HonCode

Go Back   HER2 Support Group Forums > Keeping Your Mind Off of BC
Register Gallery FAQ Members List Calendar Search Today's Posts Mark Forums Read

Keeping Your Mind Off of BC Fun things and posts that do not apply to BC

Reply
 
Thread Tools Display Modes
Old 02-04-2009, 07:36 PM   #1
fauxgypsy
Senior Member
 
fauxgypsy's Avatar
 
Join Date: Apr 2007
Location: Mississippi
Posts: 600
Talking A sight to see.

After all my complaining today about missing a boob, I was cooking supper tonight, in some clothes that I had worn in my studio today. An oversized bright yellow t-shirt with paint all over it, a pair of pink jogging pants that I truly hate and am using to paint in. I am not a pink jogging suit person (my step-mother bought me these). I washed my hair this morning but did not style it and my wonderful chemo curls are almost gone. I did not have my boob on. My house is a mess, we are in the early stages of remodeling and I have stuff setting all over the living room. We live in rural area and I wasn't expecting to see anyone. There is a knock on the door. It is a real estate agent. A real estate agent looking for me, or rather my alter ego, the usually professional looking faux finisher. I had changed my phone number, undoubtedly she does not understand email (if she had my address, then she had a business card, it follows that there was an email address on it. I can't imagine any other way she could have gotten my address.) I was at the door brandishing a pair of tongs, she came in, the cat came in. One of her clients had added something to a house that I had done work at and they need me to make it look the same. So, I turned dinner off and took her down to my studio. Only to find out that she is a member of the same Artist Guild that I am in. We were at the same meeting two weeks ago. She kept saying that she didn't remember seeing me there. I wonder if it had anything to do with the fact that today I looked like a lopsided, demented easter egg. Anyway, it turned out okay, I guess, she loved my studio, and my work.
__________________
In the world of destiny, there are no statistics.
Jan. 26- mammogram and ultrasound- suspicious lump
Mid-February- lumpectomy, infiltrating ductal carcinoma ~4.5 cm and a 1 cm DCIS, did not get clear margins, did not check lymph nodes
ER+/PR+, her2 +++, nuclear grade 3 of 3
February 20-PET scan showed something on liver. No biopsy.
March- Started carboplatin, herceptin, taxol on a four week cycle
May 3- Pet scan, with intent to do a biopsy, found nothing, liver or breast- no biopsy because there is nothing to biopsy
June 21- new onc, very concerned that there had been no biopsy,
June 18th-CAT scan, bone scan-negative
August 7th - Brain MRI-negative
August 9th- mastectomy, all pathology negative
January 2008 still NED! New oncologist -herceptin for full year after chemo- until July, and tamoxifen---negative scans since May '07
July 2008-Finished Herceptin!
fauxgypsy is offline   Reply With Quote
Old 02-04-2009, 10:15 PM   #2
StephN
Senior Member
 
StephN's Avatar
 
Join Date: Nov 2004
Location: Misty woods of WA State
Posts: 4,128
Wink

Love it, Leslie!
The "new" normal is ... wherever it takes us.

At least someone wanted you for your talents. Guess she was just glad you were not barging in on HER on Sat. morning!
__________________
"When I hear music, I fear no danger. I am invulnerable. I see no foe. I am related to the earliest times, and to the latest." H.D. Thoreau
Live in the moment.

MY STORY SO FAR ~~~~
Found suspicious lump 9/2000
Lumpectomy, then node dissection and port placement
Stage IIB, 8 pos nodes of 18, Grade 3, ER & PR -
Adriamycin 12 weekly, taxotere 4 rounds
36 rads - very little burning
3 mos after rads liver full of tumors, Stage IV Jan 2002, one spot on sternum
Weekly Taxol, Navelbine, Herceptin for 27 rounds to NED!
2003 & 2004 no active disease - 3 weekly Herceptin + Zometa
Jan 2005 two mets to brain - Gamma Knife on Jan 18
All clear until treated cerebellum spot showing activity on Jan 2006 brain MRI & brain PET
Brain surgery on Feb 9, 2006 - no cancer, 100% radiation necrosis - tumor was still dying
Continue as NED while on Herceptin & quarterly Zometa
Fall-2006 - off Zometa - watching one small brain spot (scar?)
2007 - spot/scar in brain stable - finished anticoagulation therapy for clot along my port-a-catheter - 3 angioplasties to unblock vena cava
2008 - Brain and body still NED! Port removed and scans in Dec.
Dec 2008 - stop Herceptin - Vaccine Trial at U of W begun in Oct. of 2011
STILL NED everywhere in Feb 2014 - on wing & prayer
7/14 - Started twice yearly Zometa for my bones
Jan. 2015 checkup still shows NED
2015 Neuropathy in feet - otherwise all OK - still NED.
Same news for 2016 and all of 2017.
Nov of 2017 - had small skin cancer removed from my face. Will have Zometa end of Jan. 2018.
StephN is offline   Reply With Quote
Old 02-05-2009, 08:13 AM   #3
WomanofSteel
Senior Member
 
Join Date: Nov 2007
Location: New Jersey
Posts: 889
See it really isn't the boob that matters LOL!
__________________
dx aug 03
invasive dcis 1 cm
er/pr/her2+
bcs 8/4/03
bcs 8/21/03 0/16 nodes
tx 4x ca 36 rad tam
postmenopausal 06 aromasin
sept 07 biopsy node in neck
muga/pet/cat/bone mets to lungs nodes and liver stage iv
tx hki-272
tx not working switched to taxol herceptin
Taxol not working switched to navelbine
navelbine is causing bad neuropathy
starting gemzar
gemzar quit on me now on Ixempra due to increasing number and size of liver mets
another progression starting tykerb/xeloda
WomanofSteel is offline   Reply With Quote
Old 02-05-2009, 03:21 PM   #4
chrisy
Senior Member
 
chrisy's Avatar
 
Join Date: Sep 2005
Location: Central Coast, CA
Posts: 3,207
Ha ha ha ha! Great story!
__________________
Chris in Scotts Valley
June 2002 extensive hi grade DCIS (pre-cancer-stage 0, clean sentinal node) Mastectomy/implant - no chemo, rads. "cured?"
9/2004 Diag: Stage IV extensive liver mets (!) ER/PR- Her2+++
10/04-3/05 Weekly Taxol/Carboplatin/Herceptin , complete response!
04/05 - 4/07 Herception every 3 wks, Continue NED
04/07 - recurrence to liver - 2 spots, starting tykerb/avastin trial
06/07 8/07 10/07 Scans show stable, continue on Tykerb/Avastin
01/08 Progression in liver
02/08 Begin (TDM1) trial
08/08 NED! It's Working! Continue on TDM1
02/09 Continue NED
02/10 Continue NED. 5/10 9/10 Scans NED 10/10 Scans NED
12/10 Scans not clear....4/11 Scans suggest progression 6/11 progression confirmed in liver
07/11 - 11/11 Herceptin/Xeloda -not working:(
12/11 Begin MM302 Phase I trial - bust:(
03/12 3rd times the charm? AKT trial

5/12 Scan shows reduction! 7/12 More reduction!!!!
8/12 Whoops...progression...trying for Perjeta/Herceptin (plus some more nasty chemo!)
9/12 Start Perjeta/Herceptin, chemo on hold due to infection/wound in leg, added on cycle 2 &3
11/12 Poops! progression in liver, Stop Perjeta/Taxo/Herc
11/12 Navelbine/Herce[ptin - try for a 3 cycles, no go.
2/13 Gemzar/Carbo/Herceptin - no go.
3/13 TACE procedure
chrisy is offline   Reply With Quote
Old 02-05-2009, 10:27 PM   #5
Bill
Senior Member
 
Bill's Avatar
 
Join Date: Nov 2007
Location: Connecticut
Posts: 2,077
The Lord does work in mysterious ways.
__________________
For Nicola
Bill is offline   Reply With Quote
Old 02-06-2009, 08:52 AM   #6
freyja
Senior Member
 
freyja's Avatar
 
Join Date: Sep 2008
Location: Eugene, Oregon
Posts: 347
Thumbs up egg

At least you were a nicely painted, lopsided, demented easter egg!
__________________

"Dancers Against Cancer" in the Eugene, OR Komen Race for the Cure 2010
Diagnosed 8/7/08 with stage 3 invasive ductal carcinoma, micropapillary pattern, Her2 3+, ER+,PR-, grade II, positive lymph nodes.
Received 6doses of Taxotere, Carboplatin with Herceptin continuing for a year...DONE.
1/28/09 Left Modified Radical Mastectomy, Right Simple Mastectomy.
Surgery pathology: No invasive carcinoma present and 17 lymph nodes removed all negative! Only small amount of carcinoma in situ in left breast.
March/April '09, Radiation to left chest wall.
Currently involved in Neratinib clinical trial.

"Well being I won
and wisdom too,
I grew and joyed in my growth;
from a word to a word
I was led to a word
from a deed to another deed." (Odin)

freyja is offline   Reply With Quote
Reply

Thread Tools
Display Modes

Posting Rules
You may not post new threads
You may not post replies
You may not post attachments
You may not edit your posts

BB code is On
Smilies are On
[IMG] code is On
HTML code is On

Forum Jump


All times are GMT -7. The time now is 07:25 PM.


Powered by vBulletin® Version 3.8.7
Copyright ©2000 - 2024, vBulletin Solutions, Inc.
Copyright HER2 Support Group 2007 - 2021
free webpage hit counter