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Old 02-14-2008, 11:17 AM   #1
Mary Anne in TX
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Happy Valentine's Day Gang!

Sending lots of love to all today! Especially to those who visit but don't post!!! Together, we truly are mighty! Lots and lots of love & peace of mind to each and everyone of my heroes, ma
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MA in TX.
Grateful for each and every day....

Diag. 12/05 at age 60
Stage II, Grade 3, 4.5 cm primary tumor
ER/PR- Her2 +3 strongly positive
Her2 by FISH 7.7 amplified
vascular invasion
Ki67 20% borderline
Jan - March '06 Taxotere/Adriamycin X 3 to try to shrink tumor - it grew
April '06 Rt Modified Radical Mas, 7 of 9 nodes positive
April - Aug. '06 Herceptin/Taxol/Carboplatin X 8 (dose dense)
Sept - Dec. '06 Navelbine/Herceptin x 8 (dose dense)
Radiation & Herceptin Jan. 22 - March 1, 2007
Finished Herceptin Dec. 10 '08! One extra year.
Port removed August, 2012.
8 1/2 years since diagnosis! 5 1/2 Years NED!
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Old 02-14-2008, 11:36 AM   #2
Kim in CA
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Talking

Happy Valentines Day to you too Mary Anne!

I love your Happy smiling face and all that you contribute to this board. Have a wonderful day and don't forget to eat lots of chocolate!

Love Kim
__________________
Diag. Feb 1997 4.5cm IDC <10%ER+, PR-. 5 out of 36 nodes +. Mastectomy followed by 3 rounds Adriamycin/Cytoxin.


5/1997 Hi Dose Chemo w/ Stem cell rescue. Spent 4 weeks in isolation ward. Then 6 weeks radiation.

9/2001 widespread mets to liver. 8 mos Taxotere/Herceptin brought me almost to NED. Stop Taxotere & add Femara .

11/2002 liver resection to remove spot that turned out to be necrosis. Officially NED!

7/2003 Tumor markers rising add Xeloda Disastrous reaction, 8 days hospital, but tumor markers came back to normal!

June -Dec 2004 UW Vaccine Trial.

7/2005 MRI single 11mm brain met
8/2005 Gamma Knife.

Brain MRI @3 months NED!

2006-2011 brain/body still NED

8/04/11 Taking Herceptin break, will monitor with tumor markers.

6/20/12 Tumor markers begin to rise. CA15-3 is 31.3 and Her2 Serum is at 17.1 Decide to repeat in one month.

7/23/12 CA15-3 now 49.3
Her2 Serum 26.8

8/6/12 Back on Herceptin
CA15-3 now 76
Her2 Serum now 49

11/7/12 Add weekly Taxotere for 4 cycles

2/2013 Stopped Taxotere added Perjeta. MRI shows approx. 50% reduction liver mets. CA15-3 still elevated @ 55. Will continue on just Herceptin & Perjeta.

November 2014 Continuing on Herceptin, Perjeta, and
Femara indefinitely. Guess I'm NED again, but watching those tumor markers carefully!

Dec. 2015 PET scan reveals mass in perirectal area of abdomen.biopsy confirms. Still Her2+, but no longer ER+. Bye bye Femara

Jan 2016 Begin Kadcyla

March 2016 PET scan shows tumor now barely visible, still NED everywhere else.
2016/2017 continue Kadcyla

November 2017 brain MRI reveals small focus of T2 hyperintensity with possible 4mm enhancing nodule. Short term follow up MRI suggested. Stay tuned...
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Old 02-14-2008, 12:05 PM   #3
tricia keegan
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Hi Mary Anne, I'll second what Kim just said and hope you too have a very Happy Valentine's day with lots of chocs and flower's! Thank you from me also for all YOU do here
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Tricia
Dx July '05 IDC 1.9cm Triple positive 3/9 nodes positive
A/C X 4 ..Taxol/Herceptin x 12 wks then herceptin 1 yr
Rads x 36 ..oophorectomy August '06
Currently taking Arimidex..
June 2011 osteopenia/ zometa x1 yearly- stopped Zometa 2015 as Dexa show normal bone density.
Stopped Arimidex July 2014- Restarted Arimidex 2015 for a further two years on the advice of my Onc.
2014 Normal Dexa scan
2018 Mammo all clear, still NED!
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Old 02-14-2008, 12:22 PM   #4
Karen W
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I am sending my love and Valentine wishes to all.

Karen
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Old 02-14-2008, 12:37 PM   #5
Vi Schorpp
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Ditto

to everything said! Mary Anne you're a great light on this board and I think everyone appreciates it. I also think of your initials when you sign off which is MA, not Mary Anne, but I think of my MA! Thanks.
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Old 02-14-2008, 12:45 PM   #6
PinkGirl
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Smile

Happy Valentine's Day to everyone.
Lily started a similar thread in another
forum - so Happy Valentine's Day to
you too Lily.


Attachment 328
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PinkGirl

Dx Aug/05 at age 51
2cm. Stage 2A, Grade 3
ER+/PR-
Her2 +++

Sept 7/05 Mastectomy
4 FAC, 4 Taxol, no radiation
1 year of Herceptin
Tamoxifen for approx. 4 months,
Arimidex for 5 years
Prophylactic mastectomy June 22/09



" I yam what I yam." - Popeye

My Photo Album

Last edited by PinkGirl; 03-29-2008 at 07:31 AM..
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Old 02-14-2008, 12:46 PM   #7
ita
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I second that emotion. A very happy Valentine's Day to all.

Hugs and kisses,
Ita (gricel)
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Old 02-14-2008, 01:05 PM   #8
Jade
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Smile

A day for love and chocolates with a little champagne thrown in for good measure - now that's a good day!

It was three years ago today that I had my first chemo. I was absolutely terrified, terrified! I was with my Dad when he went through brutal chemo in the hopes he might get a little extra time since he had lung cancer which had spread so quickly it had literally eaten away three of his ribs and had manifested itself in a growth on his brain that was bulging out from his head. He didn't make it.

My sister/rock was with me for all my chemo treatments; the first one I hid my fear by using my IV pole to practise pole dancing moves which had us all howling with laughter. I went from that, to shaking and crying before the remaining three treatments. Besides suffering badly from nausea and vomiting, I was just so bummed out that I now had to spend my days like this. I got so sick of the time and effort of constantly seeing doctors, disgusted at what my life had become.

I'm now 39 months NED and consider myself to be the luckiest girl in the world. I lost everything to cancer except my beloved children, family and friends, which at the end of the day really is all that matters, but financially I was ruined, left with NOTHING, just about homeless (I'm a single mom). But at least I have my health and can rebuild, and will get my life back although it is taking some time. Every day is still a struggle but in a different way. When I start to feel sorry for myself, I remember back to one day when I was sick as a dog from chemo, trying to wipe the counters in my kitchen. I'm sure many of you can relate to this when I say, I didn't have the strength in my hands to squeeze the water out of the dishcloth. Now when I'm in my kitchen cleaning endlessly and thinking how I'm sick of it, I remember back to when I COULDN'T squeeze the water out of that dishcloth, and I am so very grateful that I'm well and I find joy anew in cleaning my kitchen!

Hope you don't mind my sharing this with you - Valentine's Day has a different meaning for me now, but here's the thing, I'm here, I feel great, and I'm eating quality chocolate and drinking cheap champagne! Here's a toast to each and every one of all you incredible women (and men) who are the reason so many of us have found help, comfort and the strength to go on.

Love to all,
Jade
__________________
Dx Nov.04 - Stage 1, Grade 3, widespread high grade DCIS, Paget's disease of nipple, 8mm tumor invasive DC (ductal carcinoma), ER/PR-, HER2+++
Nov.04 - left mast., clear margins, 6 of 6 nodes clear
Feb.05 - began EC chemo, 4 rounds (every 3 weeks)
Aug.05 - began Herceptin every 3 weeks for 1 year
Aug.06 - ended treatment
NED
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Old 02-14-2008, 01:32 PM   #9
Faith in Him
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Wishing everyone lots of love and peace today.


Love,
Tonya
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DX 02/01/07
2.5 cm, Er/Pr-, Her2+++
18/20 Nodes
03/07 CT & Bone scan - Clear
AC x 4, Taxol x 4, Added Herceptin
Radiation until 09/07
Herceptin every 3 weeks until 06/08
01/10/08 local recurrence -IBC
01/28/08 CT & Brain MRI - clear
02/08 - Navelbine & Herceptin
05/08 -MRM
05/08 - Gemzar & Herceptin - didn't work
09/08 - Hyperthermia rads
03/09 - Tykerb/Xeloda
05/10 - Tram flap to fix wound
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Old 02-14-2008, 01:33 PM   #10
Mary Jo
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Happy Valentine's to all you wonderful people. I care about each of you. You guys are always in my heart.

Jade, thank you for sharing that wonderful story of HOPE with us. A "gentle" reminder to live each day to the fullest - enjoy what you have while you have it. One never knows when it will be taken from you.

My God in Heaven..........................Chocolate, kisses and hugs...................................Life truly doesn't get much better.

Consider yourself hugged,

Mary Jo
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"Be still and know that I am God." Psalm 46:10

Dx. 6/24/05 age 45 Right Breast IDC
ER/PR. Neg., - Her2+++
RB Mast. - 7/28/05 - 4 cm. tumor
Margins clear - 1 microscopic cell 1 sent. node
No Vasucular Invasion
4 DD A/C - 4 DD Taxol & Herceptin
1 full year of Herceptin received every 3 weeks
28 rads
prophylactic Mast. 3/2/06

17 Years NED

<>< Romans 8:28
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Old 02-14-2008, 03:19 PM   #11
lexigirl
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Happy Valentine's Day to you all !! You all are very special to me and share a special place in my heart.

Hugs,
Lexi
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Old 02-14-2008, 05:12 PM   #12
Mary Anne in TX
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Jade, thanks for sharing your Valentine's Day story. You may have lost everything financially, but your war chest is full of friends, overcomer victories, and the knowledge that you can rise again....and again....and again. Best of luck on your financial goals. Keep believin' that You Can Do It!!!!! May your box of chocolates be filled with "gold and jewels"! ma
__________________
MA in TX.
Grateful for each and every day....

Diag. 12/05 at age 60
Stage II, Grade 3, 4.5 cm primary tumor
ER/PR- Her2 +3 strongly positive
Her2 by FISH 7.7 amplified
vascular invasion
Ki67 20% borderline
Jan - March '06 Taxotere/Adriamycin X 3 to try to shrink tumor - it grew
April '06 Rt Modified Radical Mas, 7 of 9 nodes positive
April - Aug. '06 Herceptin/Taxol/Carboplatin X 8 (dose dense)
Sept - Dec. '06 Navelbine/Herceptin x 8 (dose dense)
Radiation & Herceptin Jan. 22 - March 1, 2007
Finished Herceptin Dec. 10 '08! One extra year.
Port removed August, 2012.
8 1/2 years since diagnosis! 5 1/2 Years NED!
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Old 02-14-2008, 05:48 PM   #13
Bill
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Ma, Happy Valentine's Day to you and all of my wonderful new family members here. Jade, thanks for sharing your story. It sounds like you've got the right perspective. Love, Bill
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Old 02-14-2008, 05:58 PM   #14
Joanne S
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Jade, Thanks for sharing your very special touching story!

My wishes for many many years of NED! Jo



Happy Valentines Day to all of my wonderful sisters and brothers! Jo
__________________
Aug06...Dx Age 50, IDC Left Breast, 6+/16 lymph nodes, Stg 3, ER+/PR+/HER2+
Sep06-Jan07...Mediport. Chemo: AC x 4, T x 4
Dec06-Nov07...Herceptin
Feb12,2007...Surg MRM Left & SM Right, reconstruct w/expanders
Mar07-Jun07...Saline Exp
Jun07...Start Tamoxifen
Jun07-Aug07...Rad x 25
Jun07-Oct07...Persistent fevers-unknown origin
Jun07-Nov07...PT for Severe PMPS & Capsular Contracture
Nov07...Surg Capsulectomy, Gel Implants, PMPS pain gone instantly.
Feb08...NED 1st CANCERVERSARY!!!!!
Feb08...2 months post surgery Caps Cont again :(
Mar08...Stop Tamoxifen. Start Arimidex.
Apr08...Sudden high fever, Hosp ICU 10 days, staph infect, emerg surg, implants removed. Outpt IVantibiotics Daily x 6 weeks
Feb11...NED 5th CANCERVERSARY!!!!!
Feb12...NED 6th CANCERVERSARY!!!!!
Aug12...Spotting. Surg=D&C
Sep12...STAGE IV = RARE BC METS TO UTERUS ILC ER+/PR+/HER2-Negative) (Different BC than originally diagnosed = IDC ER+/PR+/HER2+).
Sep12...Stop Arimidex. Start Afinitor & Aromasin.
Jan13...MRI = no progression no reduction
Apr13...Progression. Stop Afinitor & Aromasin.
Apr13...Start Chemo: Taxol & Carboplatin.
Nov13...Scans & Pelvic 95+% Reduction. Nueropathy>Stop chemo start Fareston.
Jan14...PET scan = no progression stable.
May14...Pelvic > Bleeding & cramps. TMs up.
May14...PET scan = uterine progression :(
May14...Stop Fareston. Start Chemo: Xeloda.



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Old 02-14-2008, 06:08 PM   #15
Joe
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Valentine's Story ??

Christine and I were engaged to be married 25 years ago today. We didn't plan to be corney and get engaged on Valentine's Day.

The date was supposed to be on February 11th, but a snowstorm which dropped 4 feet of snow in New Jersey prevented us from picking up the ring.

Regards
Joe - From sunny San Diego where it doesn't snow.
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Illegitimi non carborundum


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Old 02-14-2008, 06:22 PM   #16
Mary Anne in TX
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Surely am glad that snow storm didn't interrupt the engagement for long! That Valentine's Day event 25 years ago was fated to bless zillions of people! ma
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MA in TX.
Grateful for each and every day....

Diag. 12/05 at age 60
Stage II, Grade 3, 4.5 cm primary tumor
ER/PR- Her2 +3 strongly positive
Her2 by FISH 7.7 amplified
vascular invasion
Ki67 20% borderline
Jan - March '06 Taxotere/Adriamycin X 3 to try to shrink tumor - it grew
April '06 Rt Modified Radical Mas, 7 of 9 nodes positive
April - Aug. '06 Herceptin/Taxol/Carboplatin X 8 (dose dense)
Sept - Dec. '06 Navelbine/Herceptin x 8 (dose dense)
Radiation & Herceptin Jan. 22 - March 1, 2007
Finished Herceptin Dec. 10 '08! One extra year.
Port removed August, 2012.
8 1/2 years since diagnosis! 5 1/2 Years NED!
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Old 02-14-2008, 06:24 PM   #17
Bill
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That's a funny story Joe! (Be careful about the no snow comment, though, my friend. You might have to join me in my apology room. Everytime I talk about the weather, I get in more and more trouble)
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Old 02-14-2008, 07:02 PM   #18
Jean
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To all the sweethearts,
Sending you much love and wishing you much peace and joy.

Hugs,
Jean
__________________
Stage 1, Grade 1, 3/30/05
Lumpectomy 4/15/05 - 6MM IDC
Node Neg. (Sentinel node)
ER+ 90% / PR-, Her2+++ by FISH
Ki-67 40%
Arimidex 5/05
Radiation 32 trt, 5/30/05
Oncotype DX test 4/17/06, 31% high risk
TOPO 11 neg. 4/06
Stopped Arimidex 5/06
TCH 5/06, 6 treatments
Herceptin 5/06 - for 1 yr.
9/06 Completed chemo
Started Femara Sept. 2006
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Old 02-17-2008, 11:53 AM   #19
hermiracles
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We were married

Hope everyone had a beautiful Valentines Day! We certainly did - we got married!



It really was a lovely day ~ so grateful so many of our friends and family ~ and our beautiful bubbas ~ could be there. We have been together a long time ~ it was beautiful to confirm our commitment to each other and our gorgeous family.
Thanks to Creator for bringing such joy into our lives.



Blessings all
Hermiracles
__________________
2003 L/DCIS –> LWE: High G./Comedo - 6 nodes clear 6 wks Rx
04/07 2 miracles born ~ very grateful
06/07 Susp areas L/b
09/07 Stage 2 bilat. mastectomy R/ b. clear extens DCIS/IDC Paget’s 8 nodes clear ER(<5%) HER2+++ CT clear
11/07 Portacath - FEC
15/11/07 Stage 4 Emerg op - hip replacemt #NOF bone mets H/Taxotere
12/07 Rx to 'spots' on spine/R/hip/femur 3wkly H
2008 H+T mets to rib/sternum? Aredia CT clear! Cont. H + Aredia 07/08 1 wk Palliative Care - mets to lungs + ?1 to brain
09/08 Stop H complete Epirubicin 1wk PC new brain mets
10/08 2wks WBR 1wk PC 22/10/08 Tykerb/Xeloda 12/08 6 CEREBRAL METS COMPLETELY GONE! Rib mets down to <1cm.
01/09 Tumour markers normal! Rx to L/arm
03/09 LUNGS CLEAR (ALL NODULES GONE!), brain clear, liver clear. Bones stable! ~ THANK YOU GOD
07/09 Repeat CT Scan ~ ALL organs clear apart from bones which remain stable. I walk in gratitude.
***************
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Old 02-17-2008, 12:12 PM   #20
lilyecuadorian
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Hermiracles congratulations....I did get married too last year ...but I was in the hospital....but I fell better ..lol ... I did have any party ...but I married ........
__________________
Lily
Diag April/06 5 months after give birth my son Max
stage IV mets on liver (5 tumors) 38 year old,
her2+++ and ER+PR+ from32 nodes 4 positives
mastectomy right breast chemo before surgery herceptin/carboplatin/taxotere ,clear and surgery have radiation 20, `& then herceptin and tamoxifen
NED until Aug/07 body only then 'n June 04-06-07 .1 lesion of 1.6 cm on cerebellum ...novalis ,open sugery
5m.m brain met again novalis, 4mm.In the liver. Waiting 2 months now 3 tumors enroll on T-MCC trial start first infusion Nov 5/07 at Dec 17 scan show one tumor despair the 2nd and 3th diminish Doc said great results until March/08 ct scan show progression
03-05-08 start tykerb & xeloda
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