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Old 12-19-2007, 01:36 PM   #1
theresaw
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Question Hi Everyone...

I don't know exactly how to word this, but I was wondering if you have b/c how likely is that you can get ovarion cancer. Especially if your b/c is not hormonal? Anyone????
Just carious..Thanks
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Diagnosis bc june,2006.
3months of taxol and herceptin, nupregin shots weekly. Now herceptin only, her2 positive. stage III. Left breast, mastectomy with reconstrutive surgery.
Herceptin until 10/06. Due to low echogram numbers had to stop Herceptin indefinetly.
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Old 12-19-2007, 02:14 PM   #2
tricia keegan
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Hi,I'm not sure about this but do remember my onc saying bc and ovarian cancer are very closely linked, I was discussing having an oophorectomy and as I'm highly triple pos he may just have meant because of the high hormones etc but did'nt question him further.
Sorry I can't help more.
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Dx July '05 IDC 1.9cm Triple positive 3/9 nodes positive
A/C X 4 ..Taxol/Herceptin x 12 wks then herceptin 1 yr
Rads x 36 ..oophorectomy August '06
Currently taking Arimidex..
June 2011 osteopenia/ zometa x1 yearly- stopped Zometa 2015 as Dexa show normal bone density.
Stopped Arimidex July 2014- Restarted Arimidex 2015 for a further two years on the advice of my Onc.
2014 Normal Dexa scan
2018 Mammo all clear, still NED!
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Old 12-19-2007, 06:43 PM   #3
PinkGirl
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just bumping this up for you Theresa
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Dx Aug/05 at age 51
2cm. Stage 2A, Grade 3
ER+/PR-
Her2 +++

Sept 7/05 Mastectomy
4 FAC, 4 Taxol, no radiation
1 year of Herceptin
Tamoxifen for approx. 4 months,
Arimidex for 5 years
Prophylactic mastectomy June 22/09



" I yam what I yam." - Popeye

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Old 12-19-2007, 09:16 PM   #4
Becky
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The 2 cancers are linked but the link is more familial (BRCA1 or 2 especially). The chance of ovarian cancer is rare regardless. However, it might be on your mind more if a family member had it. For example, my paternal grandmother died of ovarian cancer so it was definitely on my mind and was considered when I had my oophorectomy.

Hormonal status of bc might not play as much a part in ovarian cancer. Ovarian though does depend on how many lifetime menstrual cycles a woman has (much the same as hormone positive bc). With ovarian, it is the amount of times a woman has ovulated so starting to menstruate late, early menopause, many pregnancies (and nursing the babies so you don't menstruate), taking the birth control pill (of which you don't menstruate) all help. That is because the ovary must heal the wound that occurs when ovulation occurs and that wound healing (and rebuilding) can make cellular mistakes which cancer can occur. The less ovulations, the less chance for an error to occur. For ER+ bc, the more ovulations, the more high peak estrogen episodes the breasts are exposed to.

If you have any other questions, ask.
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Found lump via BSE
Diagnosed 8/04 at age 45
1.9cm tumor, ER+PR-, Her2 3+(rt side)
2 micromets to sentinel node
Stage 2A
left 3mm DCIS - low grade ER+PR+Her2 neg
lumpectomies 9/7/04
4DD AC followed by 4 DD taxol
Used Leukine instead of Neulasta
35 rads on right side only
4/05 started Tamoxifen
Started Herceptin 4 months after last Taxol due to
trial results and 2005 ASCO meeting & recommendations
Oophorectomy 8/05
Started Arimidex 9/05
Finished Herceptin (16 months) 9/06
Arimidex Only
Prolia every 6 months for osteopenia

NED 18 years!

Said Christopher Robin to Pooh: "You must remember this: You're braver than you believe and stronger than you seem and smarter than you think"
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Old 12-20-2007, 11:53 AM   #5
theresaw
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Question

Ok, so if I started my period when I was 11 and never missed except when preg w/my children and going thru chemo, I probably don't have to be to concerned with getting ovarian cancer. Is that what you are saying..
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Diagnosis bc june,2006.
3months of taxol and herceptin, nupregin shots weekly. Now herceptin only, her2 positive. stage III. Left breast, mastectomy with reconstrutive surgery.
Herceptin until 10/06. Due to low echogram numbers had to stop Herceptin indefinetly.
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Old 12-21-2007, 08:40 PM   #6
Andrea Barnett Budin
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Just to let you know,THERESA -- I COVER ALL BASES. I go ev 6 mnths for a transvaginal pelvic sonogram to hear that my ovaries are beautiful. Even at my age, they can still be visualized by a good, probing Radiologist. I have to go to NY for this test as in Fla techs perform the procedure and aren't as aggessive. They claim they can't see my ovaries. You have to dig, unfortunately. A Gyn signs off on the readings here.

This leaves me feeling I have not had a thorough exam. I have no symptoms of ovarian (ie extremely bloated belly that requires draining of fluid in the hosp) but I derive comfort from this assurance. I do have sharp pain in my lower right abdomen often. So I have reason to check, for the insur co. It could be scar tissue from my tram flap reconstruction sugery.

IF I had typical symptoms of ovarian, I would insist upon a CA125 (which is abld test/tumor marker), which I know has many false positives, but that would be something I would want w/symptoms and/or something suspicious in my sono. The normal range is 0 - 35. If you are in the 100s, you have a problem. This test may not be covered by insur, yet is akin to men's PSA for prostate ca, which is covered. $75 at a GPs office, $125 at a GYNs office. Many feel it should be required as an annual mammog, an annual PAP and HPV for all women. Some well-knowns are lobbying for this for us as I type...

So, this is my method of *dealing* w/that thought you are having, which I can reate to. In my head, a hormonally driven bc is akin to a hormonally driven ovarian ca. I was ER/PR borderline to begin w/ in '95. I am now ER/PR-. I find this regular preventative procedure comforting. There is no greater compliment than -- Your ovaries look beautiful! Just IMHO...

Even if you had your ovaries removed -- you can have ovarian ca! This is astonishing but true. IBS (Irritable Bowel Syndrome can be dx when in fact it is far more serious.) I have IBS, so I exhibit typical *symptoms* of ovarian regularly. I believe in TAKING CHARGE of my health care. Knowledge arms us and empowers us. I am very proactive, as a 4th stager I must be. I do not believe I am over-reacting, but want to stay on top of all possiblities.

Be well, my friends...
Andi
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'95 post-meno dx Invasive LOBULAR w/9cm tumor! YIKES + 2/21 nodes. Clear mammo 10 mnths earlier. Mastec/tram flap reconst/PORT/8 mnths chemo (4Adria/8CMF). Borderline ER/PR. Tamoxifen 2 yrs. Felt BLESSED. I could walk and talk, feed and bathe myself! I KNEW I would survive...

'98 -- multiple mets to liver. HER2+ 80%. ER/PR- Raging, highly aggressive tumors spreading fast. New PORT. 9 mnths Taxotere Fought fire w/fire! Pronounced in cautious remission 5/99. Taxotere weekly for 6 wks, 2 wks off -- for 9 mnths. TALK ABOUT GRUELING! (I believe they've altered that protocol since those days -- sure hope so!!)
+ good old Vit H wkly for 1st 3 yrs, then triple dosage ev 3 wks for 7 yrs more... The "easy" chemo, right?! Not a walk in the park, but not a freight train coming at 'ya either...

Added Herceptin Nov '98 (6 wks after FDA fast-tracked it for met bc). Stayed w/Vit H till July '08! Now I AM FREE! Humbly and eternally grateful for this life-saving drug! NED since '99 and planning on keeping it that way. To hell w/poor prognosis and nasty stats! STOPPED VIT H JULY '08...! REMAIN STABLE... Eternally grateful...Yes is a world & in this world of yes live (skillfully curled) all worlds ... (e e cummings) EVERY DAY I BEAT MY PREVIOUS RECORD FOR # OF CONSECUTIVE DAYS I'VE STAYED ALIVE. Smile KNOWING you too can be a miracle. Up to me and God now...
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