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Old 07-09-2012, 06:09 PM   #1
fullofbeans
Senior Member
 
Join Date: Jan 2007
Location: UK
Posts: 617
Life is a celebration of that which we can do

'Life is a celebration of that which we can do, not a requiem for that which we can not do'


I just wanted to let you know that despite my face edema and the blood clot and risk involved (not medically insured) I did go to my friend's wedding in Turkey and I had a fabulous time. My face is still causing me pain when I look at it, but hey it is another experience I suppose.

Many time I have felt sad and TV marketing and facebook makes you feel as if you have little to hold on to comparatively to you peers.. it is easy to feel like a looser:no financial securities..no health.. no lover or perfect family and behaved children). My friends all seem to be going on to better and greater things and I feel that in all that time I have been surviving,

Instead one should always celebrate what it is he can do: I have survived almost 7 years with metastatic cancer and left no stone unturned, I have learned a lot, mostly about myself and I can still stand straightwith love and compassion in my heart. You all have amazed me on this board and show so much spirit, thank you for I was learning.
__________________

35 y/o
June 06: BC stage I
Grade 3; ER/PR neg
Her-2+++; lumpectomies

Aug 06: Stage IV
liver mets: 6 tumours
July 06 to Jan 07: 2*FEC+6*Taxotere; 3*TACE; LITT
March 07- Sept 07: Vaccination trial (phase 2, peptide based) at the UW (Seattle).
Herceptin since 2006
NED til Oct 09
Recurrence Oct 2009: to internal mammary gland since October 2009 missed on Oct and March 2010 scan.. palpable nodes in May 2010 when I realised..
Nov 2011:7 mets to lungs progressing fast failed hercp/tykerb/xeloda combo..

superior vena cava blocked: stent but face remains puffy

April 2012: Teresa Trial, randomised to TDM1
Nov 2012 progressing on TDM1
Dec 2012 blockage of my airways by tumours, obliteration of these blocking tumours breathing better but hoping for more- at mo too many tumours to count in the lungs and nodes.

Dec 2012 Starting new trial S-222611 phase 1b dual egfr her2+ inhibitor.



'Under no circumstances should you lose hope..' Dalai Lama

Last edited by fullofbeans; 07-09-2012 at 06:39 PM..
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