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Old 08-27-2009, 05:10 PM   #1
Leslie304
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Xeloda red hot feet!

Hi folks, I'm on my second round of Xeloda/Tykerb/Herceptin. My feet are killing me! I got the 'walking on hot coals' at the end of the first three weeks, on 2nd round of three weeks and I can barely walk! I've been using a good moisterizer and socks at night to keep them soft but still it's been excruciating to walk at all the past two days. Any ideas??? I read somewhere that a henna poultice takes the heat away but I can't find that post now. Any info??? Thanks to anyone who sees this and can help!
Leslie
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2009
3-15 Age 48 -found lump
Dx 4/15/09: IBC Stage III w/extensive lymph node involvement HER2+++
5/1/09: Adria/Cytoxan for x 3-no response
6/12/09: Taxol/Herceptin for 1 tx -no response
6/24/09: added Carboplatin to T/H x 3 - no response
7/09 -added F5U -no response
7/29/09: Herceptin/Xeloda/Tykerb no response
8-18-09: 2nd opinion at MDA - IDC not IBC! First Onc disagrees,
BRCA 1/2 Neg
8-19-09: continue on Herceptin/Xeloda/Tykerb-slight response
9-24-09 MRM right breast 10x10 cm tumor! (Huge!) no necrosis - Got clear margins! A miracle!
13 of 18 nodes positive
11-2-09 -12/10 started radiation
12-10-2009 - Finished with radiation!!
2010
1/13/2010-Back on Xeloda x six cycles (have been on Tykerb/Herceptin all along)
4/4/14 - stopped Xeloda/Tykerb one cycle early. Liver enzymes high!
4/20/2010 Clear PET Scan!! NED
6/10/2010 - Finished Herceptin11/8 - Brain METS! CRAP! WBRT only option given. Four mets, separate locations in brain, no SRS
12/10 - Herceptin/Tykerb/Xeloda
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Old 08-27-2009, 05:36 PM   #2
Sheila
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Re: Xeloda red hot feet!

Leslie
As a former Xeloda user (almost 2 years) i was very familiar with the walking on coals feeling. I was very careful to avoid hot water as it dilates the capillaries on the feet and lets more of the drug into the tissues causing more irritation.. I wore flip flops...like all the time, winter in Illinois and all...it was the only thing I could stand...you could try neurontin ( a prescription drug) as it helps with neuropathy....Hope your feet feel better!!!!
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Hugs & Blessings
Sheila
Diagnosed at age 49.99999 2/21/2002 via Mammography (Calcifications)
Core Biopsy 2/22/02
L. Mastectomy 2/25/2002
Stage 1, 0.7cm IDC, Node Neg from 19 nodes Her2+++ ER PR Neg
6/2003 Reconstruction W/ Tissue Expander, Silicone Implant
9/2003 Stage IV with Mets to Supraclavicular nodes
9/2003 Began Herceptin every 3 weeks
3/2006 Xeloda 2500mg/Herceptin for recurrence to neck nodes
3/2007 Added back the Xeloda with Herceptin for continued mets to nodes
5/2007 Taken Off Xeloda, no longer working
6/14/07 Taxol/Herceptin/Avastin
3/26 - 5/28/08 Taxol Holiday Whopeeeeeeeee
5/29 2008 Back on Taxol w Herceptin q 2 weeks
4/2009 Progression on Taxol & Paralyzed L Vocal Cord from Nodes Pressing on Nerve
5/2009 Begin Rx with Navelbine/Herceptin
11/09 Progression on Navelbine
Fought for and started Tykerb/Herceptin...nodes are melting!!!!!
2/2010 Back to Avastin/Herceptin
5/2010 Switched to Metronomic Chemo with Herceptin...Cytoxan and Methotrexate
Pericardial Window Surgery to Drain Pericardial Effusion
7/2010 Back to walking a mile a day...YEAH!!!!
9/2010 Nodes are back with a vengence in neck
Qualified for TDM-1 EAP
10/6/10 Begin my miracle drug, TDM-1
Mixed response, shrinking internal nodes, progression skin mets after 3 treatments
12/6/10 Started Halaven (Eribulen) /Herceptin excellent results in 2 treatments
2/2011 I CELEBRATE my 9 YEAR MARK!!!!!!!!!!!!!
7/5/11 begin Gemzar /Herceptin for node progression
2/8/2012 Gemzar stopped, Continue Herceptin
2/20/2012 Begin Tomo Radiation to Neck Nodes
2/21/2012 I CELEBRATE 10 YEARS
5/12/2012 BeganTaxotere/ Herceptin is my next miracle for new node progression
6/28/12 Stopped Taxotere due to pregression, Started Perjeta/Herceptin
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Old 08-27-2009, 06:54 PM   #3
BarbM
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Re: Xeloda red hot feet!

Leslie,
Check out the thread 4 or 5 below this one about "Tykerb and Xeloda, side effects"....I have had good luck with henna.
I am also using Bag Balm at night with socks....and take 300 mg B6/day.
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Dx 5/1/07 (age 47), Left IDC
ER less than 5% +, PR -, HER+ FISH 5.4
Lumpectomy 5/07, Quadrantectomy 6/07
AC 7/07 -10/07, Liver mets dx 9/07 (liver bx)
Taxotere/Herceptin 10/07 -12/07
Herceptin only 1/08 - 7/08
Mastectomy 3/08, RADS 4/08 - 5/08
Brain MRI 5/08 clear
Gemzar/Herceptin 7/08-9/08
Lymphedema 8/08
RADS/Hyperthermia 10/08-11/08
Abraxane/Herceptin 12/08-3/09
Doxil/Herceptin 3/09 to 5/09
Xeloda/Tykerb 6/09-10/09
Navelbine/Xeloda/Tykerb 10/09-12/09
Tykerb/Herceptin 1/11/10
Tykerb/Herceptin/Ixempra 2/1/10
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Old 08-28-2009, 09:40 AM   #4
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Re: Xeloda red hot feet!

Hi Barb,
Does the henna make your feet turn green/black?
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Old 08-28-2009, 01:35 PM   #5
BarbM
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Re: Xeloda red hot feet!

Henna leaves my feet kinda orangish-brown...and fades pretty fast. Sometimes I soak my feet in a bath with baking soda and epsom salts. That gets rid of the color from the henna and makes my feet feel great, too. I love to put Curel Targeted Therapy deep penetrating foot cream on after the soak....even better!!! My feet have never been taken better care of than now!!!
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Dx 5/1/07 (age 47), Left IDC
ER less than 5% +, PR -, HER+ FISH 5.4
Lumpectomy 5/07, Quadrantectomy 6/07
AC 7/07 -10/07, Liver mets dx 9/07 (liver bx)
Taxotere/Herceptin 10/07 -12/07
Herceptin only 1/08 - 7/08
Mastectomy 3/08, RADS 4/08 - 5/08
Brain MRI 5/08 clear
Gemzar/Herceptin 7/08-9/08
Lymphedema 8/08
RADS/Hyperthermia 10/08-11/08
Abraxane/Herceptin 12/08-3/09
Doxil/Herceptin 3/09 to 5/09
Xeloda/Tykerb 6/09-10/09
Navelbine/Xeloda/Tykerb 10/09-12/09
Tykerb/Herceptin 1/11/10
Tykerb/Herceptin/Ixempra 2/1/10
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Old 09-10-2009, 04:14 AM   #6
Karen Wheel
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Re: Xeloda red hot feet!

Leslie - are you better? Is the Henna working?
Karen
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Facebook id: Karen Wheel
2-09 – Age 44 -Biopsy-Cancer
3-09 – Right Quadrantectomy. Clear margins.
3 lymph nodes taken - all clear
Tumor results: Stage 1, 1.5 cm, Her2 +++
Est positive 80% - Prog 10% - Ki67 postive 30%
4-09 – Became a vegan! pH balance of body - cancer can't grow in neutral pH!
4-09 Started Herceptin & Chemo (9 weeks of Navelbine *)
* FYI - when coupled with Herceptin has the same results as more toxic chemo. No brainer!
8-09 - 30 RADS
9-09 - Said NO to hormone therapy
4-10 Finished Herceptin!!!!


7-10 PET Scan & other exams .... All clear! YIPPEE!!!!
11-10 Breast, organ Ultrasounds and lung x-rays all clear no changes ... NED!

2-25-2011 --- 2 years from surgery and NED!!!!!!
7-2011 Clear bone scan and full body and head MRI! NED! NED! NED! ;-)[/SIZE]
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Old 12-01-2009, 03:47 AM   #7
charlotte
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Re: Xeloda red hot feet!

I also am having side effects from xeloda/tykerb, I have slighty red feet and hands.. the worst part of this is my hands.. they peel, some fingernail damage, fingers are stiff hard to bend etc. I have some cracks on my feet (also on my hands very painful)... when I go to bed at night, it looks funny.. I have slathered my feet with vasoline, put on socks and also my hands have gloves on. It helps some what, but still some pain left.. Hope you get some relief soon. Charlotte
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Old 06-30-2010, 03:56 PM   #8
Liaidarutrica
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Xeloda red hot feet

I Luv the Red Hot Chili Peppers The Rock They sing Rock and Alternative
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Old 11-30-2010, 05:39 PM   #9
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Re: Xeloda red hot feet!

Try Vitamin K cream. It is an over the counter cream that acts like Henna without staining the skin. The pain has to do with micro fractures of the arteries and veins (from what I can tell) and Vitamin K is called that because it was involves with clotting. The henna with lemon juice works well if you heat it up and then let it sit for 24 hours. Then heat back up o put on the feet. Try both and figure which one works best for you.
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Old 12-15-2010, 06:59 AM   #10
pibikay
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Re: Xeloda red hot feet!

My wife's palms have turned dark and she has a hot sendation in her palms
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huband of Hema
Metstatic Breast Cancer Stage 4
Left breast cauliflower 25x20cm
ossousmetstatis in vertbrae secondaries L4=L5secondary
nodules in both liver lobes secondary
Diagnosed 10th March 2010
ER/PR-ve
Her 2 neu +++
Taxotrne Zylotec started 16th March
Herceptin added 5th April.9th Herceptin over on 20th Sep '10.Started on Tykerb and Xeloda on 22nd Oct2010TYKERB 4 TAB A DAY XELODA 4 TAB A DAY ONE WEEK ON ONE WEEK OFFZoletrust infusion every 4 months.Lesion in Brain 3D CRT Radiation started on 1st Feb'12 for 20 days ,5 days a week for 4 weeks.Devloped a small lump in breast.Xeloda stopped from 11th April '12.On Taxol.After 3 cycles of Taxol Taxol stopped.Back to Xeloda regime from 3rd July
Herceptin started again on 27th Dec 2012.Xeloda stopped Navelbin added on 7th February 2013.Now on Tykerb Herceptin and Navelbin
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