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02-19-2007, 10:45 AM
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#1
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Senior Member
Join Date: Jun 2006
Location: Grand Terrace, Southern California
Posts: 114
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Do any one have mets to the lung?
I have mets to my right lung. I have had 5 thoracentesis done. My last two was bloody. I am wondering if any one had bloody fluid and what did your doctor tell you?
__________________
04/97- breast bx. diagnosis breast cancer.
05/97- radical mastectomy; 5cm tumor & 11 lymph nodes.
10/97- City of Hope, high dose chemotherapy.
11/97- 36 radiation therapy.
01/98- NED; tamoxifen.
02/02- breast reconstruction.
08/04- recurrence; mets to rt lung; thoracentesis; femara.
09/04- thoracentesis; ER/PR +, Her2+++.
10/04- total abdominal hysterectomy.
02/06- mets to 9th rib; monthly zometa; arimidex.
06/06- medi port insert; weekly herceptin.
10/06- 3 weeks herceptin treatment.
02/07- mets to liver; arimidex
11/07-liver clear
02/08-chemo taxol/herceptin weekly treatment
12/08-taxol not working
01/09-navelbine/herceptin weelky
03/09-navelbine not working
04/09-xeloda/tykerb
09/09-30 radation to neck; xeloda/tykerb not working
11/09-Gemzar/herceptin weekly
04/10-tykerb/herceptin weekly
06/10-cancer spread to left lung;stop treatment; tap
07/10-right lung collasps; TDM1
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02-19-2007, 07:05 PM
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#2
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Senior Member
Join Date: Sep 2005
Location: St. George, UT
Posts: 582
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I had lung mets in 2004 and herceptin seems to have controlled them. I had two PETs that were NED. The last one I just had a few weeks ago showed something worrisome, but I have moved and have a new oncologist so think he is just being careful. He had me do a bronchoscopy last week, and I hope to have the results to post this week. I also had thorocentesis with some blood, but only one time. THey are not fun but getting rid of all the fluid helps. Hope you are doing better. You will probably hear from lots of others with experience in this. And keep in touch, because this is the place not only for info but for a lot of caring and concern and prayers! Hugs, Tricia
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02-20-2007, 09:58 AM
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#3
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Senior Member
Join Date: Mar 2006
Location: IOWA
Posts: 243
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I had a pleural effusion to my left lung last December. I had thorascopic surgery. They found 2 small lesions in my pleural cavity. They performed a talc pleurodesis to close the space where my fluid was collecting. I had a drainage tube for several days after my surgery until things began to heal. When they tested the tissue, they found I was no longer hormone positive but was still Her2 ++. I began weekly infusions of Navelbine and Herceptin January 4. I had a one month check and it showed my lungs were clearing and my blood tests looked ok, too. Last week when I went in for my weekly infusion, my leukocytes were low and they reduced the amount of Navelbine. I have been feeling pretty good with this course of treatment and hope that I continue to respond to it. I no longer have any shortness of breath, even with some exertions. I was told there are many different things that can be used and if you are hormone positive, it is my understanding that is one of the first tools that they use. Good luck to you in your treatment and keep us posted.
__________________
Andi
-- ------------------------
Stage IIIC, 17 of 20 Nodes +, E+, Her2+++
Diagnosed 6/30/05
Lumpectomy 7/13/05
Dose Dense A/C x 4
Weekly Taxol + Herceptin x 12
Remainder of year Herceptin Every 3 weeks (completes 9/13/06)
Radiation completed 2/28/06
Currently on Tamoxifen
Dec 06 - Pleural effusion treated with pleurodesis
Now er/pr-, her2++
1/07 started weekly Navelbine plus Herceptin
Discontinued Tamoxifen
4/27/07 CTshowed progression
5/01/07 Began Tykerb/Xeloda + Zometa
5/22/07 Stopped treatment due to great progression
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02-20-2007, 07:26 PM
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#4
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Senior Member
Join Date: Jun 2006
Location: Grand Terrace, Southern California
Posts: 114
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Thank you Ladies. I was told by my doctor that the cancer is eatting up the lining of my lung. I was wondering if any one was having the same as me and what they doctor told them.
__________________
04/97- breast bx. diagnosis breast cancer.
05/97- radical mastectomy; 5cm tumor & 11 lymph nodes.
10/97- City of Hope, high dose chemotherapy.
11/97- 36 radiation therapy.
01/98- NED; tamoxifen.
02/02- breast reconstruction.
08/04- recurrence; mets to rt lung; thoracentesis; femara.
09/04- thoracentesis; ER/PR +, Her2+++.
10/04- total abdominal hysterectomy.
02/06- mets to 9th rib; monthly zometa; arimidex.
06/06- medi port insert; weekly herceptin.
10/06- 3 weeks herceptin treatment.
02/07- mets to liver; arimidex
11/07-liver clear
02/08-chemo taxol/herceptin weekly treatment
12/08-taxol not working
01/09-navelbine/herceptin weelky
03/09-navelbine not working
04/09-xeloda/tykerb
09/09-30 radation to neck; xeloda/tykerb not working
11/09-Gemzar/herceptin weekly
04/10-tykerb/herceptin weekly
06/10-cancer spread to left lung;stop treatment; tap
07/10-right lung collasps; TDM1
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02-20-2007, 11:37 PM
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#5
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Senior Member
Join Date: Nov 2004
Location: Misty woods of WA State
Posts: 4,128
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Dear Rendi -
So sorry that you keep having this problem with your lungs. This seems like a new turn of events. I notice you added mets to liver at the bottom of your signature. What treatment are you getting for this?? Anything new?
I have not had anything with my lungs - but my liver mets were treated with taxol and Navelbine.
Can you try another targeted drug like Avastin, which works in sync well with Herceptin? Praying for some GOOD news for you soon.
__________________
"When I hear music, I fear no danger. I am invulnerable. I see no foe. I am related to the earliest times, and to the latest." H.D. Thoreau
Live in the moment.
MY STORY SO FAR ~~~~
Found suspicious lump 9/2000
Lumpectomy, then node dissection and port placement
Stage IIB, 8 pos nodes of 18, Grade 3, ER & PR -
Adriamycin 12 weekly, taxotere 4 rounds
36 rads - very little burning
3 mos after rads liver full of tumors, Stage IV Jan 2002, one spot on sternum
Weekly Taxol, Navelbine, Herceptin for 27 rounds to NED!
2003 & 2004 no active disease - 3 weekly Herceptin + Zometa
Jan 2005 two mets to brain - Gamma Knife on Jan 18
All clear until treated cerebellum spot showing activity on Jan 2006 brain MRI & brain PET
Brain surgery on Feb 9, 2006 - no cancer, 100% radiation necrosis - tumor was still dying
Continue as NED while on Herceptin & quarterly Zometa
Fall-2006 - off Zometa - watching one small brain spot (scar?)
2007 - spot/scar in brain stable - finished anticoagulation therapy for clot along my port-a-catheter - 3 angioplasties to unblock vena cava
2008 - Brain and body still NED! Port removed and scans in Dec.
Dec 2008 - stop Herceptin - Vaccine Trial at U of W begun in Oct. of 2011
STILL NED everywhere in Feb 2014 - on wing & prayer
7/14 - Started twice yearly Zometa for my bones
Jan. 2015 checkup still shows NED
2015 Neuropathy in feet - otherwise all OK - still NED.
Same news for 2016 and all of 2017.
Nov of 2017 - had small skin cancer removed from my face. Will have Zometa end of Jan. 2018.
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03-01-2007, 06:36 AM
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#6
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Senior Member
Join Date: Jun 2006
Location: Central North Carolina, USA
Posts: 112
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How did you all know that you had lung mets??
__________________
DX 11/14/05, Stage 1C, Her2+ 3.4, ER+, PR+, K167 23%, Node Negative, MX0, Grade 3, 1.8CM, Lumpectomy 12/7/05; 6 rounds dense dose Taxol bi-weekly, 35 radiation, 1 year Herceptin, & Tamoxifen ongoing.
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03-01-2007, 11:05 AM
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#7
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Senior Member
Join Date: Mar 2006
Location: IOWA
Posts: 243
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I had a dry cough that wouldn't go away and wouldn't respond to any over the counter treatments. A chest xray showed my left lower lung filled with fluid, which was causing the cough.
__________________
Andi
-- ------------------------
Stage IIIC, 17 of 20 Nodes +, E+, Her2+++
Diagnosed 6/30/05
Lumpectomy 7/13/05
Dose Dense A/C x 4
Weekly Taxol + Herceptin x 12
Remainder of year Herceptin Every 3 weeks (completes 9/13/06)
Radiation completed 2/28/06
Currently on Tamoxifen
Dec 06 - Pleural effusion treated with pleurodesis
Now er/pr-, her2++
1/07 started weekly Navelbine plus Herceptin
Discontinued Tamoxifen
4/27/07 CTshowed progression
5/01/07 Began Tykerb/Xeloda + Zometa
5/22/07 Stopped treatment due to great progression
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03-01-2007, 04:42 PM
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#8
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Senior Member
Join Date: Mar 2007
Location: From Syracuse, NY but living in Tokyo, Japan for 26yrs
Posts: 132
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I have no symptoms, the oncologist just keeps finding more spots in my lungs and noticing growth of the spots with regular CT scans (with contrast). It's hard to believe he's showing me my own images.
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03-01-2007, 06:40 PM
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#9
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Senior Member
Join Date: Aug 2001
Location: Oregon
Posts: 1,756
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Rendi, have you had Navelbine with the Herceptin? Some of us have had very good response to this combo.
<3 Lolly
__________________
Sept.'99 - Dx.Stage IIIB, IDC ER/PR-, HER2+++ by IHC, confirmed '04 by FISH. Left MRM, AC x's 4, Taxol x's 4, 33 Rads, finishing Tx May 2000. Jan.'01 - local/regional recurrence, Stage IV. Herceptin/Navelbine weekly till NED August 2001, then maintenance Herceptin. Right Mast. April 2002. Local/Regional recurrence April '04, Herceptin plus/minus chemo until May '07. Gemzar added from Feb.'07-April '07; Tykerb/Abraxane until August '07, back on Herceptin plus Taxotere and Xeloda Sept. '07. Stopped T/X Nov. '07, stopped Herceptin Dec. '07, started Avastin/Taxol/Carboplatin Dec. '07. Progression in chest skin, stopped TAC March '03, started radiation.
Herceptin has served as the "Backbone" of my treatment strategy for over 6 years, giving me great quality of life. In 2005, I was privileged to participate in the University of Washington/Seattle HER2 Vaccine Trial.
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