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Old 02-13-2013, 08:11 AM   #1
linn65
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Join Date: Dec 2012
Location: Attica, IN
Posts: 371
Herceptin/Radiation Today

For some reason I just can not help but be emotional today! I go in today and they will start my Herceptin and then I drag my pole with me and get the radiation done. But it is like I go in the Chemo room for the Herceptin, and I have PTSD. I do not like going in for the drug that is supposed to save my life and that doesn't even make sense I should be happy they have this miracle drug. I read the post's on here, and I know people have it way worse then me with treatments going on for years. All I can think is how in the heck do these women keep going and going! I do not know if the doctor would say you have liver mets and need surgery or chemo what I would do at this point (lay on the floor and cry like a 5 year old). For 8 months all my life seems to be are doctors appt's and treatments. And I have not even had reconstruction done yet and that is this summer!! Ugh, I had to complain, gripe, and I know people on here get it.
__________________
myleftlump.wordpress.com - started blogging my
IDC breast cancer
7/2012 diagnosed with multiple solid lesions
7/20/12 biopsy done. ER+ 30 PR -, HER+++,k167 80% Grade 2
9/2012 biopsy on lymph node - showed malignant

9/2012 Pre-adjunctive TCH chemo.

12/6/12 MRI after Pre-adj.
Results: Modest Decrease in size of left breast malignancy As well as the associated satellite lesions and auxiliary Adenopathy compared to prior study. Doctors hoped for better but good response it didn't grow.

12/18/2012 left masectomy with axillary nodes
Size 3.2 CM, Nottingham score 9/9
Grade 3, no evidence of in situ carcinoma
Areas of angiolymphatic are identified
Carcinoma is 0.5 cm from inked deep
Margin of excision
Attached axillary lymph nodes: metastatic
Carcinoma in 6 of 8 nodes.
Size of largest node 1.5 cm
Extracapsular
ER + 73%, PR+2%, HER2+

2/27/13 6 weeks of IMRT radiation finished

2/2013 Started on Tamoxifan 5 years.

8/2013 will take last Herceptin, 17 treatments total every 3 weeks.

BRCA1 & BRAC2 - Negative

August 28, 2013 DIEP flap on the left breast.
February 2014 Nip & Tuck
March 14, 2014 nipple reconstruction and removed port.
August 14, 2014 lump in lymph nodes under arm and above clavicle. Stage IV
August 28, 2014 herceptin And projeta starting and port put back in.

3/18/15 stopped arimidex.
3/18/15 progression....Tdm1
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Old 02-13-2013, 08:16 AM   #2
snolan
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Join Date: May 2011
Location: El Paso ,Tx
Posts: 436
Re: Herceptin/Radiation Today

I felt the same way, very mad at the change it all had on my life. Then I got to the end of Herceptin and was scared to stop it. I am done with reconstruction and miss my PS, I feel scared not to have Dr. appt as I felt safe while I was going to see them. It is weird how thing shifted for me. I am know getting used to the same hum-drum life that seems so slow paced now.
Suzanne
__________________
dx: DCIS 6/8/10, HER 2+ 7/26/10; Stage I Age 41
Double mast w reconstruction
6 TCH w 1yr herceptin
Tamox.
25 radiation tx
Removal of expander on L due to infection. Tried to save it had 3 bouts of antibiotics and went to see plastic surgeon 2-3x wk to get drained. Saving it was my idea not his. But lost it anyway.
Reconstruction set for December 21st,2011
Finished chemo 12/2010
Finished Herceptin 8/26/11
Reconstruction 12/21/11
Expanders exchanged for silicon 3/19/12
Nipple reconstruction 5/18/12
Nipple tatooing- 7/9/12- All done yay!
11/22/12-Went back to get scar tissue stretched to even the outside of breast, didn't work due to it being radiated skin.
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Old 02-13-2013, 09:35 AM   #3
tricia keegan
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Join Date: Nov 2005
Location: Ireland
Posts: 3,463
Re: Herceptin/Radiation Today

Hi Linn,

I know its a whirl of medical appts right now and you feel you'll never be done but each day gets you closer to the finish until you reach a day when you look back and wonder if it all really happened!!

Herceptin has very few side effects for most of us unlike chemo, and usually rads is a breeze too (at least it was for me) so plan a little treat for when you're finished as you sit there today and think of how proud you'll be of yourself when done!
__________________
Tricia
Dx July '05 IDC 1.9cm Triple positive 3/9 nodes positive
A/C X 4 ..Taxol/Herceptin x 12 wks then herceptin 1 yr
Rads x 36 ..oophorectomy August '06
Currently taking Arimidex..
June 2011 osteopenia/ zometa x1 yearly- stopped Zometa 2015 as Dexa show normal bone density.
Stopped Arimidex July 2014- Restarted Arimidex 2015 for a further two years on the advice of my Onc.
2014 Normal Dexa scan
2018 Mammo all clear, still NED!
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Old 02-14-2013, 12:39 AM   #4
starwishn2
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Join Date: Jul 2012
Location: Utah
Posts: 124
Re: Herceptin/Radiation Today

Hi Linn~
I'm right there with you. I'm "just" on Herceptin now but it's still an IV, you still have to go to the "chemo room" and mine is still every 3 weeks. I had my first reconstructive surgery almost 4 weeks ago. I will have to have one more - probably not til August. (doc said we could wait then he could remove my port as well).

I've had the same thoughts as you. There are so many women on this site that have been doing this battle for such a long time and they are so positive. Thankfully, most days I'm feeling positive and can take it one day at time. It's great that this forum is here for those difficult days!

Best of luck! Hang in there!! We're all in this together~
Jeri
__________________
Diagnosed 16Dec1993 ITP (auto immune disease - low platelets)
Splenectomy 11Nov2009
Rituxen May2011
ITP playing nice
Diagnosed 3Jul2012 BC

2 cm - Grade 2 - Stage IIB
HER2+++

ER+/PR+
bilateral mastectomy 20Jul2012
Metastasized cancer found 1 lymph node
expanders placed during surgery
TCH chemo "cocktail" started 24Aug2012
every 3 weeks - 6 treatments
Herceptin - 18 treatments
LAST treatment Taxotere & Carboplatin 7Dec2012 -yay!
Continue with Herceptin 26Dec2012

Started Arimidex 01Jan2013 (for 5 years)
Surgery to remove expanders/reconstruction 18Jan2013
Infection in left breast from reconstruction/infection in most nails - SO many meds! 22Feb2013
Left implant not playing nice.... might need to remove and try again - blah! 04Apr2013
3Jul2013 - one year since diagnosis - booo cancer!

15Aug2013 LAST chemo infusion!! YIPPPEEE!!!
13Sep2013 2nd reconstructive surgery.. the FOOBs are looking good!



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Old 02-14-2013, 06:01 AM   #5
linn65
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Join Date: Dec 2012
Location: Attica, IN
Posts: 371
Re: Herceptin/Radiation Today

I made it through Herceptin Day...Now, just get through until Friday and can rest Friday night!!! It is really hard getting up because I am just so tired. After my Herceptin I can almost feel it go through my body real or imagined I do. My joints ache, and 5th week of radiation I am burnt and really do not want to even where a bra, get dressed and come to work.

I hope some day I am on the other side of this, and I can lend encouragement to others on here like I have been encouraged!!

In the last two weeks I have even let my dishes sit in the sink for the week.....It has come to this I now wash my dishes once a week! LOL...

When I get home I end up reading on my Ipad, and I think about what I should be doing, and I don't. I even tell myself if I would spend 30 minutes or an hour on this house it would help....However, like Scarlet from Gone with the Wind, I will think about that tomorrow.

The general population think you are doing just fine because I am dressed, makeup on, dress clothes on, I can laugh and be posititve. No one really knows or even gets what a person goes through with this and how could they I had no clue!!

This board helps me so much to just vent, ask questions when I don't feel like figuring it out, encourging, and in the trenches right with me. I am thankful for all of my HER2 people here!!!

Happy Valentine's to everyone!!! May we all get through another day with treatment or another day living NED.
__________________
myleftlump.wordpress.com - started blogging my
IDC breast cancer
7/2012 diagnosed with multiple solid lesions
7/20/12 biopsy done. ER+ 30 PR -, HER+++,k167 80% Grade 2
9/2012 biopsy on lymph node - showed malignant

9/2012 Pre-adjunctive TCH chemo.

12/6/12 MRI after Pre-adj.
Results: Modest Decrease in size of left breast malignancy As well as the associated satellite lesions and auxiliary Adenopathy compared to prior study. Doctors hoped for better but good response it didn't grow.

12/18/2012 left masectomy with axillary nodes
Size 3.2 CM, Nottingham score 9/9
Grade 3, no evidence of in situ carcinoma
Areas of angiolymphatic are identified
Carcinoma is 0.5 cm from inked deep
Margin of excision
Attached axillary lymph nodes: metastatic
Carcinoma in 6 of 8 nodes.
Size of largest node 1.5 cm
Extracapsular
ER + 73%, PR+2%, HER2+

2/27/13 6 weeks of IMRT radiation finished

2/2013 Started on Tamoxifan 5 years.

8/2013 will take last Herceptin, 17 treatments total every 3 weeks.

BRCA1 & BRAC2 - Negative

August 28, 2013 DIEP flap on the left breast.
February 2014 Nip & Tuck
March 14, 2014 nipple reconstruction and removed port.
August 14, 2014 lump in lymph nodes under arm and above clavicle. Stage IV
August 28, 2014 herceptin And projeta starting and port put back in.

3/18/15 stopped arimidex.
3/18/15 progression....Tdm1
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