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Old 04-17-2009, 08:37 AM   #1
Lori R
Senior Member
 
Join Date: Jan 2008
Location: Evergreen, Colorado
Posts: 454
Unhappy Well Poop - Liver Met Back

Hi gang,
I received the results of my 6 month PET/CT a week ago and the liver met identified in 11/07 is back.

I believe it was Chrisy who said that when her liver met came back that the sad part about the recurrance is that she was holding on to a sliver of hope that she would somehow beat the odds. I know I certainly was.

I had a liver biopsy yesterday to confirm the original characteristics of the tumor (originally er-/pr- and her2+) We'll see if it's stayed the same. Glad to have the confirmation for appropriate next steps.

The current thinking is that since the taxotere was tolerable and did a pretty good job the first time around that I would go back on another round. (potentially 10 cycles ---YIKES---I was ready to be done at 6 but I am sure I can manage)

I am also checking into Radio Frequency Ablation to quickly blast the tumour.

Does anyone remember the sister on the site that had used Cyberknife. I believe the procedure was performed in California.

Rich...I have a call into the University of Michigan vaccine trial but I think that I am not a candidate as I have not had an anthracycline.

T-DM1 sisters - I looked into available trials here and there is one but I would have to travel and the randomized second arm was not taxotere. I am afraid of changing horses.

My daughter is 16 and a sophmore in highschool. A consideration (hopefully not short sighted so challenge me on this one...I appreciate all of your honesty) is trying to not disrupt these precious years for her by being gone too much for treatment.

SOOOO sad right now, a little scared...but certainly not willing to give up the fight.

Any words of encouragement, advice etc. appreciated.

So glad I could come here for support....love Lori
__________________
2007
Oct - Diagnosed - Stage IV
5 c.m. IDC - Left Side er/pr- Her2+++
Node + 2/14 - Single Liver Met
Double Mastectomy
Nov - Begin T+H
2008
Feb-Complete 6 cycles- T&H- NED
March - Continue - Herceptin Only
April - Rads for 6 weeks
2009
Continue Herceptin - Continue NED
April - Recurrance- 3 cm. Liver Met
May - Cryosurgery
June - November - Abraxane + Herceptin
Aug - PET/CT - CTC = 0 Back to NED
2010
January - Continue NED
July - Recurrance - 3 cm Liver Met CTC=1
August - Cryosurgery #2
August - November Navelbine
November - Back to NED - End Navelbine
2011
Feb - Recur - 4 cm Liver Met - Same Left Lobe
March Surgery it is -Couldn't get a clean margin
July - Confirmed continued liver involvement
August - Begin Herceptin + Tykerb
October - Mixed results from H+T
Add Abraxane + H + T - Nov - April
2012
January PET Scan - It's working!!
April - Back to NED
July - Recurrance
August - Begin TDM-1 Trial (Taxol + TDM-1)
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