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Old 12-28-2006, 08:35 PM   #1
Angela
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Question Port Questions

They have scheduled me to receive a port next Thursday. What should I expect? Will I be able to return to work on Friday? Will I need pain meds? Any information will be appreciated.

Thanks,
Angela
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Old 12-28-2006, 11:05 PM   #2
tousled1
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Angela,

Getting your port in is a breeze. I had mine done without a general anesthesia -- sort of in a twighlight zone. You should not require any pain medication meds and should be able to go to work the following day. When I had my port put in I went to my surgeon's surgery center had the port put in and then went to the oncologist's office for my first round of chemo.
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Kate
Stage IIIC Diagnosed Oct 25, 2005 (age 58)
ER/PR-, HER2+++, grade 3, Ploidy/DNA index: Aneuploid/1.61, S-phase: 24.2%
Neoadjunct chemo: 4 A/C; 4 Taxatore
Bilateral mastectomy June 8, 2006
14 of 26 nodes positive
Herceptin June 22, 2006 - April 20, 2007
Radiation (X35) July 24-September 11, 2006
BRCA1/BRCA2 negative
Stage IV lung mets July 13, 2007 - TCH
Single brain met - August 6, 2007 -CyberKnife
Oct 2007 - clear brain MRI and lung mets shrinking.
March 2008 lung met progression, brain still clear - begin Tykerb/Xeloda/Ixempra
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Old 12-29-2006, 01:06 AM   #3
Chelee
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Angela, I had no problems with mine either as Kate already mentioned. I really dreaded it and didn't want to do it but it was a piece of cake. I was wide awake and they just numb that area. (Mine is in my upper arm.) I just layed there while he put in it. I did NOT feel a thing.

As to what to expect...we are all different. But for me...I did have a little soreness in mine for a few days. It wasn't too bad though....just uncomfortable. But its done pretty quickly and I have had no problems with it since it was put in back in March o6. (Knock wood.)

I know I was told to keep mine clean and dry for a week I believe it was? But again...my port is in my arm unlike others that get theirs in the chest area.

Good luck...but don't worry about this...it really is no problem.

Chelee
__________________
DX: 12-20-05 - Stage IIIA, Her2/Neu, 3+++,Er & Pr weakly positive, 5 of 16 pos nodes.
Rt. MRM on 1-3-06 -- No Rads due to compromised lungs.
Chemo started 2-7-06 -- TCH - - Finished 6-12-06
Finished yr of wkly herceptin 3-19-07
3-15-07 Lt side prophylactic simple mastectomy. -- Ooph 4-05-07
9-21-09 PET/CT "Recurrence" to Rt. axllia, Rt. femur, ilium. Possible Sacrum & liver? Now stage IV.
9-28-09 Loading dose of Herceptin & started Zometa
9-29-09 Power Port Placement
10-24-09 Mass 6.4 x 4.7 cm on Rt. femur head.
11-19-09 RT. Femur surgery - Rod placed
12-7-09 Navelbine added to Herceptin/Zometa.
3-23-10 Ten days of rads to RT femur. Completed.
4-05-10 Quit Navelbine--Herceptin/Zometa alone.
5-4-10 Appt. with Dr. Slamon to see what is next? Waiting on FISH results from femur biopsy.
Results to FISH was unsuccessful--this happens less then 2% of the time.
7-7-10 Recurrence to RT axilla again. Back to UCLA for options.
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Old 12-29-2006, 04:04 AM   #4
tricia keegan
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Angela my port was in my chest and I had it put in with "Twilight" sedation although it completly knocked me out so I don't remember much.

I did have some soreness for 7-10 days but nothing too bad that would have kept me off work.
I just had mine removed after my last herceptin with a local and it was fine.
Good luck.
Tricia
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Dx July '05 IDC 1.9cm Triple positive 3/9 nodes positive
A/C X 4 ..Taxol/Herceptin x 12 wks then herceptin 1 yr
Rads x 36 ..oophorectomy August '06
Currently taking Arimidex..
June 2011 osteopenia/ zometa x1 yearly- stopped Zometa 2015 as Dexa show normal bone density.
Stopped Arimidex July 2014- Restarted Arimidex 2015 for a further two years on the advice of my Onc.
2014 Normal Dexa scan
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Old 12-29-2006, 06:06 AM   #5
janet/FL
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I was shoveling rocks the day after I had my port put in. Later I read the insturctions and they said no heavy lifting for 48 hours! No problems at all.
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Endometrial Cancer 2002
Mammogram 11/2004
Lumpectomy 12/2004
Stage 1, 9mm DCIS, grade 2, Her2+++, ER/PR negative
Refused A/C as recommened by two oncs.
35 treatments of radiation that ended March 4, 2005
Changed oncologists and began
Taxotere/Herceptin August 2005. Finished Herceptin July 2006
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Old 12-29-2006, 06:41 AM   #6
KRISS
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I have a question following this line. I am assuming I will get a port. How do you keep it clean and dry. I am a zoo keeper and am around flying crap and hay and dust all day. I'm starting to worry with the heavy lifitng and poop I may have some problems.
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DX IDC AT 42 12/7/06
2.2CM STAGE I GRADE 2
NODE NEG
PARTIAL 12/18/06
HER2+ /ER+(75%) PR+(5%)
4 DD AC CHEMO STARTING 1/10/07
4 DD Taxol Starting 3/5/07
1year weekly Herceptin starting 3/5/07
finished 2/18/08
changed to every 3 weeks 4/23/07
completed 33 radiation treatments 7/6/07
TAH and BSO 9/24/07
start Femarra 10/8/07
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Old 12-29-2006, 06:44 AM   #7
tousled1
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My port is in my upper chest and I was told to keep it clean and dry for a short period of time. Just enough time for it to heal over. After that no problem - I can go swimming, shower, etc without fear of getting it wet. I've had mine in for a year now and have basically gone on with my regular life style without any problems.
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Kate
Stage IIIC Diagnosed Oct 25, 2005 (age 58)
ER/PR-, HER2+++, grade 3, Ploidy/DNA index: Aneuploid/1.61, S-phase: 24.2%
Neoadjunct chemo: 4 A/C; 4 Taxatore
Bilateral mastectomy June 8, 2006
14 of 26 nodes positive
Herceptin June 22, 2006 - April 20, 2007
Radiation (X35) July 24-September 11, 2006
BRCA1/BRCA2 negative
Stage IV lung mets July 13, 2007 - TCH
Single brain met - August 6, 2007 -CyberKnife
Oct 2007 - clear brain MRI and lung mets shrinking.
March 2008 lung met progression, brain still clear - begin Tykerb/Xeloda/Ixempra
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Old 12-29-2006, 08:32 AM   #8
Mary Anne in TX
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No Problems

Hi Angela!
It is unnerving when they do anything to me! At least the thinking about it is! But I'm such a chicken until the time to do whatever comes. Once I see what will happen I do great!
But the port was easy. They did put me to sleep to put mine in my upper chest, left side. It's been there 9 months and it's worked great! I didn't need anything but Tylenol (once) afterwards. They tell you just to be careful a few days. And I did that! Soap and water when you shower is what they told me to do to keep the area clean from germs! I got my first chemo about 5 days later.
I'm so glad that I did the port. It has made chemo easier.
Best of luck and Happy New Year!
__________________
MA in TX.
Grateful for each and every day....

Diag. 12/05 at age 60
Stage II, Grade 3, 4.5 cm primary tumor
ER/PR- Her2 +3 strongly positive
Her2 by FISH 7.7 amplified
vascular invasion
Ki67 20% borderline
Jan - March '06 Taxotere/Adriamycin X 3 to try to shrink tumor - it grew
April '06 Rt Modified Radical Mas, 7 of 9 nodes positive
April - Aug. '06 Herceptin/Taxol/Carboplatin X 8 (dose dense)
Sept - Dec. '06 Navelbine/Herceptin x 8 (dose dense)
Radiation & Herceptin Jan. 22 - March 1, 2007
Finished Herceptin Dec. 10 '08! One extra year.
Port removed August, 2012.
8 1/2 years since diagnosis! 5 1/2 Years NED!
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Old 12-29-2006, 10:51 AM   #9
Heart Sutra
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Hi Angela,

I had my port put in on Tuesday of this week and was very scared as well to have this done without being knocked out.

It was really a piece of cake!!! I'm a little sore, but nothing I can't handle. Mine is in my chest and I was awake as well. The worst part for me was getting the I.V. I'm so glad I don't have that worry any longer.

I am very black and blue though. I think that has a lot to do with my physical shape. I'm a personal trainer and have a lot of muscle mass. The radiologist really had to push this into place, so I think that's why I'm so brused.

They inserted a powerport. Does anyone else have this kind of port? From what the radiologist said it's new, they can do all through this port even CT/contrast injections.
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---Kevin and Sue---

Dx'd 10/06 IDC grade III/III
Er- pr- HER2 3+
MRM right breast 12/5/06
nodes negative
same day reconstruction started
(implants)
Stage II (2.2 cm tumor)
fairly extensive DCIS
Ct and Bone scans clean
Port placement 12/26/06
AC (4 cycles DD)to begin 1/2/07
Taxol/Taxotere (4 cycles DD)
Herceptin for one year

"There is no distinction between the one who gives, the one who receives, and the gift itself."- Hahn
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Old 12-29-2006, 11:14 AM   #10
tousled1
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I have an HMP Access Device with Vortex Technology. My port is used to give me chemo and blood draws. I also had it used for anesthesia when I had my surgery.
__________________
Kate
Stage IIIC Diagnosed Oct 25, 2005 (age 58)
ER/PR-, HER2+++, grade 3, Ploidy/DNA index: Aneuploid/1.61, S-phase: 24.2%
Neoadjunct chemo: 4 A/C; 4 Taxatore
Bilateral mastectomy June 8, 2006
14 of 26 nodes positive
Herceptin June 22, 2006 - April 20, 2007
Radiation (X35) July 24-September 11, 2006
BRCA1/BRCA2 negative
Stage IV lung mets July 13, 2007 - TCH
Single brain met - August 6, 2007 -CyberKnife
Oct 2007 - clear brain MRI and lung mets shrinking.
March 2008 lung met progression, brain still clear - begin Tykerb/Xeloda/Ixempra
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Old 12-29-2006, 12:27 PM   #11
Sbacer
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Smile Port

Hi
It depends on the Dr, there are different kinds/places to put ports. Although heavy lifting is considered a No No. My port is an underarm port on the other side of my chest wall and completely covered by my skin. Right after my port was put in I had my first Chemo and that helped me as I was still a little loopy from the knock out and I could cross an AC off at the same time.

Take care
Sandy
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Old 12-29-2006, 05:00 PM   #12
janet11
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Kriss,

A port is totally under the skin, so it's protested quite well from flying debris. Mine is in my chest just above the breast, in an area covered by my shirts and blouses. They used a general anesthetic for me when they put it in and after a couple weeks, it didn't bother me when I lay on my side to sleep. It's been wonderful!!!

Janet

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Janet in Rowlett Texas

Dx July 2006 IDC 1.8cm, ER-/PR- HER2+ (FISH 7), KI67 High (60%) grade 3, TOPO II neg
Aug2006: lumpectomy, SNB (4 nodes neg), Stage 1
Jan 2007:
Finished 6 cycles of TCH (Taxotere, Carboplatin, Her ceptin). Then Herceptin every 3 weeks.
Feb 2007: Completed Radiation
May 2007: Stopped Herceptin due to low LVEF (49%)
July 2007: LVEF now 44% -- starting Coreg
May 2008: Heart NORMAL! Yippee.
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Old 12-29-2006, 10:52 PM   #13
Chelee
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Sue, Your port must be new. My port and most that I know of can't be used for CT/contrast dyes, etc. I wish mine could be used for that...would make things much easier for all my scans. Sounds like you lucked out with this new type of port.

You mentioned being black and blue. I can relate...mine was placed in my upper arm and it was black & blue ALL the way AROUND my entire upper arm. It looked awful. Looked worse then it felt...but I had blood thinners in me at that time so I think that is what made mine worse. I know several nurses asked me what happened? lol No one wanted to touch mine for over a week. Thats how bruised and discolored it was. But thankfully its been working great...does the job.

Enjoy your power port...sounds pretty cool. You must of gotten to drive the latest model off the lot. lol Thats going to come in handy! Wish I would of had one like that to start with.

Chelee
__________________
DX: 12-20-05 - Stage IIIA, Her2/Neu, 3+++,Er & Pr weakly positive, 5 of 16 pos nodes.
Rt. MRM on 1-3-06 -- No Rads due to compromised lungs.
Chemo started 2-7-06 -- TCH - - Finished 6-12-06
Finished yr of wkly herceptin 3-19-07
3-15-07 Lt side prophylactic simple mastectomy. -- Ooph 4-05-07
9-21-09 PET/CT "Recurrence" to Rt. axllia, Rt. femur, ilium. Possible Sacrum & liver? Now stage IV.
9-28-09 Loading dose of Herceptin & started Zometa
9-29-09 Power Port Placement
10-24-09 Mass 6.4 x 4.7 cm on Rt. femur head.
11-19-09 RT. Femur surgery - Rod placed
12-7-09 Navelbine added to Herceptin/Zometa.
3-23-10 Ten days of rads to RT femur. Completed.
4-05-10 Quit Navelbine--Herceptin/Zometa alone.
5-4-10 Appt. with Dr. Slamon to see what is next? Waiting on FISH results from femur biopsy.
Results to FISH was unsuccessful--this happens less then 2% of the time.
7-7-10 Recurrence to RT axilla again. Back to UCLA for options.
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Old 12-30-2006, 11:51 AM   #14
LAURIE
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I have a port installed above my breast and before hand thought I can't stand the thought of having this thing inside of me. I was even concerned about the little scar. I rememeber asking my surgeon about the scar and I could see the look on his face like "you just wait till your surgery" That was in last August. So if your feeling this way it's normal to me. I guess I am okay with it now. It only midly hurt for a few days afterwards and it is really easier for surgery, nurses and easier for us too. Trust me I am really a wimp when it comes to pain and it is not that bad. I told my surgeon that if I can take something for pain I always will. I took a couple vicodin for a couple days later. After my chemo treatments I complained of my collar bone (and lower, in the port area) hurting (I even thought it was swollen) and they did an x-ray. It was fine. I am just real sensitive to any pain and just geting stick in my port was enough for me to complain about. Even now I am so aware of every ache and pain in my body. I think I am getting better about what is normal and not as much of a complainer anymore (I am sure my husband would agree with that). What I am trying to say is that if you read all these posts and you still don't like the idea of having a port it's okay. Why would anyone want it, if they don't have to. But the fact is we have to, and we do it because it is the best thing for us to do. So if you have any pain after your port placement and think your a wimp because you do, who cares. Let yourself feel that way.
__________________

Laurie
Diagonsed 8/10/06 (found own lump)at 35
Her 2 +++, er-/pr-
4 A/C 8-29-06 to 11-06
Lumpectomy, node dissection- 11/30/06
Pathology report stage IIIC
1 tumor 3 cm
10 of 15 nodes +
12 Taxol 12/18/06-03/06/07
Herceptin 12/18/06- 12/11/2007 done!!! yeah!!!
33 rads started 3/22/07, done!! yeah!! 5/07/07
Lymphedema diagonsed 2/1/07
BRCA1/BRCA2 negative
port out 1/10/08
pregnant after 6 yeas of trying- due mid feb.
Ryder David Kessel Hunter born feb.6th 2009

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Old 12-30-2006, 12:05 PM   #15
KellyA
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Hi there. My port is also on the inside of my upper arm (they called it a passport (sp?)). I was scared to death when I went to get it put in- and needles don't usually bother me. I was completely awake for it and other than the IV, and a little numbing medicine at the site, I didn't feel a thing. It went in pretty quickly also. Afterwards, it was a little sore, only if I touched it. As a matter of fact, I kept forgetting that it was there and was using my arm to shut doors and all and would quickly remember when the pain hit!! The tenderness went away after a few days and it did bruise a little, but not too bad.

Love, Kelly
__________________
dx'd 05/06, 37 years old
er/pr-, Her2+, grade 3
double mastectomy, immediate reconstruction- implants
Stage 2b, 2 tumors- 2.2 cm and 0.6 cm, 3/5 + nodes
all scans clear
genetic testing- negative
06/06 began dd A/C x 4, 12 weekly Taxols w/ Herceptin
30 rads
Herceptin weekly x 1 year
Herceptin completed 08/07
Port removed 12/26/07 MERRY CHRISTMAS!!!!!!
05/17/08 Two year anniversary NED

"We gain strength, courage, and confidence by each experience in which we really stop to look fear in the face... you must do the thing that you think you cannot do."

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Old 12-30-2006, 12:36 PM   #16
tousled1
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Laurie,

If it bothers you when they stick you for chemo you can ask your oncologist for a prescription for "Lidocaine Cream." I have it and I just put a blob of it on the port and cover it with a small piece of plastic wrap about 1/2 hour before chemo. Alas, no pain when they stick you!
__________________
Kate
Stage IIIC Diagnosed Oct 25, 2005 (age 58)
ER/PR-, HER2+++, grade 3, Ploidy/DNA index: Aneuploid/1.61, S-phase: 24.2%
Neoadjunct chemo: 4 A/C; 4 Taxatore
Bilateral mastectomy June 8, 2006
14 of 26 nodes positive
Herceptin June 22, 2006 - April 20, 2007
Radiation (X35) July 24-September 11, 2006
BRCA1/BRCA2 negative
Stage IV lung mets July 13, 2007 - TCH
Single brain met - August 6, 2007 -CyberKnife
Oct 2007 - clear brain MRI and lung mets shrinking.
March 2008 lung met progression, brain still clear - begin Tykerb/Xeloda/Ixempra
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Old 12-31-2006, 12:54 PM   #17
Adriana Mangus
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Stay home

I had a port put on 3 years ago, mine got infected and it had to be removed. I would stay home, what's the rush? We're not indispensable, believe me. Take care of yourself, once you get better then you can go back to your normal life.
__________________
1994 - rt brst, .lump, underarm node dissection,chemo+rad 1.2 cms, Grade 3.
28 nodes neg
Er,Pr, Positive HER2 status unknown
2003- Recur to rt lung.July 16 ( B-Day!)
Her2+++ Er,Pr, Negative
2003 - Aug04--Navelbine + Herceptin
2004- 2007--
NED - Herceptin, only
2007 Feb-April Xeloda added to hereceptin
2007-May Back on Navelbine+Herceptin
2008-Feb-Mar 15 Ses Rad to Rt. Lung
2008- Oc 17 Add Tykerb to Herceptin
2009- June-- Discont Tykerb
2009 July 7--Current Taxol + Herceptin
2009 Dec--Discontinued treatment due to progression. Looking into cyberknife.
2010-Aug Accepted to TDM1, no SE, except liver count went up.
2010-2011 September got kicked out of the trial, due to a small spot found on lung.
2011- 2012 September thru early 2013 on Herceptin
2013- March Bone density shows small spot on 5th rib.
2013 - April 4th appt with onc. will post after discussing course of treatment.
2013-March-April Cyber knife to brain and radiation to rib. Chest --base line before chemo-CT-Scan stable for lung issue. CA2729 Normal.
2013 April Herceptin- TDMI
2013 Sept Herceptin + Perjeta . CA2729 within normal range. Brain and Pet scans October 31st. will post results.
2013 October Brain MRI- mixed response. Will see Onc/rad on Halloween.
2013 October/November Brain-MRI nothing new. Repeat MRI next year in May.

2013 December Continue Herceptin and Perjeta. Stable at the moment.
2014 February Brain MRI -clear!
2014 January Added Taxotere to Perjeta+Herceptin.
2014 March Stopped chemo-chest ct-scan next.

2014- March Scans shows tumor's larger, CA2729 higher. Discontinue Herceptin.
2014 April Perjeta+ Halaven
2014 April CA2729 went down 60 points after one cycle. Cough does not want to go away.
2014 June Continue on Perjeta + Halaven-- no more cough. Stable
2014 June Back on Herceptin + abraxane
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Old 12-31-2006, 04:57 PM   #18
Chelee
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Kriss, As to keeping your port clean...I am not sure about the ports that are placed in the chest, but mine was put in the upper arm where you would put a blood pressure cuff. For me...they put these BIG CLEAR square patches that had adhesive on the backs of them and boy do they stick! Totally sealed off from moisture, dirt, etc. It wrapped all the way around my arm. They told me to keep it clean. And believe me...with these big sheets of adhesive patches it was easy to keep clean.

They gave me extras to take home so I could put news ones on it when needed. I am not sure if they use something like this for the ones that go in the chest? But I am sure someone here can tell you how they deal with the ones in the chest area.

Chelee
__________________
DX: 12-20-05 - Stage IIIA, Her2/Neu, 3+++,Er & Pr weakly positive, 5 of 16 pos nodes.
Rt. MRM on 1-3-06 -- No Rads due to compromised lungs.
Chemo started 2-7-06 -- TCH - - Finished 6-12-06
Finished yr of wkly herceptin 3-19-07
3-15-07 Lt side prophylactic simple mastectomy. -- Ooph 4-05-07
9-21-09 PET/CT "Recurrence" to Rt. axllia, Rt. femur, ilium. Possible Sacrum & liver? Now stage IV.
9-28-09 Loading dose of Herceptin & started Zometa
9-29-09 Power Port Placement
10-24-09 Mass 6.4 x 4.7 cm on Rt. femur head.
11-19-09 RT. Femur surgery - Rod placed
12-7-09 Navelbine added to Herceptin/Zometa.
3-23-10 Ten days of rads to RT femur. Completed.
4-05-10 Quit Navelbine--Herceptin/Zometa alone.
5-4-10 Appt. with Dr. Slamon to see what is next? Waiting on FISH results from femur biopsy.
Results to FISH was unsuccessful--this happens less then 2% of the time.
7-7-10 Recurrence to RT axilla again. Back to UCLA for options.
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Old 12-31-2006, 08:11 PM   #19
Soccermom
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Dear Kris,
I believe the patch that Chelee is referring to is called Tegaderm.I had an external port originally (subclavian catheter) and had to keep it "dressed" 24/7. The coverings for that were sold to me by the medical supply dept. at MDAnderson (who implanted cath w only alocal anesthetic). When I ran short my local pharmacy sold me the Tegaderm which was trickier to work with (like saran wrap w glue!) but did thejob as afr as keeping cath dry and clean.
I had that removed in June 0f 2005 and replaced with an implanted port (BARD) which I still have (hopefullythey will give me the go ahead in June to remove!). I FORGET that its there, REALLY! I have been fortunate to not have had one single problem (knock wood) and have never had to cover itto protect it. I am just sorry I didnt know to ask about a pediatric sized port as I have no extra "meat" on my chest to pad it.
I hope your experience w a port is as noneventful as mine!

Marcia
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Old 09-24-2007, 12:52 PM   #20
sdhaem
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Talking

I have had two chest ports ,,, completely under the skin.. and you just care for it like your skin... my first one from day one was uncomfortable and I ran a low grade temp then it started looking red around it.. and Doc said it had to come out it was infected,, they said it was no fault of mine, sometimes that just happens.. the second one (Bard) put on the other side of my chest ,,I have had no trouble with... don't know its there... I wish to they could use it for more uses, like blood tests... and for the IV's when they do Muga and CT's but I guess those people aren't trained to use them ...
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