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Progression & Toxic on Taxol, dont know whats next
Guess #60 was my magic number because when I went for my onc. visit yesterday, I learned that I am progressing on the Taxol, and showing signs of Toxicity...the shortness of breath after each treatment has gotten progressively worse, and my feet are making walking a chore from the neuropathy...then, the fact that my neck nodes have doubled in the past month...not good. So received my Herceptin, and am scheduled for all scans yet again before a new treatment plan is decided. Oh, and a visit to the throat Dr, due to continued hoarseness left over from when I had pneumonia...I went from having the sultry voice of a phone sex operator to the voice fo a person sucking on helium balloons!
I do feel let down, feel like I have lost my hair 3 times for nothing in the past 2 years, but then i think hey, I did get almost 2 years out of this drug! The Dr is hoping I can get into the T DM-1 phase III trial that will be starting, but I read previous Xeloda use will probably get me the boot!. I just keep telling myself when one door shuts, or slams in my face, another will open...
Guess I am overly emotional at this latest news, still coping with my Mom having a major stroke last week which has limited her speech and movement....I keep asking..Just How big of shoulders does the guy upstairs think we have anyway????
Tomorrow is a new day, and I have to refrain from thinking that things are growing while I wait for the after effects of the last chemo to leave my body so I can gain some strength, and a new plan can begin. Keep me in your prayers...I need your strength right now.
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"Be kinder than necessary, for everyone you meet is fighting some kind of battle."
Hugs & Blessings
Sheila
Diagnosed at age 49.99999 2/21/2002 via Mammography (Calcifications)
Core Biopsy 2/22/02
L. Mastectomy 2/25/2002
Stage 1, 0.7cm IDC, Node Neg from 19 nodes Her2+++ ER PR Neg
6/2003 Reconstruction W/ Tissue Expander, Silicone Implant
9/2003 Stage IV with Mets to Supraclavicular nodes
9/2003 Began Herceptin every 3 weeks
3/2006 Xeloda 2500mg/Herceptin for recurrence to neck nodes
3/2007 Added back the Xeloda with Herceptin for continued mets to nodes
5/2007 Taken Off Xeloda, no longer working
6/14/07 Taxol/Herceptin/Avastin
3/26 - 5/28/08 Taxol Holiday Whopeeeeeeeee
5/29 2008 Back on Taxol w Herceptin q 2 weeks
4/2009 Progression on Taxol & Paralyzed L Vocal Cord from Nodes Pressing on Nerve
5/2009 Begin Rx with Navelbine/Herceptin
11/09 Progression on Navelbine
Fought for and started Tykerb/Herceptin...nodes are melting!!!!!
2/2010 Back to Avastin/Herceptin
5/2010 Switched to Metronomic Chemo with Herceptin...Cytoxan and Methotrexate
Pericardial Window Surgery to Drain Pericardial Effusion
7/2010 Back to walking a mile a day...YEAH!!!!
9/2010 Nodes are back with a vengence in neck
Qualified for TDM-1 EAP
10/6/10 Begin my miracle drug, TDM-1
Mixed response, shrinking internal nodes, progression skin mets after 3 treatments
12/6/10 Started Halaven (Eribulen) /Herceptin excellent results in 2 treatments
2/2011 I CELEBRATE my 9 YEAR MARK!!!!!!!!!!!!!
7/5/11 begin Gemzar /Herceptin for node progression
2/8/2012 Gemzar stopped, Continue Herceptin
2/20/2012 Begin Tomo Radiation to Neck Nodes
2/21/2012 I CELEBRATE 10 YEARS
5/12/2012 BeganTaxotere/ Herceptin is my next miracle for new node progression
6/28/12 Stopped Taxotere due to pregression, Started Perjeta/Herceptin
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