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Old 09-16-2016, 12:04 PM   #1
Andrea Barnett Budin
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My really big supplements list

Updated last March 2016 (FROM INTEGRATIVE ONCOLOGIST IN NY) -- FOR ALL THOSE WHO'VE REQUESTED THIS and can't locate where I last posted it: BE WELL, MY SISTERS !!


ESSENTIAL SUPPLEMENTS AND DAILY ADJUNCTIVE MEDS:
ALPHA LIPOIC ACID 300 AM/PM -- detoxifies liver, antioxidant, neutralizes free radicals, protects cells from damage, can cross the brain barrier, energizes, relieves muscle and joint pain, heart healthy
ARGENINE 500 X 2 AM empty stomach (sustained and immediate release) helps keep EF (ejection fraction) up , HEART HEALTHY
)B-12 (as methyl cobalamine) 1 mg lozenge -- AM for energy
B-5 Riboflavin 500 Pantothenic Acid AM good for neuropathy
B-6 (P5P50) activated B-6 bedtime -- heart healthy, assists sleeping aides
B 1 (Benfotiamine or thiamin) 300 + B 2 100 ea AM/PM energy
BIOTIN 5,000 healthy hair/nails
C 1,000 w/BIOFLAVINOIDS + Rutin (AM) -- enhances immune system, reduces recurrence of cancer
-- INCREASE C X 3 if sick w/both Echincacea w/goldenseal and Astragalus AM/PM
+ zinc lozenges X 6 -- for a week
CALCIUM 500 AM/PM -- body can only absorb 400 mg of calcium at a time. CAPSULES because calcium pills in particular are way too big
CARNITINE 500 AM/PM -- assists in gastro absorption, energizes, lowers triglycerides, relieves muscle and joint pain
CO ENZYME Q10 ( Doctor's Best UBIIQUINOL concentrated Co-Q10- 50 mg w/ Kaneka's QH) - Good for gums, heart, energy, muscle and joint pain -- AM
CHROMIUM PICCOLINATE 500 Empty stomach - metabolizes fats and carbs and lowers sugar circulating in blood
Vitamin D3 -- 10,000 AM daily -- assists organ function, healthy bones, assists organ function which declines w/age, healthy bones, blocks bc cell growth

ASK FOR Vitamins D and B to be checked in blood work


DIM-PLUS AM (Nature's Way) metabolizes estrogen, helps heart and hot flashes

E 400 WITH TOCOPHEROLS (I use Vital Nutrient brand) ( 1AM + 2 PM) -- heart healthy, helpful in oxidation in lungs, protects white and red blood cells, helps body's immune system. boosts stamina, protects from free radicals, keeps skin and tissue healthy
ECHINACEA w/GOLDENSEAL AM/PM -for 1 wk plus ASTRAGALUS 1,000 AM/PM - next wk -- rotating weekly -- boost immune system

EXHILARIN AM / PM mental acuity, relieves stress and hot flashes, energizes
FLAXSEED OIL 1,000 heart healthy, anti-cancer, detoxifies, improves brain function, good for eyes
FOLATE w//QUATRREFOLIC 400 AM red cell booster, heart healthy
GINKGO BILOBA EXTRACT -- 120 AM / PM mental alertness
GINGER ROOT EXTRACT - 1,100 AM/PM/BEDTIME (2 pills 3x a day, to ease IBS, assisting digestion to promote gastrointestintal comfort
GLUTAMINE 500 AM empty stomach -- amino acid, assists in gastro absorption, energizes
GRAPESEED EXTRACT 150 (AM) anti-oxideant, protects skin cells, can cross blood-brain barrier, protects brain and spinal nerves against free radical damage, exhances anti-tumor effect, protects liver, strengthens connective tissues including heart system, supports immune system and slows aging
IMMUNE BOOSTER New Chapter Lifeshield mushroom blend AM + PM
LUTEIN 40 w/1 Zeaxthin AM eye health, prevents tearing all day, assists in preventing cancers
LYSINE 500 AM empty stomach bolsters immune function
NAC 600 (AM) supports healthy liver function, rids body of toxins
NADH (AM PM) on empty stomach -- anti-oxidant, relieves chronic fatitude, energizes, boosts mental acuity, supports healthy oxygen-rich blood, detoxifies kidney, lungs, bowels and blood stream toxins
OMEGA 3 -- (Vitacost brand) 2,100 AM + PM -- EPA + DHA -- (HER2 site's RB has written a book on the multiple benefits of Omega 3, most especially for breast cancer patients and for far more reasons to include in your list) traditional diet of Greece is highly recommended by many experts
PHYTO FORMULA 1 scoop in OJ in AM for chronic fatigue
POTASSIUM 99 AM + PM energizes, heart healthy
PROBIOTIC Garden of Life Primal Defense for IBS (AM) and normal bowels
PROBIOTIC Vitacost 10-20 IBS (PM) markedly helps normal bowels
RESVERATROL 250 (AM PM) tumor shrinking, boosts immune system, anti-oxidant, heart healthy, HER2 blocker
SELENIUM 200 AM -- anti oxidant, protects cells from damage
THEANINE 400 PM bedtime 2 pills reduces stress, increase GABA, dopamine and serotonin production, crosses brain barriet, boosts T cells
WHITE KIDNEY BEAN 2,000 AM/PM carb blocker
WOBENZYME -- 1-2 AM + PM -- anti inflammatory (which is the cause of all ailments and disease -- it is an immune booster and eases pain of joints, etc.)
ZINC -- 30 AM immune booster
__________________
Andi BB
'95 post-meno dx Invasive LOBULAR w/9cm tumor! YIKES + 2/21 nodes. Clear mammo 10 mnths earlier. Mastec/tram flap reconst/PORT/8 mnths chemo (4Adria/8CMF). Borderline ER/PR. Tamoxifen 2 yrs. Felt BLESSED. I could walk and talk, feed and bathe myself! I KNEW I would survive...

'98 -- multiple mets to liver. HER2+ 80%. ER/PR- Raging, highly aggressive tumors spreading fast. New PORT. 9 mnths Taxotere Fought fire w/fire! Pronounced in cautious remission 5/99. Taxotere weekly for 6 wks, 2 wks off -- for 9 mnths. TALK ABOUT GRUELING! (I believe they've altered that protocol since those days -- sure hope so!!)
+ good old Vit H wkly for 1st 3 yrs, then triple dosage ev 3 wks for 7 yrs more... The "easy" chemo, right?! Not a walk in the park, but not a freight train coming at 'ya either...

Added Herceptin Nov '98 (6 wks after FDA fast-tracked it for met bc). Stayed w/Vit H till July '08! Now I AM FREE! Humbly and eternally grateful for this life-saving drug! NED since '99 and planning on keeping it that way. To hell w/poor prognosis and nasty stats! STOPPED VIT H JULY '08...! REMAIN STABLE... Eternally grateful...Yes is a world & in this world of yes live (skillfully curled) all worlds ... (e e cummings) EVERY DAY I BEAT MY PREVIOUS RECORD FOR # OF CONSECUTIVE DAYS I'VE STAYED ALIVE. Smile KNOWING you too can be a miracle. Up to me and God now...

Last edited by Andrea Barnett Budin; 09-16-2016 at 12:07 PM..
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Old 09-16-2016, 01:33 PM   #2
donocco
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Re: My really big supplements list

Regarding Vitamin D testing they sell a test on amazon. It costs about 70 dollars. I just glanced at it and don't know if it is single use or multiple use.
It involves pricking your finger and the the test can be done at home.

Paul
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Old 09-16-2016, 01:41 PM   #3
Andrea Barnett Budin
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Re: My really big supplements list

Hi.

I get ev 6 mnth bloodwork done. CBC, tumor markers, lipid profile, blah, blah.

I request Vitamin D and B12 to be tested to compare and keep an eye on.

I have Medicare and United Health Supplemental.

All covered as far as I know.

I used to get ev 3 mnth bldwork done. Have graduated.
__________________
Andi BB
'95 post-meno dx Invasive LOBULAR w/9cm tumor! YIKES + 2/21 nodes. Clear mammo 10 mnths earlier. Mastec/tram flap reconst/PORT/8 mnths chemo (4Adria/8CMF). Borderline ER/PR. Tamoxifen 2 yrs. Felt BLESSED. I could walk and talk, feed and bathe myself! I KNEW I would survive...

'98 -- multiple mets to liver. HER2+ 80%. ER/PR- Raging, highly aggressive tumors spreading fast. New PORT. 9 mnths Taxotere Fought fire w/fire! Pronounced in cautious remission 5/99. Taxotere weekly for 6 wks, 2 wks off -- for 9 mnths. TALK ABOUT GRUELING! (I believe they've altered that protocol since those days -- sure hope so!!)
+ good old Vit H wkly for 1st 3 yrs, then triple dosage ev 3 wks for 7 yrs more... The "easy" chemo, right?! Not a walk in the park, but not a freight train coming at 'ya either...

Added Herceptin Nov '98 (6 wks after FDA fast-tracked it for met bc). Stayed w/Vit H till July '08! Now I AM FREE! Humbly and eternally grateful for this life-saving drug! NED since '99 and planning on keeping it that way. To hell w/poor prognosis and nasty stats! STOPPED VIT H JULY '08...! REMAIN STABLE... Eternally grateful...Yes is a world & in this world of yes live (skillfully curled) all worlds ... (e e cummings) EVERY DAY I BEAT MY PREVIOUS RECORD FOR # OF CONSECUTIVE DAYS I'VE STAYED ALIVE. Smile KNOWING you too can be a miracle. Up to me and God now...
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Old 09-16-2016, 03:00 PM   #4
Juls
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Re: My really big supplements list

Hi Andi

Good to read this again! Not quite there yet but trying!

I've mentioned before - Vit D not tested routinely in UK . Think it should be.
I asked last year if mine could be tested. Came back at 70 (had been taking tablet for a few months & no idea what it was at before supplements.) The Nurse looking after me had also requested a test - hers came back at 17! Would love to know what my level was at BC diagnosis!

If hospital won't check Vit D level - Think there is a couple of companies here that will send home kit for testing. Cost about £50.

Just what is their reluctance at hospital to suggest or even discuss vitamins and supplements?
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Old 09-16-2016, 03:50 PM   #5
MaineRottweilers
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Re: My really big supplements list

Andi! Hello, have missed you around here. Thanks for updating the supplement list. Amazed by your success and striving to emulate it.
__________________
Tracy Arcari
___________________________________________
11/12 BSE ignored the lump for SIX months.
5/1/13 IDC ER/PR- HER2/neu+++
5/14/13 Mastectomy and SN biopsy
5/20/13 IDC Stage IIb Grade 3 Nodes 1/4 also IDC and DCIS multi focal in remaining dissected tissue.
5/30/13 MUGA and CT thorax, abdomen & pelvis, establish baseline.
6/4/13 Installed my little purple power port.
6/14/13 Chemo started TCH
6/14/13 Informed of suspicious ares on scans scheduled PET.
7/1/13 PET Scan NED!
9/27/13 FINAL CHEMO taken! ----well, maybe not.
10/15/13 Three little tattoos.
10/24/13 Radiation begins and fourth tattoo placed.
11/27/13 Perfectly radiant! Radiation completed the day before Thanksgiving and so, so much to be thankful for this year and every day hereafter.
1/2/14 Happy New Year, you have a Goiter? Muga down to 59%.
1/17/14 Hashimoto's Dz Dx'd. Now maybe I'll feel BETTER!
5/2/14 Herceptin completed! New kitten!
8/19/14 Prophylactic mastectomy (right) and PORT OUT! I'm DONE and now I really am a SURVIVOR.
2/15 Started not feeling so swell. Memory lapses and GI issues with nausea and blurry vision.
4/30/15 U/S cystic gallbladder, cyst on right ovary and mass in my uterus. GYN consult scheduled---and cancelled. I'm not ready.
5/4/15 Brain MRI clear (big sigh of relief)
7/30/15 Back Pain
8/31/15 Radiograph: compression fracture L2
9/10/15 Bone Scan positive
9/21/15 CT scan conclusive for tumor
10/1/15 CT guided biopsy & Brain to Pelvis MRI reveal additional lesions on spine C6, T10, T11 and L2 is collapsing.
10/8/15 Abbreviated pathology: new tumor(s) poorly differentiated carcinoma consistent with known breast primary.
ER-/PR+ (40%)
HER2/neu+++ Ki-67 4% Pancytokeratin AE1/3 Strong Positivity in all malignant cells.
10/13/15 Abnormal Dexa: moderate risk of fracture to both femoral head/neck R&L. Significant risk to lumbar spine.
10/14/15 Radiation consult back to the cooker.
10/20/15 MUGA 50% down from 54% after a year off Herceptin (???)
10/21/15 Kyphoplasty L2
10/22/15 Re-start Chemo: Perjeta, Herceptin & Taxotere
10/26/15 PET Scan confirms C6, T10-11, L2, new lesion noted at L4 but no visceral involvement---Happy dance!!!
10//29/15 Xgeva
10/29/15 Radiation Simulation--three new tattoos to add to my collection. Just call me Dotty.
10/30/15 CA27-29 63 U/mol (<38 U/mol)
11/3/15 First Trip to see Dr. E. Mayer at DFCI
11/4/15 Surgical consult to re-install my little purple power port.
11/9/15 Radiation treatment one of five.
11/10/15 Installed my little purple power port and not a moment too soon, took them four tries to get an IV started today.
Yes, we really are going down this road again.
12/5/15 CT for suspected pulmonary embolism demonstrates increase in T10-11 mets.
12/8/15 Bone Scan uptake at T10-11 (not seen 9/17/15) & Right 8th Rib (not evident on PET 10/26/15)
12/10/15 Consult Re: PROGRESSION. Halt THP due today. Schedule PET and order TDM1 for next week. PLAN B.
12/14/15 PET scan: NO PROGRESSION! THP is working, metabolic activity minimal. Merry Christmas to me! Sticking with PLAN A, it's working.
1/7/16 Start Taxol weekly instead of Taxotere (has been too taxing and not rebounding between txs.) Zometa instead of Xgeva.
3/28/16 CT shows new sclerotic lesions on T12, L3, L5, L6, right ilium and head of right femur. No uptake on Bone Scan (progression????)
3/31/16 Discontinue Taxol start Arimidex, still getting H&P.
6/2/16 Discontinue Arimidex and start Exemestane.
6/18/16 PET is NEAD!!
7/1/16 Discontinue Exemestane and restart Armidex (SEs)
8/29/16 CT/Bone Scan Stable (still uptake at T10-11)
10/3/16 BSO pathology negative
10/10/16 MRI: Brain clear!
10/14/16 Switched care to Harold Alfond Center for Cancer Care
11/24/16 Xgeva, New MO preference to Zometa
12/12/16 CT/Bone scan Mostly stable significant uptake at L2 plan to PET
1/12/17 PET shows NEAD celebrate with a new puppy!
3/29/17 CT & BS = NEAD
7/31/17 Aetna denies access to H&P <gearing up for a fight>
8/4/17 CT& BS= STABLE
8/9/17 No treatment, Aetna still denying H&P
8/14/17 Aetna appeal approved H&P through February 2018!
2/5/18 CT & BS = STABLE

//
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Old 09-16-2016, 04:27 PM   #6
Andrea Barnett Budin
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Re: My really big supplements list

Hi Tracy. Hi Juls.

Have been aware the past 20 yrs that western medicine doesn't believe in supplements. Not proven science. My integrative onc (who I like to call my nutritional or nut onc) says they need to test the supps at higher dosages.

Sure he's right.

When I recurred in '98 and went to him, he gave me the list. Teaches meditation and guided imagery (also considered wackery by western med). I knew how to do this already. Knew about the mindbody connection. Had seen PBS specials in the 70s and 80s. Absolutely resonated with me. Made sense. As did the investigations into the existence of a Soul.

At the time of death, a small amnt of weight is lost every time they tested. Hypothesized it could me the Soul departing from it's home on Earth. Again, I felt it was like a REMEMBERING of things I never knew I knew.

So I had my supps list and told my reg onc that I planned on taking these supps. Made a list -- gave dosage and reasons. He suggested I wait until after chemo. That there could be counter indications, conflict with chemo agents. THEY DON'T KNOW !!! Bottom line.

I called my nut onc and explained. Of course he was familiar with this tired old response. NO, he said, IT'S DURING CHEMO, WHEN YOU'RE IMMUNE SYSTEM IS COMPROMISED THAT YOU MOST NEED THE SUPPS.

I boldly told my onc (who I still love and highly respect for his genius and excellent advice in general) that I intended to take the supps anyway. Right off.

As it is, within a mnth on Taxoere, I developed SHINGLES ! Itchy bug bite ??? mid abdomen. Saw another onc for a 2nd and a 3rd opinion. In doing that, I asked, the day after the bug bite occurred SOOO ITCHY / painful and in retrospect I felt so sick (and thought it was due to the chemo). In the waiting room I put my head in my husband's lap !! NEVER would do such a thing, but I felt I was going to pass out.

HERPES ZOSTRIX the onc said. What ????? That's shingles. Went immediately on Valtrex 2 or 3 x a day to fight it off.

When I went to my NY onc for tx he looked and said, YOU CAN'T GET CHEMO WITH SHINGLES. I was terrified. I KNEW I needed the chemo to survive too many tumors to count throughout my liver !!! I went home, looked up in my NUTRITIONAL HEALING manual SHINGLES. All ailments are listed alphabetically and they list and explain the necessary supps to take.

So I ADDED a few. Sent my husb to health food store to purchase them and began taking them immediately. I was so very sick with pain and the spread of the rash all around the torso front and back!!

You can have Shingles for months, even a whole year. I would die if I couldn't have the chemo.

I returned to the NY onc 10 days later for a checkup. How are you doing? I smiled and said, GOOD. He doubted and smiled and said, Let me see. I lifted my shirt sitting on the exam table and he walked all around. He said, delighted -- YOU'RE RIGHT !!! All the pustules had crusted over and were healing. YOU CAN GET CHEMO, the onc said. YOU CAN GET IT TODAY !!!

CURED IN 10 DAYS. My immune system was boosted. Took the meds required right off, luckily !!! And added more supps specifically to tx Shingles.

So -- I believe in my supps. They are miraculous. Hospitals think we're nuts (those who take all the supps and flush $$$ down the toilet). My 3rd opinion onc in NY (from Mt. Sinai, very highly regarded) didn't want to mess with my belief system but admitted to me that he had given 100 of pages of lectures against supps.

This is what we're up against. Mainstream medicine is clueless. They don't teach medical students about nutrition or supps. Maybe a few hrs on a single day. I asked my SIL who is an OB GYN. Conservative medicine is what our docs practice. Not open to alternative, integrative medicine !!!

I am!!! I attribute my success to the chemo and the surgeries, but also to the meditation, the mantras, the guided imagery, my Zen attitude (some say I am like a Buddhist).

I envision myself far, far into the future. Daily. In vivid detail. Through meditation. Daily. All these yrs.

I wish all my Sisters miraculous success ! And BELIEF. And courage, cause you'll be meeting much opposition to such "lunacy". Forewarned is forearmed. Right ??

Love and Light dear Ladies.

Andi

Always here for you. Any time. Just PM me or e me. I love to help. It is part of why I have been spared my life. I have messages for you.

And you each have messages for me ! That's why we're here, people. To love and help one another. And carry messages for one another.
__________________
Andi BB
'95 post-meno dx Invasive LOBULAR w/9cm tumor! YIKES + 2/21 nodes. Clear mammo 10 mnths earlier. Mastec/tram flap reconst/PORT/8 mnths chemo (4Adria/8CMF). Borderline ER/PR. Tamoxifen 2 yrs. Felt BLESSED. I could walk and talk, feed and bathe myself! I KNEW I would survive...

'98 -- multiple mets to liver. HER2+ 80%. ER/PR- Raging, highly aggressive tumors spreading fast. New PORT. 9 mnths Taxotere Fought fire w/fire! Pronounced in cautious remission 5/99. Taxotere weekly for 6 wks, 2 wks off -- for 9 mnths. TALK ABOUT GRUELING! (I believe they've altered that protocol since those days -- sure hope so!!)
+ good old Vit H wkly for 1st 3 yrs, then triple dosage ev 3 wks for 7 yrs more... The "easy" chemo, right?! Not a walk in the park, but not a freight train coming at 'ya either...

Added Herceptin Nov '98 (6 wks after FDA fast-tracked it for met bc). Stayed w/Vit H till July '08! Now I AM FREE! Humbly and eternally grateful for this life-saving drug! NED since '99 and planning on keeping it that way. To hell w/poor prognosis and nasty stats! STOPPED VIT H JULY '08...! REMAIN STABLE... Eternally grateful...Yes is a world & in this world of yes live (skillfully curled) all worlds ... (e e cummings) EVERY DAY I BEAT MY PREVIOUS RECORD FOR # OF CONSECUTIVE DAYS I'VE STAYED ALIVE. Smile KNOWING you too can be a miracle. Up to me and God now...
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Old 09-16-2016, 07:18 PM   #7
Kkmom
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Re: My really big supplements list

Andi,
How about tumeric/curcumin? Maybe it is on your supplement list and I missed it. Pam
__________________
[FONT=Tahoma]Dx 12/14/2012, IDC, 2cm, Stage II, Grade 2, 4/5 nodes, ER+/PR+, HER2+[SIZE=2][COLOR=Blue]
Surgery 12/28/2012 Lumpectomy (Right); Lymph Node Removal: Axillary Lymph Node Dissection (Right)
Chemotherapy 02/06/2013
Herceptin, Carboplatin, Taxotere Started 6 rounds on 02/06/2013 Herceptin
Finished chemo - May 22, 2013
Radiation Therapy 06/12/2013 - 36X External
TM Marker - 13 October, 2013
TM Marker - 15 November, 2013
Annual Mammagram - 3D - Both Breast - CLEAR!!!
Colonscopy - 1st-Clear - November 18, 2013
CT Scan-Results-Clear - November 27, 2013
BC Diagnosis-1 Year - December 14, 2013
TM - holding steady at 15 - December 24, 2014
TM - 24.2 - January 12
Herceptin Treatment - Last One-February 4, 2014!!!
TM - 3.7 - February 4, 2014
MRI & CT - February 21, 2014 - All Clear
NED - and my doctor said - "well, it looks like you are NED - your MRI and CT are clear - Febuary 25, 2014
TM - 18.2 - February 21, 2014
Port Removed - Scheduled for Wed, March 19, 2014
Port Removed - Yeah!!! I feel lighter already!!!
TM - 15.3 - March 25, 2014
Diagnostic 3D Mammogram - Rt Breast - All Clear!!! - Tuesday, May 13, 2014
TM-15.5 - June 25, 2014
Diagnostic 3D Mammogram - Nov. 2014 All Clear!!!
Diagnostic 3D Mammogram-Rt Only-May,2015-All Clear!!!
Diagnostic 3D Mammo-Annual-Nov 2015-Right Clear!!! - Left Breast-found 5 mm CYST. Aspirated - all clear!!
TM - Nov 2015 - 18.2
NED-December, 2015 - 3 Years NED!!!
TM-Feb 2016 - 13.7
TM-June 2016 - 13.3
TM-Oct 2016-10.0
Annual 3D Mammo-Nov, 2016-All Clear!!!

Annual Mammogram - November 2017 - ALL CLEAR. i AM 5 (YES) YEARS OUT!!!

NED - 10 Years Out!! - December, 2022
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Old 09-17-2016, 11:04 AM   #8
Kim in CA
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Re: My really big supplements list

Thanks for reposting this Andi. I printed it out, so I can update my cabinet of supplements!

Kim
__________________
Diag. Feb 1997 4.5cm IDC <10%ER+, PR-. 5 out of 36 nodes +. Mastectomy followed by 3 rounds Adriamycin/Cytoxin.


5/1997 Hi Dose Chemo w/ Stem cell rescue. Spent 4 weeks in isolation ward. Then 6 weeks radiation.

9/2001 widespread mets to liver. 8 mos Taxotere/Herceptin brought me almost to NED. Stop Taxotere & add Femara .

11/2002 liver resection to remove spot that turned out to be necrosis. Officially NED!

7/2003 Tumor markers rising add Xeloda Disastrous reaction, 8 days hospital, but tumor markers came back to normal!

June -Dec 2004 UW Vaccine Trial.

7/2005 MRI single 11mm brain met
8/2005 Gamma Knife.

Brain MRI @3 months NED!

2006-2011 brain/body still NED

8/04/11 Taking Herceptin break, will monitor with tumor markers.

6/20/12 Tumor markers begin to rise. CA15-3 is 31.3 and Her2 Serum is at 17.1 Decide to repeat in one month.

7/23/12 CA15-3 now 49.3
Her2 Serum 26.8

8/6/12 Back on Herceptin
CA15-3 now 76
Her2 Serum now 49

11/7/12 Add weekly Taxotere for 4 cycles

2/2013 Stopped Taxotere added Perjeta. MRI shows approx. 50% reduction liver mets. CA15-3 still elevated @ 55. Will continue on just Herceptin & Perjeta.

November 2014 Continuing on Herceptin, Perjeta, and
Femara indefinitely. Guess I'm NED again, but watching those tumor markers carefully!

Dec. 2015 PET scan reveals mass in perirectal area of abdomen.biopsy confirms. Still Her2+, but no longer ER+. Bye bye Femara

Jan 2016 Begin Kadcyla

March 2016 PET scan shows tumor now barely visible, still NED everywhere else.
2016/2017 continue Kadcyla

November 2017 brain MRI reveals small focus of T2 hyperintensity with possible 4mm enhancing nodule. Short term follow up MRI suggested. Stay tuned...
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