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Old 05-28-2015, 11:32 AM   #21
tricia keegan
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Join Date: Nov 2005
Location: Ireland
Posts: 3,463
Re: boyfriend d/x with stage 4 cancer

Vanessa I'm just seeing your post now and sorry about your boyfriends dx, a friend of ours had a different type of cancer but extreme fatigue and was told it was her lack of red cells so needed a transfusion weekly almost. I see the situation has improved so that advice will not be needed but just wanted you to know I saw and read your post too.
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Tricia
Dx July '05 IDC 1.9cm Triple positive 3/9 nodes positive
A/C X 4 ..Taxol/Herceptin x 12 wks then herceptin 1 yr
Rads x 36 ..oophorectomy August '06
Currently taking Arimidex..
June 2011 osteopenia/ zometa x1 yearly- stopped Zometa 2015 as Dexa show normal bone density.
Stopped Arimidex July 2014- Restarted Arimidex 2015 for a further two years on the advice of my Onc.
2014 Normal Dexa scan
2018 Mammo all clear, still NED!
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Old 06-04-2015, 09:04 AM   #22
v-ness
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Location: western ma
Posts: 280
Re: boyfriend d/x with stage 4 cancer

update - my boyfriend just had chemo #3, it's a 48 hour infusion, and is doing great. yes, he has fatigue, but he has little to no nausea and only just experienced his first 'cold neuropathy'. otherwise, GET THIS, he is gardening and hiking a little and going on a limited and toned-down basis to CrossFit! he has been consulting with Lise Alschuler who is a naturopathic doc specializing in oncology and she has him on several supplements specifically for his type of chemo and cancer that are supposed to aid in his resistance to the bad SE's he could have to chemo. he also takes 2000 units of D a day. that said, i took NO herbal supplements (just C and D vitamins) whatsoever and barely had any side effects from taxotere, carboplatin and herceptin. but whatever works! i got her book -The Definitive Guide to Thriving After Cancer - (or Five To Thrive) and i really like it. she's also *had* cancer. i guess she's a top dog in her field. so for those out there who are interested in optimizing all they can do to thrive during or after cancer, i'd recommend her books.

also, his liver was once swollen and you could feel a golfball size lump (the 8 cm tumor) and now you have to prod him to find it. not saying this is any kind of miracle, trust me. still scared shitless at times. but all of this combined with his positive and confident outlook is so reassuring, as is support from any sphere, from friends to here. thank you!

valerie
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8/09 - IDC 1.8 cm triple positive, lumpectomy left breast
10/09 began chemo (taxotere & carboplatin) and weekly herceptin.
1/21/10 finished chemo, continued on herceptin every 3 weeks until 10/2010.
2/10 began 7 wks of radiation
6/10 mom dies of primary peritoneal ovarian cancer
8/10 got my last remaining ovary out
10/10 mammogram all clear
3/11 MRI shows 5 'spots' in right breast, largest 1 cm unidentifiable on US
needle biopsy proved the largest to be old inflamed cyst -phew!
7/10 switched to Arimidex
8/9 switched to Femara - allergic to arimidex
Femara made me lose hair quickly so switched to Aromasin
Aromasin made my hair fall out too and the bone pain was too much.
back on Tamoxifen 1/2013.
blood clot from trains and planes 5/2014 so on coumadin per onco for as long as i am on tamoxifen
tamoxifen was supposed to be up with my 5 yrs in may but my boyfriend was diagnosed with stage 4 colon cancer so i am staying on tamoxifen indefinitely because i want some ammo against BC, given the stress. lost my husband in only 10 wks in 2007 to stage 4 esophageal cancer.
cancer's screwing with another man i love
2/2016 - 6yrs in remission, off tamoxifen and off coumadin - yay!
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Old 06-04-2015, 03:22 PM   #23
DianaMK
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Join Date: Mar 2011
Posts: 70
Re: boyfriend d/x with stage 4 cancer

Glad he is doing well!! Thanks for sharing info!!
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12/2006 right lumpectomy - HER2-Stage 1
A/C x 4
Radiation
Herceptin - one year
6/2010 - Stage 4 - lung and skin mets
Lung resection
TCH x 6
12/2010 - right mastectomy
On Herceptin
Scans every six months
11/2013 - stable continue to watch spot on lung
Continue on Herceptin
6/2016 - 6 years Stage 4 - stable - continue Herceptin
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Old 06-05-2015, 12:24 PM   #24
Rolepaul
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Join Date: Jan 2012
Location: Boulder Colorado as of January 2013
Posts: 389
Re: boyfriend d/x with stage 4 cancer

Have his doctor get him epogen for the red blood cell count being down.
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Old 06-09-2015, 07:39 AM   #25
v-ness
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Join Date: Nov 2009
Location: western ma
Posts: 280
Re: boyfriend d/x with stage 4 cancer

thanks. he just had a blood test so i will ask if he knows the results. he had to have one for dental work. he's the kind who rarely asks questions (grr) so i prod him to do so when it seems like it's important. last time he was there he had to have an iron infusion before he could have chemo. obviously something is not right, since he takes iron. v
__________________
8/09 - IDC 1.8 cm triple positive, lumpectomy left breast
10/09 began chemo (taxotere & carboplatin) and weekly herceptin.
1/21/10 finished chemo, continued on herceptin every 3 weeks until 10/2010.
2/10 began 7 wks of radiation
6/10 mom dies of primary peritoneal ovarian cancer
8/10 got my last remaining ovary out
10/10 mammogram all clear
3/11 MRI shows 5 'spots' in right breast, largest 1 cm unidentifiable on US
needle biopsy proved the largest to be old inflamed cyst -phew!
7/10 switched to Arimidex
8/9 switched to Femara - allergic to arimidex
Femara made me lose hair quickly so switched to Aromasin
Aromasin made my hair fall out too and the bone pain was too much.
back on Tamoxifen 1/2013.
blood clot from trains and planes 5/2014 so on coumadin per onco for as long as i am on tamoxifen
tamoxifen was supposed to be up with my 5 yrs in may but my boyfriend was diagnosed with stage 4 colon cancer so i am staying on tamoxifen indefinitely because i want some ammo against BC, given the stress. lost my husband in only 10 wks in 2007 to stage 4 esophageal cancer.
cancer's screwing with another man i love
2/2016 - 6yrs in remission, off tamoxifen and off coumadin - yay!
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