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02-05-2007, 08:27 PM
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#1
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Senior Member
Join Date: Feb 2005
Location: LI, NY
Posts: 660
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Hi from madubois63 2/5/07
Thank you for the phone call (Sandi) and e-mails (everyone else) and mostly for being concerned about me. The last month or so has been difficult. I caught a cold that really knocked the stuffing out of me, and my counts are not bouncing back. I have to get blood transfusions several times a week, and my onc decided I needed an emergency bone marrow biopsy this past Friday. They were worried that I may have had a leukemia relapse. The doc looked at the sample immediately and said he did not see any leukemia blasts (thank God). One medication I've been on MAY be keeping my counts low, so they changed my med's and are giving me Neupogen' shots. The big 100 day celebration is coming up next week. I am celebrating by having another bone marrow biopsy and a slew of other tests. I've had a little trouble eating and at least I got one good thing out of this whole mess - I am down 30 lbs. I'm quite happy about that. Otherwise, I am emotionally and physically shot, but today is better than yesterday and tomorrow will be better than today...I'll try not to let so much time go by without posting. I look forward to having enough energy to catch up on everyone and post like I used too. As of now, please know you are all in my prayers! PS - January marked my 7th year as a survivor!!!
__________________
Maryann
Stage IV Inflammatory BC 1/00
Mod Rad Mastectomy 24nod/5+
Adriomycin Cytoxin Taxol
Tamoxifen 4 1/2 yrs
Radiation - 32 x
Metastatic BC lung/liver 10/04
thorocentesis 2x - pleurodesis
Herceptin Taxatiere Carbo
Femera/Lupron
BC NED 4/05
chemo induced Acute Myeloid Leukemia 5/06
Induction/consolidation chemo
bone marrow transplant - 11/3/06
Severe Host vs Graft Disease of liver
BC mets to lung 11/07
Fasoladex Herceptin Zometa Xeloda
GVHD/Iron overload to liver
Avascular Necrosis/morphine pump 10/10
metastatic brain tumor
steriotactic radiosurgery
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02-05-2007, 08:45 PM
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#2
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Senior Member
Join Date: Feb 2005
Location: Norridgewock, Maine
Posts: 778
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So happy to hear from you!
Maryann, I will sleep better tonight knowing you are still fighting to stay with us. We were getting very concern. I decided to check this site one more time before calling it a day and am so glad I did. When no one answered the phone when I called this morning it was like someone kicked me in the stomach thinking you were in the hospital and just too ill to post. Thanks so much for finding the energy to send us a post. We are all praying for you and miss your posts. Sending you lots of love and a big hug, Sandy I had forgotten you were a year a head of me in diagnose.
__________________
Dx. 03/01, Rt. IBC
AC/Taxatere
Rt. MRM-with graft Lt. simple
5 rads-skin mets
Herceptin, taxol, carboplatin (taxol seem to be the magic drug)
Navelbine & xeloda (did not work)
topical miltex for skin mets
Tykerb/xeloda
thoracentesis x 2 left lung fluid shows cancer cells
Port removal (4 years) with power port replacement
Doxil
Updated 05-07 Scans show no bone or organ involvement we shall see!
I shall not pass this way again. Any good I can do or any kindness that I can show let me not defer or neglect it for I shall not pass this way again.
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02-05-2007, 08:48 PM
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#3
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Senior Member
Join Date: Feb 2006
Location: Acworth, GA
Posts: 2,104
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Mary Ann,
Thanks for posting. I was extremely worried about you and I'm glad that you seem to be doing well. I miss your posts as you have such a positive attitude and are just such an inspiration. I'll keep you in my prayers.
__________________
Kate
Stage IIIC Diagnosed Oct 25, 2005 (age 58)
ER/PR-, HER2+++, grade 3, Ploidy/DNA index: Aneuploid/1.61, S-phase: 24.2%
Neoadjunct chemo: 4 A/C; 4 Taxatore
Bilateral mastectomy June 8, 2006
14 of 26 nodes positive
Herceptin June 22, 2006 - April 20, 2007
Radiation (X35) July 24-September 11, 2006
BRCA1/BRCA2 negative
Stage IV lung mets July 13, 2007 - TCH
Single brain met - August 6, 2007 -CyberKnife
Oct 2007 - clear brain MRI and lung mets shrinking.
March 2008 lung met progression, brain still clear - begin Tykerb/Xeloda/Ixempra
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02-05-2007, 09:01 PM
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#4
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Senior Member
Join Date: Sep 2005
Location: Mountains of Virginia
Posts: 2,267
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Maryanne,
So good to hear from you. You remain in my thoughts and prayers.
________
Web shows
Last edited by sassy; 08-22-2011 at 09:05 AM..
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02-06-2007, 02:06 AM
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#5
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Senior Member
Join Date: Sep 2005
Location: france
Posts: 1,648
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Maryann,
thanks for posting and yes tomorrow will be better.
sending love and hugs
sarah
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02-06-2007, 04:02 AM
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#6
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Senior Member
Join Date: Sep 2005
Location: Grand Rapids, MI
Posts: 1,516
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Maryann...
I'm sorry you have been having so many bumps in the road and pray that it gets better...SOON. congratulations on your 7 years and heres to ANOTHER 7+ years surviving. Take care and God bless.
Rhonda
__________________
Rhonda
Dx 2/1/05, Stage 1, 0 nodes, Grade 3, ER/PR-, HER2+ (3.16 Fish)
2/7/05, Partial Mastectomy
5/18/05 Finished 6 rounds of dose dense TEC (Taxotere, Epirubicin and Cytoxan)
8/1/05 Finished 33 rads
8/18/05 Started Herceptin, every 3 weeks for a year (last one 8/10/06)
2/1/13...8 year Cancerversary and I am "perfect" (at least where cancer is concerned;)
" And in the end, it's not the years in your life that count. It's the life in your years."- Abraham Lincoln
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02-06-2007, 05:34 AM
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#7
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Senior Member
Join Date: Oct 2005
Location: TAMPA, FL
Posts: 568
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Good To Hear From You
MARY ANN
Its so good to hear from you again. Sorry to hear about your set backs but glad to hear each day is getting better, and it will.
I had a stem cell transplant in 1999 and know some of what you speak but everything gets better as some time passes. I am sure that cold you got did not help matters. Am sorry you have to have so many bone marrow biospy's. Those are not fun.
Take care of yourself and congrats on your SEVEN YEARS and wishing you many more to come.
__________________
Irene from Tampa
1996 - INFILT DUCTAL CAR.W/ LYMPH NODE INVOLVEMENT. ADRIA/CYTOXIN/5FU
1999 - RECURR. TO AUXILA AND 2 TUMORS IN LIVER
TREAT: STEM CELL REPLACEMENT/HERCEPTIN.
2002 - RECUR TO LIVER
TREAT: NAVELBINE, THEN GEMZAR, THEN XELODA.
2004 - TUMORS STILL IN LIVER
TREAT: RFA TO LIVER
STABLE UNTIL
2004 - TUMOR PROGRESSION IN LIVER.
TREAT: RESECT HALF OF LIVER.
2005 - RECURR TO LYMPH NODE OUTSIDE OF LIVER.
TREAT: TAXOL/CARPO/HERCEPTIN. FAILED ON
THIS TRIO. STARTED ON ABRAXANE.
2006 - PROGRESS WITH 2ND TUMOR GROWTH.
TREAT: AUG. BEGAN ON TYKERB/XELODA
TRIAL. CONSIDERED STABLE TO DATE.
2007 - TAKEN OFF OF TYKERB/XELODA TRIAL DUE TO
PROGRESS STARTING TYKERB/AVASTIN.
NOV 2007 - SCANS SHOW PROGRESS TUMOR GROWTH
IN ABDOM. AND TWO NEW TUMORS IN NECK AREA.
BEGAN HERCEPTIN/AVASTIN/TAXOTERE
Feb 08 - Ixempra/Xeloda
June 08 - Her/DM1 trial
"I WANT TO BE AN OUTRAGEOUS OLD WOMAN WHO NEVER GETS CALLED AN OLD LADY. I WANT TO GET SHARP EDGED & EARTH COLORED, TILL I FADE AWAY FROM PURE JOY."
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02-06-2007, 06:13 AM
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#8
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Senior Member
Join Date: Aug 2006
Location: Sheboygan, WI
Posts: 2,582
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Hi Maryann,
So happy to read a post from you. I pray you continue to get stronger and stronger each day.
God Bless and a cyber hug I send,
Mary Jo
__________________
"Be still and know that I am God." Psalm 46:10
Dx. 6/24/05 age 45 Right Breast IDC ER/PR. Neg., - Her2+++ RB Mast. - 7/28/05 - 4 cm. tumor Margins clear - 1 microscopic cell 1 sent. node No Vasucular Invasion 4 DD A/C - 4 DD Taxol & Herceptin 1 full year of Herceptin received every 3 weeks 28 rads prophylactic Mast. 3/2/06
17 Years NED
<>< Romans 8:28
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02-06-2007, 06:15 AM
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#9
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Senior Member
Join Date: Nov 2005
Location: Ireland
Posts: 3,463
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Nice to hear from you
Maryann you ARE a survivor in every sense of the word!
Congrats on your 7nth year and many many more are wished for you.
Glad you're still positive.
Tricia
__________________
Tricia
Dx July '05 IDC 1.9cm Triple positive 3/9 nodes positive
A/C X 4 ..Taxol/Herceptin x 12 wks then herceptin 1 yr
Rads x 36 ..oophorectomy August '06
Currently taking Arimidex..
June 2011 osteopenia/ zometa x1 yearly- stopped Zometa 2015 as Dexa show normal bone density.
Stopped Arimidex July 2014- Restarted Arimidex 2015 for a further two years on the advice of my Onc.
2014 Normal Dexa scan
2018 Mammo all clear, still NED!
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02-06-2007, 06:52 AM
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#10
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Senior Member
Join Date: Apr 2006
Location: Wilmington, Del.
Posts: 1,126
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Take care. Don't try to do too much -- not easy when you are raising kids, I know. It sounds like you are having a rocky recovery. This time next year I trust you will be strong again.
__________________
MJO
IDC, Stage I, Grade 2
Oncotype DX Score 32
Her2++ E+P+, Node Neg.
Lumpectomy 11/04/05 Clear Margins
3 Dose dense AC (Couldn't tolerate 4)
4 Dose dense Taxol & Herc. (Tolerated well)
36 weeks Herceptin (Could not complete one year due to decrease in MUGA score)
2 years of Arimidex, then three years of Femara
Finished Femara May 2011
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02-06-2007, 07:30 AM
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#11
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Senior Member
Join Date: Oct 2005
Location: New Jersey
Posts: 3,154
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Hi Girl....
So good to hear from you....and we thought you were out busy shopping!
You are one tough cookie and you will get past this - I know it.
My prayers are "ALWAYS" with you (your ears should be ringing)
Keep us posted (when you can) we all love you and are with you.
Jean
__________________
Stage 1, Grade 1, 3/30/05
Lumpectomy 4/15/05 - 6MM IDC
Node Neg. (Sentinel node)
ER+ 90% / PR-, Her2+++ by FISH
Ki-67 40%
Arimidex 5/05
Radiation 32 trt, 5/30/05
Oncotype DX test 4/17/06, 31% high risk
TOPO 11 neg. 4/06
Stopped Arimidex 5/06
TCH 5/06, 6 treatments
Herceptin 5/06 - for 1 yr.
9/06 Completed chemo
Started Femara Sept. 2006
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02-06-2007, 09:02 AM
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#12
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Senior Member
Join Date: Nov 2005
Location: Northern Calif.
Posts: 981
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MaryAnne!
So good to see your post! I tsounds like you are having a tough month. However, I know that this will pass and you will be well on your way to many more years of good health.
Hugs and Prayers,
Lexi
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02-06-2007, 09:43 AM
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#13
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Senior Member
Join Date: Jul 2005
Location: Ft. Collins, Colorado
Posts: 546
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thank you for checking in
Can you tell how much you are loved? Rest well and prayers are always flowing your way.
__________________
with love and gratitude,
joy
dx stage I 2/2000*er/pr+; her- per IHC*lumpectomy*4 rounds A/C*30 rads*tamoxifen*dx stage 4 5/2002*huge mets to liver*tiny mets to lungs*stopped tamoxifen*5/02 taxotere/xeloda*her 2 checked with FiSH-her2+++herceptin *2/03 stopped chemo femara w/herceptin*zolodex*04 switched to aromasin w/herceptin*05 high estrogen tx*11/05taxol/carbo*7/06 stopped chemo; megace/herceptin*9/06navelbine/herceptin*5/07tykerb/xeloda great response*4/08 progression in liver; ooph/ faslodex /herceptin
6/08 began Herceptin DM-1
9/08 progression
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02-06-2007, 11:25 AM
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#14
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Senior Member
Join Date: Feb 2006
Location: South Florida
Posts: 131
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Maryann
I am thinking of you today and sending positive thoughts your way. I am Praying for you to have strength and recovery. Best wishes for your tests. This is a long road but worth every foot step, hope you are feeling better soon. Congratulations on 7 years and many more ahead of you!
Sending hugs your way
__________________
Lala
DX Fall05 Stage 4 er+ pr+ her2+ liver and bone mets
DX Fall06 Brain mets, Brain mets gone Spring 2007
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02-06-2007, 01:38 PM
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#15
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Senior Member
Join Date: Jun 2006
Location: San Antonio, TX
Posts: 2,357
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So glad to hear from you...
and to know that you are still in the fight! Wish you hadn't had to deal with the low counts, etc. You are incredible, Mary Ann. Here's believing that you will break all records for beating this stuff! Peace and love,
mary anne
__________________
MA in TX.
Grateful for each and every day....
Diag. 12/05 at age 60
Stage II, Grade 3, 4.5 cm primary tumor
ER/PR- Her2 +3 strongly positive
Her2 by FISH 7.7 amplified
vascular invasion
Ki67 20% borderline
Jan - March '06 Taxotere/Adriamycin X 3 to try to shrink tumor - it grew
April '06 Rt Modified Radical Mas, 7 of 9 nodes positive
April - Aug. '06 Herceptin/Taxol/Carboplatin X 8 (dose dense)
Sept - Dec. '06 Navelbine/Herceptin x 8 (dose dense)
Radiation & Herceptin Jan. 22 - March 1, 2007
Finished Herceptin Dec. 10 '08! One extra year.
Port removed August, 2012.
8 1/2 years since diagnosis! 5 1/2 Years NED!
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02-06-2007, 04:51 PM
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#16
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Senior Member
Join Date: Oct 2005
Posts: 476
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It is so wonderful to read your post. Your name is synonamous to courage. You are our idol and heroine. Please get as much rest as possible and fight our common enemy. Best of luck.
__________________
Ann
Stage 1 dx Sept 05
ER/PR positive HER2 +++ Grade 3
Invasive carcinoma 1 cm, no node involvement
Mastec Sept 05
Annual scans all negative, Oct 06
Postmenopause. Arimidex only since Sept 06, bone or muscle ache after 3 month
Off Arimidex, change to Femara 1/12-07, ache stopped
Sept 07 all tests negative, pass 2 year mark
Feb 08 continue doing well.
Sep 09 four year NED still on Femara.
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02-06-2007, 05:33 PM
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#17
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Senior Member
Join Date: Sep 2006
Location: Houston, Texas
Posts: 624
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I am so glad that you are okay. Congratulations on your 7th year anniversary. I am thinking of and praying for you!
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02-06-2007, 05:59 PM
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#18
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Senior Member
Join Date: Aug 2001
Location: Oregon
Posts: 1,756
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Dear Maryanne, thank you for the update! I know this is probably the worst part of this whole process, slowly getting your strength back when inside you're just aching to be well. You WILL BE WELL 
<3 Lolly
__________________
Sept.'99 - Dx.Stage IIIB, IDC ER/PR-, HER2+++ by IHC, confirmed '04 by FISH. Left MRM, AC x's 4, Taxol x's 4, 33 Rads, finishing Tx May 2000. Jan.'01 - local/regional recurrence, Stage IV. Herceptin/Navelbine weekly till NED August 2001, then maintenance Herceptin. Right Mast. April 2002. Local/Regional recurrence April '04, Herceptin plus/minus chemo until May '07. Gemzar added from Feb.'07-April '07; Tykerb/Abraxane until August '07, back on Herceptin plus Taxotere and Xeloda Sept. '07. Stopped T/X Nov. '07, stopped Herceptin Dec. '07, started Avastin/Taxol/Carboplatin Dec. '07. Progression in chest skin, stopped TAC March '03, started radiation.
Herceptin has served as the "Backbone" of my treatment strategy for over 6 years, giving me great quality of life. In 2005, I was privileged to participate in the University of Washington/Seattle HER2 Vaccine Trial.
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02-06-2007, 07:15 PM
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#19
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Senior Member
Join Date: Sep 2005
Posts: 589
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MaryAnn,
Great to hear from you! I pray that your toughest fights are behind you.
Eric
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02-06-2007, 08:09 PM
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#20
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Senior Member
Join Date: Sep 2005
Location: Vancouver, Canada
Posts: 329
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Dear Mayann,
I'm so glad to hear from you. 7 is a lucky number, I hope this is going to be the last part of fighting this terrible disease, and you live healthy and happy from now.
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