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11-11-2008, 04:56 PM
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#1
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Senior Member
Join Date: Aug 2006
Location: Sheboygan, WI
Posts: 2,582
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A much needed group hug...........
Hello sisters and brothers....
I felt the need to start a thread as a way for each of us to hug one another (in a cyber kind of way). It's been a rough year. Our her2support family has grieved many, many times this year. TOO many times.
We all love those who have passed on and we here who are left are saddened by what this disease can do. Not only does it sadden us but it scares us. Everyone of us.
I hope you can "feel" my hugs to each of you....."feel" my "crying" heart and the sadness I carry tonight. We need to continue to be strong as we fight this disease but we also need to remember that "controling" this disease isn't anything we can do. Our loved ones who have passed on fought their hearts out to live but sadly their life was not meant to continue. They are now living in Glory.........with no more suffering....no more pain...........! They will be our angels of light to help us carry on until that day each of us are called Home.
Let us stay strong.......let us have peaceful hearts and let us have hearts that reach out in love everyday to all those in our lives. Life is short BUT it is sweet...........
I love you guys SINCERELY and my heart is hurting.
Feel my hugs to you as I feel yours to me.
Mary Jo
__________________
"Be still and know that I am God." Psalm 46:10
Dx. 6/24/05 age 45 Right Breast IDC ER/PR. Neg., - Her2+++ RB Mast. - 7/28/05 - 4 cm. tumor Margins clear - 1 microscopic cell 1 sent. node No Vasucular Invasion 4 DD A/C - 4 DD Taxol & Herceptin 1 full year of Herceptin received every 3 weeks 28 rads prophylactic Mast. 3/2/06
17 Years NED
<>< Romans 8:28
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11-11-2008, 06:00 PM
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#2
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Senior Member
Join Date: Oct 2006
Location: Louisville KY
Naples FL
Posts: 665
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I'm in on the hug. I am feeling very sad right now.
I miss a few days on the internet and then I open
the site and go, OH NO,. This has been a very sad
year and all the wonderful people we have lost to
this disease. God bless all of us and we must go on
and enjoy life and find a cure!!!!
__________________
patb
Diagnosed June, 06, Stage I, Grade3, ER+PR- Her2positive, No Nodes. A/C X 4. Radiation 33 with boost, Herceptin every two weeks until Nov.
07, Arimedex for 5 years. Mugas and Echo and chest xRay. Bone scan of whole Body, and Back of Brain and spine MRI.
CT scan of Lungs every six months
due to two small places. December
2009, bone scan due to bone pain.
Follow up test in 2010.
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11-11-2008, 06:14 PM
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#3
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Senior Member
Join Date: Jul 2007
Location: Northern California
Posts: 764
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Thanks for the hugs. My heart is hurting also.
__________________
DX 02/01/07
2.5 cm, Er/Pr-, Her2+++
18/20 Nodes
03/07 CT & Bone scan - Clear
AC x 4, Taxol x 4, Added Herceptin
Radiation until 09/07
Herceptin every 3 weeks until 06/08
01/10/08 local recurrence -IBC
01/28/08 CT & Brain MRI - clear
02/08 - Navelbine & Herceptin
05/08 -MRM
05/08 - Gemzar & Herceptin - didn't work
09/08 - Hyperthermia rads
03/09 - Tykerb/Xeloda
05/10 - Tram flap to fix wound
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11-11-2008, 06:25 PM
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#4
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Senior Member
Join Date: Jul 2006
Posts: 869
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Hugs to all my sisters and brothers on this board. My heart aches for those we have lost...too many and too often these days. May God Bless, Ceesun
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11-11-2008, 06:59 PM
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#5
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Senior Member
Join Date: Jun 2006
Location: San Antonio, TX
Posts: 2,357
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Hugs and love to all! I get so sad when heaven claims another angel. and it scares me too! But it also makes me more determined to fight on for me and for the warriors who have earned their wings. I have to remind myself to think of all the warriors who are out there living to the hilt and defying all the odds. Luv to each and every one! ma p.s. thanks MJ
__________________
MA in TX.
Grateful for each and every day....
Diag. 12/05 at age 60
Stage II, Grade 3, 4.5 cm primary tumor
ER/PR- Her2 +3 strongly positive
Her2 by FISH 7.7 amplified
vascular invasion
Ki67 20% borderline
Jan - March '06 Taxotere/Adriamycin X 3 to try to shrink tumor - it grew
April '06 Rt Modified Radical Mas, 7 of 9 nodes positive
April - Aug. '06 Herceptin/Taxol/Carboplatin X 8 (dose dense)
Sept - Dec. '06 Navelbine/Herceptin x 8 (dose dense)
Radiation & Herceptin Jan. 22 - March 1, 2007
Finished Herceptin Dec. 10 '08! One extra year.
Port removed August, 2012.
8 1/2 years since diagnosis! 5 1/2 Years NED!
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11-11-2008, 07:18 PM
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#6
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Senior Member
Join Date: Aug 2003
Location: Morris, IL
Posts: 3,507
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Great idea MaryJo...and something we can all use right now...as my little Jazzie would say...GROUP HUG!!!!!
__________________
"Be kinder than necessary, for everyone you meet is fighting some kind of battle."
Hugs & Blessings
Sheila
Diagnosed at age 49.99999 2/21/2002 via Mammography (Calcifications)
Core Biopsy 2/22/02
L. Mastectomy 2/25/2002
Stage 1, 0.7cm IDC, Node Neg from 19 nodes Her2+++ ER PR Neg
6/2003 Reconstruction W/ Tissue Expander, Silicone Implant
9/2003 Stage IV with Mets to Supraclavicular nodes
9/2003 Began Herceptin every 3 weeks
3/2006 Xeloda 2500mg/Herceptin for recurrence to neck nodes
3/2007 Added back the Xeloda with Herceptin for continued mets to nodes
5/2007 Taken Off Xeloda, no longer working
6/14/07 Taxol/Herceptin/Avastin
3/26 - 5/28/08 Taxol Holiday Whopeeeeeeeee
5/29 2008 Back on Taxol w Herceptin q 2 weeks
4/2009 Progression on Taxol & Paralyzed L Vocal Cord from Nodes Pressing on Nerve
5/2009 Begin Rx with Navelbine/Herceptin
11/09 Progression on Navelbine
Fought for and started Tykerb/Herceptin...nodes are melting!!!!!
2/2010 Back to Avastin/Herceptin
5/2010 Switched to Metronomic Chemo with Herceptin...Cytoxan and Methotrexate
Pericardial Window Surgery to Drain Pericardial Effusion
7/2010 Back to walking a mile a day...YEAH!!!!
9/2010 Nodes are back with a vengence in neck
Qualified for TDM-1 EAP
10/6/10 Begin my miracle drug, TDM-1
Mixed response, shrinking internal nodes, progression skin mets after 3 treatments
12/6/10 Started Halaven (Eribulen) /Herceptin excellent results in 2 treatments
2/2011 I CELEBRATE my 9 YEAR MARK!!!!!!!!!!!!!
7/5/11 begin Gemzar /Herceptin for node progression
2/8/2012 Gemzar stopped, Continue Herceptin
2/20/2012 Begin Tomo Radiation to Neck Nodes
2/21/2012 I CELEBRATE 10 YEARS
5/12/2012 BeganTaxotere/ Herceptin is my next miracle for new node progression
6/28/12 Stopped Taxotere due to pregression, Started Perjeta/Herceptin
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11-11-2008, 07:25 PM
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#7
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Senior Member
Join Date: Jul 2008
Location: New Boston, NH
Posts: 275
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Ditto on the Hugs. It makes me so sad to see how much this disease takes away from the ones we love.
__________________
-Sarah-
Jan '07 felt lump (PCP "thought" it was a cyst)
Nov '07 "bloody nipple discharge" (OB-GYN "thought" I had fibrocystic breasts and told me to take 400 IU's of Vitamin E)
Note: Mother was dx w/BC in 2004 (ER/PR+ & HER2+) & mets to brain April 2007 (she passed away June 17, 2008)
2/1/08: Biopsy Dx: DCIS (age 34)
2/22/08: Surgery R-side Mast
2/28/08: 1st Path Rpt Dx: IDC 1.8cm tumor & DCIS 2.1cm
2nd Path Rep DFCI - IDC (0.9cm) & DCIS (2.1cm)
Stage 1b/Gr 3; ER+(5%), PR+(2%), HER-2+++
5/5 nodes NEG; Clear Margins
Chemo: AC 4 rnds (1st one 3/31/08) finished 6/2/08
TH (Taxol/Hercepin) 12 weeks (1st one 6/25/08) finished 9/8/08
Herceptin 9 mos (every 3 weeks) finished 6/8/09
BRCA 1/2 NEG
Bio: Age 39, married to James 1999, 2 boys 12 & 10 yo
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11-11-2008, 08:05 PM
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#8
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Senior Member
Join Date: Dec 2007
Location: Avilla, Indiana
Posts: 261
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Thanks Mary Jo, We DO need a big group hug. At times this forum is difficult to visit with so much loss and frustration.
I was able to meet 15 BC friends at a function a few weeks ago (three of us were Her2 +++) and the hugs/friendship were terrific. We need to keep lifting each other up and mourn the losses together no matter how painful through our posts.
__________________
-Dana-
]
Diagnosed - Nov. 2, 2007 at 45
Lumpectomy - Nov. 13, 2007
Tumor 1.2 cm
Stage 1 Grade 3
ER/PR - Her2 +++ (3.8)
Taxotere/Carboplatin/Herceptin- 6 rounds
Neulasta
Radiation 33 treatments - will be done 6/6/08
Herceptin through 12/08
12/07 MUGA 61%, 4/08 MUGA 60%, 7/08 MUGA 64%
three wonderful daughters, a terrific husband,
Life is Good
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11-11-2008, 08:29 PM
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#9
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Senior Member
Join Date: Oct 2005
Posts: 823
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Ditto and ditto on the hugs. It has been such a sad year for us here on the group.
__________________
Vicki
Texas
Biopsy Dx'd 3-23-05 Age 48
MRM 4-5-05 w/ 2 tumor's 5cm, and 6 cm (right side)
IDC (poorly differentiated infiltrating ductual carcinoma)
5+/16 nodes
Stage III A
Grade 3
ER/PR-, Her2/neu ++
Ki67 78%
Begin Chemo 5-2-05 4XAC Dose Dense , 4X Abraxane Dose Dense (ended August 05)
28 Rad's ended October 13 2005
Started Herceptin Weekly August 2005 for one year
Had a Simple mastectomy left side after Mamo showed incresed micro-calcifications. Jan. 17 2006.
Brain MRI Feb.2006--All Clear
August 28, 2006 Last Weekly Herceptin.
October 2006--Colonoscopy, 6 Polyp's removed--all B9
PET Scan July 2007
Abdominal MRI Oct. 2007---2 Right Kidney Cysts
Core Biopsy-- Lump on Scar Line 1-10-08---B9
Brain MRI 6-2008--All Clear
PET/CT Scan 6-2008
Sept. 8 2008, 4CM area removed from mastectomy scar line. Proved to be B9.
PET/CT Scan-- July 2009 --All clear
August 17,2009 ---Had Port Removed
6 Years NED -- April 5,2011
DX'd with Melanoma left arm 10-10-2011
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11-11-2008, 10:12 PM
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#10
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Senior Member
Join Date: Sep 2006
Location: Marengo, IL
Posts: 518
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My heart is aching for Lily (her family) and all others who have fought this battle and are smiling down on us right now. Hold tight dear friends and feel the comfort in hugs only we can understand. I will miss you dear Lily. Prayers are with you Micheal.
Donna
__________________
Donna
Crystal Lake, IL
Diagnosed 8/4/06 at age 54
Lumpectomy 8/30/06
Stage llA, grade 3, ER/PR-, Her2++
1.7 cm tumor, 1+ lymph node out of 9
Completed 4 A/C, & 4 Taxol with Herceptin
36 rads completed 5/16/07
Mammograms, 7/07 clear
fractured ribs in radiated area 10/07
Finished Herceptin 12/27/07
Mammogram,CT,tumor markers 1/08 - small lung nodules in radiated area, repeated tests 3/08 stable
Mammogram,CT ,tumor markers 6/08 stable
NED 2 years!!
3 years !!!
4years!!!!
4 years, 10 months and 8 day NED, calling it 5 years!!!
Official 5 years 8/30/2011
8/31/ 2012 - 6 years!!!!!!
Last edited by DonnaD; 11-11-2008 at 10:14 PM..
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11-11-2008, 10:44 PM
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#11
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Senior Member
Join Date: Feb 2007
Location: Cordoba, Mexico
Posts: 672
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Dear sisters,
I join you all in this warm ciber hug. We all need each other and I am happy to have you. Love you all,
Paty
__________________
Dx. June 30th, 2006 at age 43
Lumpectomy rt breast
2.2 cm tumor, 13 nodes all negative
ER-PR+,her2+++
6 FAC
32 Rads
Dx. Lung fibrosis due to radiation
Ended 1 year herceptin in March, 2008
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11-12-2008, 05:15 AM
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#12
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Senior Member
Join Date: Feb 2008
Location: Georgia
Posts: 1,486
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This post has helped to create a good start for my day. I have been really sad lately. Thanks for the hugs and I send each of you a hug and my love.
Amelia
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11-12-2008, 06:06 AM
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#13
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Senior Member
Join Date: Dec 2005
Location: virginia
Posts: 99
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Cyber Hugs
Think that this thread was a GREAT idea. Cyber Hugs...right hand on left shoulder....left hand on right shoulder.....now SQUEEZE !! We need each other and support each other. To all b/c sisters, brothers and supporters of us.....HUGS ! And Prayers...many, strong prayers!!
Bonnie
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11-12-2008, 06:19 AM
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#14
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Senior Member
Join Date: Sep 2005
Posts: 589
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You go Marejo! Big hugs all around and I want to echo Donna's thoughts to Michael. My heart hurts when I think about Lily not being here. My love to all, Eric
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11-12-2008, 07:45 AM
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#15
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Senior Member
Join Date: Dec 2005
Location: Walnut Creek, CA
Posts: 438
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Thanks Marejo. Love and hugs to everyone.
Karen
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11-12-2008, 08:39 AM
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#16
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Senior Member
Join Date: Sep 2005
Location: france
Posts: 1,648
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Great idea Mary Jo,
count me in on a really BIG hug. I can feel your hugs and I feel better. I too feel incredible sad each time we lose a member of our cherished family or read that one is in great pain.
I don't know what I would do if you weren't all there, I know it would be a sadder and harder road.
BIG HUG and love
sarah
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11-12-2008, 09:26 AM
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#17
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Senior Member
Join Date: Sep 2008
Location: Eugene, Oregon
Posts: 347
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Hugs.
I'm in on that hug. My husband is, too. He says he doesn't understand why we're spending so much time and money and lives in Iraq when we could be saving people like Lily. Looking forward to that increase in funding for cancer research our new president is planning. At least we have each other to help keep ourselves strong. Thank you all.
Celeste
__________________
"Dancers Against Cancer" in the Eugene, OR Komen Race for the Cure 2010
Diagnosed 8/7/08 with stage 3 invasive ductal carcinoma, micropapillary pattern, Her2 3+, ER+,PR-, grade II, positive lymph nodes.
Received 6doses of Taxotere, Carboplatin with Herceptin continuing for a year...DONE.
1/28/09 Left Modified Radical Mastectomy, Right Simple Mastectomy.
Surgery pathology: No invasive carcinoma present and 17 lymph nodes removed all negative! Only small amount of carcinoma in situ in left breast.
March/April '09, Radiation to left chest wall.
Currently involved in Neratinib clinical trial.
"Well being I won
and wisdom too,
I grew and joyed in my growth;
from a word to a word
I was led to a word
from a deed to another deed." (Odin)
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11-12-2008, 10:44 AM
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#18
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Senior Member
Join Date: Jun 2007
Location: RHODE ISLAND
(Ed getting me a latte on 2nd Cancerversary Cruise 2008)
'BELIEVE': To accept as true or real, To have faith in, To presume
ALWAYS BELIEVE
Posts: 2,999
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Thank Goodness For My friends Here..
Uuuuhhh!!! Gynormous hug to you all and a giant thanks for this thread Marejo, we all need this. We have suffered incredible losses this year, along with reoccurrences of members and other devastating circumstances.
I am in need of hugs today and always. I too, am scared. Today we go to OncoMan to continue conquering this brain met saga. As much as I try to worry about things right in front of Ed and I, I am scared to death with what is happening right now.
I am French so I will be kissing both sides of all your checks before your take-your-breath away hugs. For today I will skip the lip balm, is that a deal??
Thanks again for this thread Marejo and all our family who needs these hugs too. I feel loved, protected and a little less scared knowing all of you are right behind us no matter what.
Wish us luck 'cause here we go again!! Uuuuhhh, just another hug before I go. We are all in this together.>>Believe51
__________________
9/7/06Husband 50yrs=StageIV IBC/HER2+,BoneMets10/06TaxotereX10,'H'1X wk,Zometa,Tamoxifen4/12/07Last Tax5/18/07Pet=Rapid Cell Activity,No Organ Mets,Lytic Lesions,Degeneration,Some Bone Repair5/07ChemoFail6/01/07Pleural Thoracentisis=Effusions,NoMalignantCells6/19/07+7/2/07DFCI
6/25/07BrainMRI=BrainMets,Many<9mm7/10/07WBR/PelvisRad37.5Gx15&Nutritionist8/19/07T/X9/20/07BrainMRI=2<2mm10/6/07Pet=BoneProgression
10/24/07ChemoFail11/9/07A/Cx10,EndTam12/7/07Faslodex12/10/07Muga7512/13/07BlasticLesions1/7/08BrainMRI=Clear4/1/08Pet=BoneImprovement,
NoProgression,Stable4/7/08BrainPerfect5/16/08Last A/C8/26/08BrainMets=10(<9mm)9/10/08Gamma10/30/08Met=5mm12/19/08Gamma5mets5
12/22/08SpinalMets1/14/09SpinalRads2/17/09BrainMRI=NoNewMets4/20/09BoneScan5/14/09Ixempra6/1/09BrainMRI=NumerousMets6/24/09DFCIw/DrBurstein6/26/09Continue
Ixempra/Faslodex/Zometa~TM now lower7/17/09Stop Ixempra By Choice9/21/09HOSPICE10/16/09Earned His Deserved Wings And Halo=37 Month Fight w/Stage 4 IBC, Her2+++,My Hero!!
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11-12-2008, 10:53 AM
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#19
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Senior Member
Join Date: Nov 2005
Location: Ireland
Posts: 3,463
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Room for one more???
Great idea Marejo, it's been a sad year and we've lost so many close friends to this disease. It becomes hard to keep a proper perspective on it at times and I reckon a group hug and good wishes are what we all could use right now!  
__________________
Tricia
Dx July '05 IDC 1.9cm Triple positive 3/9 nodes positive
A/C X 4 ..Taxol/Herceptin x 12 wks then herceptin 1 yr
Rads x 36 ..oophorectomy August '06
Currently taking Arimidex..
June 2011 osteopenia/ zometa x1 yearly- stopped Zometa 2015 as Dexa show normal bone density.
Stopped Arimidex July 2014- Restarted Arimidex 2015 for a further two years on the advice of my Onc.
2014 Normal Dexa scan
2018 Mammo all clear, still NED!
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11-12-2008, 03:49 PM
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#20
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Senior Member
Join Date: Dec 2005
Location: indianapolis, indiana
Posts: 1,544
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my arms are outstretched too! thank you for such beautiful posts.
__________________
dxd 9-04, lumpectomy,
st 1, gr 3, er,pr-, her2 +,
2 tac,33 rads,6 cmf
1 yr herceptin,
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