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06-05-2007, 12:32 PM
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#1
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Senior Member
Join Date: Jun 2007
Location: RHODE ISLAND
(Ed getting me a latte on 2nd Cancerversary Cruise 2008)
'BELIEVE': To accept as true or real, To have faith in, To presume
ALWAYS BELIEVE
Posts: 2,999
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A Poem For Our Sandy H
My Green Shoes
When I look down at my feet and I see my Green Shoes,
I shall not cry, I will push away the blues.
For the one thing you taught me was how to stay strong,
To get ready for the fight because it may be long.
I look at my sick husband and what do I see?
An Angel is inside and her name is Sandy!
I thank you for the wisdom, the support and the love,
And I know you are smiling down from above.
Because my Green Shoes are on and they remind me of you,
So with that in mind, now how can I be blue?
Waiting For A Miracle>Believe51
Husband dx 9/06 w/stage IV Inflammatory HER2+ Breast Cancer
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06-05-2007, 01:33 PM
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#2
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Senior Member
Join Date: Nov 2004
Location: Streetsboro, Ohio
Posts: 365
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What a wonderfull tribute to our Friend, Sandy. Although we miss Her dearly, She will remain in our hearts until the day She meets us at the pearly gates.
Love and Blessings to all. Lu Ann
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06-05-2007, 05:19 PM
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#3
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Senior Member
Join Date: Jul 2006
Location: Shingle Springs, CA - near Sacramento
Posts: 295
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Love the poem!
Donna
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06-05-2007, 09:39 PM
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#4
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Senior Member
Join Date: Oct 2005
Location: New Jersey
Posts: 3,154
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Thank you for that beautiful poem in honor of Sandy.
Jean
__________________
Stage 1, Grade 1, 3/30/05
Lumpectomy 4/15/05 - 6MM IDC
Node Neg. (Sentinel node)
ER+ 90% / PR-, Her2+++ by FISH
Ki-67 40%
Arimidex 5/05
Radiation 32 trt, 5/30/05
Oncotype DX test 4/17/06, 31% high risk
TOPO 11 neg. 4/06
Stopped Arimidex 5/06
TCH 5/06, 6 treatments
Herceptin 5/06 - for 1 yr.
9/06 Completed chemo
Started Femara Sept. 2006
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06-06-2007, 12:27 AM
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#5
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Senior Member
Join Date: Nov 2004
Location: Misty woods of WA State
Posts: 4,128
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How inspiring!
We have such a many talented bunch here! What comes out in some of these posts never ceases to amaze me.
If you don't mind, I would like to print this out and fax it to Sandy's hubby. He is more comfortable with the fax then the computer and will have a copy that way.
I know he would be so appreciative that someone that never met his Sandy would take the time and thoughtful concentration to do such a thing.
__________________
"When I hear music, I fear no danger. I am invulnerable. I see no foe. I am related to the earliest times, and to the latest." H.D. Thoreau
Live in the moment.
MY STORY SO FAR ~~~~
Found suspicious lump 9/2000
Lumpectomy, then node dissection and port placement
Stage IIB, 8 pos nodes of 18, Grade 3, ER & PR -
Adriamycin 12 weekly, taxotere 4 rounds
36 rads - very little burning
3 mos after rads liver full of tumors, Stage IV Jan 2002, one spot on sternum
Weekly Taxol, Navelbine, Herceptin for 27 rounds to NED!
2003 & 2004 no active disease - 3 weekly Herceptin + Zometa
Jan 2005 two mets to brain - Gamma Knife on Jan 18
All clear until treated cerebellum spot showing activity on Jan 2006 brain MRI & brain PET
Brain surgery on Feb 9, 2006 - no cancer, 100% radiation necrosis - tumor was still dying
Continue as NED while on Herceptin & quarterly Zometa
Fall-2006 - off Zometa - watching one small brain spot (scar?)
2007 - spot/scar in brain stable - finished anticoagulation therapy for clot along my port-a-catheter - 3 angioplasties to unblock vena cava
2008 - Brain and body still NED! Port removed and scans in Dec.
Dec 2008 - stop Herceptin - Vaccine Trial at U of W begun in Oct. of 2011
STILL NED everywhere in Feb 2014 - on wing & prayer
7/14 - Started twice yearly Zometa for my bones
Jan. 2015 checkup still shows NED
2015 Neuropathy in feet - otherwise all OK - still NED.
Same news for 2016 and all of 2017.
Nov of 2017 - had small skin cancer removed from my face. Will have Zometa end of Jan. 2018.
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06-06-2007, 05:42 AM
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#6
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Senior Member
Join Date: Jun 2007
Location: RHODE ISLAND
(Ed getting me a latte on 2nd Cancerversary Cruise 2008)
'BELIEVE': To accept as true or real, To have faith in, To presume
ALWAYS BELIEVE
Posts: 2,999
|
Hello Steph
I would be honored if her husband would get this poem. You know, I have been crying and praying for the family so much that I thought the poem was just average, not my best writings. I need him and his family to know how my husband and I have felt for this most amazing person, but I had such writers block. I wish for him to know that it is my husband who has stage IV Inflammatory HER2+ Breast Cancer and that Sandy was an integrital part of the person I am today. She has helped us unselfishly putting her illness aside to be able to give us what we needed. Shucks, we did not even know what we needed!! I do feel I am a more informed person and she along with the other girls here have helped to mold me to a seasoned caregiver. I am ready for the fight I need to do on my part, I shall certainly guide my husband towards recovery the best way I know how. Sandy taught me to learn, to ask, to give back...she let me know that by doing all of that, you need to accept what comes. To this very moment I feel that I am doing all I can, when our time comes for our goodbyes, I shall not regret a thing. Blessings will always come from my husband and myself for the family of this Special Angel. I wish to send my sympathies to all of us here @ Her2support, although we have lost an Angel here, she shall be "Looking down at us, smiling and dancing with her Little Green Shoes". >Waiting For A Miracle> Believe51..(Marie G)
Husband dx @ 50 yrs w/Stage IV Inflammatory HER2+ Breast Cancer.
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06-07-2007, 10:36 PM
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#7
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Senior Member
Join Date: Nov 2004
Location: Misty woods of WA State
Posts: 4,128
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Hello Believe -
Finally got the Fax number today and sent it off. Sandy's hubby seemed flabbergasted when I told him why I wanted the fax number. He was really in awe about this.
Said he had gotten into her email and there were scads of messages and many from Sandy's well-wishers here at HER2support.
ALso said he had at least 30 cards in their mailbox today, some with donations to this site per Sandy's wishes.
Sandy certainly is NOT forgotten! Are you listening up there, Angel?
__________________
"When I hear music, I fear no danger. I am invulnerable. I see no foe. I am related to the earliest times, and to the latest." H.D. Thoreau
Live in the moment.
MY STORY SO FAR ~~~~
Found suspicious lump 9/2000
Lumpectomy, then node dissection and port placement
Stage IIB, 8 pos nodes of 18, Grade 3, ER & PR -
Adriamycin 12 weekly, taxotere 4 rounds
36 rads - very little burning
3 mos after rads liver full of tumors, Stage IV Jan 2002, one spot on sternum
Weekly Taxol, Navelbine, Herceptin for 27 rounds to NED!
2003 & 2004 no active disease - 3 weekly Herceptin + Zometa
Jan 2005 two mets to brain - Gamma Knife on Jan 18
All clear until treated cerebellum spot showing activity on Jan 2006 brain MRI & brain PET
Brain surgery on Feb 9, 2006 - no cancer, 100% radiation necrosis - tumor was still dying
Continue as NED while on Herceptin & quarterly Zometa
Fall-2006 - off Zometa - watching one small brain spot (scar?)
2007 - spot/scar in brain stable - finished anticoagulation therapy for clot along my port-a-catheter - 3 angioplasties to unblock vena cava
2008 - Brain and body still NED! Port removed and scans in Dec.
Dec 2008 - stop Herceptin - Vaccine Trial at U of W begun in Oct. of 2011
STILL NED everywhere in Feb 2014 - on wing & prayer
7/14 - Started twice yearly Zometa for my bones
Jan. 2015 checkup still shows NED
2015 Neuropathy in feet - otherwise all OK - still NED.
Same news for 2016 and all of 2017.
Nov of 2017 - had small skin cancer removed from my face. Will have Zometa end of Jan. 2018.
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06-08-2007, 04:55 AM
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#8
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Senior Member
Join Date: Jun 2007
Location: RHODE ISLAND
(Ed getting me a latte on 2nd Cancerversary Cruise 2008)
'BELIEVE': To accept as true or real, To have faith in, To presume
ALWAYS BELIEVE
Posts: 2,999
|
Thanks a Million
Thanks for updating me because it is things like this that help me to go on and be able to help him fight. The family we have found here is nothing I could have ever even fathomed!! My life always has only been at its peak when I am helping or giving back, surely it is what I must be here for. I never thought I would be in this situation, nor that I could help anyone in it. My little Hubby has said to me quite recently that I am stuck with a lemon, my quick reply was I had just been told on this site that I am an asset to my husband's recovery and that I am a person who makes lemonade. I am sorry to say that I lost a wonderful poem myself during the website hijacking. My beautiful friend sent me a poem on making Lemonade. I am so sorry that we all have to meet during these circumstances, but we are so blessed we can come here. I pray for everyone, but as for Joe and Christine, well....they get some very different blessings from us. I do want to say that hubby and I am due at the doctor's today to discuss where we will be going with this and things are looking rough for him. Do not worry my friend, I have my GREEN SHOES on and that does bring to me comfort.>>Waiting For A Miracle>>Believe51..(Marie G)
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03-04-2008, 10:56 AM
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#9
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Senior Member
Join Date: Jun 2007
Location: RHODE ISLAND
(Ed getting me a latte on 2nd Cancerversary Cruise 2008)
'BELIEVE': To accept as true or real, To have faith in, To presume
ALWAYS BELIEVE
Posts: 2,999
|
Wanted to pull this up....
Have my green shoes on today and we are off to get another muga scan. I think of our Angels quite frequently and wanted to pull this up for anyone who may have missed it.
I am amazed at how far we have come in this journey. Where we ALL are today. It has been a rough road for us, but look at us all now!!
Love to you all>>Believe51
__________________
9/7/06Husband 50yrs=StageIV IBC/HER2+,BoneMets10/06TaxotereX10,'H'1X wk,Zometa,Tamoxifen4/12/07Last Tax5/18/07Pet=Rapid Cell Activity,No Organ Mets,Lytic Lesions,Degeneration,Some Bone Repair5/07ChemoFail6/01/07Pleural Thoracentisis=Effusions,NoMalignantCells6/19/07+7/2/07DFCI
6/25/07BrainMRI=BrainMets,Many<9mm7/10/07WBR/PelvisRad37.5Gx15&Nutritionist8/19/07T/X9/20/07BrainMRI=2<2mm10/6/07Pet=BoneProgression
10/24/07ChemoFail11/9/07A/Cx10,EndTam12/7/07Faslodex12/10/07Muga7512/13/07BlasticLesions1/7/08BrainMRI=Clear4/1/08Pet=BoneImprovement,
NoProgression,Stable4/7/08BrainPerfect5/16/08Last A/C8/26/08BrainMets=10(<9mm)9/10/08Gamma10/30/08Met=5mm12/19/08Gamma5mets5
12/22/08SpinalMets1/14/09SpinalRads2/17/09BrainMRI=NoNewMets4/20/09BoneScan5/14/09Ixempra6/1/09BrainMRI=NumerousMets6/24/09DFCIw/DrBurstein6/26/09Continue
Ixempra/Faslodex/Zometa~TM now lower7/17/09Stop Ixempra By Choice9/21/09HOSPICE10/16/09Earned His Deserved Wings And Halo=37 Month Fight w/Stage 4 IBC, Her2+++,My Hero!!
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03-04-2008, 05:52 PM
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#10
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Senior Member
Join Date: Nov 2007
Location: Connecticut
Posts: 2,077
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What a wonderful poem, and visual images, Marie. I love it, Bill
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