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Old 12-07-2014, 06:39 AM   #1
Cath
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Join Date: Nov 2012
Posts: 67
Re: I hope I did the right thing...this is long!

What you did brought tears to my eyes. That was a very kind act. Hope is all we have and if we can draw strength from each other and give strength and hope to those we don't know but in need, it is a wonderful gesture. Don't think twice - what you did was wonderful!
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Cathy

Routine mammogram 6-29-11
Ultrasound 7-5-11
Biopsy 7-11-11
Right modified radical mastectomy 7-18-11 with 7 out of 24 lymph nodes positive
Stage IIIC, Grade 3, Estrogen + 100%, HER2 +
Had 5 tumors in right breast, none of which showed up on the mammogram (What showed up on mamm was a lymph node)
Lymphatic vascular invasion
Lymphedema right arm (started shortly after surgery)
TCH started August 15, 2011
Finished Taxotore and Carboplatin 11-28-11
Radiation x 36 - finished Feb. 3, 2012
Herceptin weekly for 1 year - finished 8-13-12
Arimidex started Feb. 2012 for 5 years
Left prophylactic total mastectomy March of 2012

Arimidex stopped August 2014 due to side effects
Aromasin started Sept. 2014
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Old 12-07-2014, 07:50 AM   #2
thinkpositive
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Join Date: May 2014
Location: San Diego
Posts: 411
Re: I hope I did the right thing...this is long!

Cathy,

Who am I to judge if you did the right thing? It is true that some of us respond better to treatment than others. However, even with an initial good response we don't know how long we will be NED. There is so much yet to learn about this disease that we have. I often look for somebody to tell me that I am "cured" and that I will never have a recurrence. However, the fact is that there aren't any stats out there for my treatment (neoadjuvent TCHP)

I believe that most of us want to comfort others and offer support when we see that somebody is battling this disease. For me personally, when somebody (other than my doctors) say that "you'll be alright", I don't interpret this to mean that I'm going to survive this disease. Instead I interpret this as a gesture of well wishes and to keep positive thoughts in my mind which puts a person in the best place mentally to fight this disease.

Cathy, you did what your heart told you to do. Trust in yourself.
__________________
8/2013 Diagnosed IDC Left Breast ER-/PR-/HER2+ Stage 3C, DCIS ER+/PR+/HER2- Right Breast (54 yr)
8/2013 PET/CT scan shows mass in uterues and suprclavicular nodes
8/20/13 Begin 6 rounds TCH chemo, Perjeta added for rounds 4-6
9/2013 After 1st round of chemo, mass in neck and breast no longer able to feel
11/2013 Hysterectomy, mass from PET/CT scan not cancer (adenomylosis)
12/2013 Finished chemo
1/2014 Double mastectomy with chest expanders
1/2014 Pathology report from surgery and SNB show complete pathological response!
3/2014 Finish IMRT radiation
8/2014 Fat transfer to radiated breast
8/2014 Completed 1 yr of Herceptin
10/2014 exchange surgery expanders removed implants placed
6/2015 3D nipple and areola tattoos
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Old 12-07-2014, 11:40 AM   #3
sassy
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Join Date: Sep 2005
Location: Mountains of Virginia
Posts: 2,267
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Re: I hope I did the right thing...this is long!

Cathy,

I don't think we ever do the wrong thing by offering support and empathy to others who are traveling this path. Who better relates or understands?

The simple fact that you showed you cared, said far more than any words.

In admiration,
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Rhonda (Sassy)
dx age 45
DX 2/15/05 Stage IIb (at surgery)restaged IIIa
Left mast .9cm tumor 5 of 14 nodes
Triple Positive
4 DD A/C
12 Taxol/Herceptin
33Rads
Strange infect mast site one year aft surg, hosp 1 wk
Herceptin for total of 18 months
Lupron Monthly 4 yrs
Neurontin for aches, pains and hot flashes(It works!)
Ovaries removed 11/09 stop Lupron and Neurontin
Arimidex 6 yrs (tried Femara, no SE improvement)
Tried Exemestane-hips got so bad could hardly walk
Back to Arimidex for year seven
Zometa 2X Annual for 7years, Lasix
Stop Arimidex 5/13
Stop Zometa 7/13-Bi-lateral Stress Fractures in Femurs from Zometa
5/14 Start Tamoxifen
3/15 Stem cell transplant to stimulate femur bone growth/healing
5/15 Complete fracture of right femur/Titanium rods both femurs
9/16 Start Evista stopTamoxifen
3/17 Stop Evista--unwelcome side effects!
NED and no meds.......
14YEARS NED!
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