| Herceptin / Tykerb Share your experiences or ask questions about Herceptin or Tykerb |
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10-30-2007, 08:03 AM
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#1
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Senior Member
Join Date: Jun 2006
Location: South Florida
Posts: 477
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InScanity over for now - headache just a headache
Hi Ladies,
Update...Okay, this round of scans is over, big sigh! Pet CT (a month ago) called for further investigation and then the headaches started. So, wait for scans to be approved and then scheduled gets me to 1 full month of InScanity. So, CT chest, abdomen, and pelvis with bone scan confirms, tiny - possible increase in the activity of bone mets. Liver continues to be much better than when I started this journey - thank God. Brain MRI with contrast is fine and the headaches went away right after I got the scan. I swear I was not faking them.
So, I want to go outside and howl at the moon. Instead, if I have the energy I am going to a fundraiser for the cancer center tonight.
Love, Hope, and Peace,
Carolyn
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10-30-2007, 09:17 AM
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#2
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Senior Member
Join Date: Feb 2006
Location: Acworth, GA
Posts: 2,104
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Carolyn,
Glad all the tests came back good except for the possibility of activity in the bone mets.
__________________
Kate
Stage IIIC Diagnosed Oct 25, 2005 (age 58)
ER/PR-, HER2+++, grade 3, Ploidy/DNA index: Aneuploid/1.61, S-phase: 24.2%
Neoadjunct chemo: 4 A/C; 4 Taxatore
Bilateral mastectomy June 8, 2006
14 of 26 nodes positive
Herceptin June 22, 2006 - April 20, 2007
Radiation (X35) July 24-September 11, 2006
BRCA1/BRCA2 negative
Stage IV lung mets July 13, 2007 - TCH
Single brain met - August 6, 2007 -CyberKnife
Oct 2007 - clear brain MRI and lung mets shrinking.
March 2008 lung met progression, brain still clear - begin Tykerb/Xeloda/Ixempra
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10-30-2007, 10:48 AM
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#3
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Senior Member
Join Date: Sep 2005
Location: Central Coast, CA
Posts: 3,207
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Carolyn, what a month - I know you're glad to be through all that scanxiety. Amazing how those headaches work - I've had the same thing happen to me!
Enjoy your howling
__________________
Chris in Scotts Valley
June 2002 extensive hi grade DCIS (pre-cancer-stage 0, clean sentinal node) Mastectomy/implant - no chemo, rads. "cured?"
9/2004 Diag: Stage IV extensive liver mets (!) ER/PR- Her2+++
10/04-3/05 Weekly Taxol/Carboplatin/Herceptin , complete response!
04/05 - 4/07 Herception every 3 wks, Continue NED
04/07 - recurrence to liver - 2 spots, starting tykerb/avastin trial
06/07 8/07 10/07 Scans show stable, continue on Tykerb/Avastin
01/08 Progression in liver
02/08 Begin (TDM1) trial
08/08 NED! It's Working! Continue on TDM1
02/09 Continue NED
02/10 Continue NED. 5/10 9/10 Scans NED 10/10 Scans NED
12/10 Scans not clear....4/11 Scans suggest progression 6/11 progression confirmed in liver
07/11 - 11/11 Herceptin/Xeloda -not working:(
12/11 Begin MM302 Phase I trial - bust:(
03/12 3rd times the charm? AKT trial
5/12 Scan shows reduction! 7/12 More reduction!!!!
8/12 Whoops...progression...trying for Perjeta/Herceptin (plus some more nasty chemo!)
9/12 Start Perjeta/Herceptin, chemo on hold due to infection/wound in leg, added on cycle 2 &3
11/12 Poops! progression in liver, Stop Perjeta/Taxo/Herc
11/12 Navelbine/Herce[ptin - try for a 3 cycles, no go.
2/13 Gemzar/Carbo/Herceptin - no go.
3/13 TACE procedure
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11-02-2007, 09:31 PM
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#4
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Senior Member
Join Date: Sep 2006
Location: Houston, Texas
Posts: 624
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Glad most of your scans went well. Sorry about the the tiny possible increase in bone mets. I am praying they are nothing.
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11-03-2007, 07:33 AM
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#5
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Senior Member
Join Date: Jun 2006
Location: South Florida
Posts: 477
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Hi Kate, Chrisy and Vanessa,
Thanks for your responses. I feel very blessed to have gotten results in from so many tests with almost all good news...or stable news anyway.
It takes me some time to get over the anxiety of InScanity...so one week later I am kind of crashing. In the next few weeks I hope to regain my stamina and catch my stride again. This is such a rocky road, sometimes I still can't believe that this is my life...then immediately I remember that I am very fortunate to be at this place at this time.
I pray and pray that they will find a cure soon.
Thanks for your support. It makes this journey less lonely.
Love, Hope, and Peace, Carolyns
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