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Please post your two cents on Herceptin "side effects" real or perceived!

Herceptin / Tykerb Share your experiences or ask questions about Herceptin or Tykerb

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07-22-2012, 05:15 AM	#1
pmm10414 Senior Member Join Date: Dec 2008 Location: Merritt Island, FL Posts: 53	Re: Please post your two cents on Herceptin "side effects" real or perceived! Hot flashes were terrible. Within 10 minutes of starting they would start. __________________ PATTY FOUND MY TUMOR IN 11/08 AFTER CLEAR MAMMOGRAM ON 5/31/08 DX 12/09/2008 STAGE II CHANGED TO STAGE IIIA AFTER MRI SURGURY FOR TWO PET SCAN NODES IN CHEST NEGATIVE (DEC08) AC (4 COMPLETE MAR09) TAXOL HERCEPTIN (12 TREATMENTS COMPLETE IN JUN09 ) SURGERY IN JUN09 - COMPLETE RESPONSE (BOTH BREASTS NEG AND 9/9 LYMPH NODES NEG) NED HERCEPTIN RESTARTED IN JUL09 WEEKLY UNTIL JUL10 PET SCAN - NEGATIVE DEC11 AND AUG09 BRAC - NEGATIVE SEP09 28 RADS COMPLETE SEP09 BONE SCAN - NEGATIVE MAR10 PET SCAN - NEGATIVE DEC11 PET SCAN - SARCOIDOSIS OCT11 thought cancer was back thank The Lord it is not they think!!!!!!

07-22-2012, 04:31 PM	#2
Andrea Barnett Budin Senior Member Join Date: Oct 2005 Location: LAND OF YES! w/home in Boca Raton, Florida Orig from L.I., N.Y. Ever hovering IN THE NOW... Posts: 1,904	Re: Please post your two cents on Herceptin "side effects" real or perceived! Itchy red rashy full of fire burning on my upper outer arms. Needs urgent immediate response! Ice, water as hot as I can take it, camphor gel, Benedryl spray and Benedryl (2) nightly -- helps. After 1 yr the red rash remains but the pain is gone. __________________ Andi BB '95 post-meno dx Invasive LOBULAR w/9cm tumor! YIKES + 2/21 nodes. Clear mammo 10 mnths earlier. Mastec/tram flap reconst/PORT/8 mnths chemo (4Adria/8CMF). Borderline ER/PR. Tamoxifen 2 yrs. Felt BLESSED. I could walk and talk, feed and bathe myself! I KNEW I would survive... '98 -- multiple mets to liver. HER2+ 80%. ER/PR- Raging, highly aggressive tumors spreading fast. New PORT. 9 mnths Taxotere Fought fire w/fire! Pronounced in cautious remission 5/99. Taxotere weekly for 6 wks, 2 wks off -- for 9 mnths. TALK ABOUT GRUELING! (I believe they've altered that protocol since those days -- sure hope so!!) + good old Vit H wkly for 1st 3 yrs, then triple dosage ev 3 wks for 7 yrs more... The "easy" chemo, right?! Not a walk in the park, but not a freight train coming at 'ya either... Added Herceptin Nov '98 (6 wks after FDA fast-tracked it for met bc). Stayed w/Vit H till July '08! Now I AM FREE! Humbly and eternally grateful for this life-saving drug! NED since '99 and planning on keeping it that way. To hell w/poor prognosis and nasty stats! STOPPED VIT H JULY '08...! REMAIN STABLE... Eternally grateful...Yes is a world & in this world of yes live (skillfully curled) all worlds ... (e e cummings) EVERY DAY I BEAT MY PREVIOUS RECORD FOR # OF CONSECUTIVE DAYS I'VE STAYED ALIVE. Smile KNOWING you too can be a miracle. Up to me and God now...

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