TIPTOE's 2008 Visit Schedule
Sorry, everyone, I have been knocked off the planet with a terrific gastro-intestinal flu that is going around. Not the way I wanted to lose 5 pounds in 4 days!!
From the responses to my last post on this subject we have the beginnings of a continued itinerary. Chrisy PMed me that both Marlys and Catherine has send their addresses, so I guess we can stay close to old schedule with Marlys being next.
Up to now:
Pink Girl - 9/24/07 - 9/29/07
Andi 10/9/07 - ???
Believe Marie & Ed ??? - ???
Becky 10/30/07 - 11/5/07
FauxGypsy 11/7/07 - ???
Kate 11/17/07 - ???
Riniana ??? - 12/14/07
Brenda 12/16/07 - 01/02/08
Sheila 01/03/08 -
Chrisy
We need a couple of ground rules on length of stay and transit time. No one should have to FedEx overnight to stay on schedule. Let me know if you agree with these:
1. 10-day maximum stay with a 4-day transit time = 2 weeks. They get 2 visits a month that way and not so rushed and there is a bit of wiggle room.
2. Exception to #1 is special need or special event to stay over for - but only a couple of days.
3. List below is flexible but we should try to stay "regional" for 2 or 3 visits.
4. Anyone I have missed from all the previous posts just chime in here and the list will update.
NEW LIST:
1. Jan 23-24 - from Chrisy to MARLYS (Idaho)
(Marlys can have for Valentine's so they won't be in transit - but off they go!)
2. Feb 15 - from Marlys to LAURIE(Ohio - for her end of treatment party)
3. End Feb to 10 March - Laurie to JONES (Mich.)
4. Mid March to 25 Mar - Jones to ??
5. Early to Mid April - ?? to STEPHN (Washington)
6. Mid April - Steph to ???
Mid April - early May - someone back east or midwest?
7. Early to mid May - HAZELJOYCE (Mass. - for her end of treatment shindig)
From here we have interest from:
JONES/Barb in Christmas, Mich.
StillHere in Wisconsin (she wanted Tiptoe for the spa trip)
Flori in Cal
Kathy in Tokyo
MaryAnne in Texas?
harrie from Hilo, AbbyDawg, Karen W from N. Calif., Lilyecuardorian, and MJo in Delaware
Tricia in Ireland (willl require MORE transit time and tracking)
I know there are more of you, hands up.
__________________
"When I hear music, I fear no danger. I am invulnerable. I see no foe. I am related to the earliest times, and to the latest." H.D. Thoreau
Live in the moment.
MY STORY SO FAR ~~~~
Found suspicious lump 9/2000
Lumpectomy, then node dissection and port placement
Stage IIB, 8 pos nodes of 18, Grade 3, ER & PR -
Adriamycin 12 weekly, taxotere 4 rounds
36 rads - very little burning
3 mos after rads liver full of tumors, Stage IV Jan 2002, one spot on sternum
Weekly Taxol, Navelbine, Herceptin for 27 rounds to NED!
2003 & 2004 no active disease - 3 weekly Herceptin + Zometa
Jan 2005 two mets to brain - Gamma Knife on Jan 18
All clear until treated cerebellum spot showing activity on Jan 2006 brain MRI & brain PET
Brain surgery on Feb 9, 2006 - no cancer, 100% radiation necrosis - tumor was still dying
Continue as NED while on Herceptin & quarterly Zometa
Fall-2006 - off Zometa - watching one small brain spot (scar?)
2007 - spot/scar in brain stable - finished anticoagulation therapy for clot along my port-a-catheter - 3 angioplasties to unblock vena cava
2008 - Brain and body still NED! Port removed and scans in Dec.
Dec 2008 - stop Herceptin - Vaccine Trial at U of W begun in Oct. of 2011
STILL NED everywhere in Feb 2014 - on wing & prayer
7/14 - Started twice yearly Zometa for my bones
Jan. 2015 checkup still shows NED
2015 Neuropathy in feet - otherwise all OK - still NED.
Same news for 2016 and all of 2017.
Nov of 2017 - had small skin cancer removed from my face. Will have Zometa end of Jan. 2018.
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