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Old 03-31-2009, 12:19 AM   #1
Jackie07
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Selected songs for Jackie's surgery on Tuesday (today) 11 am

Hi, I've been busy visiting with my old friends and families these past couple of days. Just posted this song list on my college choir alumni's online group. The ones you don't recognize are in Mandarin Chinese. I thought I would share it with y'all and request for your prayers during my surgery at 11 am Tuesday.


[The conductor of my Freshman year just e-mailed me suggesting to add the song of Psalm 23 - His Mother sang it to him when he was sick while a young boy. It's also Amelia's pick.]



Jackie’s Favorite songs [for her 5th major surgery ] March 31, 2009 (revised April 1)


(Feel free to edit since I am just writing it off the top of my head with my own translations sometimes)


1) Little baby, fall asleep fast
Xiao baobei kuai tien shuei giao, birds are all back to their nest. In the garden and the field, the bees no longer making noise. Only the silver moonlight quietly shines into the window – Shines on the baby dreaming of the fairy island. Little baby, fall asleep. s-l-e-e-p, s-l-e-e-p.
[REM sleep – Per Diana Ip’s e-mail instructionJ]

2) Beautiful Dreamer, wake unto me….[Judy Tung called to remind me of getting enough sleep.]

3) For Elise [Tuesday is one of the two garbage pick-up days, the other day is Friday (no, it is not played in Central Texas ]

4) Feng Yang Hwa Ku [Jack and I most likely are going to gripe at each other some under stress; and I do wear size 9 shoes J]

5) Kust Mail Cart(?) [Believe it or not, I had directed it while a freshman at 2nd Girls High (1974) in an intramural competition: …Running forward, running forward, the nonstop hoofbeats… and my fellow classmates were 'running' out of my control – I was too young (14) to pull them back][Oh, yah, I put it here because Jack and I are always late and have to rush. J]

6) Wo Hsien tsai yiao chu cheng [(I’m onward to the battlefield) – we are marching [rushing] inside of the hospital, acting ‘brave’ while in fact we are ‘lost’ at the newly expanded Hospital www.sw.org]

7) Love [The True Essence of love] – Our former music minister, Theiss Jones, who had just passed away last month at 71, sang it in our wedding (both in Chinese and part English of his own translation based on my description – he was learning Mandarin around the time before his trip to China.) He was the Student Conductor while at Baylor University. He’s a wonderful baritone, and was forever patient during choir practice – He was active in the Bapitst Music Ministers choir, ‘The Century Men’, and had served as its Chairman for a couple of years.

8) O Let The Son Of God Enfold You by John Wimber, based on Revelation 19:4 and John 10:10-16
[I love to play this one because it is an easy and beautiful Spirit Song (whatever that means) My
Chinese Church members thought I was an OK pianist partly because of this song.]

9) May the Road Rise to Meet You, May the wind be always at your back. The sun shine warm upon your face, the rain fall softly upon your field – and until we meet again, may God hold you in the palm of His hand. May the Lord bless you and keep you, may the Lord lift His face and shine upon you, and give you peace. [This is when I am going under anesthesia – I am seeing the sunshine…]

10) I saw the light [an old, popular Gospel] I saw the light I saw the light no more darkness no more night Now I'm so happy no sorrow in sight praise the Lord I saw the light J

11) Are you sleeping? Are you sleeping? Brother John (The Chinese version: “Two tigers, two tigers, Running fast, running fast. One without its ears, one without its tail, so strange, so strange.”) [The anesthesiologist and the nurses making sure that I am ‘out’]

12)The Lord Bless you and Keep you [Boss (Lao Ban – Huang Hao-hsin)’s order J) [I’ll be covered In the love of my friends and families and under God’s power – knowing He is faithful.]

Thank you for your prayers. As Gen. Douglous McArthur had said upon leaving the Philippines: "I shall return" - >

Encores:

Psalm 23rd
On Eagles' wings http://my.homewithgod.com/heavenlymi...aglewings.html (Thanks to AbbyDawg's pick - it's so pretty...)
God be with you till we meet again
__________________
Jackie07
http://www.kevinmd.com/blog/2011/06/doctors-letter-patient-newly-diagnosed-cancer.html
http://www.asco.org/ASCOv2/MultiMedi...=114&trackID=2

NICU 4.4 LB
Erythema Nodosum 85
Life-long Central Neurocytoma 4x5x6.5 cm 23 hrs 62090 semi-coma 10 d PT OT ST 30 d
3 Infertility tmts 99 > 3 u. fibroids > Pills
CN 3 GKRS 52301
IDC 1.2 cm Her2 +++ ER 5% R. Lmptmy SLNB+1 71703 6 FEC 33 R Tamoxifen
Recc IIB 2.5 cm Bi-L Mast 61407 2/9 nds PET
6 TCH Cellulitis - Lymphedema - compression sleeve & glove
H w x 4 MUGA 51 D, J 49 M
Diastasis recti
Tamoxifen B. scan
Irrtbl bowel 1'09
Colonoscopy 313
BRCA1 V1247I
hptc hemangioma
Vertigo
GI - > yogurt
hysterectomy/oophorectomy 011410
Exemestane 25 mg tab 102912 ~ 101016 stopped due to r. hip/l.thigh pain after long walk
DEXA 1/13
1-2016 lesions in liver largest 9mm & 1.3 cm onco. says not cancer.
3-11 Appendectomy - visually O.K., a lot of puss. Final path result - not cancer.
Start Vitamin D3 and Calcium supplement (600mg x2)
10-10 Stopped Exemestane due to r. hip/l.thigh pain OKed by Onco 11-08-2016
7-23-2018 9 mm groundglass nodule within the right lower lobe with indolent behavior. Due to possible adenocarcinoma, Recommend annual surveilence.
7-10-2019 CT to check lung nodule.
1-10-2020 8mm stable nodule on R Lung, two 6mm new ones on L Lung, a possible lymph node involvement in inter fissule.
"I WANT TO BE AN OUTRAGEOUS OLD WOMAN WHO NEVER GETS CALLED AN OLD LADY. I WANT TO GET SHARP EDGED & EARTH COLORED, TILL I FADE AWAY FROM PURE JOY." Irene from Tampa

Advocacy is a passion .. not a pastime - Joe

Last edited by Jackie07; 04-11-2009 at 03:09 PM.. Reason: typos
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Old 03-31-2009, 01:12 AM   #2
AbbyDawg
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Dear Jackie!

Love your thread! We will be praying for you and humming along today!

Another fitting song is, "On Eagles' Wings" by Michael Joncas

http://my.homewithgod.com/heavenlymi...aglewings.html

AbbyDawg
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Old 03-31-2009, 04:38 AM   #3
schoolteacher
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Jackie,

I will be praying for you too. I will say a special pray around 11 a.m. I think I would like the song Psalm 23.

Amelia
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Old 03-31-2009, 05:05 AM   #4
Joan M
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Jackie,

I'll be praying (and singing) for you at 11:00 this morning.

Joan
__________________
Diagnosed stage 2b in July 2003 (2.3 cm, HER2+, ER-/PR-, 7+ nodes). Treated with mastectomy (with immediate DIEP flap reconstruction), AC + T/Herceptin (off label). Cancer advanced to lung in Jan. 2007 (1 cm nodule). Started Herceptin every 3 weeks. Lung wedge resection April 2007. Cancer recurred in lung April 2008. RFA of lung in August 2008. 2nd annual brain MRI in Oct. 2008 discovered 2.6 cm cystic tumor in left frontal lobe. Craniotomy Oct. 2008 (ER-/PR-/HER2-) followed by targeted radiation (IMRT). Coughing up blood Feb. 2009. Thoractomy July 2009 to cut out fungal ball of common soil fungus (aspergillus) that grew in the RFA cavity (most likely inhaled while gardening). No cancer, only fungus. Removal of tiny melanoma from upper left arm, plus sentinel lymph node biopsy in Feb. 2016. Guardant Health liquid biopsy in Feb. 2016 showed mutations in 4 subtypes of TP53. Repeat of Guardant Health biopsy in Jana. 2021 showed 3 TP53 mutations, BRCA1 mutation and CHEK2 mutation. Invitae genetic testing showed negative for all of these. Living with MBC since 2007. Stopped Herceptin Hylecta (injection) treatment in March 2020. Recent 2021 annual CT of chest, abdomen and pelvis and annual brain MRI showed NED. Praying for NED forever!!
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Old 03-31-2009, 08:06 AM   #5
Believe51
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Continued Prayers For My Sweet Jackie. Stay well Warrior>>Believe51
__________________
9/7/06Husband 50yrs=StageIV IBC/HER2+,BoneMets10/06TaxotereX10,'H'1X wk,Zometa,Tamoxifen4/12/07Last Tax5/18/07Pet=Rapid Cell Activity,No Organ Mets,Lytic Lesions,Degeneration,Some Bone Repair5/07ChemoFail6/01/07Pleural Thoracentisis=Effusions,NoMalignantCells6/19/07+7/2/07DFCI
6/25/07BrainMRI=BrainMets,Many<9mm7/10/07WBR/PelvisRad37.5Gx15&Nutritionist8/19/07T/X9/20/07BrainMRI=2<2mm10/6/07Pet=BoneProgression
10/24/07ChemoFail11/9/07A/Cx10,EndTam12/7/07Faslodex12/10/07Muga7512/13/07BlasticLesions1/7/08BrainMRI=Clear4/1/08Pet=BoneImprovement,
NoProgression,Stable4/7/08BrainPerfect5/16/08Last A/C8/26/08BrainMets=10(<9mm)9/10/08Gamma10/30/08Met=5mm12/19/08Gamma5mets5
12/22/08SpinalMets1/14/09SpinalRads2/17/09BrainMRI=NoNewMets4/20/09BoneScan5/14/09Ixempra6/1/09BrainMRI=NumerousMets6/24/09DFCIw/DrBurstein6/26/09Continue
Ixempra/Faslodex/Zometa~TM now lower7/17/09Stop Ixempra By Choice9/21/09HOSPICE10/16/09Earned His Deserved Wings And Halo=37 Month Fight w/Stage 4 IBC, Her2+++,My Hero!!
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Old 03-31-2009, 08:24 AM   #6
Shobha
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Dear Jackie, I will be praying for you and wishing you speedy recovery. God bless!
__________________
DX: 06-30-2007 - left breast -stage IIIB, Her2/Neu 3+++, ER weakly positive, PR-
Taxol+herceptin weekly for 3 months
FEC+herceptin every 3 weeks for 3 months
BRCA 1 and 2 - Negative
Jan 2008 - Bilateral mastectomy, prophylactic Rt. side.
Radiation for 5 weeks
Completed my yr of herceptin on 07-14-2008
Brain MRI - 3/2/09 Clean
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Old 03-31-2009, 01:09 PM   #7
tricia keegan
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Jackie, you'll be in my thoughts...good luck today and I hope you have a quick recovery.
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Tricia
Dx July '05 IDC 1.9cm Triple positive 3/9 nodes positive
A/C X 4 ..Taxol/Herceptin x 12 wks then herceptin 1 yr
Rads x 36 ..oophorectomy August '06
Currently taking Arimidex..
June 2011 osteopenia/ zometa x1 yearly- stopped Zometa 2015 as Dexa show normal bone density.
Stopped Arimidex July 2014- Restarted Arimidex 2015 for a further two years on the advice of my Onc.
2014 Normal Dexa scan
2018 Mammo all clear, still NED!
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Old 04-01-2009, 03:12 AM   #8
Jackie07
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Thank you all so much. I will add the Psalm 23 to the list and introduce 'On Eagles' Wings' to my alumni when I revise the list next couple of days (Anyone else has other good songs - hurry up Here's the report I just posted on the board for my alumni:

Hi,

Just woke up in my own bed at home. Had to call 'Time & Temperature' to get myself oriented. Everywhere I look, there's warning about an April Fool's Day virus attack. But I thought I'd better get the 'good news' out.

The surgeon took a piece of tissue sample from each of the two 'lumps' in question. She told Jack that from her 'naked eye' assessment, they looked like scar tissues. One finding that had surprised her: a 'clip' that had been left in the previous surgical site was found in the underarm spot. She stated that she had never seen one that had pushed up the tissue so much to make it look and feel like a 'growing' lump.

[No, the clip was not left by 'accident'. I had a 'clip' in the original lumpectomy site in 2003 to help medical professionals locate the exact spot for radiation and
diagnostic purposes. But the so-called 'scar tissue' on the mammograms was never further investigated, so my recurrence was not found until 2007 when it was over 2+ cm. with two lymph nodes involvement - and that's how I had learned (a hard lesson) not to completely trust doctor's words. One of our 'physician alumni' had e-mailed me that 'since doctors can only check us
periodically' , greater efforts have to be made with our own diligence. He's not surprised I was the one that had found the lumps. But he was upset by my doctor's lack of professional attitude. Especially with my medical history, 'anything abnormal needs to be handled in a serious manner'. ]

So now we are waiting for the pathology report (in two days) in a very optimistic mood.

Several alumni shared about the cancer journeys of either their own or their loved ones. Having been a cancer fighter for almost 20 years, I feel the medical advancement has given patients great hopes and indeed 'cancer' has become more like a 'chronic illness' issue.

I'd like to take this opportunity to thank everyone for showing me his/her concerns. I hope this episode of mine can at least bring attention to breast cancer (or any other cancer or illness.) And that is for 'everyone', not any particular age group or health status.

Words can not express my gratitude to this wonderful 'family' that had first adopted me in 1978. Thank you.

*****************************
And words can not express my gratitude to 'this' family of my fellow Her-2 fighters...
__________________
Jackie07
http://www.kevinmd.com/blog/2011/06/doctors-letter-patient-newly-diagnosed-cancer.html
http://www.asco.org/ASCOv2/MultiMedi...=114&trackID=2

NICU 4.4 LB
Erythema Nodosum 85
Life-long Central Neurocytoma 4x5x6.5 cm 23 hrs 62090 semi-coma 10 d PT OT ST 30 d
3 Infertility tmts 99 > 3 u. fibroids > Pills
CN 3 GKRS 52301
IDC 1.2 cm Her2 +++ ER 5% R. Lmptmy SLNB+1 71703 6 FEC 33 R Tamoxifen
Recc IIB 2.5 cm Bi-L Mast 61407 2/9 nds PET
6 TCH Cellulitis - Lymphedema - compression sleeve & glove
H w x 4 MUGA 51 D, J 49 M
Diastasis recti
Tamoxifen B. scan
Irrtbl bowel 1'09
Colonoscopy 313
BRCA1 V1247I
hptc hemangioma
Vertigo
GI - > yogurt
hysterectomy/oophorectomy 011410
Exemestane 25 mg tab 102912 ~ 101016 stopped due to r. hip/l.thigh pain after long walk
DEXA 1/13
1-2016 lesions in liver largest 9mm & 1.3 cm onco. says not cancer.
3-11 Appendectomy - visually O.K., a lot of puss. Final path result - not cancer.
Start Vitamin D3 and Calcium supplement (600mg x2)
10-10 Stopped Exemestane due to r. hip/l.thigh pain OKed by Onco 11-08-2016
7-23-2018 9 mm groundglass nodule within the right lower lobe with indolent behavior. Due to possible adenocarcinoma, Recommend annual surveilence.
7-10-2019 CT to check lung nodule.
1-10-2020 8mm stable nodule on R Lung, two 6mm new ones on L Lung, a possible lymph node involvement in inter fissule.
"I WANT TO BE AN OUTRAGEOUS OLD WOMAN WHO NEVER GETS CALLED AN OLD LADY. I WANT TO GET SHARP EDGED & EARTH COLORED, TILL I FADE AWAY FROM PURE JOY." Irene from Tampa

Advocacy is a passion .. not a pastime - Joe

Last edited by Jackie07; 04-05-2009 at 03:56 AM..
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Old 04-01-2009, 06:08 AM   #9
WomanofSteel
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I hope things went well with your surgery yesterday. Praying for a speedy recovery.
__________________
dx aug 03
invasive dcis 1 cm
er/pr/her2+
bcs 8/4/03
bcs 8/21/03 0/16 nodes
tx 4x ca 36 rad tam
postmenopausal 06 aromasin
sept 07 biopsy node in neck
muga/pet/cat/bone mets to lungs nodes and liver stage iv
tx hki-272
tx not working switched to taxol herceptin
Taxol not working switched to navelbine
navelbine is causing bad neuropathy
starting gemzar
gemzar quit on me now on Ixempra due to increasing number and size of liver mets
another progression starting tykerb/xeloda
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Old 04-01-2009, 10:51 AM   #10
StephN
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Wink

Thanks for taking the time to write to us.

I am thinking this is going to be an "all's well that ends well" story for you. Positive, beautiful songs fill the atmosphere!

All of our lumps and bumps need checking and you know from painful experience not to let these things ride.

Would you believe it has been snowing all morning here! Wish there was a "surgery" for this!
__________________
"When I hear music, I fear no danger. I am invulnerable. I see no foe. I am related to the earliest times, and to the latest." H.D. Thoreau
Live in the moment.

MY STORY SO FAR ~~~~
Found suspicious lump 9/2000
Lumpectomy, then node dissection and port placement
Stage IIB, 8 pos nodes of 18, Grade 3, ER & PR -
Adriamycin 12 weekly, taxotere 4 rounds
36 rads - very little burning
3 mos after rads liver full of tumors, Stage IV Jan 2002, one spot on sternum
Weekly Taxol, Navelbine, Herceptin for 27 rounds to NED!
2003 & 2004 no active disease - 3 weekly Herceptin + Zometa
Jan 2005 two mets to brain - Gamma Knife on Jan 18
All clear until treated cerebellum spot showing activity on Jan 2006 brain MRI & brain PET
Brain surgery on Feb 9, 2006 - no cancer, 100% radiation necrosis - tumor was still dying
Continue as NED while on Herceptin & quarterly Zometa
Fall-2006 - off Zometa - watching one small brain spot (scar?)
2007 - spot/scar in brain stable - finished anticoagulation therapy for clot along my port-a-catheter - 3 angioplasties to unblock vena cava
2008 - Brain and body still NED! Port removed and scans in Dec.
Dec 2008 - stop Herceptin - Vaccine Trial at U of W begun in Oct. of 2011
STILL NED everywhere in Feb 2014 - on wing & prayer
7/14 - Started twice yearly Zometa for my bones
Jan. 2015 checkup still shows NED
2015 Neuropathy in feet - otherwise all OK - still NED.
Same news for 2016 and all of 2017.
Nov of 2017 - had small skin cancer removed from my face. Will have Zometa end of Jan. 2018.
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Old 04-01-2009, 09:46 PM   #11
Jackie07
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Thank you, Steph (and Womanofsteel).

It sounds so romantic about the 'snow' in your area. I love your Thoreau quote. Have you just changed it because the songlist? I've been playing 'On eagles wings' whenever I am on the computer...
__________________
Jackie07
http://www.kevinmd.com/blog/2011/06/doctors-letter-patient-newly-diagnosed-cancer.html
http://www.asco.org/ASCOv2/MultiMedi...=114&trackID=2

NICU 4.4 LB
Erythema Nodosum 85
Life-long Central Neurocytoma 4x5x6.5 cm 23 hrs 62090 semi-coma 10 d PT OT ST 30 d
3 Infertility tmts 99 > 3 u. fibroids > Pills
CN 3 GKRS 52301
IDC 1.2 cm Her2 +++ ER 5% R. Lmptmy SLNB+1 71703 6 FEC 33 R Tamoxifen
Recc IIB 2.5 cm Bi-L Mast 61407 2/9 nds PET
6 TCH Cellulitis - Lymphedema - compression sleeve & glove
H w x 4 MUGA 51 D, J 49 M
Diastasis recti
Tamoxifen B. scan
Irrtbl bowel 1'09
Colonoscopy 313
BRCA1 V1247I
hptc hemangioma
Vertigo
GI - > yogurt
hysterectomy/oophorectomy 011410
Exemestane 25 mg tab 102912 ~ 101016 stopped due to r. hip/l.thigh pain after long walk
DEXA 1/13
1-2016 lesions in liver largest 9mm & 1.3 cm onco. says not cancer.
3-11 Appendectomy - visually O.K., a lot of puss. Final path result - not cancer.
Start Vitamin D3 and Calcium supplement (600mg x2)
10-10 Stopped Exemestane due to r. hip/l.thigh pain OKed by Onco 11-08-2016
7-23-2018 9 mm groundglass nodule within the right lower lobe with indolent behavior. Due to possible adenocarcinoma, Recommend annual surveilence.
7-10-2019 CT to check lung nodule.
1-10-2020 8mm stable nodule on R Lung, two 6mm new ones on L Lung, a possible lymph node involvement in inter fissule.
"I WANT TO BE AN OUTRAGEOUS OLD WOMAN WHO NEVER GETS CALLED AN OLD LADY. I WANT TO GET SHARP EDGED & EARTH COLORED, TILL I FADE AWAY FROM PURE JOY." Irene from Tampa

Advocacy is a passion .. not a pastime - Joe

Last edited by Jackie07; 04-05-2009 at 03:52 AM..
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