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Old 11-18-2009, 03:42 PM   #1
tdonnelly
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Join Date: Jul 2007
Location: BridgeView IL
Posts: 116
War Vet of HER2+ BC

I learned this week:

I have reached my capacity for All Nuclear Meds, Radiation etc due to Hper/Hypo Thyrd Disease (Hurtle Cell) no more Herceptin either.

My treatments caused Severe Calcium Deficiency, Damage to my Spine (bone Density - -0.9) Cant stomach D3 or Calcium Tablets either with Levothyroxine 125 mcg as it is causes ongoing unresolved nauseau....Prilosec didnt help either. The Cancer is Back....... Still recouping from Gastrograffin 30 ml...What a disgusting Mess to protect our Intestines for Pelvic/Abdomn Scan which I couldnt have anyway. Kidneys too Distressed - Urine 3x tested; questionable.
I had second Bone Scan and another inject. of Nuclear Meds at Lakeland Hos.-Elkhorn-Vince Lombardi.

Hanging tough thanks to all my friends here......
Relocating to State of Illinois soon...

SSI Disability/BC - Bageov./Nash Law/Medicare thanks to our New President...........only took 3 years but am grateful.

To All a Blessed Thanksgiving. I think I understand how our Angels died........all our treatments and addt. followup is way too Much for our Bodies..........

Love
Tami
__________________
Tamara Donnelly
Invasive Ductal Carcinoma 10/2006 HER2+
Lumpectomy
Adriamycin x 4/Cytoxin x 4/Taxol x 4
Herceptin x 17
Radiation: 5 1/2 weeks
Second Reoccurrance: August 2010
Right Breast Masectomy
12 doses of Taxol
1 yr of Herceptin
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Old 11-18-2009, 06:30 PM   #2
vlcarr
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Posts: 343
Re: War Vet of HER2+ BC

I just wanted you to know that I'm so sorry you are going through this. This cancer just sucks!

Don't give up and know we are rooting for you.

Sending you a big hug
__________________
Vicky
Age 47, TN, Diagnosed 05/09
Her2+, ER/PR-, Stage III, 2 tumors = 1 8cm tumor
Grade 3
Sentinel Node Biopsy-speck present in 1 node
Completed 3 month clinical trial of weekly Herceptin and 1000mg Tykerb daily
Tumor no longer present
Right mastectomy and lymph node removal 09/25/09
No cancer present at time of surgery, none in lymph nodes
Start TCH 10/15, every 3 weeks for 4 months followed by radiation
Finished chemo 01/28/10-YEAH!
Herceptin every 3 wks until end of June
Radiation begins 03/01, 6 1/2 weeks
Radiation complete--Yeah!!
Developed lymphedema after radiation
In hospital for 4 days with pneumonia:(
Herceptin done! 06/24/10
Port Removed 07/08/10
Still in PT for lymphedema and mobility issues
DIEP Reconstruction 05/11
I can be changed by what happens to me, but I refuse to be reduced by it~~Maya Angelou
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Old 11-18-2009, 08:42 PM   #3
Laurel
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Re: War Vet of HER2+ BC

Tami,

You sound so war weary. I am terribly sorry you are suffering and feeling so battered and bruised. All I can offer you is my heartfelt prayers that tomorrow will dawn brighter and with refreshed spirit to wage war one more day.
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Smile On!
Laurel


Dx'd w/multifocal DCIS/IDS 3/08
7mm invasive component
Partial mast. 5/08
Stage 1b, ER 80%, PR 90%, HER-2 6.9 on FISH
0/5 nodes
4 AC, 4 TH finished 9/08
Herceptin every 3 weeks. Finished 7/09
Tamoxifen 10/08. Switched to Femara 8/09
Bilat SPM w/reconstruction 10/08
Clinical Trial w/Clondronate 12/08
Stopped Clondronate--too hard on my gizzard!
Switched back to Tamoxifen due to tendon pain from Femara

15 Years NED
I think I just might hang around awhile....

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Old 11-20-2009, 06:00 PM   #4
suzan w
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Re: War Vet of HER2+ BC

has anyone suggested Forteo for bone improvement?
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Suzan W.
age 54 at diagnosis
5/05 suspicious mammogram-left breast
5/05 biopsy-invasive lobular carcinoma with LCIS,8mm tumor,stage 1 grade 2, ER+ PR+ Her2+++
6/14/05 bilateral mastectomy, node neg. all scans neg.
Oncotype DX-high risk
8/05-10/05 4 rounds A/C
10/05 -10/06 1 yr. herceptin
arimidex-5 years
2/14/08 started daily self administered injections..FORTEO for severe osteoporosis
7/28/09 BRCA 1 negative BRCA2 POSITIVE
8/17/09 prophylactic salpingo-oophorectomy
10/15/10 last FORTEOinjection
RECLAST infusion(ostoeporosis)
6/14/10 5 year cancerversary!
8/2010-18%increase in bone density!
no further treatments
Oncologist says, "Go do the Happy Dance"
I say,"What a long strange trip its been"
'One day at a time'
6-14-2015. 10 YEAR CANCERVERSARY!
7-16 to 9-16. Extensive (and expensive) dental work done to save teeth. Damage from osteoporosis and chemo and long term bisphosphonate use
6-14-16. 11 YEAR CANCERVERSARY!!
7-20-16 Prolia injection for severe osteoporosis
2 days later, massive hive outbreak. This led to an eventual dx of Chronic Ideopathic Urticaria, an auto-immune disease from HELL.
6-14-17 12 YEAR CANCERVERSARY!!
still suffering from CIU. 4 hospitilizations in the past year

as of today, 10-31-17 in remission from CIU and still, CANCER FREE!!!
6-14-18 13 YEAR CANCERVERSARY!! NED!!
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Old 11-21-2009, 08:03 PM   #5
tdonnelly
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Location: BridgeView IL
Posts: 116
Re: War Vet of HER2+ BC

Dont be sorry, we all face the daily challenges of this disease. I am not in physical pain and will rejoin medical staff at Christ Advocate/Oak Lawn IL to discuss Bone Defiency and all the rest.

Currently stuck in WI PLAY TO PAY STATE
JANESVILLE OFFICE WONT PROVIDE WRITTEN PERMISSION TO RETURN TO ILLINOIS WHAT A POWER PLAY.

WEARY YES LIKE THE REST HERE, BUT NOT A QUITER. HOW IS JOY DOING? HERE IN WI I CHECKED IN JUST TO WATCH HER PROGRESS. LOCKED OFF FACEBOOK DUE TO BAGEOVICH TRIAL SO CONTACT IS HERE OR PRIVATE EMAIL.

TAKE CARE FRIENDS.
TAMI

CAROL/RUTH ORLAND PARK
YOUR MOM TO HAD BC HOW IS SHE. KEEP IN TOUCH.
SAY HI TO THE KIDS.
__________________
Tamara Donnelly
Invasive Ductal Carcinoma 10/2006 HER2+
Lumpectomy
Adriamycin x 4/Cytoxin x 4/Taxol x 4
Herceptin x 17
Radiation: 5 1/2 weeks
Second Reoccurrance: August 2010
Right Breast Masectomy
12 doses of Taxol
1 yr of Herceptin
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Old 11-21-2009, 09:10 PM   #6
ElaineM
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Wink Re: War Vet of HER2+ BC

Take good care of yourself.
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Peace,
ElaineM
12 years and counting
http://her2support.org/vbulletin/showthread.php?t=48247
Lucky 13 !! I hope so !!!!!!
http://her2support.org/vbulletin/showthread.php?t=52807
14 Year Survivor
http://her2support.org/vbulletin/showthread.php?t=57053
"You never know how strong you are until being strong is the only choice you have." author unknown
Shared by a multiple myeloma survivor.
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Old 11-21-2009, 09:39 PM   #7
Jackie07
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Re: War Vet of HER2+ BC

Keep us updated.
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http://www.kevinmd.com/blog/2011/06/doctors-letter-patient-newly-diagnosed-cancer.html
http://www.asco.org/ASCOv2/MultiMedi...=114&trackID=2

NICU 4.4 LB
Erythema Nodosum 85
Life-long Central Neurocytoma 4x5x6.5 cm 23 hrs 62090 semi-coma 10 d PT OT ST 30 d
3 Infertility tmts 99 > 3 u. fibroids > Pills
CN 3 GKRS 52301
IDC 1.2 cm Her2 +++ ER 5% R. Lmptmy SLNB+1 71703 6 FEC 33 R Tamoxifen
Recc IIB 2.5 cm Bi-L Mast 61407 2/9 nds PET
6 TCH Cellulitis - Lymphedema - compression sleeve & glove
H w x 4 MUGA 51 D, J 49 M
Diastasis recti
Tamoxifen B. scan
Irrtbl bowel 1'09
Colonoscopy 313
BRCA1 V1247I
hptc hemangioma
Vertigo
GI - > yogurt
hysterectomy/oophorectomy 011410
Exemestane 25 mg tab 102912 ~ 101016 stopped due to r. hip/l.thigh pain after long walk
DEXA 1/13
1-2016 lesions in liver largest 9mm & 1.3 cm onco. says not cancer.
3-11 Appendectomy - visually O.K., a lot of puss. Final path result - not cancer.
Start Vitamin D3 and Calcium supplement (600mg x2)
10-10 Stopped Exemestane due to r. hip/l.thigh pain OKed by Onco 11-08-2016
7-23-2018 9 mm groundglass nodule within the right lower lobe with indolent behavior. Due to possible adenocarcinoma, Recommend annual surveilence.
7-10-2019 CT to check lung nodule.
1-10-2020 8mm stable nodule on R Lung, two 6mm new ones on L Lung, a possible lymph node involvement in inter fissule.
"I WANT TO BE AN OUTRAGEOUS OLD WOMAN WHO NEVER GETS CALLED AN OLD LADY. I WANT TO GET SHARP EDGED & EARTH COLORED, TILL I FADE AWAY FROM PURE JOY." Irene from Tampa

Advocacy is a passion .. not a pastime - Joe
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Old 11-22-2009, 05:44 PM   #8
tdonnelly
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Join Date: Jul 2007
Location: BridgeView IL
Posts: 116
Re: War Vet of HER2+ BC

RE: Payee Rep for BC

10/06 spent 17 unnecessary days at Tinley Park Mental Health Center as I cancelled my first surgery. Had to face a court hearing.............

Finally received SSI however I am now labled as a Mentally Unstable Person had to have my Sister assigned to all Accounting etc.

I went to SSI office for Breast Cancer. I will see to it that Nash Law of Chicago removes that Slanderous Lie.

I had to call the Delevan Police Dept. as my Rep Payee again Slander/Abuse/Neglect, locked down my funds due to my choice to return to Illinois to live with my children. My right to decide to reassign new Rep Payee-daughter. This SSI/Janesville Rep assigned to me refuses to return my calls or write written permission needed to return to State of Illinois. And Nash Law-left vm, 2 emails, 2 flat rate boxes regarding relocate no calls returned just voice mail $7,000.00 for this. The bank: First Bank/Walworth has 14,000.00 in a no interest checking account???

I share this personal circumstance to assist others who have a similar situation: Breast Cancer Abuse big time.

Our new president will be getting another letter soon so this power play never happens to anyone ever again. I am at a Super 8/Delevan waiting to return to IL. Being locked out of my room at 11 am, no money for dinner or phone calls, personal needs. Hopefully the officer who I filed the report with will follow through and go to her home as her phone is off the hook, called her last night had to hang up due to disrespect again. My attorneys didnt want her assigned due to last abuse having me committed not ready mentally for Surgery...........

Take Care All. Write to all congress in Washington for Responsible SSI/Medicare-Rep Payee Program.

Tami
__________________
Tamara Donnelly
Invasive Ductal Carcinoma 10/2006 HER2+
Lumpectomy
Adriamycin x 4/Cytoxin x 4/Taxol x 4
Herceptin x 17
Radiation: 5 1/2 weeks
Second Reoccurrance: August 2010
Right Breast Masectomy
12 doses of Taxol
1 yr of Herceptin
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