a source of information, courage, strength, inspiration and yes, sadness.

It was for the latter point that I hesitated to make this post. You endure far too much uncertainty, challenge and grief for me to compile it. Life shouldnt be this trying.

With semi-specific mention of her circumstance (as I know the details will be understood within this forum) an October PET indicated she had multiple liver tumors. A brain MRI was also done which indicated brain mets for the first time in this 15year war. Cyberknife was ruled out and WBR was put off in favor of chemo. Just before Christmas week, a followup brain MRI indicated progression and mandated she undergo WBR as soon as possible - which was put off until after the holiday.

She took a downturn the day after Christmas - two days before WBR was to begin.

I've started a journal for her on Caring Bridge and I'll read any comments to Irene off there.

http://www.caringbridge.org/visit/irenefernandez


Please be well and accept my heartfelt - heartfelt - thanks for all you've done for Irene over the years. The care & support she's received here in no small measure has allowed her to get this far.

I have to run.

Love to all - John
__________________
Irene from Tampa
1996 - INFILT DUCTAL CAR.W/ LYMPH NODE INVOLVEMENT. ADRIA/CYTOXIN/5FU
1999 - RECURR. TO AUXILA AND 2 TUMORS IN LIVER
TREAT: STEM CELL REPLACEMENT/HERCEPTIN.
2002 - RECUR TO LIVER
TREAT: NAVELBINE, THEN GEMZAR, THEN XELODA.
2004 - TUMORS STILL IN LIVER
TREAT: RFA TO LIVER
STABLE UNTIL
2004 - TUMOR PROGRESSION IN LIVER.
TREAT: RESECT HALF OF LIVER.
2005 - RECURR TO LYMPH NODE OUTSIDE OF LIVER.
TREAT: TAXOL/CARPO/HERCEPTIN. FAILED ON
THIS TRIO. STARTED ON ABRAXANE.
2006 - PROGRESS WITH 2ND TUMOR GROWTH.
TREAT: AUG. BEGAN ON TYKERB/XELODA
TRIAL. CONSIDERED STABLE TO DATE.
2007 - TAKEN OFF OF TYKERB/XELODA TRIAL DUE TO
PROGRESS STARTING TYKERB/AVASTIN.
NOV 2007 - SCANS SHOW PROGRESS TUMOR GROWTH
IN ABDOM. AND TWO NEW TUMORS IN NECK AREA.
BEGAN HERCEPTIN/AVASTIN/TAXOTERE
Feb 08 - Ixempra/Xeloda
June 08 - Her/DM1 trial

"I WANT TO BE AN OUTRAGEOUS OLD WOMAN WHO NEVER GETS CALLED AN OLD LADY. I WANT TO GET SHARP EDGED & EARTH COLORED, TILL I FADE AWAY FROM PURE JOY."
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