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Old 05-05-2014, 02:54 PM   #1
CarolineC
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Join Date: Oct 2011
Location: British Columbia, Canada
Posts: 139
Aromasin

Can anyone give me their experience, good or bad, on this anti-estrogen therapy? It's been recommended as the next treatment, but with the way I metabolize, I'm leery of anything new at this point.

My son is graduating in 6 weeks and I am trying to do the least invasive thing in terms of treatment-don't need to be in the hospital after a bad reaction to chemo, so that's out for now. The scans show my sternum is stable, lung thingies are stable and adrenal is stable. However, I am in alot of pain, still, on my left side and after the bonescan last week my physiotherapist is allowed to work on me. She found that two of my ribs are flexed on that side from the sternum to the back shoulder blade. I think that my sternum flared up when my Herceptin treatment was delayed in Feb. and my ribs were unstable. The pain started abit in Oct. when my treatment was delayed and in Jan when I lifted my arms over my head for my CT scan I felt a pulling in my upper back on both sides of my shoulder blades. Then my treatment was delayed in Feb. and the pain really started.

Scans of the bone are so hard to distinguish healing or damage, so I believe my sternum is possibly acting up. My TMs are also the highest now- CEA is 34 and 15-3 is 25, but hopefully that's from exteme inflammation and pain.

Regardless, it might be time to change from Letrozole to Aromasin. Anyone have any thoughts to help me? It's so hard to stay positive-I am sleep deprived, in pain, and angry that my sternum was stable and treatment was delayed twice in four months. I found out from my onc in the larger centre that they don't delay treatment based on fluctuations in echocardiograms.
__________________
Dx Age 47 July/09 Stage 2B/3
Left Mast. Aug 09- 1 of 3 positive nodes in axillary dissection (yes only 3)
ER+ 90%, PR+ 20%, HER2+++
4 x AC, 4 x Paclitaxol and H (Neupogen for 7 cycles), Herceptin complete Nov 10
Mar–Apr 2010 25 Rads
Apr 10-Oct 11- Tamoxifen
Oct 11 – 3 cm met to sternum
Oct 11-Letrozole for 3 mths, start Clasteon-bone remodeller
Nov-Dec 11 - Happy 50th Birthday -20 rads to sternum
Jan-April 2012 Taxotere/Herceptin-6 cycles (Neupogen for 5)
Herceptin every 3 weeks-Letrozole added Nov 2012
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