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Old 11-09-2008, 10:03 PM   #1
Kathy S in Tokyo
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Location: From Syracuse, NY but living in Tokyo, Japan for 26yrs
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Complementary, alternative, CHinese and naturopathic medicine are available here but not covered under the national health insurance plan other than a few Chinese herbal remedys that regular MDs often prescribe for allergies, menopause relief or a few other things. The same herbal remedies from an herbalist would not be covered. I can take reishi and shiitake supplements at 100% my cost and tell the doctor without risking loss of my medical care as they're considered a bit like vitamins and not treatment. So, I may ask how things might work out if I take a vitamin called Tykerb sent from home...
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11/2004 partial masectomy (clear margins) - ER/PR++ HER+++
12/2004 Tamoxifen
11/2005 Clavicle & neck lymph nodes mets
30 Days rads, 7 months CEF-T Chemo
6/2006 mid chemo lung mets oral toremifene
10/2006 changed hospitals
12/2006 Tamoxifen and monthly Zoladex
2/2007 Dramatic growth of mets! Stopped Tamoxifen and Zoladex
3/2007 Began weekly Herceptin
6/2007 Added weekly Taxol to regime
4/2008 More lung mets - stopped Taxol
5/2008 Xeloda - 3 weeks on 1 week off
8/2008 Got a port!
9/2008 Stopped Xeloda, started weekly Navelbine
12/2008 Tumor progression, stopped Navelbine
1/2009 Taxotere begins again, once in every three weekly Herceptin IVs
3/2009 Added Zometa pelvic bone met, lung tumors progressing, stopped Taxotere/Herceptin
4/10/2009 Whoa seizure! 6cm&3cm brain mets. craniotomy and gamma knife surgery 5/15/2009 Started
Adria/Cyto stopped 9/15 due to progession. Brain mets back 10/28 surgery more gamma soon
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Old 11-09-2008, 11:02 PM   #2
Jackie07
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Kathy,

Having lived in Japan for 26 years, you know how to maneuver around their system. Japanese are generally strict, sticking to the rules - the no exception type. I remember vividly during a concert almost 30 years ago in the National Taiwan University Auditorium. I was with the University Choir hosting a visiting Japanese college (all male) choir. Their acappella were beautiful. I am sure you are familiar with 'Sakula', their national flower and the title of one of the songs.

During intermission, I noticed the amazing way young Japanese audience behaved. Whenever there were more than two people talking, the original two would step back and let the third, fourth...etc in and always maintained a perfect circle. And they never raised their voices. Of course these were mostly children of diplomats, missionaries, or business men from Japan. But I was just very, very impressed.

Glad to hear about the actions you are taking. Remember the power of prayers and the amazing power of positive thinking. I am sending love from Central Texas.
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Old 11-10-2008, 09:36 PM   #3
ElaineM
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Wink When to change tracks? The talk

Kathy,
If you want to try Shitake and other mushrooms how about eating them in food rather than take expensive supplements? That way it is not considered a medicine.
I buy big bags of dried Shitake when they are on sale and buy the fresh ones when I can afford them. I soak the dried mushrooms in warm water before cooking with them. I also buy other things in food form that are considered medicinal like tumeric, ginger, garlic etc.
Maybe you can get some books on the subject at your local library or find some reliable internet resources on cancer and food.
Good luck on getting your doc to accept Tykerb as a vitamin. I hope you make it. Keep up the good work on the research etc.
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