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12-26-2008, 08:45 AM
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#1
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Webmaster
Join Date: Feb 2005
Location: Home of the "Flying Tomato"
Carlsbad, CA
Posts: 2,036
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Sad Announcement - HavahJ
I received the following from StephN the other day:
This is Ariel, Jan's son and it is sad for me to anounce that my mom died this past saturday. it was unexpected as she and the doctors believed that she had from 6-12 months. she had already done spheres twice and it worked both times. then she went off chemo about at that time because it was making her to weak. everything was going smoothly for a few months and then the liver started to grow again (while the bone remained stable). they found out that the spheres had given her an ulcer in her stomach and so spheres were ruled out for a third time and they decided on embrolization or something like that to inject chemo with a needle into the tumors. this happened on friday and she was up and talking afterwards. then at around 6 am on saturday her heart stopped and they revived her a bit but she was already far gone. they think that perhaps the ulcer started to bleed or some type of internal bleeding occured because her hemoglobin count went very low.
just know that she was a fighter and did everything possible and hopefully you all can learn from that spirit not to give up.
Ariel Solomon
__________________
A Proud webmaster to the internet's most informed, educated, COMPASSIONATE and caring group of breast cancer survivors.
Illegitimi non carborundum
My Album
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12-26-2008, 09:16 AM
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#2
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Senior Member
Join Date: Jun 2007
Location: RHODE ISLAND
(Ed getting me a latte on 2nd Cancerversary Cruise 2008)
'BELIEVE': To accept as true or real, To have faith in, To presume
ALWAYS BELIEVE
Posts: 2,999
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Thank you Joe and StephN for the news of HavahJ's passing. I am keeping a record of our Warrior Friends who have earned their wings so I can tribute them special. I also continue to pray for their families. Thanks again for this information. She certainly was a Warrior>>Believe51
__________________
9/7/06Husband 50yrs=StageIV IBC/HER2+,BoneMets10/06TaxotereX10,'H'1X wk,Zometa,Tamoxifen4/12/07Last Tax5/18/07Pet=Rapid Cell Activity,No Organ Mets,Lytic Lesions,Degeneration,Some Bone Repair5/07ChemoFail6/01/07Pleural Thoracentisis=Effusions,NoMalignantCells6/19/07+7/2/07DFCI
6/25/07BrainMRI=BrainMets,Many<9mm7/10/07WBR/PelvisRad37.5Gx15&Nutritionist8/19/07T/X9/20/07BrainMRI=2<2mm10/6/07Pet=BoneProgression
10/24/07ChemoFail11/9/07A/Cx10,EndTam12/7/07Faslodex12/10/07Muga7512/13/07BlasticLesions1/7/08BrainMRI=Clear4/1/08Pet=BoneImprovement,
NoProgression,Stable4/7/08BrainPerfect5/16/08Last A/C8/26/08BrainMets=10(<9mm)9/10/08Gamma10/30/08Met=5mm12/19/08Gamma5mets5
12/22/08SpinalMets1/14/09SpinalRads2/17/09BrainMRI=NoNewMets4/20/09BoneScan5/14/09Ixempra6/1/09BrainMRI=NumerousMets6/24/09DFCIw/DrBurstein6/26/09Continue
Ixempra/Faslodex/Zometa~TM now lower7/17/09Stop Ixempra By Choice9/21/09HOSPICE10/16/09Earned His Deserved Wings And Halo=37 Month Fight w/Stage 4 IBC, Her2+++,My Hero!!
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12-26-2008, 09:26 AM
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#3
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Senior Member
Join Date: Jun 2006
Location: San Antonio, TX
Posts: 2,357
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What very sad news. As I re-read Jan's post from the past year, I felt even sadder knowing how alone she must have felt. But how brave she has been and how good of her son to let us know and to hope that it encourages us. People are truly so very good and special, aren't they?
I send my prayers and love to Jan's family as they deal with their tragic news.
__________________
MA in TX.
Grateful for each and every day....
Diag. 12/05 at age 60
Stage II, Grade 3, 4.5 cm primary tumor
ER/PR- Her2 +3 strongly positive
Her2 by FISH 7.7 amplified
vascular invasion
Ki67 20% borderline
Jan - March '06 Taxotere/Adriamycin X 3 to try to shrink tumor - it grew
April '06 Rt Modified Radical Mas, 7 of 9 nodes positive
April - Aug. '06 Herceptin/Taxol/Carboplatin X 8 (dose dense)
Sept - Dec. '06 Navelbine/Herceptin x 8 (dose dense)
Radiation & Herceptin Jan. 22 - March 1, 2007
Finished Herceptin Dec. 10 '08! One extra year.
Port removed August, 2012.
8 1/2 years since diagnosis! 5 1/2 Years NED!
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12-26-2008, 04:52 PM
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#4
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Senior Member
Join Date: Feb 2006
Location: Southern, CA
Posts: 2,511
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Thanks Joe for letting us know. This is so sad to me. Jan (HavahJ) IM'd me a long time ago because she was having a difficult time understand how this board works. During that time I helped her out and we began emailing each other. She was all alone and didn't have anyone to talk too. She had a full plate to deal with...she had brain surgery, mets to liver & she also had MS. She was very frightened but she really was a strong woman...a true warrior...she fought long and hard in more ways then one.
She researched and sought out everything she could find that might help her. Traveled to UCLA alone. She really was an amazing lady and I truly will miss her. I knew something was wrong because I hadn't heard from her in a while and that wasn't like her. My deepest condolences to her family.
Chelee
__________________
DX: 12-20-05 - Stage IIIA, Her2/Neu, 3+++,Er & Pr weakly positive, 5 of 16 pos nodes.
Rt. MRM on 1-3-06 -- No Rads due to compromised lungs.
Chemo started 2-7-06 -- TCH - - Finished 6-12-06
Finished yr of wkly herceptin 3-19-07
3-15-07 Lt side prophylactic simple mastectomy. -- Ooph 4-05-07
9-21-09 PET/CT "Recurrence" to Rt. axllia, Rt. femur, ilium. Possible Sacrum & liver? Now stage IV.
9-28-09 Loading dose of Herceptin & started Zometa
9-29-09 Power Port Placement
10-24-09 Mass 6.4 x 4.7 cm on Rt. femur head.
11-19-09 RT. Femur surgery - Rod placed
12-7-09 Navelbine added to Herceptin/Zometa.
3-23-10 Ten days of rads to RT femur. Completed.
4-05-10 Quit Navelbine--Herceptin/Zometa alone.
5-4-10 Appt. with Dr. Slamon to see what is next? Waiting on FISH results from femur biopsy.
Results to FISH was unsuccessful--this happens less then 2% of the time.
7-7-10 Recurrence to RT axilla again. Back to UCLA for options.
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12-26-2008, 05:24 PM
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#5
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Senior Member
Join Date: Jan 2007
Location: Thornhill, Ontario
Canada
Posts: 2,320
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So sorry to hear of HavahJ's (Jan) passing. Another Warrior gone too soon. May she rest in peace, and may her family be comforted.
all the best
caya
__________________
ER90%+/PR 50%+/HER 2+
1.7 cm and 1.0 cm.
Stage 1, grade 2, Node Negative (16 nodes tested)
MRM Dec.18/06
3 x FEC, 3 x Taxotere
Herceptin - every 3 weeks for a year, finished May 8/08
Tamoxifen - 2 1/2 years
Femara - Jan. 1, 2010 - July 18, 2012
BRCA1/BRCA2 Negative
Dignosed 10/16/06, age 48 , premenopausal
Mild lymphedema diagnosed June 2009 - breast surgeon and lymph. therapist think it's completely reversible - hope so.
Reclast infusion January 2012
Oopherectomy October 2013
15 Years NED!!
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12-26-2008, 05:48 PM
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#6
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Senior Member
Join Date: Nov 2007
Location: New Jersey
Posts: 889
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My deepest sympathies to Jan's family. It is so sad to hear that another angel has earned her wings.
__________________
dx aug 03 invasive dcis 1 cm
er/pr/her2+
bcs 8/4/03
bcs 8/21/03 0/16 nodes
tx 4x ca 36 rad tam
postmenopausal 06 aromasin
sept 07 biopsy node in neck
muga/pet/cat/bone mets to lungs nodes and liver stage iv
tx hki-272
tx not working switched to taxol herceptin
Taxol not working switched to navelbine
navelbine is causing bad neuropathy
starting gemzar
gemzar quit on me now on Ixempra due to increasing number and size of liver mets
another progression starting tykerb/xeloda
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12-26-2008, 06:07 PM
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#7
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Senior Member
Join Date: Nov 2005
Location: Ireland
Posts: 3,463
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I too, am so sad to hear of Jans passing way too soon. My deepest sympathy's to her family and thank you Joe and Ariel for updating us with this sad news.
__________________
Tricia
Dx July '05 IDC 1.9cm Triple positive 3/9 nodes positive
A/C X 4 ..Taxol/Herceptin x 12 wks then herceptin 1 yr
Rads x 36 ..oophorectomy August '06
Currently taking Arimidex..
June 2011 osteopenia/ zometa x1 yearly- stopped Zometa 2015 as Dexa show normal bone density.
Stopped Arimidex July 2014- Restarted Arimidex 2015 for a further two years on the advice of my Onc.
2014 Normal Dexa scan
2018 Mammo all clear, still NED!
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12-26-2008, 07:06 PM
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#8
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Senior Member
Join Date: Aug 2006
Location: Sheboygan, WI
Posts: 2,582
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I was very shocked and saddened to read of Jan's passing. My prayers are with her family.
Love,
Mary Jo
__________________
"Be still and know that I am God." Psalm 46:10
Dx. 6/24/05 age 45 Right Breast IDC ER/PR. Neg., - Her2+++ RB Mast. - 7/28/05 - 4 cm. tumor Margins clear - 1 microscopic cell 1 sent. node No Vasucular Invasion 4 DD A/C - 4 DD Taxol & Herceptin 1 full year of Herceptin received every 3 weeks 28 rads prophylactic Mast. 3/2/06
17 Years NED
<>< Romans 8:28
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12-26-2008, 09:18 PM
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#9
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Senior Member
Join Date: Jun 2006
Location: san luis obispo, ca
Posts: 1,150
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The tears are falling
Thank you, Joe for posting this. I am once again saddened and depressed to have lost another warrior in this battle we all wage. Chelee, thank you for sharing your thoughts about Jan. I am saddened more than anything else that she felt alone and had so few to talk to. It just reminds me to reach a little further to those around me, to love a little stronger, and to carry those who are weary another mile, another smile, another hug.
My prayers go out to Jan's family. I am finding it hard to keep the tears from flowing right now. I wish I could have been there for her, for her family. Another great loss for this world, another sister takes wings...and I am at a loss right now. Filled with grief and empathy. My love to her family, Vickie
__________________
Love and Hugs, Vickie
Life's not about waiting for the storm to pass,
It's about learning to dance in the rain.
Feb 04 IBC IIIC/IV er-/pr- her2+++
3/04 TCH X4
7/ 04 MRM 9/04 Taxol/herceptin wkly 1 yr 33X rads
11/04 skin mets 33x rads,10/05 Avast/Herc. 11 mos.
8/ 06 PET mets lymphs, neck
9/ 06 Navelbine/herceptin
11/ 06 PET NED
2/ 07 skin mets, 4/07 Xeloda, 5/07 add Tykerb
2/ 08 Tykerb failed. Doxil /Herceptin 6 months
8/08 PET skin mets, 8/08 Abraxane/Avastin
11/ 08 PET prog., skin mets
1/09 PET/CT progress, 1/09 Ixempra, 2/09 add Xeloda and low dose Naltrexone
2/09 off Ixempra/Xeloda
3/09 navelbine/herc/cytoxin 4/09 PET shows regress.7/09 start Topotecan. Failed.
8/09 extensive mets rgt brst, back and torso. starting Pazopanib clinical trial.
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12-27-2008, 08:57 AM
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#10
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Senior Member
Join Date: Sep 2005
Location: france
Posts: 1,648
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Thank you for letting us know. It is very sad news. My deepest sympathy to her family.
hugs and love
sarah
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12-27-2008, 09:42 AM
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#11
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Senior Member
Join Date: Sep 2005
Location: Newton, MA
Posts: 951
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First of all I send my sincere condolences to Havah's family. I'm on vacation and somehow was quite shocked to read this notice. My thoughts are with her son and everyone that visits this site. I haven't been posting much. I currently have 28 third graders and we are required to write long narratives as part of the progress reports. This keeps me busy at this time of the year, as well as extra work of an unusually large class. Please know that my thoughts are with you and all that you are going through. I do log on everyday, and want to know that I have been sending positive thoughts to "Mighty Oak" and all the others who are struggling with issues.
Best wishes for 2009.
Barbara
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12-27-2008, 10:40 AM
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#12
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Senior Member
Join Date: Feb 2008
Location: South East Wisconsin
Posts: 3,431
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Not much I can add except my deepest sympathies. It's especially hard to learn of situations where treatment causes problems. I was under the impression that spheres could only be done once. ?
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12-27-2008, 01:46 PM
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#13
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Senior Member
Join Date: Nov 2004
Location: Misty woods of WA State
Posts: 4,128
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Hello everyone -
I was very sorry to get that note from Jan's son. He found an unanswered message from me in her inbox and replied that way. Hit me hard as I was last contacted by Jan that she was feeling OK about her treatment and that there was some progress.
As Chelee said Jan was fighting on two fronts (the MS) and did not seem to have a lot of help. That is the beauty of this site that a person can come here for the understanding and information and not feel so isolated by their disease and/or living situation.
Her wings were well-earned from years of fending off the cancer. She started mets with a strange place - at the base of her skull (in her skull) that was low enough to show up on a routine scan (eyes to thighs).
Rest in Peace.
__________________
"When I hear music, I fear no danger. I am invulnerable. I see no foe. I am related to the earliest times, and to the latest." H.D. Thoreau
Live in the moment.
MY STORY SO FAR ~~~~
Found suspicious lump 9/2000
Lumpectomy, then node dissection and port placement
Stage IIB, 8 pos nodes of 18, Grade 3, ER & PR -
Adriamycin 12 weekly, taxotere 4 rounds
36 rads - very little burning
3 mos after rads liver full of tumors, Stage IV Jan 2002, one spot on sternum
Weekly Taxol, Navelbine, Herceptin for 27 rounds to NED!
2003 & 2004 no active disease - 3 weekly Herceptin + Zometa
Jan 2005 two mets to brain - Gamma Knife on Jan 18
All clear until treated cerebellum spot showing activity on Jan 2006 brain MRI & brain PET
Brain surgery on Feb 9, 2006 - no cancer, 100% radiation necrosis - tumor was still dying
Continue as NED while on Herceptin & quarterly Zometa
Fall-2006 - off Zometa - watching one small brain spot (scar?)
2007 - spot/scar in brain stable - finished anticoagulation therapy for clot along my port-a-catheter - 3 angioplasties to unblock vena cava
2008 - Brain and body still NED! Port removed and scans in Dec.
Dec 2008 - stop Herceptin - Vaccine Trial at U of W begun in Oct. of 2011
STILL NED everywhere in Feb 2014 - on wing & prayer
7/14 - Started twice yearly Zometa for my bones
Jan. 2015 checkup still shows NED
2015 Neuropathy in feet - otherwise all OK - still NED.
Same news for 2016 and all of 2017.
Nov of 2017 - had small skin cancer removed from my face. Will have Zometa end of Jan. 2018.
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12-27-2008, 05:17 PM
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#14
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Senior Member
Join Date: Dec 2005
Location: Walnut Creek, CA
Posts: 438
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I am so sorry to hear about Jan. Thank you for letting us know Joe.
Hugs and healing prayers being sent to Jan's family.
Karen
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12-27-2008, 07:24 PM
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#15
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Senior Member
Join Date: Jan 2008
Location: Evergreen, Colorado
Posts: 454
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I too am shocked and saddened by the loss of Jan. I hope that Ariel can receive some comfort to know that his mother found support on this site.
While we are physically miles apart, there have been more than one cyber hug shared.
Heartfelt condolences to the family and peace in knowing that Jan has gone to a resting place with no fear.
Lori
__________________
2007
Oct - Diagnosed - Stage IV 5 c.m. IDC - Left Side er/pr- Her2+++ Node + 2/14 - Single Liver Met Double Mastectomy Nov - Begin T+H 2008
Feb-Complete 6 cycles- T&H- NED
March - Continue - Herceptin Only
April - Rads for 6 weeks
2009
Continue Herceptin - Continue NED
April - Recurrance- 3 cm. Liver Met
May - Cryosurgery
June - November - Abraxane + Herceptin
Aug - PET/CT - CTC = 0 Back to NED
2010
January - Continue NED
July - Recurrance - 3 cm Liver Met CTC=1
August - Cryosurgery #2
August - November Navelbine
November - Back to NED - End Navelbine
2011
Feb - Recur - 4 cm Liver Met - Same Left Lobe
March Surgery it is -Couldn't get a clean margin
July - Confirmed continued liver involvement
August - Begin Herceptin + Tykerb
October - Mixed results from H+T
Add Abraxane + H + T - Nov - April
2012
January PET Scan - It's working!!
April - Back to NED
July - Recurrance
August - Begin TDM-1 Trial (Taxol + TDM-1)
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12-28-2008, 06:39 PM
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#16
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Senior Member
Join Date: May 2006
Location: northshore suburb of chicago
Posts: 1,093
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So sad to lose yet another her2 sister. My condolences to Jan's family. May she rest in peace.
__________________
~Rina~
Dx:3/06 had a lumpectomy April 19, 2006
Her2+ er/pr- Stage I Grade 3 tumor size 1.4 cm, node negative
AC 4 dense doses
34 radiation treatments including booster doses
receiving herceptin every 3 weeks since late August 2006 for 12 months
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12-29-2008, 10:25 PM
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#17
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Senior Member
Join Date: Feb 2006
Posts: 1,014
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I am so saddened by this also, may God recieve her lovely spirit and watch over her family in this hard time..sherryg683
__________________
Sherry
Diagnosed: December , 2005 at age 44
13+ positive lymph nodes
Stage IV , Her2+, 2 small mets to lungsChemo Started: Jan, 2006
4 months Taxotere, Xeloda, Hercepin
NED since April 2006!!
36 Rads to follow with weekly Herceptin indefinately
8 years NED now
Scans every year
Life is not about avoiding the thunderstorms, it's about learning to dance in the rain!
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12-30-2008, 10:12 AM
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#18
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Senior Member
Join Date: Nov 2007
Location: Connecticut
Posts: 2,077
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I'm sorry to hear about Jan's passing. My thoughts and prayers are with her and her family. Joe, and Steph, thanks for letting us know.
__________________
For Nicola
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12-31-2008, 12:02 AM
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#19
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Senior Member
Join Date: Oct 2006
Location: I live in Christmas, MI - located on the shores of Lake Superior.
Posts: 606
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So sorry to hear of Jans passing...I'm wishing her family comfort.
__________________
Barb
10/03 Radical Mastectomy 3 cm tumor - 1/17 Nodes Stage II B, Her 2 +++ ER-/PR- 11/03 4 AC 4 Taxol 12/05 Stage IV - Lung met , Bone mets - Carbo, Taxotere, Herceptin 9/06 - 2 cm brain tumor 10/06 - Tumor removal surgery - Herceptin Halted 12/06 gamma knife tumor base.1/07 Navelbine/Herceptin 4/07 Rads to R femur 5/07 Stereotactic - new 2 cm brain tumor 4/07 Start Xeloda 5/07 Tykerb added 7/07 Brain MRI clean 10/07 .055 cm brain met found. 12/07 Stereotactic -1 cm brain tumor Start Tykerb 11/07 Abraxane/Herceptin 5/08 Cisplatin, Gemcitabine/Herceptin 6/08 Stereotactic to 1cm 9/08 Stereotactic repeat (growth). 11/08 Pet Scan Good but new tiny met on L lung/dead Brain surgery (no cancer cells found/scar tissue) 1/09 Chemo restarted 2/09 Pet Scan Bad - R larger very active/active L active lymph nodes both sides of chest MRI- mets slight increase 2/09 Start Doxil/Tykerb Treatment
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01-02-2009, 05:37 PM
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#20
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Senior Member
Join Date: Dec 2005
Location: indianapolis, indiana
Posts: 1,544
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sending hugs and prayers to the family!
__________________
dxd 9-04, lumpectomy,
st 1, gr 3, er,pr-, her2 +,
2 tac,33 rads,6 cmf
1 yr herceptin,
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