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03-07-2010, 09:56 PM
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#1
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Senior Member
Join Date: Apr 2006
Location: FLORIDA
Posts: 148
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Mets to bone
Would like to hear from those with mets to the bone. I was diagnosed 05/2009 with met to my spine. I had radiation and my last ct 10/2009 did not show any progression, but I sure feel like I have aged to a 100 since having mets to bone.
I have not posted in over a year, but have lurked around the site reading others posts.
__________________
SHEILA (45)
09/2005--BREAST CANCER/8 POS NODES --A/C, MASTECTOMY,TAXOTERE, RADS, TAMOXIFEN,HERCEPTIN
02/2007--B/C METS TO OVARIES--HYSTERECTOMY, FASLODEX
12/2007--ENLARGING LYMPH NODES IN ABDOMEN--IXEMPRA, THEN TYKERB
08/2008--COLON TUMOR--A/C AGAIN,
12/2008--ABDOMEN TUMOR--AVASTIN/NAVELBINE FEMARA
05/2009--MET TO SPINE (L2) RADS
CURRENT TREATMENT
07/2009- START ZOMETA MONTHLY, XELODA & ABRAXANE......SURVIVING THE BEST I CAN
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03-07-2010, 10:25 PM
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#2
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Senior Member
Join Date: Oct 2005
Location: New Jersey
Posts: 3,154
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Re: Mets to bone
Dear Lopsided
I am happy to read that your recent test show no progression. You have been through alot which would account for the stress and that alone would age anyone.
While I do not have experience in this area I just wanted to wish you continued good ct scans.
All the best,
jean
__________________
Stage 1, Grade 1, 3/30/05
Lumpectomy 4/15/05 - 6MM IDC
Node Neg. (Sentinel node)
ER+ 90% / PR-, Her2+++ by FISH
Ki-67 40%
Arimidex 5/05
Radiation 32 trt, 5/30/05
Oncotype DX test 4/17/06, 31% high risk
TOPO 11 neg. 4/06
Stopped Arimidex 5/06
TCH 5/06, 6 treatments
Herceptin 5/06 - for 1 yr.
9/06 Completed chemo
Started Femara Sept. 2006
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03-08-2010, 08:07 AM
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#3
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Senior Member
Join Date: Apr 2007
Location: LA LA Land
Posts: 1,607
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Re: Mets to bone
Are you still on chemo? That will age anyone. I have sternum mets. Fatigue is a very common result of treatments, add in a bit of depression, some aches and pains of normal aging and it's a miracle that any of us get out of bed.
I force myself to walk everyday. Walking as little as 10 minutes twice a day will boost energy. I walk about half hour twice a day. The only known and proven fatigue fighter is exercise.
The aging I've experienced is due to accelerated hormone loss, the stress of chemo, the stress of cancer and not due to bone mets per se. Hope this info helps...
__________________
1996 cancer WTF?! 1.3 cm lumpectomy Er/Pr neg. Her2+ (20nodes NEGATIVE) did CMF + rads. NED.
2002 recurrence. Bilateral mastectomy w/TFL autologous recon. Then ACx2. Skin lymphatic rash. Taxotere w/Herceptin x4. Herceptin/Xeloda. Finally stops spreading.
2003 - Back to surgery, remove skin mets, and will have surgery one week later when pathology can confirm margins.
‘03 latisimus dorsi flap to remove skin mets. CLEAN MARGINS. Continue single agent Herceptin thru 4/04. NED.
‘04 '05 & 06 tiny recurrences - scar line. surgery to cut out. NED each time.
1/2006 Rads again, to scar line. NED.
3/07 Heartbreaking news - mets! lungs.sternum. Try Tykerb/Xeloda. Tykerb/Carbo/Gemzar. Switch Oncs.
12/07 Herceptin.Tykerb. Markers go stable.
2/8/08 gamma knife 13mm stupid brain met.
3/08 Herceptin/tykerb/avastin/zometa.
3/09 brain NED. Lungs STABLE.
4/09 attack sternum (10 daysPHOTONS.5 days ELECTRONS)
9/09 MARKERS normal!
3/10 PET/CT=manubrium intensely metabolically active but stable. NEDhead.
Wash out 5/10 for tdm1 but 6/10 CT STABLE, PET improving. Markers normal. Brain NED. Resume just Herceptin plus ZOMETA
Dec 2010 Brain NED, lungs/sternum stable. markers normal.
MAR 2011 stop Herceptin/allergy! Go back on Tykerb and switch to Xgeva.
May-Aug 2011 Tykerb Herceptin Xgeva.
Sept 2011 Tykerb, Herceptin, Zometa, Avastin.
April 2012 sketchy drug trial in NYC. 6 weeks later I’m NED!
OCT 2012 PET/CT shows a bunch of freakin’ progression. Back to LA and Herceptin.avastin.zometa.
12/20/12 add in PERJETA!
March 2013 – 5 YEARS POST continue HAPZ
APRIL 2013 - 6 yrs stage 4. "FAILED" PETscan on 4/2/13
May 2013: rePetted - improvement in lungs, left adrenal stable, right 6th rib inactive, (must be PERJETA avastin) sternum and L1 fruckin'worsen. Drop zometa. ADD Xgeva. Doc says get rads consultant for L1 and possible biopsy of L1. I say, no thanks, doc. Lets see what xgeva brings to the table first. It's summer.
June-August 2013HAPX Herceptin Avastin Perjeta xgeva.
Sept - now - on chemo hold for calming tummy we hope. Markers stable for 2 months.
Nov 2013 - Herceptin-Perjeta-Avastin-Xgeva (collageneous colitis, which explains tummy probs, added Entocort)
December '13 BRAIN MRI ned in da head.
Jan 2014: CONTINUING on HAPX…
FEB 2014 PetCT clinical “impression”: 1. newbie nodule - SUV 1.5 right apical nodule, mildly hypermetabolic “suggestive” of worsening neoplastic lesion. 2. moderate worsening of the sternum – SUV 5.6 from 3.8
3. increasing sclerosis & decreasing activity of L1 met “suggests” mild healing. (SUV 9.4 v 12.1 in May ‘13)
4. scattered lung nodules, up to 5mm in size = stable, no increased activity
5. other small scattered sclerotic lesions, one in right iliac and one in thoracic vertebral body similar in appearance to L1 without PET activity and not clearly pathologic
APRIL 2014 - 6 YRS POST GAMMA ZAP, 7 YRS MBC & 18 YEARS FROM ORIGINAL DX!
October 2014: hold avastin, continue HPX
Feb 2015 Cancer you lost. NEDHEAD 7 years post gamma zap miracle, 8 years ST4, +19 yrs original diagnosis.
Continue HPX. Adding back Avastin
Nov 2015 pet/ct is mixed result. L1 SUV is worse. Continue Herceptin/avastin/xgeva. Might revisit Perjeta for L1. Meantime going for rads consult for L1
December 2015 - brain stable. Continue Herceptin, Perjeta, Avastin and xgeva.
Jan 2016: 5 days, 20 grays, Rads to L1 and continue on HAPX. I’m trying to "save" TDM1 for next line. Hope the rads work to quiet L1. Sciatic pain extraordinaire :((
Markers drop post rads.
2/24/16 HAP plus X - markers are down
SCIATIC PAIN DEAL BREAKER.
3/23/16 Laminectomy w/coflex implant L4/5. NO MORE SCIATIC PAIN!!! Healing.
APRIL 2016 - 9 YRS MBC
July 2016 - continue HAP plus Xgeva.
DEC 2016 - PETCT: mets to sternum, lungs, L1 still about the same in size and PET activity. Markers not bad. Not making changes if I don't need to. Herceptin/Perjeta/Avastin/Xgeva
APRIL 2017 10 YEARS MBC
December 2017 - Progression - gonna switch it up
FEB 2018 - Kadcyla 3 cycles ---->progression :(
MAY30th - bronchoscopy, w/foundation1 - her2 enriched
Aug 27, 2018 - start clinical trial ZW25
JAN 2019 - ZW25 seems to be keeping me stable
APRIL 2019 - ONE DOZEN YEARS LIVING METASTATIC
MAY 2019 - progression back on herceptin add xeloda
JUNE 2019 - "6 mos average survival" LMD & CNS new single brain met - one zap during 5 days true beam SBRT to cord met
10/30/19 - stable brain and cord. progression lungs and bones. washing out. applying for ds8201a w nivolumab. hope they take me.
12/27/19 - begin ds8401a w nivolumab. after 2nd cycle nodes melt away. after 3rd cycle chest scan shows Improvement, brain MRI shows improvement, resolved areas & nothing new. switch to plain ENHERTU. after 4th cycle, PETscan shows mostly resolved or improved results. Markers near normal. I'm stunned but grateful.
10/26/20 - June 2021 Tucatinib/xeloda/herceptin - stable ish.
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03-08-2010, 09:23 AM
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#4
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Member
Join Date: Feb 2010
Posts: 14
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Re: Mets to bone
I also have a question about bone mets? Do they just automatically assume when your primary tumor was her 2+ that the bone met tumor is too? I had surgery to stabilize my femur and the surgeon did not order the test for her2 or er/pr status? I've heard that it can change over time? Is this possible? Thanks!
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03-08-2010, 10:28 AM
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#5
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Senior Member
Join Date: May 2006
Posts: 3,142
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Re: Mets to bone
I agree with Flori and the others who responded. Cancer treatment can cause some of the problems you described. If you have the energy to cook try to eat foods that increase energy and promote a feeling of well being. If you like dairy products they might help the spine. I have a little arthritis and a little osteoporosis. I find that acupuncture helps. A heating pad on a low setting helps promote circulation to the not so good areas. Getting out in the fresh air and taking a short walk should help with the energy levels and a sense of well being. I hope you feel better.
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03-11-2010, 09:34 AM
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#6
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Member
Join Date: Jul 2007
Location: Surrey (UK)
Posts: 9
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Re: Mets to bone
Hi lopsided,
It does sound like you have been through a lot over recent years. You say you were on xeloda and abraxane as well as zometa and I suspect your tiredness is not from the bone mets but from the treatments. I have always found after chemos that I don't really feel fully recovered until that first year has passed.
I have extensive bone mets involving skull, collarbone, ribs, all of spine,pelvis & hips since 2002. Have had various rads to both hips, top of spine and lumbar spine. and everything has been stable on pamidronate, and then zometa. It is only the past year I have had problems with pain again and am about to have second lot of rads to lumbar spine and a soft tumour mass that has started growing again alongside the lumbar spine. I must say I am tired but that is from all the pain meds I am on just now. Hoping the rads will enable me to come off them soon.
Hope you start to feel yourself soon but be kind and give yourself time.
Asahizuru
xx
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03-11-2010, 10:32 AM
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#7
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Senior Member
Join Date: Apr 2006
Location: FLORIDA
Posts: 148
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Re: Mets to bone
I am still on abraxane, xeloda, zometa. Anytime I have stopped chemo, I have progression within 4 months. I have been on my current treatment since 07/2009 and seem to be stable. My doctor feels I should stay on this treatment. He said if the treatment begans to take a toll on me, I can take a chemo holiday for a month and begin again. I'm thinking about taking a break, but am afraid to stop. Just really afraid my cancer will go wild if I give it a chance.
I guess I really shouldn't be whining, I am still able to get around okay, I drive myself to all my treatments. Let me go take an advil and shut-up.
__________________
SHEILA (45)
09/2005--BREAST CANCER/8 POS NODES --A/C, MASTECTOMY,TAXOTERE, RADS, TAMOXIFEN,HERCEPTIN
02/2007--B/C METS TO OVARIES--HYSTERECTOMY, FASLODEX
12/2007--ENLARGING LYMPH NODES IN ABDOMEN--IXEMPRA, THEN TYKERB
08/2008--COLON TUMOR--A/C AGAIN,
12/2008--ABDOMEN TUMOR--AVASTIN/NAVELBINE FEMARA
05/2009--MET TO SPINE (L2) RADS
CURRENT TREATMENT
07/2009- START ZOMETA MONTHLY, XELODA & ABRAXANE......SURVIVING THE BEST I CAN
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03-11-2010, 07:48 PM
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#8
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Senior Member
Join Date: Nov 2007
Location: Connecticut
Posts: 2,077
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Re: Mets to bone
Hi Sheila! It's good to hear from you. I can see you still have that fighting spirit! You hang in there, sweetie, and please know that you're in our thoughts and prayers.
__________________
For Nicola
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03-12-2010, 09:42 AM
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#9
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Senior Member
Join Date: Apr 2008
Location: Indianapolis
Posts: 46
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Re: Mets to bone
Hi Lopsided,
The mets went into my hip, brain, vertebrae. The only one of these that has caused me difficulties is the hip. The ortho guy said that my rt. hip has necrosis-meaning no blood supply. Meaning that if I had a hip replacement it might not work because there is no blood flow. If the hip replacement failed I could be crippled. Not nice at all.
So I am asking God what to do? The hip is painful and will only get worse(so says the dr.). But being totally crippled doesn't sound too good.
But I do my housework, cook, and take care of my kids. Can't complain (okay, maybe a little).
Best wishes,
D.W.
__________________
4/06 diagnosed metastatic breast cancer stage III her2nu
4/06-7/06 taxol, carboplatin, herceptin 4/06-4/08 herceptin
8/06 mastectomy, lymph nodes removed
08/06-12/06 taxotere
28 radiation treatments
4/08 mets in brain, spine & hip
4/08 whole brain radiation 10 times
5/08-6/08 spinal radiation 12 times
4/08-9/08 tykerb, xeloda
9/08-present navelbine, herceptin
10/08 MRI shows brain mets just about gone!
4/09-blah more brain mets
6/09-Gamma Knife Radiation to the brain
9/09-three small brain tumors gone, big one shrunk almost in half
3/10 NED (nice)
8/11-more brain mets; shrunken are growing; new one found
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03-18-2010, 07:16 AM
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#10
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Member
Join Date: Mar 2010
Location: Bucharest, Romania
Posts: 20
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Re: Mets to bone
Hello everyone!
I have a question. This fatigue ever go away or have to live with her always. After I finished chemotherapy and radiation started to hurt bad all joints and now I move like an 100 years old woman . Does anyone else have these symptoms? I went to rheumatologists, I made several tests and found only osteopenia. The conclusion was that it was a side effect of treatment. But I finished chemotherapy in November 2009. 4 months have passed since then and I still feel bad.
__________________
24.06.2009 - DX: Multicentric breast cancer stage IV with bone metastases, IDC grade 3, ER-/PR-, Her2/Neu +++, FISH +, proliferation index high (Ki67 50%), Richardson scale 8 of 9
01.07.2009 - 3 courses chemotherapy: Taxotere 75mg/m2 + Carboplatin AUC 6 + Herceptin 6 mg/kg - every 21 days; Zometa 4mg - every 28 days for bone metastases
01.09.2009 - Right modified radical mastectomy, including 16 axilla nodes (3 positive).
22.09.2009 - Another 3 courses chemotherapy: Taxotere 75mg/m2 + Carboplatin AUC 6 + Herceptin 6 mg/kg - every 21 days; Zometa 4mg - every 28 days for bone metastases
02.12.2009 - PET/CT images shows no evidence of malignant tissue on the whole body
8.12.2009 - start radiotherapy 30 sessions
Herceptin and Zometa still
15.06.2010 - NED!!!
My story at: http://feliciaenache.blogspot.com/20...estea-mea.html
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03-18-2010, 07:26 AM
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#11
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Senior Member
Join Date: Apr 2006
Location: FLORIDA
Posts: 148
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Re: Mets to bone
I think it just depends on the person, some people recover quickly and others don't. There is so much to factor into it, for myself I am in constant treatment so I will probably always have some side effects. If you have completed the chemo & radiation part of your treatment, I think with time you have a good chance of feeling better (lets hope so anyway).
__________________
SHEILA (45)
09/2005--BREAST CANCER/8 POS NODES --A/C, MASTECTOMY,TAXOTERE, RADS, TAMOXIFEN,HERCEPTIN
02/2007--B/C METS TO OVARIES--HYSTERECTOMY, FASLODEX
12/2007--ENLARGING LYMPH NODES IN ABDOMEN--IXEMPRA, THEN TYKERB
08/2008--COLON TUMOR--A/C AGAIN,
12/2008--ABDOMEN TUMOR--AVASTIN/NAVELBINE FEMARA
05/2009--MET TO SPINE (L2) RADS
CURRENT TREATMENT
07/2009- START ZOMETA MONTHLY, XELODA & ABRAXANE......SURVIVING THE BEST I CAN
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03-18-2010, 07:40 AM
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#12
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Member
Join Date: Mar 2010
Location: Bucharest, Romania
Posts: 20
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Re: Mets to bone
Thanks Lopsided.
And I suspected this, but hopefully may, however, a miracle happens at a time and you can be back as before.
Felicia
__________________
24.06.2009 - DX: Multicentric breast cancer stage IV with bone metastases, IDC grade 3, ER-/PR-, Her2/Neu +++, FISH +, proliferation index high (Ki67 50%), Richardson scale 8 of 9
01.07.2009 - 3 courses chemotherapy: Taxotere 75mg/m2 + Carboplatin AUC 6 + Herceptin 6 mg/kg - every 21 days; Zometa 4mg - every 28 days for bone metastases
01.09.2009 - Right modified radical mastectomy, including 16 axilla nodes (3 positive).
22.09.2009 - Another 3 courses chemotherapy: Taxotere 75mg/m2 + Carboplatin AUC 6 + Herceptin 6 mg/kg - every 21 days; Zometa 4mg - every 28 days for bone metastases
02.12.2009 - PET/CT images shows no evidence of malignant tissue on the whole body
8.12.2009 - start radiotherapy 30 sessions
Herceptin and Zometa still
15.06.2010 - NED!!!
My story at: http://feliciaenache.blogspot.com/20...estea-mea.html
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03-18-2010, 07:57 PM
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#13
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Senior Member
Join Date: Apr 2008
Location: Indianapolis
Posts: 46
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Re: Mets to bone
Hi Felicia,
I think you need to give yourself time to heal and feel better.
Tell your medical oncologist how lousy you feel. If he won't help you or understand how you feel, then tell another doctor. Your doctor should listen to you and want to help you. They work for you.
Hope that helps a bit.
Best wishes,
D.W.
__________________
4/06 diagnosed metastatic breast cancer stage III her2nu
4/06-7/06 taxol, carboplatin, herceptin 4/06-4/08 herceptin
8/06 mastectomy, lymph nodes removed
08/06-12/06 taxotere
28 radiation treatments
4/08 mets in brain, spine & hip
4/08 whole brain radiation 10 times
5/08-6/08 spinal radiation 12 times
4/08-9/08 tykerb, xeloda
9/08-present navelbine, herceptin
10/08 MRI shows brain mets just about gone!
4/09-blah more brain mets
6/09-Gamma Knife Radiation to the brain
9/09-three small brain tumors gone, big one shrunk almost in half
3/10 NED (nice)
8/11-more brain mets; shrunken are growing; new one found
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03-18-2010, 08:14 PM
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#14
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Senior Member
Join Date: Jan 2008
Location: "Love never fails."
Posts: 5,808
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Re: Mets to bone
Undecided8,
I've seen survivors getting classified differently on their Her2 status during recurrences.
In my own case, I was weakly ER + and took Tamoxifen in 2003/4. But after I had finished 4+ years of Tamoxifen for my recurrence and decided to have a hysterectomy/oophorectomy so I could take Aromatase inhibitor, the oncology nurse told me that my doctor said the tumor of my recurrence was Hormone negative.
So I guess it is not that uncommon to have different cell features in our cancer journey.
__________________
Jackie07
http://www.kevinmd.com/blog/2011/06/doctors-letter-patient-newly-diagnosed-cancer.html
http://www.asco.org/ASCOv2/MultiMedi...=114&trackID=2
NICU 4.4 LB
Erythema Nodosum 85
Life-long Central Neurocytoma 4x5x6.5 cm 23 hrs 62090 semi-coma 10 d PT OT ST 30 d
3 Infertility tmts 99 > 3 u. fibroids > Pills
CN 3 GKRS 52301
IDC 1.2 cm Her2 +++ ER 5% R. Lmptmy SLNB+1 71703 6 FEC 33 R Tamoxifen
Recc IIB 2.5 cm Bi-L Mast 61407 2/9 nds PET
6 TCH Cellulitis - Lymphedema - compression sleeve & glove
H w x 4 MUGA 51 D, J 49 M
Diastasis recti
Tamoxifen B. scan
Irrtbl bowel 1'09
Colonoscopy 313
BRCA1 V1247I
hptc hemangioma
Vertigo
GI - > yogurt
hysterectomy/oophorectomy 011410
Exemestane 25 mg tab 102912 ~ 101016 stopped due to r. hip/l.thigh pain after long walk
DEXA 1/13
1-2016 lesions in liver largest 9mm & 1.3 cm onco. says not cancer.
3-11 Appendectomy - visually O.K., a lot of puss. Final path result - not cancer.
Start Vitamin D3 and Calcium supplement （600mg x2)
10-10 Stopped Exemestane due to r. hip/l.thigh pain OKed by Onco 11-08-2016
7-23-2018 9 mm groundglass nodule within the right lower lobe with indolent behavior. Due to possible adenocarcinoma, Recommend annual surveilence.
7-10-2019 CT to check lung nodule.
1-10-2020 8mm stable nodule on R Lung, two 6mm new ones on L Lung, a possible lymph node involvement in inter fissule.
"I WANT TO BE AN OUTRAGEOUS OLD WOMAN WHO NEVER GETS CALLED AN OLD LADY. I WANT TO GET SHARP EDGED & EARTH COLORED, TILL I FADE AWAY FROM PURE JOY." Irene from Tampa
Advocacy is a passion .. not a pastime - Joe
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03-19-2010, 01:09 AM
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#15
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Member
Join Date: Mar 2010
Location: Bucharest, Romania
Posts: 20
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Re: Mets to bone
Hi D.W.!
Thank you for your advice. I have already been to two oncologists and told them about my status and it seems that they have no way to help me. They said they have never heard that. It seems that, indeed, must have patience to see what happens next.
Felicia
__________________
24.06.2009 - DX: Multicentric breast cancer stage IV with bone metastases, IDC grade 3, ER-/PR-, Her2/Neu +++, FISH +, proliferation index high (Ki67 50%), Richardson scale 8 of 9
01.07.2009 - 3 courses chemotherapy: Taxotere 75mg/m2 + Carboplatin AUC 6 + Herceptin 6 mg/kg - every 21 days; Zometa 4mg - every 28 days for bone metastases
01.09.2009 - Right modified radical mastectomy, including 16 axilla nodes (3 positive).
22.09.2009 - Another 3 courses chemotherapy: Taxotere 75mg/m2 + Carboplatin AUC 6 + Herceptin 6 mg/kg - every 21 days; Zometa 4mg - every 28 days for bone metastases
02.12.2009 - PET/CT images shows no evidence of malignant tissue on the whole body
8.12.2009 - start radiotherapy 30 sessions
Herceptin and Zometa still
15.06.2010 - NED!!!
My story at: http://feliciaenache.blogspot.com/20...estea-mea.html
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03-19-2010, 05:37 AM
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#16
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Senior Member
Join Date: Apr 2008
Location: Indianapolis
Posts: 46
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Re: Mets to bone
Hi Felicia,
I looked at your blog...do you live in Romania or are you an immigrant? Obviously I could not read your blog....I'm rusty on the Romanian language....ha ha!
Hope you are feeling good today.
Best to you,
D.W.
__________________
4/06 diagnosed metastatic breast cancer stage III her2nu
4/06-7/06 taxol, carboplatin, herceptin 4/06-4/08 herceptin
8/06 mastectomy, lymph nodes removed
08/06-12/06 taxotere
28 radiation treatments
4/08 mets in brain, spine & hip
4/08 whole brain radiation 10 times
5/08-6/08 spinal radiation 12 times
4/08-9/08 tykerb, xeloda
9/08-present navelbine, herceptin
10/08 MRI shows brain mets just about gone!
4/09-blah more brain mets
6/09-Gamma Knife Radiation to the brain
9/09-three small brain tumors gone, big one shrunk almost in half
3/10 NED (nice)
8/11-more brain mets; shrunken are growing; new one found
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03-19-2010, 06:27 AM
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#17
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Senior Member
Join Date: May 2006
Location: Haarlem, the Netherlands
Posts: 835
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Re: Mets to bone
Rads can cause fatigue that may last up to a year, my radiologist told me. Ofcourse chemo is known for it's side effects also.
Exercise would be a good idea, even 10 minutes a day. Try to find someone who will take walks with you. It's not so tough when you have a friend there to keep your spirits up.
Love
Jacqueline
__________________
Diagnosed age 44, January 2004, 0.7 cm IDC & DCIS. Stage 1, grade 3, ER/PR pos. HER2 pos. clear margins, no nodes. SNB. 35 rads. On Zoladex and Armidex since Dec. 2004. Stopped Zoladex/Arimidex sept 2009 Still taking mistletoe shots (CAM therapy) Doing fine.
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03-19-2010, 12:32 PM
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#18
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Member
Join Date: Mar 2010
Location: Bucharest, Romania
Posts: 20
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Re: Mets to bone
Hello D.W.!
Thank you visiting my blog and I apologize that I did it so difficult to access for everyone. Now I realize I had to do a separate version in English.
If you still want to read my story from my blog - it is a button for translation just under the HOME button. It has drawn some flags on it. If you go with the mouse on it opens a small window where you can choose the desired language and then select an online translator in the next window (the best is Google) and automatically translates all blog.
I live in Romania. That's why my messages are very telegraphic. I do not speak english very well, and it is very difficult for me to say what I really want to say. And by the way , I don't understand until now what means NED?
Have a very nice day!
Felicia
__________________
24.06.2009 - DX: Multicentric breast cancer stage IV with bone metastases, IDC grade 3, ER-/PR-, Her2/Neu +++, FISH +, proliferation index high (Ki67 50%), Richardson scale 8 of 9
01.07.2009 - 3 courses chemotherapy: Taxotere 75mg/m2 + Carboplatin AUC 6 + Herceptin 6 mg/kg - every 21 days; Zometa 4mg - every 28 days for bone metastases
01.09.2009 - Right modified radical mastectomy, including 16 axilla nodes (3 positive).
22.09.2009 - Another 3 courses chemotherapy: Taxotere 75mg/m2 + Carboplatin AUC 6 + Herceptin 6 mg/kg - every 21 days; Zometa 4mg - every 28 days for bone metastases
02.12.2009 - PET/CT images shows no evidence of malignant tissue on the whole body
8.12.2009 - start radiotherapy 30 sessions
Herceptin and Zometa still
15.06.2010 - NED!!!
My story at: http://feliciaenache.blogspot.com/20...estea-mea.html
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03-19-2010, 12:46 PM
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#19
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Junior Member
Join Date: Sep 2009
Posts: 1
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Re: Mets to bone
te pupam.vezi ca te gasim si-n gaura de sarpe...  ) ned inseamna no evidence of desease- nici o urma de boala. ce faci? cum te mai simti? e frumos foc baiatul tau...lasa ca o sa-i joci la nunta stai linistita.i,m sorry guys i wrote in romanian language but i know felicia and i support her and all of you in your struggle against cancer.te pupam,ianis,gabi si lucian. |
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03-19-2010, 01:10 PM
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#20
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Senior Member
Join Date: May 2006
Location: Haarlem, the Netherlands
Posts: 835
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Re: Mets to bone
Dear Felicia,
I read the translation of your blog. I'm impressed. NED means No Evidence of Disease.
Hug your boy! Enjoy every minute with him.
Love
Jacqueline
__________________
Diagnosed age 44, January 2004, 0.7 cm IDC & DCIS. Stage 1, grade 3, ER/PR pos. HER2 pos. clear margins, no nodes. SNB. 35 rads. On Zoladex and Armidex since Dec. 2004. Stopped Zoladex/Arimidex sept 2009 Still taking mistletoe shots (CAM therapy) Doing fine.
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