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Old 05-23-2006, 06:38 AM   #1
DeborahNC
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For our Lyn

My sympathies to our Lyn's family. She was special to me in a very personal way.

Sweet Sister Lyn, my love goes with you. I will miss you so.
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Old 05-23-2006, 07:03 AM   #2
Sheila
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My heart goes out to Lyn's family...she endured a battle and always fought like a trooper....I will miss her wit and detailed posts....she is now watching over us....sending love and prayers to a "dear sister" who is now an angel.
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is fighting some kind of battle."



Hugs & Blessings
Sheila
Diagnosed at age 49.99999 2/21/2002 via Mammography (Calcifications)
Core Biopsy 2/22/02
L. Mastectomy 2/25/2002
Stage 1, 0.7cm IDC, Node Neg from 19 nodes Her2+++ ER PR Neg
6/2003 Reconstruction W/ Tissue Expander, Silicone Implant
9/2003 Stage IV with Mets to Supraclavicular nodes
9/2003 Began Herceptin every 3 weeks
3/2006 Xeloda 2500mg/Herceptin for recurrence to neck nodes
3/2007 Added back the Xeloda with Herceptin for continued mets to nodes
5/2007 Taken Off Xeloda, no longer working
6/14/07 Taxol/Herceptin/Avastin
3/26 - 5/28/08 Taxol Holiday Whopeeeeeeeee
5/29 2008 Back on Taxol w Herceptin q 2 weeks
4/2009 Progression on Taxol & Paralyzed L Vocal Cord from Nodes Pressing on Nerve
5/2009 Begin Rx with Navelbine/Herceptin
11/09 Progression on Navelbine
Fought for and started Tykerb/Herceptin...nodes are melting!!!!!
2/2010 Back to Avastin/Herceptin
5/2010 Switched to Metronomic Chemo with Herceptin...Cytoxan and Methotrexate
Pericardial Window Surgery to Drain Pericardial Effusion
7/2010 Back to walking a mile a day...YEAH!!!!
9/2010 Nodes are back with a vengence in neck
Qualified for TDM-1 EAP
10/6/10 Begin my miracle drug, TDM-1
Mixed response, shrinking internal nodes, progression skin mets after 3 treatments
12/6/10 Started Halaven (Eribulen) /Herceptin excellent results in 2 treatments
2/2011 I CELEBRATE my 9 YEAR MARK!!!!!!!!!!!!!
7/5/11 begin Gemzar /Herceptin for node progression
2/8/2012 Gemzar stopped, Continue Herceptin
2/20/2012 Begin Tomo Radiation to Neck Nodes
2/21/2012 I CELEBRATE 10 YEARS
5/12/2012 BeganTaxotere/ Herceptin is my next miracle for new node progression
6/28/12 Stopped Taxotere due to pregression, Started Perjeta/Herceptin
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Old 05-23-2006, 07:16 AM   #3
Kim in CA
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My heartfelt sympathy to dear Lyn's family. Lyn I will miss you sooo much! Your valiant spirit and sharp wit will always be an inspiration to me.

Until we meet again dear Lyn, Kim in CA
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Old 05-23-2006, 07:26 AM   #4
Cynthia
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Lyn, you will live as a legend in the hearts and minds of your friends around the world.
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Old 05-23-2006, 07:28 AM   #5
al from Canada
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I personally know how much pain Lyn's family will endure and my message to them is, lyn will always be a part of you, grieving is not pushing her out, it's accepting her spirit.

I truly wish that this hadn't happened and will mourn her loss.
Al
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Old 05-23-2006, 10:31 AM   #6
Julie2
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I am really sorry and feeling very depressed. Lyn was such a strong woman and one of the old timers on this board. We are surely going to miss her alot.

Julie
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Diagnosed in Sept 2004 while pregnant with the second child. Stage 3b, tumor 4.5cm, 4 auxillary and supraclav node positive. Her2+++ FISH 9.4 and er-,pr-.
Had dose dense neoadjuvant AC,Taxol then mastectomy,radiation+xeloda+Herceptin.
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Old 05-23-2006, 11:03 AM   #7
Vi Schorpp
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I'm so sorry for Lyn and her family. She had such a wit about her that even though so many of her postings were informative and helpful, I couldn't help but smile as I read through many of them. I love humor and I think I'll miss this trait the most regarding Lyn.
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Old 05-23-2006, 12:33 PM   #8
Lolly
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Goodby Lyn

Lyn has been a strong and steady presence in this group from the very early days; she was one of the first to answer my first post back in 2001. She never hesitated to speak her mind and always gave heartfelt, honest advice. I will miss her dearly. My love and prayers go out to her family.

<3 Lolly
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Old 05-23-2006, 12:53 PM   #9
Barbara H.
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First of all I want to tell Lyn's family how sorry I am. She was an incredible woman, and it must be really hard for those close to her. I just arrived home from work and this news was the first thing I read. Somehow we hope for a miracle, and again this was not to be. Nevertheless, Lyn fought to the end; she even was able to predict when the end was. She had so much humor. I always looked forward to reading her stories, for they were stories. I will miss her. Again, my condolences to her family and friends.
Barbara H.
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Old 05-23-2006, 01:59 PM   #10
kristen
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To Lynn's family.
I am so sorry for your loss. Lynn was such a wonderful woman. Her wit and her courageous battle will live on here. She reached out to many of us and to all of us she left an indelible mark. She will be missed, but not forgotten. God Bless, K
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Old 05-23-2006, 04:13 PM   #11
Cathya
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My sincere sympathy to Lyn, her family and to all of us here who cared for her. She truly was a living legend and an inspiration in the fight of this horrible disease which she fought with dignity, humour and personal strength. I am so sad tonight to hear of her passing and will miss her posts, her insights and her laughter. God bless Lyn in heaven.

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Old 05-23-2006, 05:23 PM   #12
Joe
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(copy of email sent today)

No doubt you have read the many messages on our website on Lyn's passing. We all feel that a shining light has suddenly been extinguished. I for one am personally saddened by her death and feel like the soul of our website has been ripped out.

Lyn, was one of our very first members on our website and certainly the first one from outside of the US. She has provided many newly diagnosed breast cancer patients with immeasurable inspiration. I just reposted an "autobiography" that Lyn wrote less than a month ago.

I am still amazed at how a person faced with so much adversity could continue of with such bright spirits and wonderful attitude. She also provided much amusement to us with her unique perspective on just about everything. I frequently mentioned her to the many research scientists and medical oncologists that we met at various breast cancer meetings.

Surely she is in heaven with her beloved father sipping essiac tea and sharing many fond memories. Heaven has a special place for people like both of them. We wish to extend our deepest sympathies, to her husband, sisters and their families.

If it is not too much trouble, could you send us a link to her obituary and also a picture of her so that we may post it on our website.

We also wish to make a donation in her memory. Please reply where you feel it will do the most good.

Hugs and Warmest Regards
Joe and Christine

HER2 Support Group
6973 Mimosa Drive
Carlsbad, CA 92011


tele: 760-602-9178
fax: 760-602-9153


christine@her2support.org

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