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02-22-2012, 01:36 AM
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#21
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Senior Member
Join Date: Apr 2011
Location: Michigan
Posts: 1,173
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Re: Today I Celebrate 10 Years as a Survivor
Gods blessings to you on your 10th Anniversary Sheila !!!!!!!!!!!!!! My Wonderful friend with the Calm Loving Spirit!!!
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02-22-2012, 06:03 AM
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#22
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Senior Member
Join Date: Jul 2007
Location: Canada
Posts: 2,193
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Re: Today I Celebrate 10 Years as a Survivor
You party animal ... can you keep that mesh looking stuff when
the treatments are over? I think you can use it to line your shelves ...
You know we all love you, right SheilaGirl!!!!
__________________
PinkGirl
Dx Aug/05 at age 51
2cm. Stage 2A, Grade 3
ER+/PR-
Her2 +++
Sept 7/05 Mastectomy
4 FAC, 4 Taxol, no radiation
1 year of Herceptin
Tamoxifen for approx. 4 months,
Arimidex for 5 years
Prophylactic mastectomy June 22/09
" I yam what I yam." - Popeye
My Photo Album
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02-22-2012, 06:39 AM
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#23
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Senior Member
Join Date: Aug 2011
Location: Philly Suburbs
Posts: 1,709
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Re: Today I Celebrate 10 Years as a Survivor
Sheila,
Congratulations!!!
I know I'm not the first to say this...and will definitely not be the last...but...
YOU ARE A TREASURE!
Your spirit!
Your joy in living!
Your concern for others!
God bless you!
May you have many, many, many more anniversaries for us to celebrate with you!
I'm sending a shower of love and prayers your way!
Denise
PS - LOVE the new avatar photo!
__________________
1/11-needle biopsy
2/11-Lumpectomy/axillary node dissection - Stage 3c, ER/PR-14/17 nodes
3/11 - Post-op staph infection,cellulitis, lymphedema,seroma,ARRRGH!
4/12/11-A/C x 4, then T/H x 4, H only,Q3 weeks
8/26/11 finished Taxol!!!
10/7/11 mastectomy/DIEP recon
11/11 radiation x28
1/12/12 1st CANCER-VERSARY!
1/12 Low EF/Herceptin "Holiday" :(
2/12 EF up - Back on Herceptin, heart meds
4/2/1212 surgery to repair separated incision from DIEP recon
6/8/12 Return to work :)
6/17/12 Fall, shatter wrist,surgery to repair/insert plate :(
7/10/12 last Herceptin
7/23/12 Brain Mets %$&#! 3cm and 1cm
8/10/12 Gamma knife surgery, LOTS of steroids;start H/Tykerb
8/23/12 Back to work
12/20/12 Injure back-3 weeks in wheel chair
1/12/13 2nd CANCER-VERSARY!
1/14/13 herniate disk in back - surgery to repair
1/27/13 Radiation necrosis - edema in brain - back on steroids - but not back to work - off balance, poor cordination in right arm
5/3/13 Start Avastin to shrink necrosis
5/10/13 begin weaning steroids
6/18/13 Brain MRI - Avastin seems to be working!
6/20/13 quarterly CT - chest, abdomen, pelvis - All Clear!
7/5/13 finally off steroids!!
7/7/13 joined the ranks of the CHEMO NINJAS I am now Tekuto Ki Ariku cancer assassin!
7/13/13 Symptoms return - back on steroids
7/26/13 Back on Avastin - try again!
8/26/13 Not ready to return to classroom yet :( But I CAN walk without holding onto things! :)
9/9/13 Brain MRI - fingers crossed
“ Life is a grindstone, and whether it grinds you down or polishes you up is for you, and you alone, to decide. ” – Cavett Robert
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02-22-2012, 08:33 AM
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#24
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Senior Member
Join Date: Mar 2009
Posts: 508
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Re: Today I Celebrate 10 Years as a Survivor
Congratulations, Sheila! And here's to zapping that neck node but good!
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02-22-2012, 09:09 AM
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#25
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Senior Member
Join Date: Jan 2010
Posts: 170
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Re: Today I Celebrate 10 Years as a Survivor
Congratulations Lady!
You are one special person who raises our spirits and hopes no matter what.
Here's to many, many more years!
Emelie
__________________
Nov. 2006-IDC with Her2 +++
A/C for 3 rounds
Dec. 2006- Herceptin and Taxotere
March 2007-MRM with 8 of 14 lymph node involvement
May 2007-36 Rads
Sept. 2007- Stopped Herceptin
Jan. 2010- CT scan shows enlarged lymph nodes in sternum and lung involvement
Feb. 2010-PET scan shows mets to liver, lung, lymph nodes and bone
Feb. 2010- Started Herceptin/Taxol and Zometa
April 2010-PET scan clear. Herceptin and Zometa
June 2010- Stopped Herceptin continue Zometa and still NED
August 2010-Back on Herceptin and Zometa every 3 weeks
August 13, 2010- Had another port placed
August 24, 2010- PET scan clear. Herceptin and Zometa every three weeks
Nov. 2010-PET scan clear
Feb. 2011-Brain MRI clear
March 2011- PET scan clear
May 2011- PET scan clear
Sept. 2011- PET, Mammo, Bone Scan all clear- Herceptin only
March 2012-Recurrence in lungs and tumor around pota hepatis artery. Added Navelbine to herceptin
April 2012- Entered palliative care
June 5, 2012-Entered hospice care
Planning my memorial
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02-22-2012, 09:31 AM
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#26
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Senior Member
Join Date: Sep 2005
Location: Newton, MA
Posts: 951
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Re: Today I Celebrate 10 Years as a Survivor
Wow, Sheila!!! Thank you for posting and sharing. You are an inspiration to all of us, and especially the newly diagnosed who need hope. I remember when I progressed after 6 years to stage 4 two months before my daughter's wedding in 2004. Scans indicated that it was everywhere including a 3cm tumor in my brain. My husband asked my oncologist privately on the phone how long I had. He said, "I can give her years." I know that you can imagine how much that meant to me at the time. Well, I am still here. Wishing you another ten + years, hopefully reaching NED. I will be thinking of your over the next few weeks as you endure those road trips and your radiation. You are truly amazing.
"Happy Birthday!!!"
Barbara H.
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02-22-2012, 09:34 AM
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#27
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Senior Member
Join Date: Feb 2006
Posts: 437
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Re: Today I Celebrate 10 Years as a Survivor
Congratulations on your mega anniversary Sheila!
I come here infrequently, but am always amazed at your incredible spirit.
You rock!
God Bless.
__________________
Linda
Dxed Stage IIIC May 05, 12 pos nodes
er/pr -neg,Her -pos
LVI
Right partial mast & partial axillary dissection-June14,2005
Right modified mast-no clear margins- June 30, 2005
DD AC x4
Taxotere X4 with Herceptin
Rads x 35( 5 fields )
Left prophylactive mast( atypia & hyperplasia found ),
put on Tamoxifen x 1 yr; D/ced due to endometrial thickening
bilateral recon (saline implants)May 06
Nipple recon July 06
metformin 2010
removal of implants due to severe encapsulation, insertion of gummies 2013
Reclast Q yr
NED!!!
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02-22-2012, 09:55 AM
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#28
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Senior Member
Join Date: May 2009
Posts: 510
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Re: Today I Celebrate 10 Years as a Survivor
Sheila, you're truly a force of nature. Thank you for being here and sharing your amazing story of hope to all of us. And here's to the next 30!
Love,
Marcia
__________________
ER+ (30%)/PR-/HER-2+, stage 3
Diagnosed on 02/18/09 at 38 with a huge 12x10 cm tumor, after a 6 month delay. Told I was too young and had no risk factors. Found swollen node during breastfeeding.
March-August 09: neo-adjuvant chemo, part of a trial at Stanford (4 DD A/C, 4 Taxotere with daily Tykerb), loading dose of Herceptin
08/12/09 - bye bye boobies (bilateral mastectomy)
08/24/09 - path report shows 100 % success in breast tissue (no cancer there, yay!), 98 % success in lymphatic invasion, and even though 11/13 nodes were still positive, > 95 % of the tumor in them was killed. Hoping for the best!
September-October 09: rads with daily Xeloda
02/25/10 - Cholecystectomy
05/27/10 - Bone scan clear
06/14/10 - CT scan clear, ovarian cyst found
07/27/10 - Done with Herceptin!
02/15/11 - MVA-BN HER-2 vaccine trial
03/15/11 - First CA 15-3: 12.7 and normal, yay!
10/01/11 - Bone scan and CT scan clear, fatty liver found
now on Tamoxifen and Aspirin
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02-22-2012, 11:14 AM
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#29
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Senior Member
Join Date: Jul 2006
Posts: 869
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Re: Today I Celebrate 10 Years as a Survivor
Ceesun to Sheila, Congrats, best wishes, and prayers. I feel honored to "know" you thru this website. Cathy
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02-22-2012, 03:44 PM
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#30
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Senior Member
Join Date: Jan 2008
Location: "Love never fails."
Posts: 5,808
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Re: Today I Celebrate 10 Years as a Survivor
Congratulations!
Thanks for sharing those 'cool' pictures.
__________________
Jackie07
http://www.kevinmd.com/blog/2011/06/doctors-letter-patient-newly-diagnosed-cancer.html
http://www.asco.org/ASCOv2/MultiMedi...=114&trackID=2
NICU 4.4 LB
Erythema Nodosum 85
Life-long Central Neurocytoma 4x5x6.5 cm 23 hrs 62090 semi-coma 10 d PT OT ST 30 d
3 Infertility tmts 99 > 3 u. fibroids > Pills
CN 3 GKRS 52301
IDC 1.2 cm Her2 +++ ER 5% R. Lmptmy SLNB+1 71703 6 FEC 33 R Tamoxifen
Recc IIB 2.5 cm Bi-L Mast 61407 2/9 nds PET
6 TCH Cellulitis - Lymphedema - compression sleeve & glove
H w x 4 MUGA 51 D, J 49 M
Diastasis recti
Tamoxifen B. scan
Irrtbl bowel 1'09
Colonoscopy 313
BRCA1 V1247I
hptc hemangioma
Vertigo
GI - > yogurt
hysterectomy/oophorectomy 011410
Exemestane 25 mg tab 102912 ~ 101016 stopped due to r. hip/l.thigh pain after long walk
DEXA 1/13
1-2016 lesions in liver largest 9mm & 1.3 cm onco. says not cancer.
3-11 Appendectomy - visually O.K., a lot of puss. Final path result - not cancer.
Start Vitamin D3 and Calcium supplement （600mg x2)
10-10 Stopped Exemestane due to r. hip/l.thigh pain OKed by Onco 11-08-2016
7-23-2018 9 mm groundglass nodule within the right lower lobe with indolent behavior. Due to possible adenocarcinoma, Recommend annual surveilence.
7-10-2019 CT to check lung nodule.
1-10-2020 8mm stable nodule on R Lung, two 6mm new ones on L Lung, a possible lymph node involvement in inter fissule.
"I WANT TO BE AN OUTRAGEOUS OLD WOMAN WHO NEVER GETS CALLED AN OLD LADY. I WANT TO GET SHARP EDGED & EARTH COLORED, TILL I FADE AWAY FROM PURE JOY." Irene from Tampa
Advocacy is a passion .. not a pastime - Joe
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02-22-2012, 07:34 PM
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#31
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Senior Member
Join Date: Oct 2005
Location: New Jersey
Posts: 3,154
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Re: Today I Celebrate 10 Years as a Survivor
Dear Shelia,
One Word for you.....
"AMAZING"
You are one amazing lady.
Big congratulations.
Love, hugs, and kisses.
Jean
__________________
Stage 1, Grade 1, 3/30/05
Lumpectomy 4/15/05 - 6MM IDC
Node Neg. (Sentinel node)
ER+ 90% / PR-, Her2+++ by FISH
Ki-67 40%
Arimidex 5/05
Radiation 32 trt, 5/30/05
Oncotype DX test 4/17/06, 31% high risk
TOPO 11 neg. 4/06
Stopped Arimidex 5/06
TCH 5/06, 6 treatments
Herceptin 5/06 - for 1 yr.
9/06 Completed chemo
Started Femara Sept. 2006
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02-22-2012, 07:47 PM
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#32
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Senior Member
Join Date: May 2008
Location: Hershey, PA. Live The Sweet Life!
Posts: 2,005
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Re: Today I Celebrate 10 Years as a Survivor
Love you, Kiddo! Let's just see you through another decade of surviving! You're our hero in residence!
__________________
Smile On!
Laurel
Dx'd w/multifocal DCIS/IDS 3/08
7mm invasive component
Partial mast. 5/08
Stage 1b, ER 80%, PR 90%, HER-2 6.9 on FISH
0/5 nodes
4 AC, 4 TH finished 9/08
Herceptin every 3 weeks. Finished 7/09
Tamoxifen 10/08. Switched to Femara 8/09
Bilat SPM w/reconstruction 10/08
Clinical Trial w/Clondronate 12/08
Stopped Clondronate--too hard on my gizzard!
Switched back to Tamoxifen due to tendon pain from Femara
15 Years NED
I think I just might hang around awhile....
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02-23-2012, 07:31 PM
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#33
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Senior Member
Join Date: Jan 2007
Location: Thornhill, Ontario
Canada
Posts: 2,320
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Re: Today I Celebrate 10 Years as a Survivor
Happy "10th" Sheila dear!!
You go girl - you are truly an inspiration to us all!!
all the best
caya
__________________
ER90%+/PR 50%+/HER 2+
1.7 cm and 1.0 cm.
Stage 1, grade 2, Node Negative (16 nodes tested)
MRM Dec.18/06
3 x FEC, 3 x Taxotere
Herceptin - every 3 weeks for a year, finished May 8/08
Tamoxifen - 2 1/2 years
Femara - Jan. 1, 2010 - July 18, 2012
BRCA1/BRCA2 Negative
Dignosed 10/16/06, age 48 , premenopausal
Mild lymphedema diagnosed June 2009 - breast surgeon and lymph. therapist think it's completely reversible - hope so.
Reclast infusion January 2012
Oopherectomy October 2013
15 Years NED!!
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02-23-2012, 08:38 PM
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#34
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Senior Member
Join Date: Jan 2011
Posts: 36
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Re: Today I Celebrate 10 Years as a Survivor
God Bless you, Shelia. thank you for all the hope you've given to so many of us. You are one of my heros!
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02-24-2012, 01:14 AM
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#35
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Senior Member
Join Date: Dec 2011
Posts: 585
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Re: Today I Celebrate 10 Years as a Survivor
Congratulations on 10 years, and many more to come. You truly are an inspiration for women like me who are newly stage IV and at the beginning of this journey. When I came to this site, I literally thought I needed to start planning my funeral, and it is women like you and posts like this one that have given me hope and courage to keep on going and know that there can be a different outcome. Thank you for all that you have done and continue to do...you really do make a difference in people's lives. ((hugs))
__________________
Diagnosed in October 2011 Stage IV with metastasis to liver.
January 2012 after double mastectomy, started taxotere, carboplatin and herceptin.
Clear.
December 2012 was diagnosed with five brain mets, and had whole brain radiation.
Around July 2014 two mets in brain, one a residual spot and one new one growing in size. Received Cyberknife on both areas
Clear/NED
April 2015 remain NED
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02-24-2012, 08:35 AM
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#36
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Senior Member
Join Date: Nov 2005
Location: Northern Calif.
Posts: 981
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Re: Today I Celebrate 10 Years as a Survivor
Sheila, I am so inspired by you. You are so strong and beautiful. You take your txs in stride and head on. You are a remarkable woman.
Hugs and Prayers,
Lexi
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02-24-2012, 12:23 PM
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#37
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Senior Member
Join Date: Jun 2007
Posts: 216
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Re: Today I Celebrate 10 Years as a Survivor
Sheila,
You inspire me so much.
Janie
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02-24-2012, 12:36 PM
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#38
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Member
Join Date: Jan 2012
Posts: 7
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Re: Today I Celebrate 10 Years as a Survivor
Thanks for sharing. You are an inspirational group and I find so much to help me find peace as I join this group. I just joined Jan. 2012. In 10 years I expect to be here inspiring those that are grasping to face the recovery they will be having. I'm just 2 months in, 1 herceptin treatment, starting the arimidex, and accepting that the herceptin will work alone since by MS cancels out the chemo. Brave, courageous, strong women seek out one another. I appreciate each one of you.
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02-24-2012, 03:20 PM
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#39
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Senior Member
Join Date: May 2006
Location: northshore suburb of chicago
Posts: 1,093
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Re: Today I Celebrate 10 Years as a Survivor
You keep going girl! Here's to many more increments of 10. You have been an inspiration to so many and what a great example of perciverence.
__________________
~Rina~
Dx:3/06 had a lumpectomy April 19, 2006
Her2+ er/pr- Stage I Grade 3 tumor size 1.4 cm, node negative
AC 4 dense doses
34 radiation treatments including booster doses
receiving herceptin every 3 weeks since late August 2006 for 12 months
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02-24-2012, 04:32 PM
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#40
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Senior Member
Join Date: Sep 2005
Location: Stockton, NJ
Posts: 4,179
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Re: Today I Celebrate 10 Years as a Survivor
Phenomenal and inspirational = Sheila. We see your face when we look those words up in the dictionary.
Love to you
__________________
Kind regards
Becky
Found lump via BSE
Diagnosed 8/04 at age 45
1.9cm tumor, ER+PR-, Her2 3+(rt side)
2 micromets to sentinel node
Stage 2A
left 3mm DCIS - low grade ER+PR+Her2 neg
lumpectomies 9/7/04
4DD AC followed by 4 DD taxol
Used Leukine instead of Neulasta
35 rads on right side only
4/05 started Tamoxifen
Started Herceptin 4 months after last Taxol due to
trial results and 2005 ASCO meeting & recommendations
Oophorectomy 8/05
Started Arimidex 9/05
Finished Herceptin (16 months) 9/06
Arimidex Only
Prolia every 6 months for osteopenia
NED 18 years!
Said Christopher Robin to Pooh: "You must remember this: You're braver than you believe and stronger than you seem and smarter than you think"
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