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Old 02-01-2011, 10:11 AM   #1
Delaney
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gemzar anyone?
Am starting gemzar very soon. Also Zometa for bone strength. Still staying on tyverb/herceptin. Hip shows some cancer, getting mri and ct of brain and thorax soon. Was expecting as much so not surprised. Does gemzar cause hair loss? just have mine back, will I lose it for the third time? if anyone has any info on side effects I would appreciate it. Am glad to be coming off xeloda, it stopped working and my hands and feet could do with a break.
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Delaney, dx 2008 lumpectomy,mastectomy,a/c,paxitaxol, tyverb 1 yr.
dx 2010 mets lymph nodes, skin, lung. start taxotere/herceptin.
Stopped taxtere/herceptin, now on tyverb/xeloda.
Lung mets shrinking.
Back on Herceptin with T/X. Partial response.
Skin mets progressing. Radiation scheduled mid february 2011.
Spot found on hip - radiation to hip beginning mid February 2011.
Now trying Gemzar/Tyverb/Herceptin and Zometa.
CT scan Feb 2011 - lung clear!
Brain mets (specks) - radiation mid Feb.
Brain Scan June'11 - Clear
CT Scan June'11 - Good - skin met active - watch and wait.
Surgery to remove skin met. Surgery to back 2012, four titanium rods inserted. Skin mets reappear. On Navelbine, not working. 4 week washout, start Myocet for skin and lung mets August 2012. Brain scan clear despte intermittent blurry vision (something hiding? Am suspicious but hopeful. )On we go, glad to be here.
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Old 02-01-2011, 11:15 AM   #2
ElaineM
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Wink Re: gemzar anyone?
You might find this helpful.
http://her2support.org/her2-breast-c...o-drugs/gemzar
Take good care of yourself and good luck with the Gemzar. Let us know how you are doing.
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Old 02-02-2011, 12:00 AM   #3
Trish
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Re: gemzar anyone?
Sorry to hear about your hip, Delaney but I have multiple bone mets and they are not causing me any trouble, possibly thanks to Zometa which I have been having since 2007. I was on Gemcitabine but only briefly while the onc was running through all the possible combinations of chemo and Herceptin before starting Tykerb (mad I know but at that time in Australia if you were given Tykerb the government refused to fund Herceptin and they still won't fund the two together.) I had already lost my hair by then thanks to Taxol but from what Elaine posted it looks like your hard won hair will hang in there! I certainly hope so. I am currently "enjoying" my fourth bout of baldness (Abraxane) and would dearly love to be hirsute again soon! Good luck with the treatment and do look after your hair as it seems you will have it for a good while yet.
Trish
__________________
5/2004 (R) 30mm bre gr3 infiltrating ductal ca 16/18nodes er (2+) pr (3+) HER2 (3+)
6/2004 6 cycles(FEC), Oct 40 rads, Tamoxifen
5/2006 oopherectomy, Arimedex
12/2006 liver mets largest 9cm
1/2007 Herceptin,
3/2007 Taxol + Herc
1/2008 Herc alone
4/2008 Multiple bone mets,Zometa
7/2008 Herc + Gemcitabine
8/2008 Herc+Navelbine/vinoralbine
10/2008 Herc+Carboplatin+Taxol
12/2008 Tykerb+Xeloda
2/2010 Herceptin + trial drug
5/2010 Herceptin+Tykerb
8/2010 Tykerb+Abraxane
9/2010 Abraxane
12/2010 Abraxane+Tyk+Herc
4/2011 Tyk+Herc+Femara
6/2011 Liver and bone mets prog.Abraxane continue Herceptin,Tykerb,Femara and Zometa
8/2011 Probable liver progression and increased neuropathy. Xeloda with Tyk+Herc. Zometa 6 weekly.
9/2011 Liver progression,TM +++. Cyclophosphamide and Methotrexate metro Herc Zometa
10/2011 liver mets prog.Herc, 3 Tykerb +2mg decodron daily,Zometa
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Old 02-02-2011, 03:34 AM   #4
Delaney
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Posts: 271
Re: gemzar anyone?
Thanks Trish and Elaine, that article was interesting, seems 10% of people may lose their hair with gemzar. Hopefully i wont fall into that category.
__________________
Delaney, dx 2008 lumpectomy,mastectomy,a/c,paxitaxol, tyverb 1 yr.
dx 2010 mets lymph nodes, skin, lung. start taxotere/herceptin.
Stopped taxtere/herceptin, now on tyverb/xeloda.
Lung mets shrinking.
Back on Herceptin with T/X. Partial response.
Skin mets progressing. Radiation scheduled mid february 2011.
Spot found on hip - radiation to hip beginning mid February 2011.
Now trying Gemzar/Tyverb/Herceptin and Zometa.
CT scan Feb 2011 - lung clear!
Brain mets (specks) - radiation mid Feb.
Brain Scan June'11 - Clear
CT Scan June'11 - Good - skin met active - watch and wait.
Surgery to remove skin met. Surgery to back 2012, four titanium rods inserted. Skin mets reappear. On Navelbine, not working. 4 week washout, start Myocet for skin and lung mets August 2012. Brain scan clear despte intermittent blurry vision (something hiding? Am suspicious but hopeful. )On we go, glad to be here.
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Old 02-02-2011, 04:59 PM   #5
Trish
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Re: gemzar anyone?
I refuse to believe you will be in the 10%!
Trish
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