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Old 01-12-2012, 07:13 PM   #1
DeenaH
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Join Date: Apr 2010
Posts: 129
Is anyone on Everolimus yet?

I am working on getting my insurance to pay for this for me to add to Herceptin and Tykerb. So far it was initially denied, and is in appeals. I should have an answer tomorrow. If it is no, I plan to get an independent medical review. It would help to know of others who were approved for this drug outside of a trial setting.
__________________
March 2010: Diagnosed with Stage IIIC IDC with axillary, mammary and suplaclavicular node involvement. ER/PR -, HER2+++. 7cm tumor in right breast.
April 2010: Started neoadjuvent chemo. 4 DD A/C every 2 weeks, 4 DD Taxotere every 3 weeks with Herceptin weekly.
August 2010: Finished chemo!
August 20, 2010: PET/CT showed no cancer in any nodes, and only a little uptake to the breast.
September 9, 2010: Bilateral mastectomy with immediate reconstruction with implants and Alloderm.
September 16, 2010: Pathology report showed 18/51 positive axillary nodes, 3.2cm tumor. Granual sized cancer found in the fatty tissue between levels 1 and 2.
October 19, 2010: CT showed several spots on lungs and 1 spot on liver. Liver spot is 2mm, lung spots range from 2mm to 4mm. We don't know if they are cancer or not.
12/15/10: Brain MRI clear
1/7/11: PET/CT
1/13/11: Recurrence in lungs. Start Tykerb
5/13/11: Progression in lungs
6/3/11: Lung surgery to get tumors for chemosensitivity testing.
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Old 01-13-2012, 06:13 AM   #2
Rich66
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Join Date: Feb 2008
Location: South East Wisconsin
Posts: 3,431
Re: Is anyone on Everolimus yet?

Curious about this too. Here is some info on Everolimus/Affinotor that may offer support:
http://her2support.org/vbulletin/showthread.php?t=50510
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Old 01-13-2012, 01:29 PM   #3
DeenaH
Senior Member
 
Join Date: Apr 2010
Posts: 129
Re: Is anyone on Everolimus yet?

Thanks Rich. I had already sent all of that info to my insurance company. The appeal was officially denied and now I am going for an independent medical review with the state of CA. I will probably have to start Xeloda in the meantime though.
__________________
March 2010: Diagnosed with Stage IIIC IDC with axillary, mammary and suplaclavicular node involvement. ER/PR -, HER2+++. 7cm tumor in right breast.
April 2010: Started neoadjuvent chemo. 4 DD A/C every 2 weeks, 4 DD Taxotere every 3 weeks with Herceptin weekly.
August 2010: Finished chemo!
August 20, 2010: PET/CT showed no cancer in any nodes, and only a little uptake to the breast.
September 9, 2010: Bilateral mastectomy with immediate reconstruction with implants and Alloderm.
September 16, 2010: Pathology report showed 18/51 positive axillary nodes, 3.2cm tumor. Granual sized cancer found in the fatty tissue between levels 1 and 2.
October 19, 2010: CT showed several spots on lungs and 1 spot on liver. Liver spot is 2mm, lung spots range from 2mm to 4mm. We don't know if they are cancer or not.
12/15/10: Brain MRI clear
1/7/11: PET/CT
1/13/11: Recurrence in lungs. Start Tykerb
5/13/11: Progression in lungs
6/3/11: Lung surgery to get tumors for chemosensitivity testing.
DeenaH is offline   Reply With Quote
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