HonCode

Go Back   HER2 Support Group Forums > her2group
Register Gallery FAQ Members List Calendar Today's Posts

Reply
 
Thread Tools Display Modes
Old 07-17-2007, 02:11 PM   #1
SoCalGal
Senior Member
 
SoCalGal's Avatar
 
Join Date: Apr 2007
Location: LA LA Land
Posts: 1,607
"I AM EVERY WOMAN" from my journal today

I AM EVERY WOMAN

I am every woman with stage-four breast cancer. I am every tear ever shed. I am every pain, every fear, every test, every scan.

I am every unpredictable tumor marker. Rising to diminish hope. Sinking to diminish fear.

I am every feeling of despair, of fear, of loneliness, of isolation, of shame and of worry. I am every woman longing for her breasts, grateful for how they nourished her children and satisfied her lovers. I am every woman mourning their loss. I am that empty space; I am every missing breast. I am every lopsided shirt, every uncomfortable bra, every prosthetic, every implant, every insert, and every effort to camouflage and fill in the void. I am every reconstructed nipple trying to match what only God could make.

I am every child who has watched their mother fighting for her life. I am every child who has lost their mother to the fight.

I am every hair, floating from its scalp, falling in clumps, in tufts, in long winding tattle-tails until nothing is left but a newborn’s head.

I am every woman’s broken heart as she stands in front of the mirror;
Pale from chemo, Breast-less and bald, Naked and vulnerable, TRYING to be a warrior.

I am every woman as she puts on her warrior paint. I am every hand-drawn eyebrow, every glued-on eyelash, every pot of blush, every wig, every scarf, every turban, every cap, and every hat. I am every woman warrior, painted bravely for battle.

I am every woman with stage-four (metastatic-shhhh!) Breast cancer
Trying to sleep at night, trying to find comfort and safety and hope.

I am stage-four (metastatic-shhhh!) breast cancer.
Dividing for NO reason or for too much? estrogen, progesterone, sugar, stress…OR genetic damage, Or not enough? Antioxidants, amino acids, omega 3’s, omega 6’s, melatonin, vitamin d, vitamin e, vitamin a, vitamin b, vitamin c, green tea, red tea, black tea…

I am every woman with METS to her lungs, her sternum, her bones, her lymph nodes, her spine, her liver, her kidney, her skin, her brain, her body, her heart (BUT NOT HER SPIRIT).

I am every woman with Stage-Four Metastatic Shhhh! Breast cancer to her life. Mets to her family, her friends and her lovers.

I am every woman with STAGE FOUR metastatic breast cancer (out loud), desperately awaiting a cure. Wishing and hoping and praying and begging and fighting and fighting and fighting.

I AM EVERY WOMAN WITH STAGE 4 (of 4) METASTATIC BREAST CANCER (LOUD). Running for a cure, walking for a cure, painting for a cure, writing for a cure, researching and networking, and donating, and praying and hoping and fighting and fighting and fighting and fighting for a cure. I am every woman, demanding a cure. I am every woman, with stage-four metastatic breast cancer, DEMANDING A CURE.

SoCalGal
July 17, 2007
Round #1 – Day 1
Carboplatin/Gemzar/Tykerb

Last edited by SoCalGal; 10-19-2011 at 10:05 AM..
SoCalGal is offline   Reply With Quote
Old 07-17-2007, 03:06 PM   #2
R.B.
Senior Member
 
Join Date: Mar 2006
Posts: 1,843
OUCH !.

Beautifully written, honest, brave and heart wrenching.

It raises a whole subtext about life, how we spend it, how we treat each other, how we threat the planet. what is important, how we see ourselves....

Thank you for being so open honest and brave enough to put a window into your core and vulnerabilities and remind us all we are "just" human.

I wish you full on remission.


RB
R.B. is offline   Reply With Quote
Old 07-17-2007, 03:24 PM   #3
Gerri
Senior Member
 
Gerri's Avatar
 
Join Date: Oct 2006
Location: Southern California
Posts: 900
Flori,

I am sitting here with chills and tears. What a heart wrenching, yet beautiful tribute to all of you who are fighting against the odds. I am cheering for you. You will prevail!
__________________
Gerri
Dx: 11/23/05, Lumpectomy 12/12/05
Tumor 2.2 cm, Stage II, Grade 3, Sentinel Node biopsy negative
ER+ (30%) /PR+ (50%), HER2+++
AC X 4 dose dense, Taxol X 4 dose dense
Herceptin started with 2nd Taxol, given weekly until chemo done
then given every 3 weeks for one year ending on March 16, 2007
Radiation 30 treatments
Tamoxifen - 2 yrs (pre-menopausal)
May 2008 - Feb 2012 Femara
Aug 2008 - Feb 2012 Zometa every 6 months
March 2012 - Stop Femara, now Evista for bone strengthening
**********
Enjoy the little things, for one day you may look
back and realize they were the big things.
- Robert Brault
Gerri is offline   Reply With Quote
Old 07-17-2007, 04:55 PM   #4
StillHere
Senior Member
 
StillHere's Avatar
 
Join Date: Mar 2007
Location: Greendale, WI just outside Milwaukee
Posts: 211
May I pass this on?

Flori, your narrative was excellent!!!! I would love to pass your poem on to fellow sisters in this crazy fight. It really says it all. Do we have your permission to share your beautifully honest prose with others? Peace Karen Schneck
__________________
04/05 Onset 49, DCIS, solid, Hist 2/3, Nucl 2/3, 7cm R Brst
04/05 E & P + HER2+++
05/05 Mediport
05/05 Cytoxan & Adriamycin every 3wk x4
08/05 Taxol every 2wk x 4, Herceptin every wk x1yr
10/05 Bilat Mast - my Choice
10/05 3/19 lymph nodes Pos, Stage IIIa
11/05 Rad x 37 Rx, R Brst & Axcilla
02/06 Herceptin stopped (L vent HF 40)
03/06 Started & Stoped Arimidex after 2 mos.-QOL side effects
05/06 Started Tamoxafin
06/06 Bilat Free Flap Reconstruction
12/06 Cardiomyopathy reversed-HF normal
01/07 Bilat Saline Implants
07/07 CA 27-29 steadily rising from 28 in 12/06 to 46 in 7/07
07/07 PET Scan NED, but inflamation at prev surg site.
09/07 Started Femara
10/07 CA 27-29 down to 39
06/08 CA 27-29 down to 32
09/08 Lg joint pain & QOL side effects from Femara, will live w/ to keep CA markers within normal range.
StillHere is offline   Reply With Quote
Old 07-17-2007, 04:59 PM   #5
lilyecuadorian
Senior Member
 
Join Date: Mar 2007
Location: CHARLOTTE NC USA Home town (ECUADOR) South America
Posts: 542
just pull out tear from my eyes ...is what I' felling thank you for put out on this
__________________
Lily
Diag April/06 5 months after give birth my son Max
stage IV mets on liver (5 tumors) 38 year old,
her2+++ and ER+PR+ from32 nodes 4 positives
mastectomy right breast chemo before surgery herceptin/carboplatin/taxotere ,clear and surgery have radiation 20, `& then herceptin and tamoxifen
NED until Aug/07 body only then 'n June 04-06-07 .1 lesion of 1.6 cm on cerebellum ...novalis ,open sugery
5m.m brain met again novalis, 4mm.In the liver. Waiting 2 months now 3 tumors enroll on T-MCC trial start first infusion Nov 5/07 at Dec 17 scan show one tumor despair the 2nd and 3th diminish Doc said great results until March/08 ct scan show progression
03-05-08 start tykerb & xeloda
lilyecuadorian is offline   Reply With Quote
Old 07-17-2007, 06:03 PM   #6
tousled1
Senior Member
 
tousled1's Avatar
 
Join Date: Feb 2006
Location: Acworth, GA
Posts: 2,104
Flori,

So beautifully written! You managed to capture everything. It brought tears to my eyes. I am only recently stage IV and my prayer is that no other women will advance to this stage.
__________________
Kate
Stage IIIC Diagnosed Oct 25, 2005 (age 58)
ER/PR-, HER2+++, grade 3, Ploidy/DNA index: Aneuploid/1.61, S-phase: 24.2%
Neoadjunct chemo: 4 A/C; 4 Taxatore
Bilateral mastectomy June 8, 2006
14 of 26 nodes positive
Herceptin June 22, 2006 - April 20, 2007
Radiation (X35) July 24-September 11, 2006
BRCA1/BRCA2 negative
Stage IV lung mets July 13, 2007 - TCH
Single brain met - August 6, 2007 -CyberKnife
Oct 2007 - clear brain MRI and lung mets shrinking.
March 2008 lung met progression, brain still clear - begin Tykerb/Xeloda/Ixempra
tousled1 is offline   Reply With Quote
Old 07-17-2007, 10:44 PM   #7
StephN
Senior Member
 
StephN's Avatar
 
Join Date: Nov 2004
Location: Misty woods of WA State
Posts: 4,128
Wink A sort of mantra ...

Dear Flori -
Your thoughts were so beautifully set down. I see that you started a new treatment today. I am one who feels that we need to get ourselves into a certain frame of mind, heart and soul in order to set our bodies to work with the drugs. Perhaps this is wishful thinking, but I still feel it is important to spend some quality time with oneself and the drugs.

I have said more than once here that getting up both the physical and psychic energy for a new round is one of the most difficult things a person should never have to do. But some of us find ourselves at that point face to face with a new challenge. We manage to rise to the occasion, and you have set down a wonderful formula for obtaining this state.

Wishing you sure and swift success this next go round.
__________________
"When I hear music, I fear no danger. I am invulnerable. I see no foe. I am related to the earliest times, and to the latest." H.D. Thoreau
Live in the moment.

MY STORY SO FAR ~~~~
Found suspicious lump 9/2000
Lumpectomy, then node dissection and port placement
Stage IIB, 8 pos nodes of 18, Grade 3, ER & PR -
Adriamycin 12 weekly, taxotere 4 rounds
36 rads - very little burning
3 mos after rads liver full of tumors, Stage IV Jan 2002, one spot on sternum
Weekly Taxol, Navelbine, Herceptin for 27 rounds to NED!
2003 & 2004 no active disease - 3 weekly Herceptin + Zometa
Jan 2005 two mets to brain - Gamma Knife on Jan 18
All clear until treated cerebellum spot showing activity on Jan 2006 brain MRI & brain PET
Brain surgery on Feb 9, 2006 - no cancer, 100% radiation necrosis - tumor was still dying
Continue as NED while on Herceptin & quarterly Zometa
Fall-2006 - off Zometa - watching one small brain spot (scar?)
2007 - spot/scar in brain stable - finished anticoagulation therapy for clot along my port-a-catheter - 3 angioplasties to unblock vena cava
2008 - Brain and body still NED! Port removed and scans in Dec.
Dec 2008 - stop Herceptin - Vaccine Trial at U of W begun in Oct. of 2011
STILL NED everywhere in Feb 2014 - on wing & prayer
7/14 - Started twice yearly Zometa for my bones
Jan. 2015 checkup still shows NED
2015 Neuropathy in feet - otherwise all OK - still NED.
Same news for 2016 and all of 2017.
Nov of 2017 - had small skin cancer removed from my face. Will have Zometa end of Jan. 2018.
StephN is offline   Reply With Quote
Old 07-18-2007, 05:35 AM   #8
Believe51
Senior Member
 
Believe51's Avatar
 
Join Date: Jun 2007
Location: RHODE ISLAND (Ed getting me a latte on 2nd Cancerversary Cruise 2008) 'BELIEVE': To accept as true or real, To have faith in, To presume ALWAYS BELIEVE
Posts: 2,999
Arrow Dear Flori

You are so beautiful and I love you for it; you could have not said it any better!! As I watch my husband fight this battle with all of his might I pray not only for him to conquer. I pray for all of our stage IV friends to have the courage and to find the peace to battle each day as it comes. I cried so hard this morning reading inside of your soul as it was so cleansing for me. I thanked you (outloud!!! LOL) that you have let us into your heart as never before.

I wish for you to know that today I feel closer to you and my friends. With each passing day I yearn for a cure as bad as anyone else. Thank you for giving me, the caregiver, the courage and the peace to help My Knight Warrior with his stage IV mets (shhhhh!) to the spine and skull and bones and brain.

I too DEMAND A CURE!!! I demand a MIRACLE!! For him, for you, for our stage IV friends, for the women who are not, for the women who will be and for all the men who are out there, knowing or not knowing!! I too demand it for ALL!!

You are always included in our prayers today and as always. And Flori....

I DO NOW AND ALWAYS WILL STILL..... BELIEVE

Waiting For A Miracle...and DEMANDING one soon..(I BEG!!)..>Believe51
__________________
9/7/06Husband 50yrs=StageIV IBC/HER2+,BoneMets10/06TaxotereX10,'H'1X wk,Zometa,Tamoxifen4/12/07Last Tax5/18/07Pet=Rapid Cell Activity,No Organ Mets,Lytic Lesions,Degeneration,Some Bone Repair5/07ChemoFail6/01/07Pleural Thoracentisis=Effusions,NoMalignantCells6/19/07+7/2/07DFCI
6/25/07BrainMRI=BrainMets,Many<9mm7/10/07WBR/PelvisRad37.5Gx15&Nutritionist8/19/07T/X9/20/07BrainMRI=2<2mm10/6/07Pet=BoneProgression
10/24/07ChemoFail11/9/07A/Cx10,EndTam12/7/07Faslodex12/10/07Muga7512/13/07BlasticLesions1/7/08BrainMRI=Clear4/1/08Pet=BoneImprovement,
NoProgression,Stable4/7/08BrainPerfect5/16/08Last A/C8/26/08BrainMets=10(<9mm)9/10/08Gamma10/30/08Met=5mm12/19/08Gamma5mets5
12/22/08SpinalMets1/14/09SpinalRads2/17/09BrainMRI=NoNewMets4/20/09BoneScan5/14/09Ixempra6/1/09BrainMRI=NumerousMets6/24/09DFCIw/DrBurstein6/26/09Continue
Ixempra/Faslodex/Zometa~TM now lower7/17/09Stop Ixempra By Choice9/21/09HOSPICE10/16/09Earned His Deserved Wings And Halo=37 Month Fight w/Stage 4 IBC, Her2+++,My Hero!!
Believe51 is offline   Reply With Quote
Old 07-18-2007, 02:00 PM   #9
MJo
Senior Member
 
MJo's Avatar
 
Join Date: Apr 2006
Location: Wilmington, Del.
Posts: 1,126
You go, girl....
__________________
MJO

IDC, Stage I, Grade 2
Oncotype DX Score 32
Her2++ E+P+, Node Neg.
Lumpectomy 11/04/05 Clear Margins
3 Dose dense AC (Couldn't tolerate 4)
4 Dose dense Taxol & Herc. (Tolerated well)
36 weeks Herceptin (Could not complete one year due to decrease in MUGA score)
2 years of Arimidex, then three years of Femara
Finished Femara May 2011
MJo is offline   Reply With Quote
Old 07-18-2007, 02:49 PM   #10
chrisy
Senior Member
 
chrisy's Avatar
 
Join Date: Sep 2005
Location: Central Coast, CA
Posts: 3,207
Wow. Wow.
__________________
Chris in Scotts Valley
June 2002 extensive hi grade DCIS (pre-cancer-stage 0, clean sentinal node) Mastectomy/implant - no chemo, rads. "cured?"
9/2004 Diag: Stage IV extensive liver mets (!) ER/PR- Her2+++
10/04-3/05 Weekly Taxol/Carboplatin/Herceptin , complete response!
04/05 - 4/07 Herception every 3 wks, Continue NED
04/07 - recurrence to liver - 2 spots, starting tykerb/avastin trial
06/07 8/07 10/07 Scans show stable, continue on Tykerb/Avastin
01/08 Progression in liver
02/08 Begin (TDM1) trial
08/08 NED! It's Working! Continue on TDM1
02/09 Continue NED
02/10 Continue NED. 5/10 9/10 Scans NED 10/10 Scans NED
12/10 Scans not clear....4/11 Scans suggest progression 6/11 progression confirmed in liver
07/11 - 11/11 Herceptin/Xeloda -not working:(
12/11 Begin MM302 Phase I trial - bust:(
03/12 3rd times the charm? AKT trial

5/12 Scan shows reduction! 7/12 More reduction!!!!
8/12 Whoops...progression...trying for Perjeta/Herceptin (plus some more nasty chemo!)
9/12 Start Perjeta/Herceptin, chemo on hold due to infection/wound in leg, added on cycle 2 &3
11/12 Poops! progression in liver, Stop Perjeta/Taxo/Herc
11/12 Navelbine/Herce[ptin - try for a 3 cycles, no go.
2/13 Gemzar/Carbo/Herceptin - no go.
3/13 TACE procedure
chrisy is offline   Reply With Quote
Old 07-18-2007, 05:03 PM   #11
TSund
Senior Member
 
TSund's Avatar
 
Join Date: May 2007
Location: DFW area (TX)
Posts: 431
stunning

Flori,

Have you been published? This is so powerful.

Terri
TSund is offline   Reply With Quote
Old 07-19-2007, 08:42 AM   #12
SoCalGal
Senior Member
 
SoCalGal's Avatar
 
Join Date: Apr 2007
Location: LA LA Land
Posts: 1,607
today I am every nauseas woman

I am glad that I shared from my journal, such positive feedback. I have deep feelings of being connected to everyone on this path - being so sick makes being human pretty basic and very real, boy that clock is ticking. And...no, I've never been published.

The HARD effects hit yesterday and today I am green eggs, no ham. Taking zofran, ativan resting and praying.

Am trying to get thru my Tykerb hour right now, so I can at least eat something worth barfing. How's that for eloquence?

Peace out, ladies.

Flori
__________________
1996 cancer WTF?! 1.3 cm lumpectomy Er/Pr neg. Her2+ (20nodes NEGATIVE) did CMF + rads. NED.
2002 recurrence. Bilateral mastectomy w/TFL autologous recon. Then ACx2. Skin lymphatic rash. Taxotere w/Herceptin x4. Herceptin/Xeloda. Finally stops spreading.
2003 - Back to surgery, remove skin mets, and will have surgery one week later when pathology can confirm margins.
‘03 latisimus dorsi flap to remove skin mets. CLEAN MARGINS. Continue single agent Herceptin thru 4/04. NED.
‘04 '05 & 06 tiny recurrences - scar line. surgery to cut out. NED each time.
1/2006 Rads again, to scar line. NED.

3/07 Heartbreaking news - mets! lungs.sternum. Try Tykerb/Xeloda. Tykerb/Carbo/Gemzar. Switch Oncs.
12/07 Herceptin.Tykerb. Markers go stable.
2/8/08 gamma knife 13mm stupid brain met.
3/08 Herceptin/tykerb/avastin/zometa.
3/09 brain NED. Lungs STABLE.
4/09 attack sternum (10 daysPHOTONS.5 days ELECTRONS)
9/09 MARKERS normal!
3/10 PET/CT=manubrium intensely metabolically active but stable. NEDhead.
Wash out 5/10 for tdm1 but 6/10 CT STABLE, PET improving. Markers normal. Brain NED. Resume just Herceptin plus ZOMETA
Dec 2010 Brain NED, lungs/sternum stable. markers normal.
MAR 2011 stop Herceptin/allergy! Go back on Tykerb and switch to Xgeva.
May-Aug 2011 Tykerb Herceptin Xgeva.
Sept 2011 Tykerb, Herceptin, Zometa, Avastin.
April 2012 sketchy drug trial in NYC. 6 weeks later I’m NED!
OCT 2012 PET/CT shows a bunch of freakin’ progression. Back to LA and Herceptin.avastin.zometa.
12/20/12 add in PERJETA!
March 2013 – 5 YEARS POST continue HAPZ
APRIL 2013 - 6 yrs stage 4. "FAILED" PETscan on 4/2/13
May 2013: rePetted - improvement in lungs, left adrenal stable, right 6th rib inactive, (must be PERJETA avastin) sternum and L1 fruckin'worsen. Drop zometa. ADD Xgeva. Doc says get rads consultant for L1 and possible biopsy of L1. I say, no thanks, doc. Lets see what xgeva brings to the table first. It's summer.
June-August 2013HAPX Herceptin Avastin Perjeta xgeva.
Sept - now - on chemo hold for calming tummy we hope. Markers stable for 2 months.
Nov 2013 - Herceptin-Perjeta-Avastin-Xgeva (collageneous colitis, which explains tummy probs, added Entocort)
December '13 BRAIN MRI ned in da head.
Jan 2014: CONTINUING on HAPX…
FEB 2014 PetCT clinical “impression”: 1. newbie nodule - SUV 1.5 right apical nodule, mildly hypermetabolic “suggestive” of worsening neoplastic lesion. 2. moderate worsening of the sternum – SUV 5.6 from 3.8
3. increasing sclerosis & decreasing activity of L1 met “suggests” mild healing. (SUV 9.4 v 12.1 in May ‘13)
4. scattered lung nodules, up to 5mm in size = stable, no increased activity
5. other small scattered sclerotic lesions, one in right iliac and one in thoracic vertebral body similar in appearance to L1 without PET activity and not clearly pathologic
APRIL 2014 - 6 YRS POST GAMMA ZAP, 7 YRS MBC & 18 YEARS FROM ORIGINAL DX!
October 2014: hold avastin, continue HPX
Feb 2015 Cancer you lost. NEDHEAD 7 years post gamma zap miracle, 8 years ST4, +19 yrs original diagnosis.
Continue HPX. Adding back Avastin
Nov 2015 pet/ct is mixed result. L1 SUV is worse. Continue Herceptin/avastin/xgeva. Might revisit Perjeta for L1. Meantime going for rads consult for L1
December 2015 - brain stable. Continue Herceptin, Perjeta, Avastin and xgeva.
Jan 2016: 5 days, 20 grays, Rads to L1 and continue on HAPX. I’m trying to "save" TDM1 for next line. Hope the rads work to quiet L1. Sciatic pain extraordinaire :((
Markers drop post rads.
2/24/16 HAP plus X - markers are down
SCIATIC PAIN DEAL BREAKER.
3/23/16 Laminectomy w/coflex implant L4/5. NO MORE SCIATIC PAIN!!! Healing.
APRIL 2016 - 9 YRS MBC
July 2016 - continue HAP plus Xgeva.
DEC 2016 - PETCT: mets to sternum, lungs, L1 still about the same in size and PET activity. Markers not bad. Not making changes if I don't need to. Herceptin/Perjeta/Avastin/Xgeva
APRIL 2017 10 YEARS MBC
December 2017 - Progression - gonna switch it up
FEB 2018 - Kadcyla 3 cycles ---->progression :(
MAY30th - bronchoscopy, w/foundation1 - her2 enriched
Aug 27, 2018 - start clinical trial ZW25
JAN 2019 - ZW25 seems to be keeping me stable
APRIL 2019 - ONE DOZEN YEARS LIVING METASTATIC
MAY 2019 - progression back on herceptin add xeloda
JUNE 2019 - "6 mos average survival" LMD & CNS new single brain met - one zap during 5 days true beam SBRT to cord met
10/30/19 - stable brain and cord. progression lungs and bones. washing out. applying for ds8201a w nivolumab. hope they take me.
12/27/19 - begin ds8401a w nivolumab. after 2nd cycle nodes melt away. after 3rd cycle chest scan shows Improvement, brain MRI shows improvement, resolved areas & nothing new. switch to plain ENHERTU. after 4th cycle, PETscan shows mostly resolved or improved results. Markers near normal. I'm stunned but grateful.
10/26/20 - June 2021 Tucatinib/xeloda/herceptin - stable ish.
SoCalGal is offline   Reply With Quote
Old 07-19-2007, 08:27 PM   #13
Vanessa
Senior Member
 
Vanessa's Avatar
 
Join Date: Sep 2006
Location: Houston, Texas
Posts: 624
Thank you for sharing such a beautiful and heartfelt poem. I am also hoping that you are able to eat something and keep it down. Take care.
Vanessa is offline   Reply With Quote
Old 08-17-2007, 08:29 AM   #14
tousled1
Senior Member
 
tousled1's Avatar
 
Join Date: Feb 2006
Location: Acworth, GA
Posts: 2,104
Bringing Back UP

I was thinking about this post today and how much it moved me when Flori first posted it. I just wanted to bring this back up to the front for those who may have missed it.
__________________
Kate
Stage IIIC Diagnosed Oct 25, 2005 (age 58)
ER/PR-, HER2+++, grade 3, Ploidy/DNA index: Aneuploid/1.61, S-phase: 24.2%
Neoadjunct chemo: 4 A/C; 4 Taxatore
Bilateral mastectomy June 8, 2006
14 of 26 nodes positive
Herceptin June 22, 2006 - April 20, 2007
Radiation (X35) July 24-September 11, 2006
BRCA1/BRCA2 negative
Stage IV lung mets July 13, 2007 - TCH
Single brain met - August 6, 2007 -CyberKnife
Oct 2007 - clear brain MRI and lung mets shrinking.
March 2008 lung met progression, brain still clear - begin Tykerb/Xeloda/Ixempra
tousled1 is offline   Reply With Quote
Old 08-17-2007, 12:03 PM   #15
Adriana Mangus
Senior Member
 
Join Date: May 2006
Location: California
Posts: 668
Well done

Dear Flori:

I love your poem...it brought tears to my eyes...

We all share the pain with you, I can feel it right in my heart; for all stage IV BC survivors...this can be at times a very lonely road.

Please, rest and try to keep something yummy in your tummy.

Thanks for posting.
__________________
1994 - rt brst, .lump, underarm node dissection,chemo+rad 1.2 cms, Grade 3.
28 nodes neg
Er,Pr, Positive HER2 status unknown
2003- Recur to rt lung.July 16 ( B-Day!)
Her2+++ Er,Pr, Negative
2003 - Aug04--Navelbine + Herceptin
2004- 2007--
NED - Herceptin, only
2007 Feb-April Xeloda added to hereceptin
2007-May Back on Navelbine+Herceptin
2008-Feb-Mar 15 Ses Rad to Rt. Lung
2008- Oc 17 Add Tykerb to Herceptin
2009- June-- Discont Tykerb
2009 July 7--Current Taxol + Herceptin
2009 Dec--Discontinued treatment due to progression. Looking into cyberknife.
2010-Aug Accepted to TDM1, no SE, except liver count went up.
2010-2011 September got kicked out of the trial, due to a small spot found on lung.
2011- 2012 September thru early 2013 on Herceptin
2013- March Bone density shows small spot on 5th rib.
2013 - April 4th appt with onc. will post after discussing course of treatment.
2013-March-April Cyber knife to brain and radiation to rib. Chest --base line before chemo-CT-Scan stable for lung issue. CA2729 Normal.
2013 April Herceptin- TDMI
2013 Sept Herceptin + Perjeta . CA2729 within normal range. Brain and Pet scans October 31st. will post results.
2013 October Brain MRI- mixed response. Will see Onc/rad on Halloween.
2013 October/November Brain-MRI nothing new. Repeat MRI next year in May.

2013 December Continue Herceptin and Perjeta. Stable at the moment.
2014 February Brain MRI -clear!
2014 January Added Taxotere to Perjeta+Herceptin.
2014 March Stopped chemo-chest ct-scan next.

2014- March Scans shows tumor's larger, CA2729 higher. Discontinue Herceptin.
2014 April Perjeta+ Halaven
2014 April CA2729 went down 60 points after one cycle. Cough does not want to go away.
2014 June Continue on Perjeta + Halaven-- no more cough. Stable
2014 June Back on Herceptin + abraxane
Adriana Mangus is offline   Reply With Quote
Old 08-18-2007, 08:40 PM   #16
fauxgypsy
Senior Member
 
fauxgypsy's Avatar
 
Join Date: Apr 2007
Location: Mississippi
Posts: 600
Thumbs up I needed that!

Flori, I needed that tonight. I am sitting here, mourning my right breast, still dealing with drains and stiffness, and loss. Still not knowing what stage I am, thankful for all the negative results of all the tests that have been done lately but afraid to rejoice too freely. Trying to be strong but crying often. Your words touch me and inspire me. Thank you.

Leslie

In the world of destiny, there are no statistics.
fauxgypsy is offline   Reply With Quote
Old 08-18-2007, 09:33 PM   #17
BonnieR
Senior Member
 
BonnieR's Avatar
 
Join Date: Jun 2007
Posts: 2,210
Let me add my gratitude for this heartfelt and powerful piece of writing.....
__________________
Bonnie

Post menopause
May 2007 Core biopsy, Rt breast
ER+, Pr-, HER2 +++, Grade 3
Ki-67: 90%
"suspicious area" left breast
Bilateral mastectomy, (NED on left) May 2007
Sentinel Node Neg
Stage 1, DCIS with microinvasion, 3 mm, mostly removed during the biopsy....
Femara (discontinued 7/07) Resumed 10/07
OncoType score 36 (July 07)
Began THC 7/26/07 (d/c taxol and carboplatin 10/07)
Began Herceptin alone 10/07
Finished Herceptin July /08
D/C Femara 4/10 (joint pain/trigger thumb!)
5/10 mistakenly dx with lung cancer. Middle rt lobe removed!
Aromasin started 5/10
BonnieR is offline   Reply With Quote
Old 08-21-2007, 01:25 PM   #18
harrie
Senior Member
 
harrie's Avatar
 
Join Date: Mar 2007
Location: Hilo, Hawaii
Posts: 1,867
Beautifully written. I feel like you put together all the pieces of my life for the past year.
Thank you for sharing it with all of us.
Maryanne
__________________
*** MARYANNE *** aka HARRIECANARIE

1993: right side DCIS, lumpectomy, rads
1999: left side DCIS, lumpectomy, rads, tamoxifen

2006:
BRCA 2 positive
Stage I, invasive DCIS (6mm x 5mm)
Grade: intermediate
sentinal node biopsy: neg
HER2/neu amplified 4.7
ER+/PR+
TOPO II neg
Oncotype dx 20
Bilat mastectomy with DIEP flap reconstruction
oophorectomy

2007:
6 cycles TCH (taxotere, carboplatin, herceptin)
finished 1 yr herceptin 05/07
Arimidex, stopped after almost 1 yr
Femara
harrie is offline   Reply With Quote
Old 12-24-2007, 12:09 PM   #19
tousled1
Senior Member
 
tousled1's Avatar
 
Join Date: Feb 2006
Location: Acworth, GA
Posts: 2,104
I just had to bump this post up. It is so though provoking and not only for us who are Stage IV but for every woman who has breast cancer. We must demand a cure!
__________________
Kate
Stage IIIC Diagnosed Oct 25, 2005 (age 58)
ER/PR-, HER2+++, grade 3, Ploidy/DNA index: Aneuploid/1.61, S-phase: 24.2%
Neoadjunct chemo: 4 A/C; 4 Taxatore
Bilateral mastectomy June 8, 2006
14 of 26 nodes positive
Herceptin June 22, 2006 - April 20, 2007
Radiation (X35) July 24-September 11, 2006
BRCA1/BRCA2 negative
Stage IV lung mets July 13, 2007 - TCH
Single brain met - August 6, 2007 -CyberKnife
Oct 2007 - clear brain MRI and lung mets shrinking.
March 2008 lung met progression, brain still clear - begin Tykerb/Xeloda/Ixempra
tousled1 is offline   Reply With Quote
Old 12-24-2007, 04:12 PM   #20
PinkGirl
Senior Member
 
PinkGirl's Avatar
 
Join Date: Jul 2007
Location: Canada
Posts: 2,193
Smile

Flori,

Wow ... that was beautifully written. You
covered it all. Attachment 214


I agree, you may as well eat something
really good if you're going to barf....make
it deserving.
__________________
PinkGirl

Dx Aug/05 at age 51
2cm. Stage 2A, Grade 3
ER+/PR-
Her2 +++

Sept 7/05 Mastectomy
4 FAC, 4 Taxol, no radiation
1 year of Herceptin
Tamoxifen for approx. 4 months,
Arimidex for 5 years
Prophylactic mastectomy June 22/09



" I yam what I yam." - Popeye

My Photo Album

Last edited by PinkGirl; 03-29-2008 at 07:32 AM..
PinkGirl is offline   Reply With Quote
Reply


Posting Rules
You may not post new threads
You may not post replies
You may not post attachments
You may not edit your posts

BB code is On
Smilies are On
[IMG] code is On
HTML code is Off

Forum Jump


All times are GMT -7. The time now is 08:47 PM.


Powered by vBulletin® Version 3.8.7
Copyright ©2000 - 2024, vBulletin Solutions, Inc.
Copyright HER2 Support Group 2007 - 2021
free webpage hit counter