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Old 11-04-2010, 07:23 PM   #1
Ceesun
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Elizabeth Edwards Comment
What did Elizabeth Edwards mean when she said this summer that her breast cancer cannot migrate to the brain? Was that something her doctors assured her? I hope and pray that is true, but I don't understand her comment. Ceesun
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Old 11-04-2010, 09:23 PM   #2
ElaineM
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Wink Re: Elizabeth Edwards Comment
I think I read somewhere that Elizabeth is her2 positive. Maybe she is taking Tykerb,which can pass the blood brain barrier and is supposed to be able to protect the brain.
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Old 11-05-2010, 06:08 AM   #3
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Re: Elizabeth Edwards Comment
Hmmm ... I read that comment too and it's confusing. The only thing I can think of was that she was talking about her bone mets in her skull ..
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Old 11-05-2010, 07:19 AM   #4
Joanna J
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Re: Elizabeth Edwards Comment
Hummmm very interesting!!! would love to know
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Old 11-05-2010, 11:52 AM   #5
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Re: Elizabeth Edwards Comment
Quite often the things people say get distorted in the press. As far as I know there are no guarantees in breastcancer. Just smaller and bigger risks.

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Old 11-05-2010, 12:03 PM   #6
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Re: Elizabeth Edwards Comment
We had a discussion about this on another board I belong to. What we decided upon was that she probably meant her skull mets cannot pass into the brain directly - which is true - a tumor in your skull will not directly pass into the brain. But hopefully Elizabeth understands that she still CAN get brain mets via circulating tumor cells in the bloodstream or spinal fluid. I pray that she never has to deal with that though. Sounds like she is doing well and is on hormone therapies. I don't think she is HER2 positive but I don't know for certain.
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 April 08-Aug 08:Taxotere, Cytoxan, Herceptin, Zometa - complete response!
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 Jan 09-April 09: Brain mets. Add Tykerb. Watch and wait.
April 09: Gamma Knife 10 brain mets, add Xeloda.
Sept 09: Gamma Knife to 1 brain met.
Nov 09- April 10: Lung progression, add Gemzar to Herceptin, Zometa.
May 10- Sept 10: HER2 Vaccine Trial
Sept 10: Add Tykerb for more brain mets.
Oct 10: Gamma Knife to 7 brain mets.
Dec 10: Switch from Zometa to Denosumab.
Jan 11: Gamma Knife to 3 brain mets.
March 11: Gemzar/Herceptin for lung/bone progression.
April 11: More brain mets - Intrathecal Herceptin
June 11: Ixempra/Herceptin for lung, soft tissue progression.
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Old 11-05-2010, 01:57 PM   #7
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Re: Elizabeth Edwards Comment
Oh, yeah, that all makes sense...was away when this came out so I just wondered. Thanks Ceesun
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