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11-26-2010, 08:24 PM
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#41
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Senior Member
Join Date: May 2010
Location: New Roads, LA
Posts: 35
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Re: Leave of absence :)
Jackie, I wish you and your family a Happy Thanksgiving! I will miss your posts...your info and comments are very helpful to us all. As far as the Novalis, I was a procedure nurse at a local cancer hospital, and am very familiar with it. I prepared and monitored patients with brain tumors that were receiving SRS (stereotactic radiosurgery). It's amazing to watch the doctors, dosimetrists and physicists working together to prepare the "plan" for the patients for treatment. The machine is amazing..You will do well! Looking forward to hearing from you, soon!
Hugs!
__________________
Toni
Found lump...Oh, crap!
Dx 4/29/10
Invasive Poorly Differentiated Ductal Carcinoma. BRCA 1&2 no mutations(although 2 cousins also are HER2+)HMMM....
Stage IIB, G3
ER/PR -, HER2+++
5/11/10 Lumpectomy/Axillary node dissection/Mediport placement
Tumor 3.5cm, 1/15 nodes + Both Sentinel nodes negative!
6/24/10 - Started TCH.
10/14/10 - Finished chemo...yea!!!!!
12/27/10 - PET scan and MRI-NED!!!!!
03/09/11 - Bilateral Mastectomy and reconstruction (DIEP Flap)
03/16/11 - NED! Path report negative!
6/9/11 - Revision of both breasts, and port removed. Two lumps removed...both benign!
6/23/09 - LAST HERCEPTIN!!! Wohooooo!
My son Tim and his wife Nicole just had their first born...a son, Brayden...my first Grandchild! My daughter Hanna is working her way through college, and I am so proud! God has blessed me.
Update...as of 10/2013...still NED, and my son and daughter-in-law just had identical twin girls!!! They have blessed me with 3 beautiful grandchildren in 27 months!! Haha!
My beautiful daughter, Hanna, is still working toward her degree and working full-time.
God is so good:)
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11-27-2010, 12:28 PM
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#42
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Senior Member
Join Date: Sep 2009
Location: Los Angeles
Posts: 76
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Re: Leave of absence :)
Jackie, I am very grateful to you for the help you've given me in this forum. You're a very kind person and I hope you feel better soon.
__________________
Idelle Davidson
Co-author (with Dr. Dan Silverman at UCLA) of "Your Brain After Chemo: A Practical Guide to Lifting the Fog and Getting Back Your Focus" (Da Capo Lifelong Books, 2009). Amazon. www.YourBrainAfterChemo.com.
ER/PR negative/HER-2 positive
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11-29-2010, 06:25 PM
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#43
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Senior Member
Join Date: May 2008
Location: Hershey, PA. Live The Sweet Life!
Posts: 2,005
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Re: Leave of absence :)
I would have noticed your absence, Jackie! You are so faithful in your responses to those who post. I have long admired your willingness to do research for the one who has inquired. It has not gone unnoticed. In fact, I have been grateful to you especially in recent months when it seemed some of us, myself included, were too busy or burned out to respond to the many questions and concerns posted by new and old members of this site.
I hope your experience with your newest "toy" goes well and you are back and posting diligently in short order! All my very best wishes for a quick recovery. I think you are tops!
__________________
Smile On!
Laurel
Dx'd w/multifocal DCIS/IDS 3/08
7mm invasive component
Partial mast. 5/08
Stage 1b, ER 80%, PR 90%, HER-2 6.9 on FISH
0/5 nodes
4 AC, 4 TH finished 9/08
Herceptin every 3 weeks. Finished 7/09
Tamoxifen 10/08. Switched to Femara 8/09
Bilat SPM w/reconstruction 10/08
Clinical Trial w/Clondronate 12/08
Stopped Clondronate--too hard on my gizzard!
Switched back to Tamoxifen due to tendon pain from Femara
15 Years NED
I think I just might hang around awhile....
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11-30-2010, 09:32 AM
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#44
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Senior Member
Join Date: Feb 2008
Location: Georgia
Posts: 1,486
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Re: Leave of absence :)
Jackie,
Hope you are feeling better today.
Amelia
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12-01-2010, 01:48 PM
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#45
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Senior Member
Join Date: Jan 2008
Location: "Love never fails."
Posts: 5,808
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Re: Leave of absence :)
Thanks, Amelia (and everyone as well)
Had an MRI with contrast today. Bumped into the R. oncologist in the hallway on our way out and she mentioned that there will be a CT-scan scheudled for me next week.
From the record/film they got from Dallas (Presbyterian Hospital) the tumor needs to be treated is not one of the three tumors that had been Gamma-knifed in 2001. So there's no problem for it to receive more radiation there.
Guess that's considered a good news. 
__________________
Jackie07
http://www.kevinmd.com/blog/2011/06/doctors-letter-patient-newly-diagnosed-cancer.html
http://www.asco.org/ASCOv2/MultiMedi...=114&trackID=2
NICU 4.4 LB
Erythema Nodosum 85
Life-long Central Neurocytoma 4x5x6.5 cm 23 hrs 62090 semi-coma 10 d PT OT ST 30 d
3 Infertility tmts 99 > 3 u. fibroids > Pills
CN 3 GKRS 52301
IDC 1.2 cm Her2 +++ ER 5% R. Lmptmy SLNB+1 71703 6 FEC 33 R Tamoxifen
Recc IIB 2.5 cm Bi-L Mast 61407 2/9 nds PET
6 TCH Cellulitis - Lymphedema - compression sleeve & glove
H w x 4 MUGA 51 D, J 49 M
Diastasis recti
Tamoxifen B. scan
Irrtbl bowel 1'09
Colonoscopy 313
BRCA1 V1247I
hptc hemangioma
Vertigo
GI - > yogurt
hysterectomy/oophorectomy 011410
Exemestane 25 mg tab 102912 ~ 101016 stopped due to r. hip/l.thigh pain after long walk
DEXA 1/13
1-2016 lesions in liver largest 9mm & 1.3 cm onco. says not cancer.
3-11 Appendectomy - visually O.K., a lot of puss. Final path result - not cancer.
Start Vitamin D3 and Calcium supplement （600mg x2)
10-10 Stopped Exemestane due to r. hip/l.thigh pain OKed by Onco 11-08-2016
7-23-2018 9 mm groundglass nodule within the right lower lobe with indolent behavior. Due to possible adenocarcinoma, Recommend annual surveilence.
7-10-2019 CT to check lung nodule.
1-10-2020 8mm stable nodule on R Lung, two 6mm new ones on L Lung, a possible lymph node involvement in inter fissule.
"I WANT TO BE AN OUTRAGEOUS OLD WOMAN WHO NEVER GETS CALLED AN OLD LADY. I WANT TO GET SHARP EDGED & EARTH COLORED, TILL I FADE AWAY FROM PURE JOY." Irene from Tampa
Advocacy is a passion .. not a pastime - Joe
Last edited by Jackie07; 12-02-2010 at 03:53 PM..
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12-01-2010, 02:10 PM
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#46
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Senior Member
Join Date: Nov 2010
Location: PA
Posts: 297
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Re: Leave of absence :)
Hello Jackie, That is great news! I'm so happy for you. Good news in time for the Holiday Season. I hope you and your family have a wonderful Christmas. I think I enjoy the true meaning of Christmas and the serenity more than any of the other stuff. I love to sit in my livingroom with no lights on other than my tree. Now that is serenty!! Best wishes. Mary L
__________________
Mary L from PA Diag: Oct 2003 w/6mm mass, IDC grade III ductal carcinoma in-situ, IBC stage IIIB. tx A/C followed by Taxotere(only able to have 2 tx, allergic), mastectomy, 3 0ut of 7 positive nodes. 35 rads. Recurrence 9 months later, skin mets to mastectomy site. Tx Carboplatin/Herceptin. Stayed on Herceptin almost 5 years, had 3 more recurrences when I had to stop Herceptin due to my ejection fraction getting too low. Herceptin stopped and ned 3 years in Oct. 2010.
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12-02-2010, 12:26 AM
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#47
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Senior Member
Join Date: Jan 2008
Location: "Love never fails."
Posts: 5,808
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Re: Leave of absence :)
Forgot to include 'Hanukkah'.
Happy Hanukkah!
http://family.go.com/food/hanukkah-recipes-pg/
__________________
Jackie07
http://www.kevinmd.com/blog/2011/06/doctors-letter-patient-newly-diagnosed-cancer.html
http://www.asco.org/ASCOv2/MultiMedi...=114&trackID=2
NICU 4.4 LB
Erythema Nodosum 85
Life-long Central Neurocytoma 4x5x6.5 cm 23 hrs 62090 semi-coma 10 d PT OT ST 30 d
3 Infertility tmts 99 > 3 u. fibroids > Pills
CN 3 GKRS 52301
IDC 1.2 cm Her2 +++ ER 5% R. Lmptmy SLNB+1 71703 6 FEC 33 R Tamoxifen
Recc IIB 2.5 cm Bi-L Mast 61407 2/9 nds PET
6 TCH Cellulitis - Lymphedema - compression sleeve & glove
H w x 4 MUGA 51 D, J 49 M
Diastasis recti
Tamoxifen B. scan
Irrtbl bowel 1'09
Colonoscopy 313
BRCA1 V1247I
hptc hemangioma
Vertigo
GI - > yogurt
hysterectomy/oophorectomy 011410
Exemestane 25 mg tab 102912 ~ 101016 stopped due to r. hip/l.thigh pain after long walk
DEXA 1/13
1-2016 lesions in liver largest 9mm & 1.3 cm onco. says not cancer.
3-11 Appendectomy - visually O.K., a lot of puss. Final path result - not cancer.
Start Vitamin D3 and Calcium supplement （600mg x2)
10-10 Stopped Exemestane due to r. hip/l.thigh pain OKed by Onco 11-08-2016
7-23-2018 9 mm groundglass nodule within the right lower lobe with indolent behavior. Due to possible adenocarcinoma, Recommend annual surveilence.
7-10-2019 CT to check lung nodule.
1-10-2020 8mm stable nodule on R Lung, two 6mm new ones on L Lung, a possible lymph node involvement in inter fissule.
"I WANT TO BE AN OUTRAGEOUS OLD WOMAN WHO NEVER GETS CALLED AN OLD LADY. I WANT TO GET SHARP EDGED & EARTH COLORED, TILL I FADE AWAY FROM PURE JOY." Irene from Tampa
Advocacy is a passion .. not a pastime - Joe
Last edited by Jackie07; 12-02-2010 at 12:33 AM..
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12-02-2010, 08:15 AM
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#48
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Senior Member
Join Date: Nov 2010
Location: PA
Posts: 297
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Re: Leave of absence :)
Good morning Jackie. Sorry about that. I wish you a wonderful holiday season and Happy Hannuka. MaryL
__________________
Mary L from PA Diag: Oct 2003 w/6mm mass, IDC grade III ductal carcinoma in-situ, IBC stage IIIB. tx A/C followed by Taxotere(only able to have 2 tx, allergic), mastectomy, 3 0ut of 7 positive nodes. 35 rads. Recurrence 9 months later, skin mets to mastectomy site. Tx Carboplatin/Herceptin. Stayed on Herceptin almost 5 years, had 3 more recurrences when I had to stop Herceptin due to my ejection fraction getting too low. Herceptin stopped and ned 3 years in Oct. 2010.
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12-02-2010, 03:41 PM
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#49
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Senior Member
Join Date: Jan 2008
Location: "Love never fails."
Posts: 5,808
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Re: Leave of absence :)
__________________
Jackie07
http://www.kevinmd.com/blog/2011/06/doctors-letter-patient-newly-diagnosed-cancer.html
http://www.asco.org/ASCOv2/MultiMedi...=114&trackID=2
NICU 4.4 LB
Erythema Nodosum 85
Life-long Central Neurocytoma 4x5x6.5 cm 23 hrs 62090 semi-coma 10 d PT OT ST 30 d
3 Infertility tmts 99 > 3 u. fibroids > Pills
CN 3 GKRS 52301
IDC 1.2 cm Her2 +++ ER 5% R. Lmptmy SLNB+1 71703 6 FEC 33 R Tamoxifen
Recc IIB 2.5 cm Bi-L Mast 61407 2/9 nds PET
6 TCH Cellulitis - Lymphedema - compression sleeve & glove
H w x 4 MUGA 51 D, J 49 M
Diastasis recti
Tamoxifen B. scan
Irrtbl bowel 1'09
Colonoscopy 313
BRCA1 V1247I
hptc hemangioma
Vertigo
GI - > yogurt
hysterectomy/oophorectomy 011410
Exemestane 25 mg tab 102912 ~ 101016 stopped due to r. hip/l.thigh pain after long walk
DEXA 1/13
1-2016 lesions in liver largest 9mm & 1.3 cm onco. says not cancer.
3-11 Appendectomy - visually O.K., a lot of puss. Final path result - not cancer.
Start Vitamin D3 and Calcium supplement （600mg x2)
10-10 Stopped Exemestane due to r. hip/l.thigh pain OKed by Onco 11-08-2016
7-23-2018 9 mm groundglass nodule within the right lower lobe with indolent behavior. Due to possible adenocarcinoma, Recommend annual surveilence.
7-10-2019 CT to check lung nodule.
1-10-2020 8mm stable nodule on R Lung, two 6mm new ones on L Lung, a possible lymph node involvement in inter fissule.
"I WANT TO BE AN OUTRAGEOUS OLD WOMAN WHO NEVER GETS CALLED AN OLD LADY. I WANT TO GET SHARP EDGED & EARTH COLORED, TILL I FADE AWAY FROM PURE JOY." Irene from Tampa
Advocacy is a passion .. not a pastime - Joe
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12-02-2010, 09:21 PM
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#50
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Senior Member
Join Date: Sep 2005
Location: South Dakota.
Posts: 621
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Re: Leave of absence :)
Hi, Jackie, How unfortunate that you have to deal with this on top of everything else. I am so sorry, but you have had a bit of good news recently, and I believe the news will continue to be good for you. Praying your treatment will be successful so you can get back to your normal routine and back to us here at the Her2 support board. Your messages and thoughtful advice are so appreciated.
You take care, try to stay positive, and enjoy the holidays!
__________________
Blessings and Peace,
Barbara
DX Oct 02 @ age 52 Stage 2B Grade 3 Mastectomy
"at least" 4.5 cm IDC 1+node ER+61% /PR-
Assiciated Intraductual component with Comedo Necrosis
Her2+ FISH8.6 IHC 2+
5 1/2 CEF Arimidex
Celebrex 400mg daily for 13 months
Prophylactic mastectomy
Estradiol #: 13
PTEN positive, "late" Herceptin (26 months after chemo)
Oct 05: Actonel for osteopenia from Arimidex.
May 08: Replaced Actonel with Zometa . Taking every 6
months.
Accepting the gift of life, I give thanks for it and live it in fullness.
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12-03-2010, 01:31 PM
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#51
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Senior Member
Join Date: Feb 2008
Location: Georgia
Posts: 1,486
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Re: Leave of absence :)
Jackie,
So glad to hear from you. Please keep us posted. Hope you have a good weekend.
Amelia
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12-05-2010, 08:41 PM
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#52
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Senior Member
Join Date: Aug 2009
Location: Owasso, OK
Posts: 185
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Re: Leave of absence :)
Jackie,
Hoping you are doing well, and looking forward to your return to this board. Wishing you a speedy recovery.
__________________
Hayley
Oklahoma
3/35/2009 - Diagnosed, age 39
5/7/09 - Mastectomy and reconstruction started. Two tumors found. Tumors were side by side. DCIS tumor was 2.8 cm, ER-, PR-, grade 2. Invasive tumor was 1.1 cm, poorly differentiated, grade 3, ER+90%, PR+95%, HER2+3. Thankfully, no node involvement.
5/29/09 - Second surgery resulting from difficulty healing from mastectomy.
6/2/09 - Began Herceptin treatments
6/23/09 - Began Taxotere and Carboplatin treatments along with Herception every 3 weeks.
10/06/09 - Completed Taxotere and Carboplatin - Yeah!!!
10/27/2009 - Herceptin maintenance and began Femara
12/10/2009 - 2nd stage reconstruction surgery
2/2010 - Body rejected saline implant
3/18/2010 - Second stage reconstruction using silicone implant
5/4/10 - Completed Herceptin - YEE-HAA!
May '10 - Body rejects silicone implant...taking a break.
11/29/10 - Hysterectomy
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12-13-2010, 04:42 PM
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#53
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Senior Member
Join Date: Jan 2008
Location: "Love never fails."
Posts: 5,808
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Re: Leave of absence :)
Was about 5 minutes late for my CT-scan appointment. Past experience tells me that I might get bumped down the schedule, so I just took it easy drinking some water from the cone-shaped paper cup and watching 'Regis and Kelly' on the brand new 'LG' TV hanging off the wall.
Haven't even got a chance to sit down, the receptionist informed me that the radiation oncologist wanted to see me. So I called hubby on the Cell to hurry back from the dining area where he was getting himself some coffee.
Dr. Thawani found a small room and explained to us that becuase the Third Ventricle is surrounded by the Thalamus http://en.wikipedia.org/wiki/Thalamus which involves lots of vital functions of the brain-body connection, and the MRI taken last week did not show any change from the one taken 2 months before; they are going to take a watch and wait strategy and schedule me for another MRI in 4 months.
Hubby was so relieved he called his Father right away.
Guess I'll just continue to use my skin medicine (got a refill the other day), sleep on my right side, and try not to do anything strenuous...
__________________
Jackie07
http://www.kevinmd.com/blog/2011/06/doctors-letter-patient-newly-diagnosed-cancer.html
http://www.asco.org/ASCOv2/MultiMedi...=114&trackID=2
NICU 4.4 LB
Erythema Nodosum 85
Life-long Central Neurocytoma 4x5x6.5 cm 23 hrs 62090 semi-coma 10 d PT OT ST 30 d
3 Infertility tmts 99 > 3 u. fibroids > Pills
CN 3 GKRS 52301
IDC 1.2 cm Her2 +++ ER 5% R. Lmptmy SLNB+1 71703 6 FEC 33 R Tamoxifen
Recc IIB 2.5 cm Bi-L Mast 61407 2/9 nds PET
6 TCH Cellulitis - Lymphedema - compression sleeve & glove
H w x 4 MUGA 51 D, J 49 M
Diastasis recti
Tamoxifen B. scan
Irrtbl bowel 1'09
Colonoscopy 313
BRCA1 V1247I
hptc hemangioma
Vertigo
GI - > yogurt
hysterectomy/oophorectomy 011410
Exemestane 25 mg tab 102912 ~ 101016 stopped due to r. hip/l.thigh pain after long walk
DEXA 1/13
1-2016 lesions in liver largest 9mm & 1.3 cm onco. says not cancer.
3-11 Appendectomy - visually O.K., a lot of puss. Final path result - not cancer.
Start Vitamin D3 and Calcium supplement （600mg x2)
10-10 Stopped Exemestane due to r. hip/l.thigh pain OKed by Onco 11-08-2016
7-23-2018 9 mm groundglass nodule within the right lower lobe with indolent behavior. Due to possible adenocarcinoma, Recommend annual surveilence.
7-10-2019 CT to check lung nodule.
1-10-2020 8mm stable nodule on R Lung, two 6mm new ones on L Lung, a possible lymph node involvement in inter fissule.
"I WANT TO BE AN OUTRAGEOUS OLD WOMAN WHO NEVER GETS CALLED AN OLD LADY. I WANT TO GET SHARP EDGED & EARTH COLORED, TILL I FADE AWAY FROM PURE JOY." Irene from Tampa
Advocacy is a passion .. not a pastime - Joe
Last edited by Jackie07; 12-13-2010 at 10:57 PM..
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12-13-2010, 10:14 PM
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#54
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Senior Member
Join Date: Sep 2005
Location: South Dakota.
Posts: 621
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Re: Leave of absence :)
That's great news, Jackie, and I am thrilled and happy for you and your family. Wow. Take a deep breath and relax now, for a while, and have a wonderful Christmas.
__________________
Blessings and Peace,
Barbara
DX Oct 02 @ age 52 Stage 2B Grade 3 Mastectomy
"at least" 4.5 cm IDC 1+node ER+61% /PR-
Assiciated Intraductual component with Comedo Necrosis
Her2+ FISH8.6 IHC 2+
5 1/2 CEF Arimidex
Celebrex 400mg daily for 13 months
Prophylactic mastectomy
Estradiol #: 13
PTEN positive, "late" Herceptin (26 months after chemo)
Oct 05: Actonel for osteopenia from Arimidex.
May 08: Replaced Actonel with Zometa . Taking every 6
months.
Accepting the gift of life, I give thanks for it and live it in fullness.
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12-14-2010, 02:02 PM
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#55
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Senior Member
Join Date: Feb 2008
Location: Georgia
Posts: 1,486
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Re: Leave of absence :)
Jackie,
I am so glad to see you on the board and hear your good news.
Amelia
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12-14-2010, 08:27 PM
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#56
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Senior Member
Join Date: May 2010
Location: New Roads, LA
Posts: 35
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Re: Leave of absence :)
That's great news, Jackie! Have a wonderful holiday...whichever you choose to celebrate!!!!!
Hugs,
Toni
__________________
Toni
Found lump...Oh, crap!
Dx 4/29/10
Invasive Poorly Differentiated Ductal Carcinoma. BRCA 1&2 no mutations(although 2 cousins also are HER2+)HMMM....
Stage IIB, G3
ER/PR -, HER2+++
5/11/10 Lumpectomy/Axillary node dissection/Mediport placement
Tumor 3.5cm, 1/15 nodes + Both Sentinel nodes negative!
6/24/10 - Started TCH.
10/14/10 - Finished chemo...yea!!!!!
12/27/10 - PET scan and MRI-NED!!!!!
03/09/11 - Bilateral Mastectomy and reconstruction (DIEP Flap)
03/16/11 - NED! Path report negative!
6/9/11 - Revision of both breasts, and port removed. Two lumps removed...both benign!
6/23/09 - LAST HERCEPTIN!!! Wohooooo!
My son Tim and his wife Nicole just had their first born...a son, Brayden...my first Grandchild! My daughter Hanna is working her way through college, and I am so proud! God has blessed me.
Update...as of 10/2013...still NED, and my son and daughter-in-law just had identical twin girls!!! They have blessed me with 3 beautiful grandchildren in 27 months!! Haha!
My beautiful daughter, Hanna, is still working toward her degree and working full-time.
God is so good:)
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