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Old 05-02-2013, 04:48 PM   #1
Bill
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Re: Remembering Chrisy

I was lucky enough to meet Chris about 5 years ago when she passed through Richmond. I'll tell that story soon. I wish her family well. She will be missed.
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Old 05-02-2013, 06:15 PM   #2
Andrea Barnett Budin
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Re: Remembering Chrisy

Wow that Chrisy was such an exceptional woman! We all know it. I never actually met her but we've been e-ing for over 5 yrs, in addition to posting. I have loved her all the while, and will throughout eternity. I loved her quick wit way of seeing things and then expressing them. Was it she who suggested putting Cheez Whiz into someone's feeding tube, cause she knew she loved that treat from previous posts? She had that way about her that made you feel loved and cared for, uplifted, nurtured -- and informed! She got to know her enemy well, which is how a good Warrior works. Participating in your own wellness was her plan and she managed to eke out a batch of years past her prognosis. Her intelligence and her radiant energy could be felt by every one of us, through this board, within her clever words. Ever positive, she could find a pony in a pile of s**t... )

As she says in her words below -- she felt very blessed. And still greedy (her words) -- I'd say she was hungry --for Life! And she loved loving Life despite all the crap she had to go through, and her list was wayyyy too long. She deserved better. But she will never be forgotten, not by me, not by most of us!!

My thoughts are with her husband John and her sister Steph whose loss is deeply grievous. May they and her whole family find a way to focus on how blessed they were to have this remarkable, fun and funny, smart and sassy lady like no other in their lives. It is always too soon. But I know Chrisy would ask them to reach out and live Life with all their hearts
-- for her, by proxy so to speak...

She and I often talked about her special place -- Yosemite. It is an awesome space that touches your very Soul. I know she is at peace now. No more struggle. No more pain. Only the serenity and beauty that we on earth can see and touch occasionally when we hike through Yosemite or go to our special own place...

From CHRISY last September (9/12)



"Stage IV canserversary - 8 years

Just realized, this isn't the first time our labor day weekend plans have been disrupted!

In 2004, our plans to spend Labor day weekend doing...nothing were blown up by the words "you have masses in your liver, and it is cancer". We ran away to the Eastern Sierra.

How ironic.

That weekend we hoped and prayed I would exceed the "average" of 18 months (that was before I realized the Herceptin effect and how "off" those stats were.)

We never dreamt that 8 years later, our plans to escape to the Eastern Sierra would be derailed by...anything

Hmmmm. Feeling very blessed. And still greedy for life.
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And on 4 / 19 / 13 , Chrisy wrote:
I LOVE you all and am sending you this cyber hug

I can feel it. Still...

Chrisy's Sister in Spirit,
Andi

Thank you Denise for starting this so eloquently. Thank you StephN for the pics and words. I wasn't in San Antonio but now I feel even closer because pictures say so much to our Souls.
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'95 post-meno dx Invasive LOBULAR w/9cm tumor! YIKES + 2/21 nodes. Clear mammo 10 mnths earlier. Mastec/tram flap reconst/PORT/8 mnths chemo (4Adria/8CMF). Borderline ER/PR. Tamoxifen 2 yrs. Felt BLESSED. I could walk and talk, feed and bathe myself! I KNEW I would survive...

'98 -- multiple mets to liver. HER2+ 80%. ER/PR- Raging, highly aggressive tumors spreading fast. New PORT. 9 mnths Taxotere Fought fire w/fire! Pronounced in cautious remission 5/99. Taxotere weekly for 6 wks, 2 wks off -- for 9 mnths. TALK ABOUT GRUELING! (I believe they've altered that protocol since those days -- sure hope so!!)
+ good old Vit H wkly for 1st 3 yrs, then triple dosage ev 3 wks for 7 yrs more... The "easy" chemo, right?! Not a walk in the park, but not a freight train coming at 'ya either...

Added Herceptin Nov '98 (6 wks after FDA fast-tracked it for met bc). Stayed w/Vit H till July '08! Now I AM FREE! Humbly and eternally grateful for this life-saving drug! NED since '99 and planning on keeping it that way. To hell w/poor prognosis and nasty stats! STOPPED VIT H JULY '08...! REMAIN STABLE... Eternally grateful...Yes is a world & in this world of yes live (skillfully curled) all worlds ... (e e cummings) EVERY DAY I BEAT MY PREVIOUS RECORD FOR # OF CONSECUTIVE DAYS I'VE STAYED ALIVE. Smile KNOWING you too can be a miracle. Up to me and God now...
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Old 05-02-2013, 07:20 PM   #3
StephN
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Re: Remembering Chrisy

Here is a link to Chrisy's obit, with a special link embedded to a Breast Cancer Memorial site.

http://www.legacy.com/obituaries/san...88#fbLoggedOut

I love the photo that was chosen to accompany the text about her life - wind lashing her face and she pays no attention.
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"When I hear music, I fear no danger. I am invulnerable. I see no foe. I am related to the earliest times, and to the latest." H.D. Thoreau
Live in the moment.

MY STORY SO FAR ~~~~
Found suspicious lump 9/2000
Lumpectomy, then node dissection and port placement
Stage IIB, 8 pos nodes of 18, Grade 3, ER & PR -
Adriamycin 12 weekly, taxotere 4 rounds
36 rads - very little burning
3 mos after rads liver full of tumors, Stage IV Jan 2002, one spot on sternum
Weekly Taxol, Navelbine, Herceptin for 27 rounds to NED!
2003 & 2004 no active disease - 3 weekly Herceptin + Zometa
Jan 2005 two mets to brain - Gamma Knife on Jan 18
All clear until treated cerebellum spot showing activity on Jan 2006 brain MRI & brain PET
Brain surgery on Feb 9, 2006 - no cancer, 100% radiation necrosis - tumor was still dying
Continue as NED while on Herceptin & quarterly Zometa
Fall-2006 - off Zometa - watching one small brain spot (scar?)
2007 - spot/scar in brain stable - finished anticoagulation therapy for clot along my port-a-catheter - 3 angioplasties to unblock vena cava
2008 - Brain and body still NED! Port removed and scans in Dec.
Dec 2008 - stop Herceptin - Vaccine Trial at U of W begun in Oct. of 2011
STILL NED everywhere in Feb 2014 - on wing & prayer
7/14 - Started twice yearly Zometa for my bones
Jan. 2015 checkup still shows NED
2015 Neuropathy in feet - otherwise all OK - still NED.
Same news for 2016 and all of 2017.
Nov of 2017 - had small skin cancer removed from my face. Will have Zometa end of Jan. 2018.
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Old 05-02-2013, 08:38 PM   #4
Andrea Barnett Budin
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Re: Remembering Chrisy

The obit speaks of Chrisy as being a choreographer of Human Energy. She could often be seen dancing on the beach or in her living room. She danced with Life, no matter what.
On line I found a set of choreographed dances examining energy. Asked how the choreographer approached the topic in his work that pushed boundaries? Chrisy pushed boundaries all the time. She was a participatant in the research of a breakthrough medicine that gives new hope to breast cancer patients. She was a giving Spirit in the truest sense of the word. She gave of herself in myriad ways, on a regular basis. She was exceptional in so many ways, always teaching us there are no limits to finding ways to offer your time and, your love. Human potential is limitless.
In the choreographed dance series, they looked at potential energy, electrical energy and emotional energy. (If one has ever been depressed -- and who hasn't? -- you know that emotion requires energy. For me there is always a wind-up when someone asks, "How are you doing?" I have to muster enough energy to say "great," and sound like I mean it. And in time, I come to believe it. I own it. I create it. I believe that's what our Christy did.

At the same time, she managed to never whine, or live defeated. She reported the facts and put the most positive spin on it, boosting each of us, as she did herself. That's a art. An act of grand grace and artistry.

Chrisy was a shining example of human potential despite great adversity. I seek to be like her in that regard. With the most delightful injection of humor that helped put others in a happy mood. I KNOW what you give is returned to you. So all the goodness she offered ended up involving a boomerang effect that served to lighten her burden as she comforted ours.

Thank you again, Steph for sharing this with us. That smile of hers still lights up my world!

She fought with hope till the very end. That's incredibly admirable in my book. She was a trooper, and an angel on her, showing the way. And she will contiue to do that for all of us. She went out in style, with love, just as she lived her life.
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Andi BB
'95 post-meno dx Invasive LOBULAR w/9cm tumor! YIKES + 2/21 nodes. Clear mammo 10 mnths earlier. Mastec/tram flap reconst/PORT/8 mnths chemo (4Adria/8CMF). Borderline ER/PR. Tamoxifen 2 yrs. Felt BLESSED. I could walk and talk, feed and bathe myself! I KNEW I would survive...

'98 -- multiple mets to liver. HER2+ 80%. ER/PR- Raging, highly aggressive tumors spreading fast. New PORT. 9 mnths Taxotere Fought fire w/fire! Pronounced in cautious remission 5/99. Taxotere weekly for 6 wks, 2 wks off -- for 9 mnths. TALK ABOUT GRUELING! (I believe they've altered that protocol since those days -- sure hope so!!)
+ good old Vit H wkly for 1st 3 yrs, then triple dosage ev 3 wks for 7 yrs more... The "easy" chemo, right?! Not a walk in the park, but not a freight train coming at 'ya either...

Added Herceptin Nov '98 (6 wks after FDA fast-tracked it for met bc). Stayed w/Vit H till July '08! Now I AM FREE! Humbly and eternally grateful for this life-saving drug! NED since '99 and planning on keeping it that way. To hell w/poor prognosis and nasty stats! STOPPED VIT H JULY '08...! REMAIN STABLE... Eternally grateful...Yes is a world & in this world of yes live (skillfully curled) all worlds ... (e e cummings) EVERY DAY I BEAT MY PREVIOUS RECORD FOR # OF CONSECUTIVE DAYS I'VE STAYED ALIVE. Smile KNOWING you too can be a miracle. Up to me and God now...
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