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Old 12-27-2007, 08:37 PM   #1
janet/FL
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OK, Angel
Now I want the answer!! What to take!! And how much!!! LOL
I had a blood test and I was low on vitamin D. Doc prescribed a liquid vitamin D. I am trying to get more sun--but I hate being in the sun! And I live in Florida where it would seem hard not to get vitamin D. I do seem to manage not to, however. Whenever I think of it, I am reminded of you getting your sun in Alaska. You are just going to have to come here and show me how to do it!!!
Hugs for a Happy New year!
Before I close, there is an article in this months Prevention magazine about testosterone and women. It seems they have a patch now for delivery though might not be specifically for women, and it did improve their sex life. It was a short article.
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Janet
Endometrial Cancer 2002
Mammogram 11/2004
Lumpectomy 12/2004
Stage 1, 9mm DCIS, grade 2, Her2+++, ER/PR negative
Refused A/C as recommened by two oncs.
35 treatments of radiation that ended March 4, 2005
Changed oncologists and began
Taxotere/Herceptin August 2005. Finished Herceptin July 2006
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Old 12-30-2007, 06:12 PM   #2
AlaskaAngel
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Red face getting what we need

Hi Janet!

Maybe it is the combination of daily exposure + sunshine that makes some difference? I don't know.... My personal example isn't the best (today is quite dark with falling snow here). Ever since diagnosis in 2001/2002 I have forced myself if there is any sun at all to go out in my swimsuit.... even if all I can stand is 10 minutes in the cold! I do take both the vitamin D that is in a multivitamin plus separately vitamin D3 pills, and some magnesium and calcium also in addition to what is in the multivitamin. Weightbearing exercise is what "pulls" the minerals into the bones (and I need to do more of that...)

Thanks for the suggestion on the article in Prevention. Five years ago there was no attention being paid to the problem even though so many women were stuck with it, and I am glad to see that various more serious attempts are being made to address it. Hopefully the best attempt of all will be finding out who benefits from treatment and who doesn't. My friend who died got zero benefit out of treatment and instead was stuck with the problem on top of knowing she would die of bc. I would have given an awful lot to have saved her from even just that loss in the time she had left.

AlaskaAngel
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Old 12-31-2007, 03:42 AM   #3
michka
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Hi Janet and Alaska Angel,
Could you post or mail me the article you mentioned? It is one of my problems and what I try is not helping. I am miserable.
Thanks
Michka
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08.2006 3 cm IDC Stage 2-3, HER2 3+ ER+90% PR 20%
FEC, Taxol+ Herceptin, Mastectomy, Radiation, Herceptin 1 year followed by Tykerb 1 year,Aromasin /Faslodex

12.2010 Mets to liver,Herceptin+Tykerb
03.2011 Liver resection ER+70% PR-
04.2011 Herceptin+Navelbine+750mg Tykerb
06.2011 Liver ned, Met to sternum. Added Zometa 09.2011 Cyberknife for sternum
11.2011 Pet clear. Stop Navelbine, continuing on Hercpetin+Tykerb+Aromasin
02.2012 Mets to lungs, nodes, liver
04.2012 TDM1, Ned in 07.2012
04.2015 Stop TDM1/Kadcyla, still Ned, liver problems
04.2016 Liver mets. Back on Kadcyla
08.2016 Kadcyla stopped working. mets to liver lungs bones
09.2016 Biopsy to liver. no more HER2, still ER+
09.2016 CMF Afinitor/Aromasin/ Xgeva.Met to eye muscle Cyberknife
01.2017 Gemzar/Carboplatin/ Ibrance/Faslodex then Taxotere
02.2017 30 micro mets to brain breathing getting worse and worse
04.2017 Liquid biopsy/CTC indicates HER2 again. Start Herceptin with Halaven
06.2017 all tumors shrunk 60% . more micro mets to brain (1mm mets) no symptoms
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Old 12-31-2007, 07:32 AM   #4
Becky
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Also, make sure you take cholecalicerol (D3) versus ergocalicerol (D2) if supplementing. For most of us, it does not make a difference but for some people (especially as we age or due to genetics), D2 cannot be converted in the liver to the 2nd stage (which is then converted to the active form in the kidney - as Angel's great link describes). The D3 form is the form that our skin makes therefore, this is easiest for the liver to use if you are supplementing instead.

Secondly, one thing this article did not address (and I am sure it wasn't supposed to) is the great benefit exercise has on bone. This includes walking/jogging as well as weight lifting (be careful of your affected arm).
This really helps too and like most things, the synergy is probably greater than just doing one thing or the other.
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Kind regards

Becky

Found lump via BSE
Diagnosed 8/04 at age 45
1.9cm tumor, ER+PR-, Her2 3+(rt side)
2 micromets to sentinel node
Stage 2A
left 3mm DCIS - low grade ER+PR+Her2 neg
lumpectomies 9/7/04
4DD AC followed by 4 DD taxol
Used Leukine instead of Neulasta
35 rads on right side only
4/05 started Tamoxifen
Started Herceptin 4 months after last Taxol due to
trial results and 2005 ASCO meeting & recommendations
Oophorectomy 8/05
Started Arimidex 9/05
Finished Herceptin (16 months) 9/06
Arimidex Only
Prolia every 6 months for osteopenia

NED 18 years!

Said Christopher Robin to Pooh: "You must remember this: You're braver than you believe and stronger than you seem and smarter than you think"
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