almost 14 years NED breast cancer and apparently it's back in my lungs

[Cathya]

Apparently my stage 1 ovarian cancer is ok but my breast cancer has come back. What a mess. I hadn't been followed by a bc onc as mine retired a few years ago and I had been NED for long enough for them to feel safe in letting me go. When I was diagnosed with ovarian cancer I went to his office to see him but needed another referral as he was retired. Being seen by these other onc's I let it go. They proceeded to watch for ovarian cancer but really not pay any attention to the breast cancer as they are "specialized". Finally I saw an old school onc who insisted that I was brca1 positive and referred me back to genetic's for testing (haven't heard a word from them and it takes about a year up here) and also a chest CT to be thorough. Here are the results:

There are multiple nodular densities studding the pleural
surface of the left lung and arising from the diaphragmatic surfaces . There is
involvement of the mediastinal pleural surface. One of the largest lesions is
in the left upper lung against the lateral chest wall (series 4 image #35).
This lesion measures 2.5 cm in length. There is a mediastinal pleural lesion as
well (image #78) measuring 2.5 cm in length. There is tumor studding the
surface of the major fissure. There is no significant pleural effusion.

Apparently ovarian spread is different and usually shows first in the abdomen which is clear in my previous CT done a month or so ago. I am waiting for a confirmation lung biopsy.

NED for so many years!! We are never safe I guess. I sure hope there's treatment. I'm trying to stay optimistic as I know so many here who have lived long lives as stage 4's.

Take care, Cathy