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Old 01-19-2009, 07:16 PM   #1
dhealey
Senior Member
 
Join Date: Jun 2007
Location: moved to Lancaster, Pa in June, 2010
Posts: 576
her2 levels

I haven't posted in a while as I was having computor problems. Here's an update. I finished the clinical trial for beast cancer vaccine in December. I have decided to switch oncologists because my present one was not sending the clinical trial doctor records from my visits and I found out there had been no dictation done from my last 3 visists, being a nurse I found this unacceptable. I also have a place along the scar line of the prophylatic mastectomy site that appears to be a skin met. This is very close to my sternum and near the site of the original tumor from the opposite side. My onc did not want to biopsy, felt we should just watch it. It is getting larger. Anyway I have an appt on Friday with the new onc. The Doctor I work for routinely checks tumor maker blood tests for me as my onc wouldn't do that either. My concern is the her2 level has jumped 4 points and is the highest it has ever been. Anyone else ever have this to happen? I will discuss this with the new onc, but am freaking out a little. As I said I just finished getting the 6 vaccines for the clinical trial, perhaps I didn't get the actual vaccine. I would appreciate any insite and thank you for letting me ramble. I get so disgusted with myself because I feel like I can never relax where my health is concerned. Thanks, Debbie in North Carolina
__________________
Debbie in North Carolina
Diag 10/2006-high grade invasive ductal carcinoma- mastectomy L breast
2.5 cm tumor ER/PR pos-Her2+++
4 rounds A/C, 4 rounds Taxol
Herceptin every 3 weeks until Jan. 2008
6/18/07 prophylatic mastectomy R breast
8/2007 started aromasin/stopped arimidex (side effects)
12/07 stopped aromasin due to side effects (now what?)
Finished herceptin 1/8/08
started tamoxifen for 2 years then will switch to femera
allergic to tamoxifen started femera 4/2008
June 20, 2008 portacath removed
Learnig to live life to the fullest!
Stopped Femera due to side effects
July 28, 2008 start trial for breast cancer vaccine
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