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06-20-2006, 01:38 PM
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#1
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Senior Member
Join Date: Aug 2001
Location: Oregon
Posts: 1,756
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Scans: Stable!
I had scans last week, PET/CT and MUGA, and the news is good: MUGA stable at 50.3%, and PET/CT showing minor activity in the area of concern, the right axilla, with the largest node now slightly smaller...PLUS, the left supraclavicular node not showing any activity at all! This is very good news to me, I am thrilled, especially since I'm on the smallest dose of Xeloda, 500mg 2x's daily, along with my maintenance Herceptin. Just wanted to let you all know 
<3 Lolly
P.S. Haven't had a Brain MRI yet; my regular onc is on vacation so I'll be talking to him about that when he's back next month.
Last edited by Lolly; 06-20-2006 at 01:46 PM..
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06-20-2006, 02:56 PM
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#2
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Senior Member
Join Date: Dec 2005
Location: Walnut Creek, CA
Posts: 438
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Great news, Lolly!!!
Karen
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06-20-2006, 02:57 PM
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#3
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Senior Member
Join Date: Sep 2005
Location: Naples FL
Posts: 1,744
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way to go!!!
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06-20-2006, 03:02 PM
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#4
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Senior Member
Join Date: Sep 2005
Location: Grand Rapids, MI
Posts: 1,516
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Great News Lolly!
and many more "good" tests. Take care and God bless.
Rhonda
__________________
Rhonda
Dx 2/1/05, Stage 1, 0 nodes, Grade 3, ER/PR-, HER2+ (3.16 Fish)
2/7/05, Partial Mastectomy
5/18/05 Finished 6 rounds of dose dense TEC (Taxotere, Epirubicin and Cytoxan)
8/1/05 Finished 33 rads
8/18/05 Started Herceptin, every 3 weeks for a year (last one 8/10/06)
2/1/13...8 year Cancerversary and I am "perfect" (at least where cancer is concerned;)
" And in the end, it's not the years in your life that count. It's the life in your years."- Abraham Lincoln
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06-20-2006, 03:21 PM
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#5
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Senior Member
Join Date: Sep 2005
Location: Central Valley, CA
Posts: 73
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Yeahh! Great news.
Take care,
Helen
__________________
- Diagnosed May 2005 8 months after giving birth. Stage IV due to a single liver mets.
- Carbo/Taxotere/ Herceptin combo for 6 months
- Herceptin/ Navelbine
- Recurrence on the same liver spot in 7/07
- Liver resection 9/07
- Tykerb/xeloda 10/22/07
- NED since 9/07 and continued Tykerb/xeloda
- PET/CT in May 2009 show small spot in lungs. Continued Tykerb/xeloda
- PET/CT in Aug 2009 shows progression on lung nodules (slightly bigger)
- Onc considering Taxol/avastin
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06-20-2006, 04:31 PM
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#6
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Senior Member
Join Date: Feb 2005
Location: LI, NY
Posts: 660
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Stable is sooooo very good to hear!!! Keep up the good work!!!
Maryann
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06-20-2006, 05:02 PM
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#7
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Senior Member
Join Date: Sep 2005
Location: Ontario, Canada
Posts: 752
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Lolly;
Wonderful news!! Time to celebrate...and wow what a relief.... I am happy for you.
Cathy
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06-20-2006, 05:04 PM
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#8
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Senior Member
Join Date: Sep 2005
Location: Minneapolis, Minnesota
Posts: 127
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Congrats!!!!!!!!! Keep kickin some ass! - kim
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06-20-2006, 05:17 PM
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#9
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Senior Member
Join Date: Feb 2006
Location: Acworth, GA
Posts: 2,104
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Great news! Keep fighting.
__________________
Kate
Stage IIIC Diagnosed Oct 25, 2005 (age 58)
ER/PR-, HER2+++, grade 3, Ploidy/DNA index: Aneuploid/1.61, S-phase: 24.2%
Neoadjunct chemo: 4 A/C; 4 Taxatore
Bilateral mastectomy June 8, 2006
14 of 26 nodes positive
Herceptin June 22, 2006 - April 20, 2007
Radiation (X35) July 24-September 11, 2006
BRCA1/BRCA2 negative
Stage IV lung mets July 13, 2007 - TCH
Single brain met - August 6, 2007 -CyberKnife
Oct 2007 - clear brain MRI and lung mets shrinking.
March 2008 lung met progression, brain still clear - begin Tykerb/Xeloda/Ixempra
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06-20-2006, 05:45 PM
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#10
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Senior Member
Join Date: Nov 2004
Location: Misty woods of WA State
Posts: 4,128
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Lolly -
This IS good news, especially since you are chipping away at these nodes with "small artillery" and it is having the desired effect. More of the same, please!
__________________
"When I hear music, I fear no danger. I am invulnerable. I see no foe. I am related to the earliest times, and to the latest." H.D. Thoreau
Live in the moment.
MY STORY SO FAR ~~~~
Found suspicious lump 9/2000
Lumpectomy, then node dissection and port placement
Stage IIB, 8 pos nodes of 18, Grade 3, ER & PR -
Adriamycin 12 weekly, taxotere 4 rounds
36 rads - very little burning
3 mos after rads liver full of tumors, Stage IV Jan 2002, one spot on sternum
Weekly Taxol, Navelbine, Herceptin for 27 rounds to NED!
2003 & 2004 no active disease - 3 weekly Herceptin + Zometa
Jan 2005 two mets to brain - Gamma Knife on Jan 18
All clear until treated cerebellum spot showing activity on Jan 2006 brain MRI & brain PET
Brain surgery on Feb 9, 2006 - no cancer, 100% radiation necrosis - tumor was still dying
Continue as NED while on Herceptin & quarterly Zometa
Fall-2006 - off Zometa - watching one small brain spot (scar?)
2007 - spot/scar in brain stable - finished anticoagulation therapy for clot along my port-a-catheter - 3 angioplasties to unblock vena cava
2008 - Brain and body still NED! Port removed and scans in Dec.
Dec 2008 - stop Herceptin - Vaccine Trial at U of W begun in Oct. of 2011
STILL NED everywhere in Feb 2014 - on wing & prayer
7/14 - Started twice yearly Zometa for my bones
Jan. 2015 checkup still shows NED
2015 Neuropathy in feet - otherwise all OK - still NED.
Same news for 2016 and all of 2017.
Nov of 2017 - had small skin cancer removed from my face. Will have Zometa end of Jan. 2018.
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06-23-2006, 05:38 PM
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#11
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Senior Member
Join Date: Sep 2005
Posts: 556
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Her2 serum test
Lolly,
I remember you saying that your Her2 serum score is around 12, which is in the normal range. I am wondering why is it in the normal range when you had an evidence of desease in the lymph nodes. I am also getting this test done and it is always in the normal range between 6 and 8. Now I am really suspecious whether the test is reliable for small mets.
Julie
__________________
Diagnosed in Sept 2004 while pregnant with the second child. Stage 3b, tumor 4.5cm, 4 auxillary and supraclav node positive. Her2+++ FISH 9.4 and er-,pr-.
Had dose dense neoadjuvant AC,Taxol then mastectomy,radiation+xeloda+Herceptin.
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06-23-2006, 08:48 PM
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#12
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Senior Member
Join Date: Sep 2005
Location: Mountains of Virginia
Posts: 2,267
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Wonderful news Lolly, Congrats!
Sassy
________
Carla.x
Last edited by sassy; 08-22-2011 at 08:48 AM..
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06-23-2006, 10:06 PM
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#13
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Senior Member
Join Date: Aug 2001
Location: Oregon
Posts: 1,756
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Julie2, that's a good question and I guess I'm not sure if the test is going to be accurate for me or not. When my onc agreed to the test, he said we'd run it for a few months then look at the results. I think the value of the test is in looking for a pattern. If one starts out at low numbers, then the numbers start rising, that would perhaps indicate trouble brewing and that scans were in order. In my case, my numbers started out in the high-normal range, but the last test showed a big drop:
03/28/06 - 12.7
04/25/06 - 11.5
05/24/06 - 6.8
Since I still have activity but it's considered minor and my overall condition is stable, what we'll probably be looking for if my onc decides to continue monitering me with this test is a rise in numbers, which is supposed to indicate progression.
Your numbers are in the mid-normal range, which I think is good. You have a good baseline to compare with future test results.
I look forward to seeing my oncologist when he's back from vacation, for his input on this. I'll let everyone know how that goes.
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06-24-2006, 03:09 AM
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#14
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Senior Member
Join Date: Sep 2005
Location: melbourne, australia
Posts: 267
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Very happy for you Lolly.
Christine
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06-24-2006, 05:18 AM
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#15
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Senior Member
Join Date: Sep 2005
Location: france
Posts: 1,648
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Dear Lolly,
I am so happy to hear your good news. You are so inspiring to all of us with your great attitude and your knowledgeable advice. I hope the next scan will show no activity. Will they do an MRI as well?
Good luck and all the best with your health and life.
Sarah
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