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Old 08-26-2013, 05:03 PM   #1
NEDenise
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Join Date: Aug 2011
Location: Philly Suburbs
Posts: 1,709
Good News / "Bad" News

Okay...
So I think I'll file this one under "can't I catch a break...ever?"

The other day when I went for my Avastin infusion,
I had what I thought was prickly heat under my "good" arm...
seemed logical...
we heavy-set people tend toward that.
When I showed my onc, she became slightly alarmed and told me that no,
it was in fact folliculitis and would require a 7 day course of antibiotics.

Okay, no sweat...
we were going away for a few days,
but I could enjoy my holiday while remembering to take my antibiotics.
Or so I thought.
I took the first dose Thursday night.
Took the next 2 doses while at the amusement park on Friday.
By Friday night my friends, I was feeling mighty low...
headache, achiness, fatigue, nausea,
and everyone's best friend while stuck in a public place... diarrhea!

Saturday, I felt so lousy, I slept almost all day.
But... that led to the good news.
I slept through my evening steroid dose...
and am now weaned to only 1mg/day!!
And since I also stopped the antibiotic too, I feel pretty good.

Now we just have to make sure the folliculitis doesn't come back!
And I'll need to be careful not to fall down while my body gets used to a lower steroid dose.

Never a dull moment!
Love to all of you!
Denise
__________________
1/11-needle biopsy
2/11-Lumpectomy/axillary node dissection - Stage 3c, ER/PR-14/17 nodes
3/11 - Post-op staph infection,cellulitis, lymphedema,seroma,ARRRGH!
4/12/11-A/C x 4, then T/H x 4, H only,Q3 weeks
8/26/11 finished Taxol!!!
10/7/11 mastectomy/DIEP recon
11/11 radiation x28
1/12/12 1st CANCER-VERSARY!
1/12 Low EF/Herceptin "Holiday" :(
2/12 EF up - Back on Herceptin, heart meds
4/2/1212 surgery to repair separated incision from DIEP recon
6/8/12 Return to work :)
6/17/12 Fall, shatter wrist,surgery to repair/insert plate :(
7/10/12 last Herceptin
7/23/12 Brain Mets %$&#! 3cm and 1cm
8/10/12 Gamma knife surgery, LOTS of steroids;start H/Tykerb
8/23/12 Back to work
12/20/12 Injure back-3 weeks in wheel chair
1/12/13 2nd CANCER-VERSARY!
1/14/13 herniate disk in back - surgery to repair
1/27/13 Radiation necrosis - edema in brain - back on steroids - but not back to work - off balance, poor cordination in right arm
5/3/13 Start Avastin to shrink necrosis
5/10/13 begin weaning steroids
6/18/13 Brain MRI - Avastin seems to be working!
6/20/13 quarterly CT - chest, abdomen, pelvis - All Clear!
7/5/13 finally off steroids!!
7/7/13 joined the ranks of the CHEMO NINJAS I am now Tekuto Ki Ariku cancer assassin!
7/13/13 Symptoms return - back on steroids
7/26/13 Back on Avastin - try again!
8/26/13 Not ready to return to classroom yet :( But I CAN walk without holding onto things! :)
9/9/13 Brain MRI - fingers crossed
“ Life is a grindstone, and whether it grinds you down or polishes you up is for you, and you alone, to decide. ” – Cavett Robert
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