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Old 12-07-2012, 09:23 PM   #1
Cure4Cat
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Join Date: Mar 2011
Posts: 48
Re: More than 5 years on Femera Ontario ladies?

I am another Ontario girl. I have only been on Tamoxifen for a year and a half. My oncologist has talked about switching me back and forth between Tamoxifen and something else (sorry can't remember at the moment). I got the impression he wanted me to stay on some type of anti-hormonal for a long, long time. I heard about the study saying that 10 years is better than 5 but I am not convinced yet. It is just one study and I also heard that the makers of anti-estrogen meds funded this study. I have not had a chance to look into this to confirm if it is true, but I am hoping by the time I reach my 5 years that there will be more studies to give me a better idea of what to do. These medications all have their own side-effects and risks, so if I am going to stay on them, I better be sure it is worth it! I would be interested to know how it all turns out for you. Good luck! And congratulations on being 4 years out!
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Dx Her2+, ER+, PR-, stage 2b/3 July 2010
Chemo Sept-Dec 2010
(Pertuzumab during last 3 rounds of chemo)
Surgery Jan 2011
25 Rads March 2011
Herceptin started during chemo and continued every 3 weeks for 1 year
Started Tamoxifen for 5 years

Looking for a vaccine trial
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Old 12-08-2012, 07:03 AM   #2
Cathya
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Join Date: Sep 2005
Location: Ontario, Canada
Posts: 752
Re: More than 5 years on Femera Ontario ladies?

My oncologist called my cancer metastic (although I was never officially staged by him....does that make it 4?) and considered me high risk for recurrance. I had a number of lumps (from the radiation) which he had biopsied and other little things so when my 5 years was up he agreed to keep me on the drug for another year. It was an easy discussion and I didn't insisted but was relieved to continue at that point. Then after 6 years he suggested we stop these treatments. Early on I had been put on actonel after my bone density scans showed depletion and referred to a bone specialist who continues to follow me. I think they both wanted me to have a break from these drugs. After my 7th year my oncologist referred me back to my md. I don't know what he would have done if this information about tamoxifen had been available. I know that deep in my mind I will always likely be waiting for a recurrance or some new cancer. I have this thought that at around 10 years I will ask for a total body ct scan, then again at ..... lol....
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Diagnosed Oct. 2004 3 cm ductal, lumpectomy Nov. 2004
Diagnosed Jan. 2005 tumor in supraclavicular node
Stage 3c, Grade 3, ER/PR+, Her2++
4 AC, 4 Taxol, Radiation, Arimidex, Actonel
Herceptin for 9 months until Muga dropped and heart enlarged
Restarting herceptin weekly after 4 months off
Stopped herceptin after four weekly treatments....score dropped to 41
Finished 6 years Arimidex
May 2015 diagnosed with ovarian cancer
Stage 1C
started 6 treatments of carboplatin/taxol
Genetic testing show BRCA1 VUS
Nice! My hair came back really curly. Hope it lasts lol. Well it didn't but I liked it so I'm now a perm lady
29 March 2018 Lung biopsy following chest CT showing tumours in pleura of left lung, waiting for results to the question bc or ovarian
April 20, 2018 BC mets confirmed, ER/PR+ now Her2-
Questions about the possibility of ovarian spread and mets to bones so will be tested and monitored for these.
To begin new drug Palbociclib (Ibrance) along with Letrozole May, 2018.
Genetic testing of ovarian tumour and this new lung met will take months.
To see geneticist to be retested for BRCA this week....still BRCA VUS
CA125 has declined from 359 to 12 as of Aug.23/18


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