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Old 05-06-2011, 07:36 AM   #1
Emelie B
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Join Date: Jan 2010
Posts: 170
Mets to jaw?

Hi all,
I am wondering if any of you have experience with mets to the jaw? I have had a random pain in my left jaw for about 2 months now. Mentioned to onc and wondered if it was from Zometa. He said no, but to get a panaelipse x-ray. My family dentist reviewed it and did not see any evidence of osteonecrosis, but she wanted an oral surgeon to review it. I met with her yesterday and she did not see osteonecrosis, but she asked about the pain and said that an x-ray would not show mets unless it was quit advanced. She then asked if my lip gets numb, and it does. She said maybe a PET scan would show if it was mets. She also detailed where the met would normally be and how it would act.
So, I meet with onc. on Tues. and will ask what he thinks I should do.
Any advice or suggestions is greatly appreciated!
Stay well all,
Emelie
__________________
Nov. 2006-IDC with Her2 +++
A/C for 3 rounds
Dec. 2006- Herceptin and Taxotere
March 2007-MRM with 8 of 14 lymph node involvement
May 2007-36 Rads
Sept. 2007- Stopped Herceptin
Jan. 2010- CT scan shows enlarged lymph nodes in sternum and lung involvement
Feb. 2010-PET scan shows mets to liver, lung, lymph nodes and bone
Feb. 2010- Started Herceptin/Taxol and Zometa
April 2010-PET scan clear. Herceptin and Zometa
June 2010- Stopped Herceptin continue Zometa and still NED
August 2010-Back on Herceptin and Zometa every 3 weeks
August 13, 2010- Had another port placed
August 24, 2010- PET scan clear. Herceptin and Zometa every three weeks
Nov. 2010-PET scan clear
Feb. 2011-Brain MRI clear
March 2011- PET scan clear
May 2011- PET scan clear
Sept. 2011- PET, Mammo, Bone Scan all clear- Herceptin only
March 2012-Recurrence in lungs and tumor around pota hepatis artery. Added Navelbine to herceptin
April 2012- Entered palliative care
June 5, 2012-Entered hospice care
Planning my memorial
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