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06-29-2006, 09:19 AM
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#1
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Senior Member
Join Date: Feb 2005
Location: LI, NY
Posts: 660
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HOME SWEET HOME - madubois63
YEAH!!! I am home. Once my counts started to move, they just ran. My platelets were at 188 yesterday - haven't been that high since January. Just last week I was at 8 or 9. My whites are still a little low, but much better than zero. I can't really go in crowds, so no stores for a bit. My bed feels so amazing and my dog was just too happy to see me. My kids crawled in to bed with me and just held my hands. It was amazing!! I'll have another bone marrow biopsy next week and then the doctor can tell me what I already know - that I am in reission - tehe. Then we can start the donor search, and I go to Buffalo for a consult. Thanks for all the advice on Buffalo and offers for visits. I will take you all up on it (except that mother-in-law - lol)! I am going to enjoy my weekend at home and then start research. Yes, it's Roswell. My first thought was corporate Angels Network for free air fair, but someone gave me a few other sites to check out too. I always wanted to go to Canada. Maybe we can make this a bit of a vacation too. I love caves, so that is a must! I love you all so much, and just can't believe the love that comes through. You make me smile, cry and just appreciate life so much more...
..·´¨¨)) -:¦:-
¸.·´ .·´¨¨)) -:¦:-
((¸¸.·´ ¸.·´ -:¦:- -:¦:-
-:¦:- ((¸¸.Maryann -:¦:-´´
__________________
Maryann
Stage IV Inflammatory BC 1/00
Mod Rad Mastectomy 24nod/5+
Adriomycin Cytoxin Taxol
Tamoxifen 4 1/2 yrs
Radiation - 32 x
Metastatic BC lung/liver 10/04
thorocentesis 2x - pleurodesis
Herceptin Taxatiere Carbo
Femera/Lupron
BC NED 4/05
chemo induced Acute Myeloid Leukemia 5/06
Induction/consolidation chemo
bone marrow transplant - 11/3/06
Severe Host vs Graft Disease of liver
BC mets to lung 11/07
Fasoladex Herceptin Zometa Xeloda
GVHD/Iron overload to liver
Avascular Necrosis/morphine pump 10/10
metastatic brain tumor
steriotactic radiosurgery
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06-29-2006, 09:25 AM
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#2
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Senior Member
Join Date: Sep 2005
Location: Grand Rapids, MI
Posts: 1,516
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Maryann
AWESOME news! I hope you find a donor soon so that you can put THIS behind you and get on to the business at hand...enjoying life. Take care and God bless.
Rhonda
__________________
Rhonda
Dx 2/1/05, Stage 1, 0 nodes, Grade 3, ER/PR-, HER2+ (3.16 Fish)
2/7/05, Partial Mastectomy
5/18/05 Finished 6 rounds of dose dense TEC (Taxotere, Epirubicin and Cytoxan)
8/1/05 Finished 33 rads
8/18/05 Started Herceptin, every 3 weeks for a year (last one 8/10/06)
2/1/13...8 year Cancerversary and I am "perfect" (at least where cancer is concerned;)
" And in the end, it's not the years in your life that count. It's the life in your years."- Abraham Lincoln
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06-29-2006, 09:42 AM
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#3
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Senior Member
Join Date: Jul 2005
Location: Ontario, Canada
Posts: 722
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That's great, I never knew you wanted to go to Canada but I'm a great tour guide.
Keep fighting,
Al
__________________
Primary care-giver to and advocate for Linda, who passed away April 27, 2006.
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06-29-2006, 11:28 AM
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#4
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Senior Member
Join Date: Sep 2005
Location: Simi Valley, CA
Posts: 94
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Great News Maryann, we're all pulling for you to beat this and get on with your life - which you are doing! Good for you!
__________________
Jen
DX 10/04 IDC Grade 3
ER/PR-, Her2+++
4/20+ Lymph nodes
Stage 3a
Age 38, CA
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06-29-2006, 11:29 AM
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#5
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Senior Member
Join Date: Sep 2005
Location: Madison, Connecticut
Posts: 638
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Mary Ann!
We are so proud of you! Facing down the demon yet again and home on angel wings huggin your wee ones. If today isn't a reason for a big whoppin piece of chocolate cake(forgive the trans fat just this once RB!!!), I don't know what is...! Welcome back to this world of wonders.
Love Kim from CT
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06-29-2006, 12:41 PM
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#6
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Senior Member
Join Date: Sep 2005
Location: Utah
Posts: 52
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I am so happy for you!!!! You keep up your great attitude and spirit....you've been an absolute inspiration to us all!!!
Much Love,
Amy
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06-29-2006, 01:45 PM
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#7
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Senior Member
Join Date: Jan 2006
Location: Birmingham, AL
Posts: 43
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Congratulations!! We are thrilled for you and look forward to hearing more good news!
Peace and Blessings,
Monique
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Monique M
Birmingham, AL
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06-29-2006, 02:58 PM
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#8
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Senior Member
Join Date: Sep 2005
Posts: 26
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hey hey great to be home....i bet it is...God Bless you....and may good news keep coming.....
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06-29-2006, 03:49 PM
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#9
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Senior Member
Join Date: Oct 2005
Location: TAMPA, FL
Posts: 568
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I am soooooo happy for you MaryAnn
Keep up that great spirit of yours and that beautiful smile that you have, which I can just feel through your postings.
I am so glad everything is going in the right direction for your girl.
__________________
Irene from Tampa
1996 - INFILT DUCTAL CAR.W/ LYMPH NODE INVOLVEMENT. ADRIA/CYTOXIN/5FU
1999 - RECURR. TO AUXILA AND 2 TUMORS IN LIVER
TREAT: STEM CELL REPLACEMENT/HERCEPTIN.
2002 - RECUR TO LIVER
TREAT: NAVELBINE, THEN GEMZAR, THEN XELODA.
2004 - TUMORS STILL IN LIVER
TREAT: RFA TO LIVER
STABLE UNTIL
2004 - TUMOR PROGRESSION IN LIVER.
TREAT: RESECT HALF OF LIVER.
2005 - RECURR TO LYMPH NODE OUTSIDE OF LIVER.
TREAT: TAXOL/CARPO/HERCEPTIN. FAILED ON
THIS TRIO. STARTED ON ABRAXANE.
2006 - PROGRESS WITH 2ND TUMOR GROWTH.
TREAT: AUG. BEGAN ON TYKERB/XELODA
TRIAL. CONSIDERED STABLE TO DATE.
2007 - TAKEN OFF OF TYKERB/XELODA TRIAL DUE TO
PROGRESS STARTING TYKERB/AVASTIN.
NOV 2007 - SCANS SHOW PROGRESS TUMOR GROWTH
IN ABDOM. AND TWO NEW TUMORS IN NECK AREA.
BEGAN HERCEPTIN/AVASTIN/TAXOTERE
Feb 08 - Ixempra/Xeloda
June 08 - Her/DM1 trial
"I WANT TO BE AN OUTRAGEOUS OLD WOMAN WHO NEVER GETS CALLED AN OLD LADY. I WANT TO GET SHARP EDGED & EARTH COLORED, TILL I FADE AWAY FROM PURE JOY."
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06-29-2006, 04:19 PM
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#10
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Senior Member
Join Date: Sep 2005
Location: Mountains of Virginia
Posts: 2,267
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Wonderful, wonderful Maryanne! I know your children (furries included) are so happy to have you home.
Sassy
________
Live Sex Webshows
Last edited by sassy; 08-22-2011 at 08:49 AM..
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06-29-2006, 04:27 PM
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#11
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Senior Member
Join Date: Sep 2005
Posts: 49
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Mary Ann,
I am so glad you are home with your family! You remain an inspiration and I am sending hugs and hugs and hugs to you.
Blessings,
petesmom
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06-29-2006, 04:56 PM
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#12
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Senior Member
Join Date: Sep 2005
Location: Ontario, Canada
Posts: 752
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Maryann;
Coming to Canada!!! I would be so happy to have you stay at my home....bring the kids....they can fish right off my shore. I live very near Ottawa so let me know. I am so happy all is going so well. Whenever I feel threatened by this crazy cancer I think of you and know.....there is HOPE!!!!
Cathy
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06-29-2006, 05:18 PM
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#13
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Senior Member
Join Date: Nov 2005
Location: Northern Calif.
Posts: 981
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Home sweet home!! I am so very happy for you! You are one tough cookie and I am very proud of you. Stay strong and please keep us posted on your upcoming txs.
Love,
Lexi
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06-29-2006, 05:33 PM
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#14
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Senior Member
Join Date: Oct 2005
Posts: 823
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MaryAnn, I am so HAPPY to hear that you are FINALLY home. What WONDERFUL news.
Many prayers will continue.
Vicki
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06-29-2006, 07:10 PM
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#15
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Senior Member
Join Date: Sep 2005
Location: Newton, MA
Posts: 951
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Home at Last
Hi Maryanne,
You give everyone on this website so much hope. I'm so happy to hear that you are doing so well and are home with your children and your dog. I also hope you do have the opportunity to visit Canada. I was there on my way to Michigan and back. I wish I could have spent more time. It's a great country with a lot to do and see. You have a lot ahead of you and much to look forward to. I hope that you can find a match and have your transplant soon.
Thank you also for your updates. We all care for you!!
Best wishes to you and your family,
Barbara H.
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06-30-2006, 07:59 AM
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#16
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Senior Member
Join Date: Apr 2006
Location: Wilmington, Del.
Posts: 1,126
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I am so happy to hear news of your steady recovery. Best wishes to you. I send a pat for the dog and a hug for the kids. Have a wonderful weekend. MJO
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06-30-2006, 01:15 PM
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#17
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Senior Member
Join Date: Sep 2005
Location: Central Coast, CA
Posts: 3,207
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YAY!!!!!
Enjoy that comfy feeling of being in your own bed, with your own loveys! Nothin better than that. Your platelets are higher than mine!
love chris
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06-30-2006, 05:42 PM
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#18
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Senior Member
Join Date: Feb 2006
Location: Southern, CA
Posts: 2,511
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Hi MaryAnn, You MADE it home just as planned and sound like your doing pretty good all things considered. In fact your platelets are BETTER then mine. LOL Your on a roll girl...whoo hooo.
I laughed when I heard how happy your dog was to see you. When I was in the hospital for 10 days due to low ANC count...I could NOT wait to get home to see my two kids. (Which are my dogs in this case.) I MISSED them SO MUCH it wasn't funny. But in your case...you have your real kids and your dog. Your dog must of been spinning around in circles and all over you. They are ALWAYS so happy to see you. Don't you just love it. The simple things in life. 
I am so thrilled to hear your at home with your family and get to sleep in YOUR OWN bed. Now isn't that nice!
I wanted to echo what Ronda already said...I too hope you can find a donor SOON and you can MOVE on and forget about all this.
Hey...have I told you this lately? Your so darned AMAZING! You have a wonderful 4th of July week with your family. You got home just in time...YEAH! I am so happy for you.
May God continue to bless you.
I am sending your warm & healing thoughts.
Chelee
__________________
DX: 12-20-05 - Stage IIIA, Her2/Neu, 3+++,Er & Pr weakly positive, 5 of 16 pos nodes.
Rt. MRM on 1-3-06 -- No Rads due to compromised lungs.
Chemo started 2-7-06 -- TCH - - Finished 6-12-06
Finished yr of wkly herceptin 3-19-07
3-15-07 Lt side prophylactic simple mastectomy. -- Ooph 4-05-07
9-21-09 PET/CT "Recurrence" to Rt. axllia, Rt. femur, ilium. Possible Sacrum & liver? Now stage IV.
9-28-09 Loading dose of Herceptin & started Zometa
9-29-09 Power Port Placement
10-24-09 Mass 6.4 x 4.7 cm on Rt. femur head.
11-19-09 RT. Femur surgery - Rod placed
12-7-09 Navelbine added to Herceptin/Zometa.
3-23-10 Ten days of rads to RT femur. Completed.
4-05-10 Quit Navelbine--Herceptin/Zometa alone.
5-4-10 Appt. with Dr. Slamon to see what is next? Waiting on FISH results from femur biopsy.
Results to FISH was unsuccessful--this happens less then 2% of the time.
7-7-10 Recurrence to RT axilla again. Back to UCLA for options.
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06-30-2006, 06:22 PM
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#19
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Senior Member
Join Date: Aug 2001
Location: Oregon
Posts: 1,756
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WHOOHOO! Home at last! So happy for you, enjoy the weekend and don't even think about not having some ice cream on the 4th!
<3 Lolly
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06-30-2006, 08:42 PM
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#20
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Senior Member
Join Date: Sep 2005
Location: .
Posts: 211
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Dear maryann
So glad you are home and well. your children must feel so happy and safe.
love
Linda
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