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Hips are Good--Femurs not so much
After my trip through the world of AI's in an attempt to discover the good, the bad and the ugly of each, I decided to take an AI holiday and try to get my hips back in working order after exemestane basically turned them into non-functioning parts of my anatomy.
Fast forward a year (ok, not fast with THOSE hips) and I felt like my hips were better, but still having problems. I would get to the point of almost walking normally, then any little stumble, hard step or slight impact would send me back to hobbling with pain running down my leg(s). So I finally asked my onc for a referral to an orthopedist. I wanted someone who was familiar with all my treatment and the offending side effects.
X-rayed the hips, consult with the orthopedist, hips are great--YEA!!
I have bilateral stress fractures in both femurs. Major bummer.
Side effect of long term use of bisphosphonate--Zometa. Bone mineral density is good, the fractures are a fairly well known anomaly. Textbook case.
So now I have to figure how best to recover from these fractures. Otho is going to consult with onc. Bisphosphonates out. Maybe add Forteo.
Anyone have any experience with this. Any knowledge you can share?
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Rhonda (Sassy)
dx age 45
DX 2/15/05 Stage IIb (at surgery)restaged IIIa
Left mast .9cm tumor 5 of 14 nodes
Triple Positive
4 DD A/C
12 Taxol/Herceptin
33Rads
Strange infect mast site one year aft surg, hosp 1 wk
Herceptin for total of 18 months
Lupron Monthly 4 yrs
Neurontin for aches, pains and hot flashes(It works!)
Ovaries removed 11/09 stop Lupron and Neurontin
Arimidex 6 yrs (tried Femara, no SE improvement)
Tried Exemestane-hips got so bad could hardly walk
Back to Arimidex for year seven
Zometa 2X Annual for 7years, Lasix
Stop Arimidex 5/13
Stop Zometa 7/13-Bi-lateral Stress Fractures in Femurs from Zometa
5/14 Start Tamoxifen
3/15 Stem cell transplant to stimulate femur bone growth/healing
5/15 Complete fracture of right femur/Titanium rods both femurs
9/16 Start Evista stopTamoxifen
3/17 Stop Evista--unwelcome side effects!
NED and no meds.......
14 YEARS NED!
Last edited by sassy; 06-04-2013 at 11:45 PM..
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