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Old 01-29-2011, 12:44 PM   #1
joyce lutz
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Posts: 84
What to do for face rash from Tykerb?

Hello everyone - I need your knowledge! What can my daughter do for the rash that has just appeared on her face from Tykerb? She's been on it for 19 days and it just appeared yesterday. What can she put on it? Your help as always is so appreciated. My best to you all
Joyce
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Old 01-29-2011, 02:18 PM   #2
Sheila
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Re: What to do for face rash from Tykerb?

Joyce
The good news is the rash indicates usually a good response to the drug. It also genrally goes away by itself. I found this thread and this is what I used, an oil face serum by SUKI...it cleared mine up in a couple days...hope this helps.
This was posted by BEJUCE in a thread about the rash:

I was on Tykerb for about 12 weeks and had a rash on my face at some point (week 2?3?). Mine felt and appeared like patches of sunburn. I tried several creams and lotions and the one that really worked for me was one that had been recommended on this board somewhere - it was actually an oil-type moisturizer made by a company named Suki. Their products are all natural and organic and can be found at Whole Foods, where I got mine.

I liked the oil so much that now I use a Suki product on my skin every night.
__________________
"Be kinder than necessary, for everyone you meet
is fighting some kind of battle."



Hugs & Blessings
Sheila
Diagnosed at age 49.99999 2/21/2002 via Mammography (Calcifications)
Core Biopsy 2/22/02
L. Mastectomy 2/25/2002
Stage 1, 0.7cm IDC, Node Neg from 19 nodes Her2+++ ER PR Neg
6/2003 Reconstruction W/ Tissue Expander, Silicone Implant
9/2003 Stage IV with Mets to Supraclavicular nodes
9/2003 Began Herceptin every 3 weeks
3/2006 Xeloda 2500mg/Herceptin for recurrence to neck nodes
3/2007 Added back the Xeloda with Herceptin for continued mets to nodes
5/2007 Taken Off Xeloda, no longer working
6/14/07 Taxol/Herceptin/Avastin
3/26 - 5/28/08 Taxol Holiday Whopeeeeeeeee
5/29 2008 Back on Taxol w Herceptin q 2 weeks
4/2009 Progression on Taxol & Paralyzed L Vocal Cord from Nodes Pressing on Nerve
5/2009 Begin Rx with Navelbine/Herceptin
11/09 Progression on Navelbine
Fought for and started Tykerb/Herceptin...nodes are melting!!!!!
2/2010 Back to Avastin/Herceptin
5/2010 Switched to Metronomic Chemo with Herceptin...Cytoxan and Methotrexate
Pericardial Window Surgery to Drain Pericardial Effusion
7/2010 Back to walking a mile a day...YEAH!!!!
9/2010 Nodes are back with a vengence in neck
Qualified for TDM-1 EAP
10/6/10 Begin my miracle drug, TDM-1
Mixed response, shrinking internal nodes, progression skin mets after 3 treatments
12/6/10 Started Halaven (Eribulen) /Herceptin excellent results in 2 treatments
2/2011 I CELEBRATE my 9 YEAR MARK!!!!!!!!!!!!!
7/5/11 begin Gemzar /Herceptin for node progression
2/8/2012 Gemzar stopped, Continue Herceptin
2/20/2012 Begin Tomo Radiation to Neck Nodes
2/21/2012 I CELEBRATE 10 YEARS
5/12/2012 BeganTaxotere/ Herceptin is my next miracle for new node progression
6/28/12 Stopped Taxotere due to pregression, Started Perjeta/Herceptin
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Old 01-29-2011, 02:25 PM   #3
joyce lutz
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Re: What to do for face rash from Tykerb?

Hi Shelia! Thanks for that info. I'm hoping others weigh in just in case this doesn't work, maybe something else will! My best to you as always
Joyce
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Old 01-29-2011, 08:55 PM   #4
KirisMum
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Posts: 186
Re: What to do for face rash from Tykerb?

Kiri had the rash, Joyce, on her face, scalp, neck and back. She used something her research nurse gave her. I'll ask what it was. But I'm so glad your daughter is finally on Tykerb! That's great news. :-)
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Old 01-29-2011, 09:08 PM   #5
joyce lutz
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Re: What to do for face rash from Tykerb?

OK great. Let me know and I hope Kiri is doing better! My best to you and her both
Joyce
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Old 01-30-2011, 07:54 AM   #6
Sheila
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Location: Morris, IL
Posts: 3,507
Re: What to do for face rash from Tykerb?

Joyce, hope this link to the discussion works.

http://her2support.org/vbulletin/sho...referrerid=186
__________________
"Be kinder than necessary, for everyone you meet
is fighting some kind of battle."



Hugs & Blessings
Sheila
Diagnosed at age 49.99999 2/21/2002 via Mammography (Calcifications)
Core Biopsy 2/22/02
L. Mastectomy 2/25/2002
Stage 1, 0.7cm IDC, Node Neg from 19 nodes Her2+++ ER PR Neg
6/2003 Reconstruction W/ Tissue Expander, Silicone Implant
9/2003 Stage IV with Mets to Supraclavicular nodes
9/2003 Began Herceptin every 3 weeks
3/2006 Xeloda 2500mg/Herceptin for recurrence to neck nodes
3/2007 Added back the Xeloda with Herceptin for continued mets to nodes
5/2007 Taken Off Xeloda, no longer working
6/14/07 Taxol/Herceptin/Avastin
3/26 - 5/28/08 Taxol Holiday Whopeeeeeeeee
5/29 2008 Back on Taxol w Herceptin q 2 weeks
4/2009 Progression on Taxol & Paralyzed L Vocal Cord from Nodes Pressing on Nerve
5/2009 Begin Rx with Navelbine/Herceptin
11/09 Progression on Navelbine
Fought for and started Tykerb/Herceptin...nodes are melting!!!!!
2/2010 Back to Avastin/Herceptin
5/2010 Switched to Metronomic Chemo with Herceptin...Cytoxan and Methotrexate
Pericardial Window Surgery to Drain Pericardial Effusion
7/2010 Back to walking a mile a day...YEAH!!!!
9/2010 Nodes are back with a vengence in neck
Qualified for TDM-1 EAP
10/6/10 Begin my miracle drug, TDM-1
Mixed response, shrinking internal nodes, progression skin mets after 3 treatments
12/6/10 Started Halaven (Eribulen) /Herceptin excellent results in 2 treatments
2/2011 I CELEBRATE my 9 YEAR MARK!!!!!!!!!!!!!
7/5/11 begin Gemzar /Herceptin for node progression
2/8/2012 Gemzar stopped, Continue Herceptin
2/20/2012 Begin Tomo Radiation to Neck Nodes
2/21/2012 I CELEBRATE 10 YEARS
5/12/2012 BeganTaxotere/ Herceptin is my next miracle for new node progression
6/28/12 Stopped Taxotere due to pregression, Started Perjeta/Herceptin
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Old 01-30-2011, 08:50 AM   #7
joyce lutz
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Join Date: Oct 2009
Posts: 84
Re: What to do for face rash from Tykerb?

Shelia - Thank you. It came up just fine. Looks like Clindamycin gel is the thing to use if it doesn't go away soon. My best to you
Joyce
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Old 01-31-2011, 01:55 PM   #8
KirisMum
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Posts: 186
Re: What to do for face rash from Tykerb?

Clindamycin is what K is using too, Joyce. On the positive side, I've heard that the rash is an indication the tykerb is working. Kiri's tumor shrank from 9 X 8 cm to 5 X 5 cm while she was on it. Keeping my fingers crossed for your daughter. XOXOX
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Old 01-31-2011, 02:00 PM   #9
joyce lutz
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Posts: 84
Re: What to do for face rash from Tykerb?

KirisMum - Thanks much. Is K on Tykerb and Xeloda both? Or what is she on at this time. My best to you both
Joyce
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Old 01-31-2011, 03:24 PM   #10
KirisMum
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Posts: 186
Re: What to do for face rash from Tykerb?

She's not on anything at the moment, Joyce. She was pulled off chemo and out of the trial when she had such a tough time with the pericarditis, gallbladder attack and then pancreatitis from the ERCP. They're going to schedule her mastectomy asap and then put her back on chemo afterwards.
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Old 01-31-2011, 04:56 PM   #11
joyce lutz
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Re: What to do for face rash from Tykerb?

Well I hope she recovers quickly and can get things going. If she's anything like my daughter, she's a fighter, and will do well. Here's wishing her all the best
Joyce
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