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Old 10-09-2012, 01:07 PM   #1
MikeF
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Join Date: Sep 2010
Location: Shelby, N.C.
Posts: 114
Update on Barb

There sure seems to be an overabundance of bad news on here recently. I hate to add to it but Barbs doctor was a little discouraged today when we went in for her third TDM-1 treatment. As you may know Barbs has been struggling with what they diagnosed as Pneumonia since the 20th of Sept. After several rounds of antibiotics it appears to have settled down somewhat, at least there is no fever. As I said we went in for treatment today and her blood work looks fine so they sent her back to see the doctor. I could just tell he was discouraged at what he sees he was really hoping for retreat of the skin mets. He had outlined with a sharpie where it was and it hasnt crossed the line but it hasnt moved away either. When he listened to her lungs he felt there was still fluid and suspects there is cancer in her left lung. He said he doesnt want to give up on the TDM-1 after only two treatments and sent her back for her third. His plan at this point is scans on the 26th and if there is no further progress discontinue the TDM-1 and go with Haloven without Herceptin because my insurance wont pay for both. The discouraging thing for us is not only what appears to be ineffective TDM-1 but also his comment was theres not a whole lot of options from here. Dont get me wrong Im not trashing him I have always felt he really cares for Barb and wants to see her better. Hopefully this third round of TDM-1 will do the trick. There is a verse in Mark 9:24 that is quickly becoming a favorite of mine I have altered slightly to better fit my heart. And straightway the husband of the wife cried out, and said with tears, Lord, I believe; help thou mine unbelief
__________________
Diag. Aug. 2010
ER- PR- Her-2 +++ Stage IV
Mets to T 6th Vertabrae
Radiation to spine
10/23/10StartNavelbine
11/19/10 Port installed
11/22/10 Started 2nd cycle
1/10/11 Finished 2nd cycle
1/24/11 Herceptin Only
3/7/11 progression, start Taxol/Herceptin
4/18/11 Skin mets appear increase treatments to weekly
rash spreads to right breast
7/5/11 enroll in TDM-1 study
7/29/11 randomly assigned Tykerb drop out of trial and start Tykerb /Herceptin no Xeloda skin mets gone Tykerb working
1/31/12 Skin mets return add Xeloda
5/9/12 Stop Tykerb skin mets back
5/17/12 Return to Navelbine/Herceptin
6/26/12 start process for TDM-1 compassionate access
8/28/12 Start TDM-1
10/9/12 third TDM-1 no response yet
10/23/12 Start Haloven
1/17/12 Start Perjeta/ Herceptin/Taxotere
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